Active discussions

Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Talk
General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Original poster

WAHEY!!!!! PCT have agreed to fund herceptin

30 replies

lalaa · 01/02/2006 11:34

That's it really. Just bouncing around my kitchen dancing to Madonna.....!

OP posts:
HenniPenni · 01/02/2006 11:40

Really really pleased for you
Have you had to fight to get it?

Marina · 01/02/2006 11:41

Fantastic news, about time too

Original poster
lalaa · 01/02/2006 11:46

We did a pre-emptive PR strike in November - I was on television and stuff - while the application was made and I wrote them a stiff letter last week saying that the media wanted to do a follow up and could they please give me an answer because I wanted to respond.
So, haven't had to fight, but have done anyway, and I've definitely had to fight the system - NHS admin is appalling. PCT told me last week that they hadn't actually received an application which was a load of old cr*p. It took me banging heads together to get the answer.

It's such a relief not to have to gear myself up for a big fight.....can just concentrate on getting well.

OP posts:
amanda1 · 01/02/2006 11:47

Message withdrawn

amanda1 · 01/02/2006 11:51

Message withdrawn

amanda1 · 01/02/2006 11:52

Message withdrawn

amanda1 · 01/02/2006 11:52

Message withdrawn

amanda1 · 01/02/2006 11:52

Message withdrawn

amanda1 · 01/02/2006 11:52

Message withdrawn

amanda1 · 01/02/2006 11:52

Message withdrawn

Elibean · 01/02/2006 13:26

Yeay!!!!!!

GDG · 01/02/2006 13:49

Wow Amanda1 really is pleased!

Brilliant lalaa - all the luck in the world to you

robinpud · 01/02/2006 14:06

I am as pleased as Amanda for you Lalaa.

PollyLogos · 01/02/2006 14:25

What fantastic news lalaa Very, very chuffed for you.

Piffle · 01/02/2006 14:26

lalla that is fantastic news
All fingers crossed it works a miracle for you

Evs09 · 01/02/2006 14:34

Hi lalaa.Soooooooo pleased for you. May i ask you a question.Read someones post to you that Tamoxifen can stop efficincy if you are Her2 +ve. I was put straight on tamoxifen and as far as i know wasn,t tested for Her2.Should I question my oncolygist about this or is it correct that herceptin is best effective straight after chemo??. Anyway fab news for you Im so glad.

hoxtonchick · 01/02/2006 14:43

great news lalaa .

PeachyClair · 01/02/2006 14:56

YAY!!!!!!!

tamum · 06/02/2006 12:56

God lalaa, I missed this- only found it because I was looking to see if there was a discussion about Panorama last night. That's great news, well done

Evs09, it's not that Tamoxifen stops efficiency, just that Femara may be better if you are HER2 positive and ER positive. I would be inclined to ask to be tested for your HER2 status if it hasn't been done already, just so that you know. Good luck.

Aloha · 06/02/2006 12:59

Wonderful news. Really pleased for you. And what a fight you put up! So impressed.

katierocket · 06/02/2006 13:01

excellent. I know someone that's been taking this for a while and it's going really well.

bossykate · 06/02/2006 13:03

wow! good for you! well done hope it does the business for you.

Evs09 · 21/02/2006 11:14

lalaa- Hi Hun.
Just wondering how you are keeping.
Hope all is well.

Original poster
lalaa · 21/02/2006 14:46

Hello
Thanks for thinking of me. I've done my 5th chemo and the 6th and last one is on 7 March. I absolutely cannot wait to get that one done! It has become harder and harder to cope with the side effects of the chemo and am now planning to go into hospital for a couple of days after this final one. The last one was overwhelmingly awful, and it's very hard for dh to keep house, work and dd all going when I'm so ill. Apart from that I'm delighted that Spring is springing and am enjoying every day things that I used to take completely for granted.

OP posts:
Evs09 · 21/02/2006 15:17

Oh lalaa I wish I could help.Im so glad your last chemo is within reach. I remenber my last chemo, it was very hard physically but mentally was like someone lifting me out of a big tunnel.Anyway sending you loads of hugs and look after yourself not long to go. If you need to speak do cat me