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Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 5

999 replies

Piplysmelie · 10/07/2012 09:23

This is thread 3 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2
Thread 3
Thread 5

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
HannahBerry · 07/10/2012 21:56

Hi. I am asking for some advice please.

Five months post birth of first born. I had large PPH and 2nd degree tear. Stitches are still sore and general area is uncomfortable (am unable to DTD). I am still bleeding (lochia). I sometimes have a draggy feeling when walking or when too active during the day. I am doing my pelvic floor exercises. But does this mean the worst? Do I need some sort of repair? What should I do?

Thank you in advance! Hx

WhoKnowsWhereTheTimeGoes · 07/10/2012 22:17

Hi Hannah, sorry to hear about your problems, it sounds as though you definitely need to see your GP and ask to be referrred to your local gynae department. Try and stress to the GP that these are big problems, do you have any problems with passing urine or bowel movements? If so make sure you mention that too. To some extent the options available will depend on how old you are and whether you intend to have more children.

surewoman · 07/10/2012 22:43

Fen - the whiff could be lochia (post op gunk) - I do remember having a lot of stinging to start with, as it is an area that is pulled about with every bm. Hope this is the case with you and not another infection - if it is, you certainly get the medal for the most ab's this year!!! Lol!

Tr0ubled · 07/10/2012 23:32

Hannah I would definitely see your gp but I would really advise you overly stress your symptoms in order to get a referral. All too often the medical profession can fob you off with 'you've had a baby what did you expect' and it's so disheartening.
I was stitched up wrongly after the birth of my eldest and had to have an episiotomy repair at 6 weeks post partum, but unfortunately it broke down within a week, plus I got a horrific infection. The consultant I was under basically just told me to live with it and be thankful for my beautiful boy. It took me 4 more years (and one more baby) to go to the gp as I was so embarrassed. By this stage I was splinting all the time and I think it was because of this I was finally taken seriously.
Good luck.

Willieverfeelnormal · 08/10/2012 12:43

So, update from yesterday. 7 weeks post op Posterior, Anterior & perineal repair and had a rather vigorous internal exam on thurs night by my consultant who said all looked great (exam didnt hurt at the time). Had a rough weekend and today ive noticed that the pain and burning seems much worse after having been to the loo and i have also noticed that i have a bit of discharge (milky but no smell) theres also still some suture material coming out. My bladder also feels very sensitive and doesnt feel fully emptied. I really cant tell whether the majority of my pain is in my vagina or my bladder. These were all of my pre op symptoms and was continuously treated for Thrush or BV despite negative swab results. Funnily though my symptoms seem to be non existent when I'm in bed lying down! Weird eh. Anyway, I have a emergency telephone appt with my gp later so hoping he'll give me an antibiotic just in case theres an infection. Wish I could remain positive but just feel like perhaps my symptoms were not attributed to the prolapse and now I'm back to square one. Sad

fengirl1 · 08/10/2012 15:27

Oh bum, just had a phone appt and gp agrees. Just got to work out how I get hold of the prescription now.
Williever hope you got on ok.

Willieverfeelnormal · 08/10/2012 15:36

Fen - doc thinks prob just been upset a bit by the internal examination but has given me a 3 day course of antibiotics just in case. Trimethoprim is that what he's given me, is that what you were given? I'm now in the same predicament about how to get hold of the prescription lol x

WhoKnowsWhereTheTimeGoes · 08/10/2012 15:40

I think I might be in the same boat too, there's a whiff and a bit more bleeding. Going to call and try and see the practice nurse tomorrow. I'm not totally sure but best to not ignore it.

fengirl1 · 08/10/2012 16:49

Williever - I've got metronidazole and co-amoxiclav so just waiting for the accompanying squits too...Sad
Whoknows - do insist on an appt. don't be fobbed off.
I'm feeling bloody awful and rather upset as things were going so well.

jan310 · 08/10/2012 18:13

Hello,
I am new to this website. I am 51, menopausal and about 2 weeks ago I realised I had developed what I think is a cystocele. I had a slight cystocele with the birth of my 2nd child 17 years ago, but that just seemed to get better by itself - yes I was very fortunate.

In March I took up jogging, spurred on by all the advice about keeping fit and avoiding osteoporosis. To my amazement I absolutely loved it and was running 5K two or three times a week. I now know this was probably a mistake. There is SO much info out there about injuries like shin splits and stress fractures, but I never read a single word warning women about the possibility of prolapse. I even have a popular book about women and running - prolapse is never mentioned. Ho hum.

Anyway I am seeing a consultant on Thursday. Reading this thread has definitely given me food for thought - I can see I need to have my questions ready as I don't want to get fobbed off. I can't tell you how good it feels to share this. By the way my new hobby is googling the word cystocele and prolapse morning noon and night. Sad

wouldratherbeskiing · 08/10/2012 18:49

Oh Fen, Whoknows, Williever, sorry to read about your infections. What a rubbish time.

Jan - welcome - I'm a similar age to you. I too was obsessed for months with websites but have settled here for comfort and information. I feel for you having found an activity you love. 2 consultants told me I couldn't EVER ride or ski again but the one who operated on me and is a uro-gynae who specialises in these repairs said the wellbeing and fitness I will get from doing the activities. I'm going with him!!

Good luck and let us know what happens.

Sure - have you thought of a date yet for a meet up?

WhoKnowsWhereTheTimeGoes · 08/10/2012 18:50

Hi Jan, glad you've got your referral, that's half the battle. I know just what you mean about the running, I did the Couch to 5k last year after being a habitual non-exerciser for years, then developed a massive rectocele which promptly put paid to my running career. I'm not sure if I will ever be able to go back to it, there is so much conflicting advice out there, so frustrating I'm two weeks post-op for that now. Ask away if you've got any specific questions before your appt.

roseanna1 · 08/10/2012 18:59

So sorry to hear about the problems ladies...thinking of you x

jan310 · 08/10/2012 19:07

Whoknows - yes I did c25k too - wish I hadn't now. Good luck with your recovery.

jan310 · 08/10/2012 19:14

wouldrather - thanks for the welcome I am so glad I have found this sight. I am humbled by the bravery and humour in these posts.

jan310 · 08/10/2012 19:15

sorry site

YouSmegHead · 08/10/2012 20:44

Evening all

Well I have finally been to the gp and it is confirmed I have a cystocele and a rectocele. She said I have good pf but that I have to do 3-4 weeks of pfe Nd if no improvement to go straight back for a referral.

surewoman · 08/10/2012 22:14

Sending healing vibes to all you infected lot!! Hope things improve quickly xxx

Welcome Jan x

ps. I was told no more running, but think I can live with that!

surewoman · 08/10/2012 22:15

Yikes - we will need another thread set up soon. Where are you Ben10???

nanaof2 · 09/10/2012 11:25

morning ladies i havent posted for a week but have been reading all your postings on here just thought i would let you know that i am now weeing slightly better but still having to self catheterise up to 5 times a day i am off to see the urogynae nurses this afternoon with a list of questions including why i am not seeing my consultant for 6 months for a check up after reading your posts most of you are seeing yours between 6 and 12 weeks so i was quite shocked when the letter came considering all the problems i am having i think 6 months is a long time hope you are all recovering well and resting lots x

WhoKnowsWhereTheTimeGoes · 09/10/2012 11:51

Hi Nana you sound a bit more cheerful now, hope you get some answers this afternoon.

I'm just back from the GP, she wasn't totally convinced yhere's an infection but has given me a thorough once over, taken a swab and prescribed some ABs. I'm just sitting here gloomily reading the leaflet that says more than 1 in 10 people will get diarrhoea from them. Maybe time to stop the lactulose!

tinkxx65 · 09/10/2012 12:09

Hi everyone, not logged in since friday and wow this thread moves fast. Hi to all the new ladies. Well I am sat here in tears, just been to the doctors (as instructed by the gyne I saw on friday) and have been made to feel yet again that I am making a fuss. I have what I think is a rectal prolapse, and my doctor agrees, but he said it was not cancer and that it was nothing to worry about and yes a feeling of it falling out, wind and muscos loss was normal with a rectal prolapse but also nothing to worry about. I am so cross, all I want to do is to be able to go to the toilet, go and get my shopping and not have a sore bum all day. I tried to explain that every morning is a nightmare for me but he just looked annoyed and kept glancing at his watch, appointments are for 10minutes only, its a brand new building and they are obviously under instructions not to go over. Anyway thats my moan for today, my bum hurts, my cystocele is sore and I am going to go and lie on the settee and feel sorry for myself :-(.

HannahBerry · 09/10/2012 12:54

Thank you to those who replied to me.

I went and saw a woman GP. But can anything be done about prolaspe (or at least a feeling of heaviness)? The GP said the only treatment is pelvic floor exercises and that I have to live with it.

Thanks.

Tr0ubled · 09/10/2012 13:06

Tink and Hannah I'm so sorry you've both had such terrible GP appointments.

I'm not very experienced with all this and only have my own problems to base my answers on but I have been told by both the urogynae team and the women's physio that pelvic floor exercises cannot help with a rectocele (posterior wall) but can help with a prolapse of the anterior wall but only to an extent. But the long and short of it is we SHOULDN'T have to live with any of this and you both should demand a referral to the appropriate consultant. I was so fortunate that the GP I eventually saw when I got the courage referred me straight away, but unfortunately to a colorectal surgeon who after tests and diagnosing a large rectocele refused to operate. However a further referral (and more tests) to a urogynae and I have surgery booked for December.

Good luck both of you. X

Tr0ubled · 09/10/2012 13:10

I had my urodynamic test this morning and now have a constant urgency to wee. Can anyone who's had one reassure me that this is normal and will pass? It's a horrid feeling :(

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