Support thread for those awaiting medical appts,tests and surgery

[ohyouBadBadkitten]

It seems that there is probably rather a lot of us who are impatiently waiting to see consultants, have tests or waiting for surgery. So a thread for you to vent in or post your 'hooray's'

me. Am waiting to see my cardiologist. been a bit of a catalogue of delays and getting lost in the system. I have a wonderfully supportive gp who has just calmed me down after me losing the plot a bit when I found I wasnt on the appt system.

How about you?

Sorry to hear your having such an awful time backback hope you get into hospital soon.
Mad I hope you get your sppointmentnf for the ablation soon and it does some good.
Breastmilk good look with this weeks toddler groups.
So glad first day back went ok kitten.
I was released yesterday eve yippee! So home again although feel completely drained and chest pain awful, Dp isn't renowned for his caring skills had to remind him this morning when he said get up lazy at 8 o'clock that I still have pneumonia and would take a while to get better.
Had chest X-ray yesterday and it looked the same as last Thursday's but no worse. And crp and white cells were slightly lower than admission. So we'll see.
When I got back yesterday there was a letter from the GP asking me to contact him and arrange a fasting blood test. Had some bloods done last week by the neurologist to do with being on methotrixate so must be something to do with that.
I can't get a phone appointment till next Monday.
Due to see the respiritory consultant on Thursday so hopefully he can answer some of my questions.
I'm also waiting at the moment to see eye consultant as dry eye much worse and have pain and blurring in my right eye. Hopefully that will be soon.
Sorry if I've missed anyone,

Did they say why you were released LGR - apart from the niceness of being home were you happy with that? You are really really going to have to take it very easy for the next few weeks. Your dp is going to have to get used to that fact. At least you are going to be seeing the resp consultant in a couple of days, so if you aren't improving then hopefully they can take care of that. Will your dp go into the appt with you? I hope the eye appt comes through soon.

Backpack I suspected that surgeon was being off with you for that reason. No doctor would hold depression against a patient, and being a hospital inpatient is very stressful. I'm glad you are being admitted to a hospital near your home. That will make things much easier for your dp, and your dd will be able to visit.

LGR, your dp sounds like my dh. I know it is tough on men when we are out of action, they have quite a steep learning curve. My dh is cooking at the moment, but it will not occur to him to load the dishwasher. After my op, dh said he could understand why I needed an afternoon nap for the first few weeks, but felt that I was milking it by napping after 4 or 5 weeks. I wasn't.

I hope that you start to feel better soon. Don't be afraid to demand an emergency appointment or an out of hours one if you need it.

Good to see you back LGR, and glad the results are (maybe) coming, kitten.

I'm having another really scary day here. Feeling so ill... exactly the same totally overwhelming, disorientating, life-arresting level of fatigue of before the surgery. And now that I've had the surgery and discovered that it hasn't helped (really, the consultant had warned me that it wouldn't)... well, how, how, how am I supposed to live the rest of my life like this? People do manage, I know. But I don't think I want to.

I'm going to step back from this thread for a bit. I'm worried I'm about to start saying things I might later regret.

{{{hugs}}} we are here for you BM when you want to talk. Hang in there.

Don't go away BM. You haven't said anything on this thread that is inappropriate.

I'm feeling really tired too today. I think going to the hospital drained me physically and mentally. I went on public transport, and at one interchange there are three flights of stairs to climb, not huge ones but big enough. I managed two, but then had to stop and rest. I could only carry on after everyone else that had been on my train passed me. I was the unfittest person on the train, which is not something to be proud of. I feel like I am well and symptom free, but I obviously have a way to go.

You'll get there Mad, I think that it's only when you push yourself a bit that you realise how far you are from being right still. Also, going to hosp does drain your energy emotionally. I think it's the stress and the anticipation. Lots and lots of rest for you know I hope?

May I join you?

I'm so impressed by how brave you all are. My illness seems trivial in comparison but I could do with an outlet for moaning as DH worries so much I don't like to put more strain on him.

I had surgery to remove endometriosis in October but following the op I had a reaction to the pain relief and stopped breathing.

Due to the cocktail of drugs I had been given by the anaesthetist and the severity of my reaction I have now been classed as allergic to all pain relief except paracetamol - 18 hours post surgery on only paracetamol was rather interesting [sad

Since the beginning of this year, I have not been feeling right and went back to the GP where it became apparent that following my surgery the biopsy found granulomatous inflammation but the surgeon disregarded the results. My fantastic GP is determined to get to the bottom of what is wrong and after 2 rounds of blood tests I'm now waiting for the resullts of a CT scan which I had 2 weeks ago which I will get on 04 May.

Welcome 2gorgeousboys :) your reaction sounds scary. Can they not pin down which drugs you are allergic to or is it too risky? I can't imagine life with only paracetamol. Thank goodness you have such a good gp, they are worth their weight in gold. The waiting for the results is horrid though.

Thanks Oybbk, I think it's the not knowing that's worse isn't it.

Apparently because of close relations between drugs they can't pinpoint what I can and can't have. They have also said that because reactions usually escalate they can't risk testing me as the only way to do this would be to give me each drug individaully and see what happened.

BreastMilk I would be sad to see you disappear, although I understand that sometimes we need some mental space. Maybe stop posting but keep reading?

Nightmare 2gorgeous.

Hi 2gorgeous
I can't imagine what recovering from surgery with only paracetamol was like and don't want to.

I know that I sometimes have a moan about my dh, but he has been through the wringer since last June. I have basically put him through hell. I think in many ways it is easier to be the sick one than the partner with all the worries. You are right, this is where support groups come in handy because they take the strain off loved ones.

I agree with you there Mad.

Hi I'm new here and maybe someone has suggested this before but I swear by aromatherapy oils for healing and fatigue - to help sleep I take a few drops of lavender oil and rub it under my nose. To wake me up I use rosemary and peppermint. It really does work. Also lavender is a great healing oil - if you want surgical cuts to heal up fast then pour lavender oil liberally over it (works with burns too - I keep a bottle in the kitchen)

Another thing that send me into a very deep sleep is half a teaspoon of bicarbonate of soda in water last thing at night (great for gums too - swirl around the mouth a while before swallowing.

Thank you for your suggestions HanoverGirl. I am rather addicted to lavender. I have made wheat bags with loads of lavender in it. Very nice :)

Hi HanoverGirl, It's good to meet you. I agree with lavender oil and also tea tree being great for cuts and burns.

I plucked up the courage to talk to my GP today about my periods. I said that I didn't want hormonal treatment, but all the medical alternatives are out for me. After consulting the haematologist she is recommending Mirena. I'm a bit worried that it will turn me into a spotty hormonal monster, but I'll give it a go. I don't think I want ten more years of losing 200 ml at each period, but I'm also wary of being stuck with a coil if it doesn't suit me.

It would be good if you report back. I keep considering mirena but like you am rather scared of the side effects. Good luck with it.

I know I said I'd stay off this thread but I don't know where else to turn... :(

I've just been getting chest pains and phoned OOH. Waiting for a 'within the hour' callback...

I have read horror stories about Mirena, but everyone I know in RL enthuses about it. One of my best friends could work for Bayer on commission. She has one, and is also a GP and fits them in other people. She feels that it has improved her life because she doesn't have to worry about pg, and can swim as much as she wants.

My cardiologist was really against Mirena when I asked her a few years ago because of endocarditis risk. However, I have come to the conclusion that there is no risk free answer, so I will have it fitted with antibiotic cover. My GP said that it is usually fitted during a period. That is not going to happen, I would be mortified. I think they prefer to fit it during a period to ensure that women are not pregnant. I would prefer abstinence!

Go to A&E BM. Don't wait for the call back. All the best.

The pains are lessening already though. I think I may have overreacted. It's probably just because I picked DS up for the first time today.

I would call a cab, leave dh at home with the children.

I never go to A&E, but I would with chest pains, especially as you have been feeling generally unwell these last few days.

Cross posted!

But if it was that urgent, wouldn't the call-handler told me to have gone straight away?