chat and hand-holding for those of us supporting a DH with cancer - new thread for the new year

[MrsShrek3]

sign in, folks :)
Hoping that 2013 brings better stuff for all of us.

eh?

Anyone about? In hosp with OH. Bloody dickhead

yes we're here are u ok?

Hi MrsS, had a bit of a hiccup. Stable now but was SOB and white count is nowhere to be found. They keep talking about how he should be at home and it doesn't feel very positive... but at least he is more alert than last night and he has managed to force down some grub. Git.

Is he in onc ward? not sure of your OH's story, would it be nosey to ask why he's neutropenic? chemo? hugs and handholding as much as you need

Yes think chemo is probably the cause. He's got primary liver with secondary bone. They've put him in a quiet corner in oncology, he's just spending his time asleep really.

Oh Mort poor you and poor OH. Lisa I can imagine how you must be feeling, such a wicked illness. Well we went to see the oncologist last Thurs and good news, brain and lung scan both clear. She think the tremor is a benign tremor and said its up to dh to pursue with his own gp if it worries him. It worries me. Next Tues is another hurdle, our trio are having their hearts checked in London, I am sooooo scared of history repeating itself. Love to you all xx

So nice to hear a bit of good news triplets, fingers crossed for the London trip. Lisa fingers crossed for you and DH too.

Quick q: OH and I aren't married and his son's mother is deceased. Does anyone know the best place to ask about getting guardianship for DSS incase the worst happens? Adoption? Step parenting? Chat? I'm not really sure.

Cheers, will do

Oh Ursus it's you who needs the and and hugs .

Thanks ginger he's sat up in bed today and managed to keep down a biscuit. Progress! Bourbons are on me.

Hello ladies
I just wanted to pop in day hello & see how you all are, offer hugs & & just say that I'm thinking of you all.
Thanks for your kind wishes since I was last on here, DH is recovering well from his operation although as I'm sure you can all imagine life has a different pace now- but at the same time he certainly seems worried about missing out.
Best wishes Lizard

Waves back :)
Sorry I meant to post to let you all know the kids are all fine. It was such a long and stressful day, we left home at 9.15am and got back at 8pm! Poor James was in the middle of having an echocardiogram when the fire alarm went off, we had to evacuate and leave him in there! I thought I would have a heart attack it was all so stressful. Anyway Prof Sharma wants to keep us on his books for some time yet, apparently Rebecca now has an adult ecg but the boys don`t, proof girls mature faster! I actually felt relieved that he wants to continue seeing them, Matthew was almost 15 when he died and they are 15 now. So no hospital appts until dhs scan in Dec. I hope as Lisa says its quiet on her as you are all stress freeish atm? Love to you all. xx

good to hear the updates
pmsl at stress free

Hi all, yes, things going okay at the moment with DH, eating improved. Celebrated DS's 4th birthday with friends from school today, shared party between 3 children from the same Nursery class, bargain! His actual bday is on Weds, by which time we'll be in Germany visiting my parents. Yay! Haven't been anywhere since diagnosis in Feb and chemo, so we're all really looking forward to the break. Thankfully school's okay, too, as the boys will be missing a total of 6 days.
Long may the good times last. Hugs.

Good news, you enjoy your break xxxx

enjoy your hols, inamin

dh has onc/haematology appointmemt on weds next week. going to have to face the mamagement to see if I can go with him. tempers are shortening by the minute here already

Hello everyone. I need a chat.

When DH was first diagnosed I was so nice to him and he could do no wrong as far as I was concerned but 4 months down the line I get irritated with him and snappy sometimes and then I feel just awful for being nasty to a sick man. Does anyone else get like this? I feel such a bitch.

Visited our lovely GP for a chat about DH's progress and how I was coping with everything. She was very kind and let me vent my feelings. I was on AD's before all this started so I am used to having in depth conversations with her. At the end of my appointment,she let me ramble on way past my time, as I stood up to leave she gave me a big hug which made me feel better and worse at the same time!

Hi drudge. somewhere way way upthread we had exactly this conversation. yy to losing patience and feeling evil for doing so. the thing is, unless you are actually a real live superhuman then it's just not possible to avoid feeling irritated at times. At everything. Including him cos at the end of the day it's still your very own annoying dh. And the bastard illness makes him more of an arse at times. Doesn't mean you love him less
Hugs if you need them

We are home now, have been stocked up with mega painkillers & snoozing drugs. Things have gone very quiet (including OH and his doctors) and things feel weird

Been feeling a bit shit and lurking lots. Must come in and wave more often. to everyone.

keep posting
when things are at their worst somehow it's harder innit
pm if you want a rant

Hi everyone

Been lurking too. Since my last positive post of course things went pear shaped. DH became very moody and down, but at least this time he recognised it. Took himself off to drs and they have increased his anti-depressants.

I think it's the fact he wants to be back to normal and work full time but his body just isn 't up to it. He can manage a couple of days and then has to rest.

Drudge- we are only human. My DH has had cancer for 11 years, there's no way I could be sympathetic and caring for that long!!!

Meanwhile, I am off to the House of Commons soon to speak to a bunch of MP's about rare cancer! Me! The things we do for our DH's!!