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996 replies

MaryAnnSingleton · 19/02/2013 14:04

new thread - bring the trolley over here....

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KurriKurri · 22/03/2013 17:59

Two grown up sons Smee - and she was separated from her DH, but still friendly - he was the one who found her when he called round Sad

MaryAnnSingleton · 22/03/2013 18:04
Sad Have just had email from my friend in Derbyshire who is going to breast clinic on Monday with a suspicious lump. Really hope it's nothing as she has so much to contend with anyway (is in a wheelchair with a nerve disorder similr to MS-it's gradually paralysing her) Lives on her own but has a PA - Sad
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KurriKurri · 22/03/2013 18:33

Oh MAS Sad - I hope it turns out to be nothing, and she is OK.

MaryAnnSingleton · 22/03/2013 18:44

me too- she didn't want to tell me bless her.

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jchocchip · 22/03/2013 19:46

Sorry to hear that kk

Hope your friend is ok, mas

I have marmite rice cakes, though not for much longer, the cat is going nuts for them...

smee · 22/03/2013 22:16

Gig, have just realised that might have sounded dismissive - ie my last post on your smear. Didn't mean it like that, meant it sounds like it's okay!!

Kurri, that's awful. Can't imagine how her ex must be feeling, let alone her sons. Just shows how random life is. I had a lovely friend who I grew up with who died from an aneurism in her 30's, so similar in that it was sudden. I still think about her a lot and it was over 10 years ago now. She left 3 teenage boys. Sad

  • MAS, oh dear. Your poor friend clearly has enough to cope with without a lump. Though she should let you know as of course you can be a huge support to her. Let's hope it's benign. Oh how we all love that word...

Back from drink. Friend has small child who doesn't sleep, so sent her home early-doors. I will resume with wine on sofa with DH now. Night all xx zzz

PenPerson · 22/03/2013 22:22

One of my closest friends died of an asthma attack aged 35. I still can't believe it. Life is so cruel sometimes. So sorry kk.

KurriKurri · 22/03/2013 22:34

Thank you all, it feels so sad and shocking, life is very cruel. So sorry about your friend Pen - 35 is so terribly young Sad

DH has just gone to get DS from the station (DD bought tickets for a London show for his DS's birthday and they are going tomorrow - so that will be fun for them) he's staying here tonight because they have to get an early train.

Hope everyone has a good weekend, - I plan to finish off some little presents I am making for DDIL's birthday, and if it isn't snowing and freezing I'll plant some seeds and potter in my greenhouse. Otherwise I may just curl up with my Kindle Smile

gingeroots · 23/03/2013 09:51

Hope people will forgive me for barging in and sitting wimpering in corner .

Bot even tamoxifen /breast related - is throat .

Two things I thought I'd ask in case others have experience -

Old Uni friend passing through London and I've arranged to have meal with her day after appointment to discuss PET ,endo ultrasound and biopsy results and "the plan " .

I think I should ring her on day and cancel ,saying I'm ill .
She's off on a holiday with her sister and I don't want to cast a cloud .
I think that would be right thing to do ? But can longer think very straight .

Secondly ,and this may be out of people's experience as different cancer ,different area etc but it's completely messing with my head that so far evidence is only from "brushings " ( like smear I think but more diagnostic because of where they are ) and not biopsy .

They've come back very suspicious of squamous cell blah blah .
Hence PET scan and other stuff on Monday .

And there's a small nodule .

So ,to be blunt how much chance do people think that further tests will be clear ?
I think minimal but the doubt is - searches for adjective - agonising .

AshokanFarewell · 23/03/2013 10:17

Hello gingeroots and sorry you've had to join us. I'm in treatment for colon cancer, all cancers are welcome here!

No idea about the tests I'm afraid. How long between the scan etc and the appointment to discuss? My aunt had throat cancer about ten years ago and she is doing well now.

I don't know about the friend really. Do you see her often? It would be a shame to cancel and then not see her again for a while. But it's important to do whatever you feel most comfortable with.

Sorry to hear so many people have worries and sorry to hear about your friend Kurri. I hope your daughters had a good birthday Topsy and Jane. Gig and Gracie I hope you get some reassurance from the medics soon. Pen glad you're back on iodine, I hope you feel lots better soon! MAS I hope your friend is all clear and it's no wonder you feel down, you've got an awful lot to adjust to.

Things go from bad to worse with my boyfriend, he's not sure he can do any of this anymore and needs time to think. Seven years together and that's what it comes down to. I can't believe it and I feel utterly heartbroken but I'm trying to forget about it and reading the thread puts it all in perspective.

Does anyone else get annoyed about feeling "cancery"? I know it's so ungrateful but part of me feels very resentful about having help from CLIC Sargent and all the attention I get from everyone, all my family and friends always asking how I am. It makes me feel sick sometimes. I can't really explain it. I just feel so different.

We had snow this morning but it's already melting. I hope everyone is having a good day so far. Personally I feel like just hiding under my duvet all day and pretending I don't exist, but need to get up and face the world! :)

gingeroots · 23/03/2013 10:48

Thanks for welcomeAsh - virtual slaps are winging there way towards your boyfriend as I type !

Tests ( I've had biopsys and CT scan already ) on Monday ,appointment to discuss on Wednesday .

So very quick and I'm very grateful ( and scared ) by that .

I know I'm asking things that people can't answer but it's good to talk .

jchocchip · 23/03/2013 10:54

Hi gingeroots See your friend if at all possible. You don't have to tell if you are not up to it and a nice meal may distract you. I don't know about your tests but I found waiting the hardest and having a plan a good thing.
Morning ash sorry to hear of bf troubles. I did feel that people were asking after me too much sometimes if they ask how I am now, it just serves to remind me usually I am just getting on with life...
We have oodles of snow. No parkrun :( and I'm just hiding under the duvet feeling a bit rubbish. Bit of a gastric upset I think :(

AshokanFarewell · 23/03/2013 10:58

gingeroots it's good really that you don't have to wait but I know the feeling, it's quite scary knowing you are being rushed through. It does mean that in less than a week you will have a definite plan which can be very reassuring.

jane sorry you're feeling poorly, and a shame about the snow, I'm still under my duvet too, I hope you feel better soon! :)

PenPerson · 23/03/2013 11:10

Hi ginger, I have just had surgery and treatment for thyroid cancer. Where in your throat are you talking about ?

PenPerson · 23/03/2013 11:12

I did not want to see anyone whilst I was waiting for results as I was tearful and worried and could only focus on that so was pretty rubbish company really !

I found having to discuss it / tell people hard work as I felt responsible for their reactions and the emotions it brought up in them and people telling me ' I am so so sorry ' made me feel worse as it was if they though I would die or something.

Once I knew definite diagnosis / action plan I found it easier to cope with and easier to talk about.

gingeroots · 23/03/2013 11:36

Pen the nodule is at junction of stomach and oesphageous .

I know I should be glad to have hope but it's the lingering doubt that I have cancer at all that is screwing me up .

The letter I've just opened starts with the phrase "you are being investigated for possible cancer of the ".

It's because they've only got cytology results so far ,not biopsy .

I know what you mean about telling people and having to cope with their reactions .

I had to take one of my brothers with me to an earlier appointment and he and wife forced my hand into telling other brothers . But I wish I hadn't ,it might be worry over not so much .

gingeroots · 23/03/2013 11:41

And in any case further on in the letter it talks about the extent of the cancer and discussing treatment .

Anyway I feel I should shut up ,I imagine technically speaking the biopsys etc could reveal no cancer but that it's unlikely .
And I'll know by wednesday .
Hopefully .
But won't be surprised if I don't .

Gigondas · 23/03/2013 11:47

Pen is right - this waiting is worst bit. Of course it may not be cancer or it may be low grade/borderline (like when you have to have treatment after a smear). I guess it doesn't help you as cancer is a terrifying word and that scrambles everyone's brains when it is first mentioned.

However what letter and appointment are about is that there are various stages which affects what treatment is needed etc.

I would go with doing what is most stress free which sounds like white lie to friends and keeping it to yourself whilst get info. Park your bum here as we can virtually hand hold you through .

Can someone pass me some Brew- overdid it yesterday so sore (not helped as ended up picking up mini gig as she was Sad as teething and was up most of the night). Dh and I are half dead - mini gig of course is just fine Hmm. I did manage to get out for first haircut so I look a load tidier now.

Filthy sleet here but am making beef stew and dumplings/mash, rice pud and chocolate fudge pud for lunch.

Copthallresident · 23/03/2013 11:52

Grrr iPad and Mumsnet between them swallowed my post. It was full of wise words as well, now I'll just have to trot out the usual crap Grin

Ashokan Sorry about your boyfriend, they can be twunts, men. I know it is hard but it may be the best thing that ever happens to you. I broke up with my uni boyfriend after 11 years when he went off with a girl with a terrible haircut called Nancy, infidelity I could forgive but not the terrible taste.... I was heartbroken but it was the start of the rest of my life and you do have the rest of your life ahead of you, don't let the Cancer bugger distract you from real life. I totally hated being Cancerish, hated people trying to define me by it, the head tilting and the medical profession treating me as a Cancer instead of a person with a life and a personality of my own. I think all you want when going through all the extraordinary things that are happening to you is for things to be normal, it is why we all like the new normal so much. During treatment all I wanted was to do ordinary things and the little normal things like brushing DDs hair in the mornings mattered so much to me, now I am back to being a spoilt old bag who takes it all for granted Grin

ginger We can all tell you that the waiting and uncertainty is the worst bit, once you know what you are up against you can come to terms with it and get on with getting it over with. It is why we have a humungous paranoia box to put our worst fears in, and some of us, well me anyway, have very ample arses to plonk down on the lid and keep all the horrible thoughts from escaping. You are welcome to plonk any in. Don't know much about brushing, presumably they have found some dodgy cells but do not know the extent of it. So that is all you know, you have some dodgy cells and a nodule but they could well be relatively inoffensive? One of our friends had throat cancer, his tonsils were involved but he is all clear now and back to running himself ragged travelling the world with work, I regularly tell him off, after surgery and radiotherapy, no chemo but I well remember talking him through the waiting and paranoia.

KK Sorry about your friend. and pen too. It is sad when people die young and a shock when it happens so suddenly. Strangely my mums lovely friend just died suddenly of a brain haemmorage, she was older but fit as a fiddle. She was quite a character and was on a cruise and on a day trip to Angola. She would have liked to be known for having died with some drama in Angola Sad Smile And at least would not have known much about it. We will miss her though, some people leave a big hole in your life.

Hope MASs friends and Gracies lumps are the inoffensive type we like, like most are.

Waves to everyone Brew Flowers why doesn't mumsnet do a chocolate cake emoticon???

It is horrible weather here, sleety snow. DH just suggested going out tonight but I nearly died of exposure taking goondog to the vets last night (for his regular skit as the vets glove puppet, don't ask, he is mortified by it) so I am sending DH out for nice bread and large slabs of organic meat (we have an artisan butchers as well, oh yes, and a famous fishmonger, it all happens around here when it comes to artisanness Grin) I suppose he may be some time....

This time I am going to copy before posting, did you hear that mumsnet??

Copthallresident · 23/03/2013 12:05

Dh just rang from Kensington High Street WTF???? Can he not follow orders....

PenPerson · 23/03/2013 12:13

I got through the waiting and reactions by being really horribly selfish and just looking after myself.

I got my brother to tell my parents my diagnosis as I did not want to do it. I did not care about other people and took the line ' this is happening to me and it is happening this way ' .

This thread was a lifeline and was invaluable for the wobbly moments late at night over Xmas. I was diagnosed a week before Xmas.

A couple of months down the line and I am doing ok.

The results may show cancer they may not and the waiting is really really horrible.

Gigondas · 23/03/2013 13:23

How in the name of arse did he make it to Kensington high st copthall? Although if he went to whole foods I can see why!

MaryAnnSingleton · 23/03/2013 13:23

ginger the waiting is truly the worst bit - I remember going out to meet friends for coffee the morning of my results (I had to wait until after 5pm for my appointment) and it was nice to do something normal - similarly and coincidentally I took a friend out for coffee and cake before my appointment for my second diagnosis but it's really up to how you feel rather than worrying about anyone else.
ash horrid news about bf - am sorry it's turned out like this.
Wish I was having lunch at yours gig - I love rice pudding. Was looking up my recipe for chocolate almond mousse for Easter Sunday - i know it has rw eggs and am not meant to have that but frankly I don't care.
Jaw is aching again- bah !
love to all xxx

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MaryAnnSingleton · 23/03/2013 13:25

Twick to Ken High street ? Grin I remember dh being puzzled as to why I referred to it as High St Ken when he first knew me (being a Nottinghamshire lad)

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Copthallresident · 23/03/2013 13:36

I think a wine merchant may have been involved.... Hmm