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Spoons! Support thread for CFS, ME & Lupus sufferers

937 replies

Grockle · 24/12/2012 23:30

Merry Christmas to you all.

Wishing you a happy, spoon-filled day.

Xmas Smile

Spoon Theory here

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Grockle · 16/02/2013 20:26

I have added it to my order. Thank you for the warning! I might add other things too. I really want to be able to make proper food again, even if I do it by cheating.

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ArbitraryUsername · 16/02/2013 20:32

I have learned that there are more frozen (and quickly microwavable) possibilities than I thought possible. There's frozen rice too.

Grockle · 16/02/2013 20:41

I'm amazed! Why have I not discovered this before now? I could do an entire roast dinner without ever seeing a fresh vegetable! That makes me a little sad and shocked but also very happy!

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ArbitraryUsername · 16/02/2013 20:53

I know. I learn all this earlier in the week from a MN thread!

You can buy frozen gravy. You don't even need to do the granules thing.

Grockle · 16/02/2013 20:58

WOW! Arb, could you link to the thread, please? It sounds amazing! Off to add frozen gravy to my list!

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Grockle · 16/02/2013 21:01

Ooo, found the thread now! Why am I so excited about frozen food? It's such a revelation!

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garlicbreeze · 16/02/2013 21:05

YY to frozen this, that and the other :) I started off buying them but can't afford that now, so do my own. I'm quite the DIY instant food virtuoso these days. I buy what's on special offer and prepare them when I've enough energy - for use when they aren't or I haven't!

Mash: cut spuds in the food processor, using a grater/thin slice disc. Freeze. Freezing breaks down tissues so they can be microwaved in a minute or two.

Carrots & peppers: I haven't got an attachment that cuts into chunks so slice them by hand in front of the telly, then freeze.

Onions: Chop finely in the food processor, freeze. Good for sauces. You can do this with any fruit, too - you'll get a purée when heated. Bananas can be frozen whole or sliced (delicious still frozen!)

Tomatoes: You can freeze them whole for use in sauces.

Herbs: I freeze whole & fresh. You can crumble them once they're frozen. Things like thyme and rosemary, the leaves come off the stalks with a shake.

I depend on frozen spinach, peas and sweetcorn. You can add frozen peas, corn and pepper to rice just as it's finishing - makes 'pretty rice' with only one pan to lift for all your carbs & veg :)

The slow cooker is my second-best friend, after my electric blanket! It's on every day that I can get things together and, if I can make a lot of stuff, I freeze extras for bad days. If I cooked meat with bones in, I put it back on with water & herbs for soup.

Unfortunately the Atos people think the fact I do the above means I "cook from scratch every day" which makes me very angry - yet another example of how coping with your incapacities leaves you vulnerable to accusations of skiving! Mind you, anything would. I thought I'd change this to "I microwave a frozen dinner most evenings," which is true although I made it in the first place. But they'll have me for something else, no doubt Angry

garlicbreeze · 16/02/2013 21:06

Ooh, link?? :)

Grockle · 16/02/2013 21:22

Frozen mash thread

We have frozen peas (or corn) with pretty much everything. I am definitely going to get other frozen veg now. My hands ache when I hold a knife & any chopping takes forever because I have to keep stopping to rest my hand. Life's too short to do something that hurts if you don't have to. We won't be able to afford it forever but for now, I may as well take advantage.

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garlicbreeze · 16/02/2013 21:31

Thank you for the link, both!

Know what you mean about chopping! I had to abandon my pancakes due to whisking fatigue, dammit.

ArbitraryUsername · 16/02/2013 21:34

I get the kids to whisk pancakes. They love it.

Grockle · 16/02/2013 21:42

I cheat and use the hand blender. Well, DS uses the hand blender. It's lovely when children are old enough to be interested and able to do things that help. DS, thankfully, loves being independent. He wants to cook & wash up etc by himself. It works well for me because I need him to help with those things & knowing he enjoys it makes me feel a little less guilty for being so crap that I can't even cook by child some dinner.

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ArbitraryUsername · 16/02/2013 22:07

Think of it this way: you are teaching him incredibly valuable life skills. That's awesome parenting.

Grockle · 16/02/2013 22:12

I try to think of it that way. He can now bake & decorate fairy cakes by himself & is good at freezer food & beans on toast. I do hope that he benefits from this & that it's not all so negative. Since he's made me realise how much he's struggled with me being ill, I've worried a lot.

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garlicbreeze · 16/02/2013 23:43

I can see why it worries you, Grockle, but food preparation is a life skill. Very many kids enjoy it. I often think it's a shame parents don't teach or encourage their DC to cook (and do basic DIY, sewing & housework, for that matter) as they're missing out on family activity as well as imparting crucial skills.

Could you figure out which 'compromises' are actually positives, and which burdens? That way, you'll feel happy about the positive ones and, perhaps, gain clarity over how to compensate for the negatives.

Just a thought :)

fuzzpig · 17/02/2013 07:20

Will definitely be checking out the frozen thread. We take a lot of shortcuts already - frozen veg is brilliant, as is grated/sliced cheese.

I need to phone up occupational therapy (part of local SS) to see about getting the chair for the kitchen.

I agree that it's great you are teaching DS to cook. Especially as he's a boy (I am aware how sexist that sounds, but how many threads have you seen about husbands who can't/won't cook?!). I really want to start cooking with DD (5.7) but I find it really stressful as well as tiring (tiny kitchen).

ArbitraryUsername · 17/02/2013 08:42

Yes. It's amazing how many men cannot (and will not cook). DH is hopeless and FIL does not cook. I don't want my boys growing up not being able to cook.

DS1 loves DIY. DH never lets him help, but FIL (who is a handyman, professionally) does whenever he's up here doing any work. DS1 really impressed him last time by being strong, capable and imaginative (and figuring out how to do a tricky job quicker than FIL). FIL also let's DS1 loose with power tools!

magso · 20/02/2013 21:17

Does anyone else really struggle to sit still without feeling ill, dizzy and nausiaus? Could this be the OI/Pots. I have come to the conclusion that I find that awful dizzy struggle to stay conscious is worse than pain for me.

fuzzpig · 20/02/2013 22:20

I find that standing is intolerable. Sitting up can sometimes be just as bad but usually it is a little better. I prefer being at home where I can lie down rather than sitting upright.

POTS symptoms have been really awful lately. I still haven't heard a thing from occupational health though. I've 'managed' full time for nearly a month, but at what cost?!

I feel horrendous at work but have got to the point where I'm scared to tell anyone (well, anyone senior who could allow me to rest or send me home - luckily I have a couple of colleagues who I can be honest with) so I just struggle on. And at times I feel ok at work, but then I know that cumulatively I'm making myself worse. I've not managed anything outside work, I have no life.

fuzzpig · 20/02/2013 22:22

I get really dizzy and spaced out a lot. Don't have nausea often although I get the odd wave, and I am really off my food lately (to the point where I even found myself wondering if I had morning sickness Hmm)

Grockle · 21/02/2013 07:43

Interesting about dizziness. I have Ménière's disease, which causes intense vertigo (I have to lie on the floor & try to grab things to hold on to for up to 4 hrs) & frequent dizziness & spaciness as well as nausea. I asked the rheumatologist if it was likely to be linked to my fibro/ lupus & he said not.

I'm feeling rather crap about everything atm & struggling a lot. I'm just a big lump of woe & misery Sad

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buildingmycorestrength · 21/02/2013 07:49

Grockle, I thought Meniere's disease had some kind of super easy, super effective treatment! I think my grandfather had it, and he said the doctor literally laid him on a table, twisted his head to an particular angle and sat him up. This dislodges the crystals that built up and eliminates the symptoms.

Have you heard of this?

I'm dealing with the possibility that I actually have some kind of muscular dystrophy...my brother is currently being tested and if he has it then there is a 50% chance I have it. Sad I have some of the same symptoms.

He should know in a few weeks and I'm just having to use all my CBT training to try not to think about it too much. Bad day the other day but kept busy yesterday.

smilingthroughgrittedteeth · 21/02/2013 10:05

Saw GP yesterday and she has been speaking to my endocrinologist they have a new theory they think I could possibly have addisons disease.

I'm sick of theorys I just want a confirmed diagnosis

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