Support thread for those awaiting medical appts,tests and surgery

[ohyouBadBadkitten]

It seems that there is probably rather a lot of us who are impatiently waiting to see consultants, have tests or waiting for surgery. So a thread for you to vent in or post your 'hooray's'

me. Am waiting to see my cardiologist. been a bit of a catalogue of delays and getting lost in the system. I have a wonderfully supportive gp who has just calmed me down after me losing the plot a bit when I found I wasnt on the appt system.

How about you?

Getting it sorted would be great and you are right, it is reassuring. I think some people think that it cant be that if it's taking that long but in the last week it's been obvious how much I'm struggling.

You can say it as many times as you need to. If only we could be there physically for you.

I'll be expressing - if I don't, I risk mastitis - but I've still got a fortnight's worth of frozen milk in the freezer as the milk I express will be too full of medication to be safe for consumption.

If you don't mind, I'd rather not go into the medical details online. I share the same condition and am going through the same procedures as a member on here who died last year, and I don't know how much she'd have wanted said IYSWIM :(

Oh I'm so sorry Breastmilk :( Didn't want to pry.

Maybe having to express will give you something else to focus on while in hospital as it is a positive thing to be doing.

Breastmilk I am sure that once tomorrow is over things will be much better. There is nothing worse than having a procedure done when someone you know has not survived. As you know, I was in a dreadful state before my major surgery because my dad had died during a similar operation when I was a teenager. If I was told tomorrow that I needed a reop, I would not be able to function, but somehow I would dig deep and carry on. That is what we do. That is what you are doing now.

I really hope that you have a bump free recovery from tomorrow's op. Whatever happens, we will be here for you, thinking of you and your family, and wishing you home as soon as it is safe. Some of us will be praying too. I was completely overwhelmed by the number of people's thoughts and prayers that were directed towards me when I was in hospital.

Have you actually had a BM Latte BMLatte? :) Sorry to lower the tone but i have been wondering

Thank you all so much for all of your support and prayers. In past years, I've had the privilege of seeing miraculous healings take place, and I know that prayers works.

And thank you to all of those who have been through so much more major surgery than me for having the generosity of spirit not to have told me to piss off for being such a drama queen like my best friend just did.

And no, I've never made coffee out of my breastmilk. I guess my name is just designed to convey my love of breastfeeding and my relief that at least my body can do something right.

All the best for today. Your best friend needs a kick up the bum. There are lots of us that are scared of hospitals, and going in for an operation on your heart is going to be terrifying.

The surgery may well be safe, the doctors skilled, but it is still you needing to trust others. You are young and you have very young children, so any amount of risk is going to be tough. Having children makes it so much harder too, because you end up being more fearful for them than you are for yourself.

Be strong today. Think of the rewards at the end of it - well not hospital food, although after fasting even that doesn't taste too bad. Being well and being there for your husband and children.

All the best today breastmilk. You know that we are all thinking of you today. Be brave and it will be done and over before you realise xx

hello, can I join in? Waiting for a refferal to respiritory team, next appointment was in June but dr wants me to see them before then because of amount of times been on steroids. Supposed to be training for 5k (not easy for me) in expats dds name (she has AML) but sitting here wheezing on my nebulizer.

largeglass good to see you posting from out of hosp, remember I was in briefly at same time you were.

BM if you did decide to make it then I bet it would sell...some people will buy anything on the internet!

Hi giraffes. I've seen your posts before. My DH has asthma and has had only 1 or 2 admissions since I've known him and then they found something to control it. I truly had no idea to what extent asthma could get if it was not under control. I hope that you'll be able to get an appt soon. Don't worry about the 5k as it will just make you worse getting worried. Just concentrate on your breathing while you're on the neb. Hope you feel better soon x

Hi Ben, thanks. I have brittle asthma so can be hard to get under control.

Thinking and praying for you today Breastmilk.

Welcome giraffes :)

You are all giving me a bit more backbone to deal with this. Another phone call to the consultants sec due this morning.

Thinking of you today *breastm

Thinking of you today breastmilk
Waves to giraffes hi hospital buddy, trying my hardest to stay out at the moment.
Good luck with chasing badkitten
I'm being brave today and going to a farm with the boys and Dp, gulp.

Brilliant idea for a thread. Can I join. Currently waiting for a lap chole (gallbladder removal). A simple op turned into a bit of a saga. First referred for op in early Sept. Op booked for last November. Was rather ill leading up to it (severe pain, itchy skin, brown urine - classic signs of obstructed bile duct), but turned away by 3 NHS staff including GP saying that my op would sort me. Day of op, they went in through keyhole then came straight back out due to dilated bile duct so too risky to touch anything. Reffered to another hospital - they lost my referral letter and only got going after I practically stalked the consultant's secretary. Lots of tests since: CT scan, MRI, EUS, countless blood tests and finally had some treatment last week - ERCP -to remove stone from the bile duct. All that little lot took 4 months. Having said that, once they got moving, every doctor, nurse, radiologist and consultant have been fantastic.

Now I am told that I might need to see my consultant again before I am listed for my op. It was a 7 week wait to see him last time. WHY!! I know the next and final stage so why do I need to wait possibly 7 more weeks to have him waste his and my time telling me something I already know. Then I have to wait another god knows how long for the actual op. Just put me on the list!! I have rang the consultant's secretary saying all this - hopefully she's so sick of me, she'll do all she can to not hear from me again. Honestly. I think the waiting has to be the worst part. I start every day wondering if this will be the day that I hear from the hospital. I have so many things on hold in my life; trying for another baby, going for promotion at work, haven't seen alot of friends and family in months as put off plans just in case the docs need to do another test etc. Having said that, I know that I am one of the lucky ones. I think of others who perhaps no longer have any fight left, or no resources to keep on top of the NHS, and as a result get lost in the system and just wait and wait. I am a massive supporter of the NHS, but the levels of admin and procedure are mental.

Goodness. Sorry for the essay. That's frustration coming out I think. I really hope today is good for some of us and we hear some news!

Welcome to the thread bambino. It sounds like you have had a nightmare time. I hope that you finally get your surgery sorted out. I know what you mean about putting your life on hold. I wanted to visit family this Easter and can't as I'm not able to travel safely. Supposed to be booking flights for half term and again can't.

LGR. Good luck for today!

Just put DCs in pushchair for DH to take to childminders.

Crying so hard I cant see the screen. But if it wasn't for them I'd not be having this surgery. If it wasn't for them I'd just have been letting nature take its course and all such euphemism.

Not gonna take phone into hospital as scared I'd post or text people scary stuff if I get too desperate. But every faith-based toddler group in the city seems now to be praying for me.

But I'm so thirsty I could scream and I still need to express before I leave for the hospital.

But thanks.

Bye.

{{{{hugs}}}}

Appt is a week on Friday. Thank goodness.

All the best for today Breatmilk

thats great OYBBK :)

Breastmilk I'm a relative newcomer here but wanted to wish you all the best for today.

breastmilk thinking of you, lovely.