Gp has said she has never come across it before and she's been in practice 40 odd years. I've had it for about 6 months now - if I put an umbrella or newspaper under my arm it hurts. Other times I am just sitting here like now and my armpits are throbbing, then the pain will creep down the arms - bit like when you have been lifting weights. Hope I am making sense.
I've been tested for very many things (this is all part of my ongoing mystery illness) and the consultant felt under my arms a couple of months ago, could find no lymph nodes up, but I am not even sure myself what it would feel like if they were. Its not back or neck related by the way, its a deep ache.
Have been referred to a rheumatologist, but if you have any ideas love to hear them?