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996 replies

MaryAnnSingleton · 19/02/2013 14:04

new thread - bring the trolley over here....

OP posts:
Copthallresident · 28/02/2013 15:10

Gah! Completely messed up my --s and my *s , too tired to care...........

Copthallresident · 28/02/2013 15:14

BTW did someone mention whiskers? What's the problem, they help you feel your way through the undergrowth in the dark .

SolidGoldBrass · 28/02/2013 16:47

Hi all and thanks for good wishes. I am clear, it's fine, it was a cyst or a fibrowhatsit. So I'll bow out politely with very best wishes to everyone else.

MaryAnnSingleton · 28/02/2013 17:25

fab news sgb -celebrate ! Grin

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KurriKurri · 28/02/2013 18:37

brilliant news SGB, - so pleased for you, - huge sigh of relief and Wine for you tonight Grin

coorong · 28/02/2013 18:49

checking in to say hello - I enjoyed everyone's contribution to the Macmillan thread - quite right about the "oh you poor thing". There's a nurse like that at my hospital - I want to thump her!
ASH - if there is an Onc, or indeed any doctor, who is arrogant and treats people like dirt, please say something, please complain. If he's rude, then he probably doesn't listen to advice when things are wrong and could be putting patients in danger. His colleagues are probably equally fed up.

COPthall sorry you're not sleeping. A company called "this works" makes a sleep spray which is relaxing and may be useful (or not). I used ot have real trouble sleeping and partly got over this with more exercise and light exposure and also by convincing myself that simply lying in bed was as good as sleep. It makes me less anxious about not sleeping, so I relax and then actually fall asleep! Kind of circular CBT - if that makes sense. I don't believe in any witch doctory hocus pocus, but i reckon in the same way you can talk yourself into anxiety, you should be able to talk yourself out of it!

to all!

sparklesunshine · 28/02/2013 18:52

Hello all. I've not read at all, but wanted to mark my place. I've joined the C club, diagnosed today.

Breast tumour, fast growing and invasive with one 'funny' lymph node, lots of treatment to come. I'm mostly ok but probably still in shock. I've got two kids, age 3 & 6.

F*ck

Gigondas · 28/02/2013 18:55

Hands Wineto sparkle.

This is worst time when shock sinks in- when you are in treatment and have a plan , it seems more bearable.

My kids are 1 and 4 and I know lots of others here have very little ones too .

Sometimesiwonder · 28/02/2013 19:13

Hi Sparkle, welcome. It's a bit of a shock, isn't it? My d was 5 when I was diagnosed - she's nearly 10 now and I'm still here. Like Gig says, you'll fel a bit better when there's a plan and you've started along the path.

Knock back that virtual wine and have a real one or even two, if you can.

KurriKurri · 28/02/2013 19:30

Welcome, gentle hug, and Wine for sparkle, - sorry you have had to join the cancer club, you will be reeling from the news - it takes time to sink in, so give yourself time. Once you get your treatment plan in place, it will all become a bit more doable and less scary.

Ask anything you need to - no topics out of bounds on here. Several people on here with little ones, so they will have plenty of tips on how to explain thing to your kids.

hello Sometimes - how are you doing old bean?

Waving to Coorong (one of the practice nurses at my GP was a member of the 'poor thing' gang - 'Oh dear you have been in the wars' was her catchphrase whenever I went through the door sporting my baldy hairdo Grin)

Gig - how is the lurgy today? better I hope.

Sometimesiwonder · 28/02/2013 19:37

Hi KK, am waving madly! I'm OK thanks, how are you? I read about your lovely surgeon - you'll be at target weight in no time.

Still really busy here, but the iPad is good it means I can type, albeit badly, and keep up a bit better when I am sick of sitting at my desk.

Did I mention I've bought tickets to see a Roxy Music tribute band? Stupidly excited, I loved BF in his heyday, I can see myself getting al over excited and screamy. Am hiding this from the people I'm going with, seems safest for now

UserError · 28/02/2013 19:59

Sparkle, my DS was only 15 months old when I was diagnosed. As Gigondas and KurriKurri say, there are lots of us here who've coped with small ones. It's a really shitty situation to be in but there is help out there.

I know your head is probably reeling with information now and I remember how hard it is to take things in, so please, just know that if you have any questions about help with nursery funding, looking after your children etc, we've been through it and can help you when you're ready. Wine Thanks

KurriKurri · 28/02/2013 20:17

Ooh Roxy Music I used to love BF too, I have a BF greatest huts album somewhere that I like to wail along with in the car Grin

yes surgeon is lovely, and hopefully I should be rocking my new tit before the end of the year Grin

KurriKurri · 28/02/2013 20:18

Greatest huts??? - who knew Brian had opened a garden shed business? hits obv.

Gigondas · 28/02/2013 20:22

Rocking just the one tit?

Lurgy better (have managed two days at work) and new drugs seemed to work . But today been really bad so am taking it easy- suspect work on computer not great.

Can't drink while am trying new painkiller Hmm.

Topsy and copthall- my sleep is shit thanks to mini gig (there is really no need to wake your parents at 3am to show you can say mama and dada) , shoulder (its more neuralgia down my arm now) and just general post chemo etc. what is this cold mattress as sounds great. I do think magnesium supplements help as I can generally get off easier and sleep for a couple of hours with them.

Got second instalment of course tomorrow so will bring back advice and book tips etc.

coorong · 28/02/2013 20:25

hi sparkle, sorry to hear your news. I joined this week (diagnosed Tuesday) and my daughters are 5 and 7, I had a large Wine that evening. it's all rather weird, but i've been asking anyone and everyone who they know has had and survived BC and it seems everyone knows someone, many of whom have been through hell, but they're still very much here.
talking on this forum has helped me, i hope it helps you.

I love Avalon - it's a great track

sparklesunshine · 28/02/2013 20:33

Thanks for the welcome and I'm glad / very sad to know that others have been through it too.

Any thoughts on weening my daughter? It makes sense and was already in progress, but the timescale has seriously moved up. (She's 3 and it happens a couple times a day, but she's quite emphatic about it.)

sparklesunshine · 28/02/2013 20:41

Hi coorong, Nice (selfishly) to have another newbie and very happy to hear most people get through.

I don't have family here. Did anyone else get through it without family, or are they pretty much essential?

Sometimesiwonder · 28/02/2013 20:44

Sorry I know nothing about weaning, I am the world's most vague mother. Childminder carried me through.

Avalon is indeed v nice, but I'm more of the Both Ends Burning era myself. Oh God I'm going to hyperventilate and it's still 2 months away .

Gig I think you are doing very well to be at work. You go, girl - but only gently.

PenPerson · 28/02/2013 20:55

Just dropping in to show my face.

Welcome to the thread none of wanted to be on sparkle but once here it is a wonderful place. The ladies have got me through my rather rude start to the year.

I am a bit wobbly today. I feel like a patient again as Monday my meds stop and low iodine diet starts and appointments / phone calls from specialist onc nurses are happening. I had managed to start feeling over the surgery now I feel the next hurdle is here.

Sorry to bring a downer. My cancer Tourette's is returning too. I had to ring my office today and was met by offish ness from admin.

Did you tell people you work with ? My immediate colleagues know but I guess it will be easier to just tell admin etc to stop the bad feelings about being off sick.

Has anyone made any life changes since dx ? We are considering a pretty big change brought on by what has happened.

ned I will text you about Monday if we are still on. I promise to be cheery by then Grin

UserError · 28/02/2013 21:35

I told pretty much anyone and everyone at work that I'd have to come into contact with, either face-to-face or on the phone. I think you should tell people only if it makes things easier for you. It made it easier for me, so I did it. If it makes it harder for you, then don't. As the annoying meerkats say, 'Seemples'. Wink

I have spent the evening wasting money browsing Ebay and Ohmigod, everyone RIGHT NOW go and look at the pill boxes on offer. Rainbow colours! Fuck my plain boring clear plastic one from the pound shop, I'm going designer!

amberlight · 28/02/2013 21:39

I told people I work with straight away, yes. Was all fine. Big life changes - only my attitude, which has gotten far less tolerant of being treated badly. A good thing. Though I'd rather not have had cancer.

Hello lovely new people. Welcome from me also. Odds are 99 out of 100 in your favour to start with (may vary over time). So that's not bad as a starting position. Meantime, here will all are.
Me, right now, herding two stray pekignese dogs round the house, having found them wandering about outside. Dog warden on the way. So I'm in the kitchen entertaining them.

Copthallresident · 28/02/2013 22:13

Hi Sparkle Sounds very much like my lump, nasty aggressive hyperactive little bugger which had also invaded a lymph node, but that was 11 years ago! One of my BC treatment friends developed it whilst breastfeeding as well, and that was 11 years ago too. The treatment isn't a walk in the park, though for Amber on here it seems to have been a mere amble Grin but we do all know what it is like. I am sure amongst us you will find every variation on feelings, coping strategies and side effects. The shock does wear off and at some point you do realise that you can smile again and get on with your life, a little different to what you assumed but the new normal can be good, and even boring at times.........

My family were 300 miles away, but friends rallied around, the ones that were any good anyway, we had already had to do it for one friend so it was quite a well organised machine. I've seen it from both sides now Don't be afraid to ask, people are so relieved when they can actually do something they know will help, instead of wondering and worrying whether they should offer and what they can do, cooking casseroles / soup, looking after children whilst you are having chemo, keeping you company whilst having chemo. We put together rotas. Also if you can afford it get a cleaner, the one we got still works for us 11 years later.

Not a good weaner, just carried on until they got bored, but that was around 18months, can you replace it with some other reward or ritual , "you're a big girl now so I thought you would like to do something more grown up". Mine came into bed with me in the mornings until they were really quite big and hairy and almost teens and I think that partly went back to the fact it became a ritual when I was ill, even when I felt my worst they would come into bed and have a cuddle, then I would do their hair ready for school. They were 5 and 7 too Coorong

Thanks Coorong too for sleep tips. I'll look at spray. I have sort of arrived at the "lying in bed is just as good as actual sleep" strategy, and got quite good at the relaxation and visualisation stuff during treatment. The problem is post menopausal women lack the melatonin that actually knocks you over the edge into sleep. So it can take hours to go off and then when I get to sleep the hormones go into overdrive and heat me up to boiling point and I wake up again sopping wet... It's all very very boring not least because I know exercise would help and I used to be a bit of a gym bunny but I'm always so tired. I also do get the SADs in winter so light is probably a factor too but then I do have to walk goondog come what may to curb his lunacy so I do get more exercise (think cheetah pulling along old lady on lead) and light than most. I can't help thinking whoever or whatever designed us didn't think women past having a baby needed a life, sod 'em, it's probably them what writes the Daily Mail Angry.............

gigs This sort of thing, although mine is a memory foam one www.personalcooling.co.uk/templates/page_01.php?cfp=page:PRODUCTS-A can't seem to find mine on google now. It is lovely and comfortable but doesn't really help with the tossing and sweating.........

Seems to be a lot of wine around this evening, oh all right then, puts Cava and nibbles on trolley. Wine and treats for Pekingese's

Copthallresident · 28/02/2013 22:29

just like at the Roxy Music concert in 1976 I did when Brian was my minion

MaryAnnSingleton · 28/02/2013 23:31

Gah sparkle that's a bugger but welcome and I.'m certain that once treatment starts or you have a definite plan things'll seem
easier- the shock of dx takes a while to get your head around
GIG please tell me that the picture has arrived - am fretting ! EnvyBiscuitWineThanksBrew

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