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Support thread for those awaiting medical appts,tests and surgery

999 replies

ohyouBadBadkitten · 16/03/2012 18:13

It seems that there is probably rather a lot of us who are impatiently waiting to see consultants, have tests or waiting for surgery. So a thread for you to vent in or post your 'hooray's'

me. Am waiting to see my cardiologist. been a bit of a catalogue of delays and getting lost in the system. I have a wonderfully supportive gp who has just calmed me down after me losing the plot a bit when I found I wasnt on the appt system.

How about you?

OP posts:
Madsometimes · 18/04/2012 20:48

Ok, wait for the call back, but if they suggest A&E then do go, even if it is a pita.

BreastmilkDoesAFabLatte · 18/04/2012 20:50

If they tell me to go, I will.

But why didn't I think to keep back some valium for this?

LargeGlassofRed · 18/04/2012 20:50

Just seen this, please get it checked at a and e breastmilk it's just not worth the risk.

Madsometimes · 18/04/2012 20:51

What, the well oiled wheels of the health service!

BackPackBackPack · 18/04/2012 20:53

Hi BM I would go to the hospital. I know you don't like them but it could be best. Hopefully everything is ok.

I have also heard horror stories about the Mirena. Could you get the copper coil? I'm not allowed hormone contraception but apparently the copper coil is ok.

Madsometimes · 18/04/2012 20:56

A&E at 9 pm is no-one's dream destination, especially someone that needs all valium to enter a hospital. However, with your medical history, you do need to be checked. Aren't ooh call handlers admin people. AFAIK, they are not triage nurses.

Ohyoubadbadkitten · 18/04/2012 20:59

BM please go and get checked. Far better now than ending up going in a few hours under an emergency situation.

OP posts:
Madsometimes · 18/04/2012 20:59

Backpack The copper coil makes bleeding heavier, so it would not be suitable for me. I can't have oestrogen containing contraception, because of stroke risk. Mirena has the lowest levels of hormones because it is targeted.

Are you still in hospital, and how are you?

BreastmilkDoesAFabLatte · 18/04/2012 21:04

oh fuck they've phoned 999

BreastmilkDoesAFabLatte · 18/04/2012 21:06

just to let you know I dont have a smartphone so wont be able to update from hospital

LargeGlassofRed · 18/04/2012 21:07

Don't panic breastmilk, I've had this before, at least they can get you checked straight away and treatment.
we're with you

Ohyoubadbadkitten · 18/04/2012 21:09

{{{{{hugs}}}}} BM it will be ok.

OP posts:
Madsometimes · 18/04/2012 21:11

I know it's scary, but as you said to Backpack up thread, if hospital is where you need to be, then you must go there. Hopefully, with the ambulance you will avoid the drunks and less than lovely types that hang out in A&E.

I'm sure everything is fine, just think of this as a bump in the road.

BackPackBackPack · 18/04/2012 21:24

Try not to panic BM. I hope everything is ok in thinking of you

I never knew that re copper coil.
Yes in still in, I'm a little bit better, I've had a MRI scan on my head and spine which shows the shunt is working but not what the lump is. So I had an Ultrasound scan it showed the shunt is draining from my brain (well the MRI showed the shunt draining)but not letting fluid out in my abdomen so the lump seems to be the CSF building up that could be pressing on nerves ( i can't see how fluid can cause that much pain surely it would just absorb)

The Drs are sending the scan and MRI pictures to the surgeon. If the surgeon don't want to or able to help there is a specialist that all of the pictures can be sent to. Its just a waiting game.

I've been asked if I want any more surgery as each surgery seems to knock me back more

Hope everyone else is fine

BreastmilkDoesAFabLatte · 19/04/2012 10:44

Thank you all so much for your messages last night... I'm so hugely touched by how quickly the four of you responded. Thank you.

I'm home. I haven't had a heart attack and the pain is apparently just 'normal' post surgical pain.

But I had one of the worst panic attacks ever in the A&E - worse, even, than during the night after the surgery - and I was absolutely terrified by what ensued and then the police followed me home and wanted to interview me at 2am.

My children are 2 and a half and almost 1. I lost my father at 20 (he chose to disown me) and I was too young to cope... I'm trying to decide the age at which, hypothetically, I would have had sufficient maturity to get through it. Probably at the point at which I committed myself to a lifelong relationship with DH... but we didn't meet until I was 28. So my prayer for today is that both DD and DS will develop mature and committed partnerships as young as possible (one of the most happily married couples I know got together at 15) so that I can stop going to hospitals whenever I should and instead 'allow nature to take its course'. Or else that I will stop being afraid. But that feels like an impossible ask.

LargeGlassofRed · 19/04/2012 11:54

Ah so glad your ok Breastmilk, and your home, nothing else matters, I'm sure A and E are well used to people having panic attacks.

Madsometimes · 19/04/2012 12:01

No, you don't get out of fighting for yourself that easily. Your children will love and need you right into adulthood, whether they are in relationships or not. Your dh will always need you.

Which leaves you stopping being afraid. You probably should have not gone to A&E on your own last night, but with two children to be looked after, you had little choice. I'm glad that you got a clean bill of health last night in terms of the chest pain. The A&E department should have given you something for your anxiety attack though.

BreastmilkDoesAFabLatte · 19/04/2012 12:31

They said that they don't prescribe for anxiety. In these days of budget cuts and suchlike, I can believe that.

But yes, I should perhaps procure a little supply of Breastmilk'sLittleHelpers for any future such eventualities.

Madsometimes · 19/04/2012 15:21

I got an appointment through for the ASD specialist today. The earliest he can see me is late June, which is fine because it isn't urgent. The only problem is that I realised the date wasn't very convenient, so I rang back to ask for the following week. I got Computer Says No! If I go into the following week, then the appointment falls out of the minimum referral time, so I can't book it, even though there are spaces Hmm

Madsometimes · 19/04/2012 16:20

Oops I mean maximum referral time.

BreastmilkDoesAFabLatte · 19/04/2012 17:53

Pure Orwell, that. But it does sound as though the TOE/ASD people are a bit organised. Everything crossed for you...

Madsometimes · 19/04/2012 18:09

Nope, they're not. I don't get my TOE until after I have seen the ASD specialist, so my first appointment will be a waste of time, because he will not be able to tell me anything. No wonder he has such a long waiting list.

BreastmilkDoesAFabLatte · 19/04/2012 18:17

:( I'm sorry. What a nightmare. Sounds like one of those bureaucratic things designed to save money which end up clogging up the whole thing.

BreastmilkDoesAFabLatte · 19/04/2012 18:20

Could I have the 600th thread slot, BTW?

Ohyoubadbadkitten · 19/04/2012 18:46

That's ridiculous Mad. Grrrrrr.

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