Hello exhausted types.
Long whinge follows...
I don't have any of the conditions named in the thread title (as far as I know), but I do have something. I've had problems with my joints all my life and periods of ridiculous exhaustion in the past, and now. The rheumatologist (this time around) seemed to think it was ankylosing spondylitis but I think they're not so sure about this diagnosis now because all the bloods come back negative and they couldn't find any inflammation or joint damage on the imaging tests. The ridiculous amounts of yoga I have forced myself to do for the last 18 months also mean that I can now get my back to bend, which also seems to have made them question the diagnosis.
Regardless what it actually is I am in pain every day (in far too many different joints to list), have stiff joints in the morning/after sitting or lying in one position, have joints that get all red and hot (and more painful) for no apparent reason and at fairly random times, get really hot at night (to the point that DH has to retreat elsewhere to get some sleep sometimes), have itchy skin and come out in fairly random rashes, and feel utterly wiped out all the time. The feeling wiped out is absolutely the worst symptom.
I'm currently signed off work because it was all too much for me, combined with hideous side effects from the rheumy deciding that tramadol was a sensible thing to inflict on me. To be honest, it was too much for me before the drugs change. I work FT in a job that involved a lot of sitting around at a computer (which I find painful) but I can work from home 3-4 days a week. I find it very difficult to do a whole day's work though and will often have to sleep all afternoon. I also find myself utterly wiped out the day after I have to go into work. I do enjoy my job, but it's very hard to get any work done.
My doctors seem to get fixated on the pain management aspects and seem to dismiss the exhaustion. Partly I think they imagine that they'll fix the exhaustion if they can control my pain and stop me having disrupted sleep. The thing is, I can sleep all night (maybe waking up a coule of times, turning over but going back to sleep) then sleep all morning and then sleep most of the afternoon and still be utterly exhausted by 9. I also have access to less than helpful physios who mostly tell me that I need to do 4 hours of cardio exercise a week (on top of everything else, and a FT job and looking after a family). If I tried this one week, I'd be utterly ruined for the next several weeks. It's very frustrating, especially as being exhausted and in pain makes me tearful and so many of the doctors I see seem to want to tell me I'm depressed. I'm not though; fed up and exhausted, but not depressed.