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Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 5

999 replies

Piplysmelie · 10/07/2012 09:23

This is thread 3 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2
Thread 3
Thread 5

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
digerd · 27/09/2012 21:06

I started with urinary problems in my 60s, so suppose I was luckier than others. But the OXYBUTININ really worked amazingly well. My bladder had also prolapsed into the womb, but the problem was with the messages from the brain to the bladder that went a bit haywire - brain a bit ga ga anyway now nearly 70 !! The dry mouth side effect was annoying, and after being on them 2 years I decided to come off them and see what happens. So far after 4 months so good.

PostBellumBugsy · 28/09/2012 09:12

Welcome out the other side Whoknows - so glad to hear you are ok.

Glad to hear you are feeling better too roseanna.

Will be thinking of you next week Fen.

Tadpoley · 28/09/2012 13:37

Thanks surewoman for the comments, really, really appreciate it! Wasn't expecting surgery yet, but just didn't have a clue what I should be doing.

It really is hard psychologically isn't it, just been at a playgroup this morning - at the singing time everyone was throwing their little ones around for singing and I pretty much burst into tears and had to leg it, really upset by the thought that I won't be able to do rough and tumble any more. As well as feeling like I am a rubbish wife, constantly teary with a lumpy fanny! Nothing to do with DH I should add, who has been lovely. Having trouble at the moment thinking of much else, hopefully that will ease as I get used to it.

Feeling more positive about sex thanks, will give it a whirl this weekend I think! Certainly not great down there even before this happened, still maybe the fact that it is a bit more "roomy"might make the prolapses less obvious to OH! Also might try doctor again. I have some private healthcare from work, so hoping that might cover physio if I can get them to go for it.

Whoknows, hope the recovery is going well, and good luck for next week fengirl. x

PostBellumBugsy · 28/09/2012 13:52

Tadpoley, I can't comment on the cystocele aspect, but I lived with a big rectocele for 8 years & there was only really one thing that I couldn't do & that was poo! Other than that I lived a pretty normal life and did plenty of rough & tumble with both my DCs.

I was / am a bit of a pelvic floor exercise fanatic & whilst that won't fix a rectocele, it does mean that all the surrounding muscle is toned & will be providing support. IMO, kegels & other PFEs can be good for helping tighten up post-birth fanjos.

Enjoy rough & tumble, but try not to lift or heave around your DCs. Heavy lifting of any kind is not good for prolapses. If you can get private physio, go for it, it certainly won't make anything any worse.

WhoKnowsWhereTheTimeGoes · 28/09/2012 16:36

I'm home, the journey was fine, although I'm glad it was only 20 mins. Had a shower and headed to bed but I haven't been anle to sleep because my tummy is full of wind and I keep having to go to the loo (I pondering the wisdom of laxatives at the moment) but better than having constipation.

Tadpoley - I also lived with a rectocele for about 8 years withvery few problems, it's only in the last few months that it suddenly got a lot worse, I have had surgery this week. I wish I'd been more diligent with my PF exercises now as it might have kept it from getting this bad.

BagPuss71 · 28/09/2012 16:46

HI all, I posted on here a few weeks ago.....

Last year I was diagnosed with a cystocele and a rectocele. I had a few symptoms, mainly pressure and a bit of aching but it wore off after a few weeks :)

A couple of months ago my symptoms suddenly got worse - aching groin (much worse before my period) leg pain, aching fanjo, pressure, so much so at times I can't sit/stand for too long. I can't always wee or conversely have a sudden urge to wee, I can't have a complete BM and sometimes have to splint :(, I can't do any exercise, apart from swimming, the aching is unbearable afterwards, sex makes it ache too. The aching and pressure makes me feel sick. In short, I can't do anything that requires any exertion. I'm 40 and have two young DCs, my ds is 8 and has ASD. I can tolerate some discomfort but I just want to get a bit of my old life back :(

Needless to say I have been to the GP who didn't examine me but basically told me to f* off and that there was nothing wrong with me :( I asked about a pessary but he said it was only for older women and wouldn't help someone active like me (Active?? Chance would be a fine thing...)

Anyway, the mention of private health care saw him dash out a referral letter to the gyne whilst I waited.....

I'm seeing the gyne next week but I'm so fed up and scared I'm going to get fobbed off again. I'm doing pelvic floor exercises but I think the damage is already done so its a bit late .... Isn't a pessary a temporary thing? How bad does it have to get before surgery is offered? How much worse does it have to be before I can get some help?

WhoKnowsWhereTheTimeGoes · 28/09/2012 16:59

You sound exactly like me Bagpuss and I was offered surgery straight away by gynae this time (although I had had a previous referral several years ago when I got given PFEs to do, but that did turn out to be sufficient for a while, then I stopped bothering). I would go in and say all you have just said here, that basically you can't carry on like tjis any longer. PFEs will not reverse a prolapse, they may prevent it worsening but yours is beyond that now by the sound of it, don't let them fob you off. Private are less likely to tha NHS anyway I would think.

roseanna1 · 28/09/2012 17:13

Hi Bagbuss,

I felt similarly donned off by the gp even with pmi, but I saw a different gp and without examining me he referred me privately on the basis of the splinting.

I felt the consultant took things much more seriously and even tho the rectocele was small because of the sprinting side of things he said surgery was the best way forward and I had the repair done within 10 days.

The cystocele and urethrocele are small too and he doesnt want to touch them at the moment, but offered tvto to deal with stress incontinence (had problems but that's a whole different story!)

In short, be prepared for an examination and lots and lots of questions, but I think your concerns will be addressed much more seriously than they were by the gp.
Best of luck x

roseanna1 · 28/09/2012 20:28

Welcome home whoknows :)

Stool softeners/ glycerin suppositories work for e better than laxatives and are really good especially for that first bm x

Bladderama · 28/09/2012 20:39

Glad that you are home again whoknows get plenty of rest Smile

How are you Roseanna? Recovering well I hope

Goodluck next week Fen x

Have done myself an absolute mischief today and am crying with pain and consoling myself with wine Blush

WhoKnowsWhereTheTimeGoes · 28/09/2012 20:51

Oh no Bladderama you take it easy this weekend too. I've been in bed apart from bathroom visits today, the Dr suggested I take lactulose which I have been doing, have had several small BMs with ease. I've got glycerol suppositories as well in case. I think I may have overdone the fibre rich foods as I had terrible trapped wind earlier but better now. DH has put two chairs at the end of the bed so the DCs can sit with me :)

Bladderama · 28/09/2012 21:08

What a lovely thing for your DH to do whoknows Smile

My DH is watching Miranda and I have wine in one hand and fanjo in my other don't know whether to laugh or cry

Bladderama · 28/09/2012 21:11

and that sounded very wrong purely trying to protect myself from more pain from laughing I promise nothing else Shock

fengirl1 · 28/09/2012 21:54

Bladder, what on earth have you done? Do take care of yourself - and all you other post-op ladies too. Just been laughing out loud to Mrs Brown's Boys.... Maybe you should avoid that for a while Bladder, but when you're feeling better, YouTube the bikini wax episode - one of the best! Grin

roseanna1 · 28/09/2012 21:57

I'm doing much better thanks Bladder, still getting a bit of residual nerve pain and have a very tender spot over the urethral incision but compared to how I was I'm not complaining....now spill...what'd ya do? :o

Bladderama · 28/09/2012 22:20

Got out of the car incorrectly and felt AND HEARD the front of my fanjo rip

Why the feck I am still so fragile? Even an entire bottle of cava has not dulled the pain

fengirl1 · 28/09/2012 22:23

Bladder - A&E tomorrow morning - seriously. Sending you a (hug). Xxx

roseanna1 · 28/09/2012 22:45

Agree with Fen - you really need to get that looked at so they can sort out any damage now as it could be much harder later. Goodness me....thinking of you honey x

Bladderama · 28/09/2012 23:00

thank you Fen and Roseanna x

Can't believe that this could happen after 5 weeks will report back in the morning x

roseanna1 · 29/09/2012 10:43

How are you this morning Bladder? Been thinking of you x

WhoKnowsWhereTheTimeGoes · 29/09/2012 12:18

Bladder - thinking about you, hope you're ok. x

Bladderama · 29/09/2012 14:33

Sad am sore, swollen and bleeding again and a rather large stitch has just come out.

I am seeing the practice nurse on monday so will get her to check on things then.

Am so pissed off with myself that I have probably damaged the healing process Sad

How are you feeling whoknows and roseanna? Thank you for thinking of me x

surewoman · 29/09/2012 14:41

Bladder - so sorry to hear you are sore etc. Maybe it was a rogue stitch that needed to come out but had got stuck? Do things look/feel different than before this happened?? Thinking of you xxxx

WhoKnows - hope you are doing ok? x

WhoKnowsWhereTheTimeGoes · 29/09/2012 15:11

Sorry this has happened Bladder hopefully it is just a small setback and you will see an improvement soon.

Nothing much to report from me, I've managed a shower and hairwash today so feeling a bit more human. I slept well last night so although I am physically tired I am mentally alert. My parents are here today and have taken the DCs out to give me and DH a break. I have been in bed most of the day, never have I been so grateful for my iphone.

roseanna1 · 29/09/2012 15:37

Take it easy Bladder - let us know how you get on...

I'm going back to work on Mon so have been trying to do some driving as I have a serious commute but it seems to be really irritating the damaged nerve even on small drives, so a bit worried about how along drive will be. Want my 'old' life backeven if its just for a few weeks before the next surgery so guess I'll just need to suck it up
lol.

How are you getting on Sure - my op buddy :)