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***TAMOXIFEN number 19***

995 replies

MaryAnnSingleton · 31/01/2012 16:41

ta daa !

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Gigondas · 14/02/2012 14:52

Good luck with blood test - hate em myself so massive sympathy here.

Can we add my friends twins to our candles? They had an eye op last week and just found out it looks like didnt work. She is so upset - apparently go back in 3 weeks for another test but not looking good Sad

MaryAnnSingleton · 14/02/2012 15:03

oh poor things - yes of course Sad

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Sometimesiwonder · 14/02/2012 15:18

Absolutely. I'll light a candle for them later, when I'm going to be sitting keeping an eye on it for a while. What a flipping shame. Eyesight is so precious. Sad

Well done for getting bullish on the blood test, MAS. Don't be afraid to look away if you have to. x

NedSchneebly · 14/02/2012 15:46

Hey all -sorry not posted for a few days - been at parents, and posting on phone is rubbish because it eats my posts. . .

MAS sorry about Patience. Big hugs x x x

amber what a horrible experience for you - I'm so sorry you've had a hard time.

holsten good for you on the creative front! Am sure your man will love it. Let us know if his reaction is anything other than awe and wonder at your talent, otherwise we can send the girls around . . . Smile

kurri in awe of your weight loss- well done! Lyme was lovely - we had a beach campfire, and cooked herring from the fishmonger and built stone towers and DS and his cousin endlessly threw rocks into the sea!

How are you doing gig ? Hope progress is being made x x

Sorry if I've missed anything else - managed to gloss over taking at your own boob with a comb Shock

Sometimesiwonder · 14/02/2012 15:57

I love Lyme Regis so am very Envy, Ned.

On the boob front, I made the mistake of wearing a very soft bra to Pilates last night. During the warm up there was a LOT of movement. At one point I distinctly heard a slapping sound. Unfortunately, so did my pal Blush Grin

NedSchneebly · 14/02/2012 16:16

Oops sometimes !!!! More Envy I'm afraid - were going back to Lyme tomorrow for PILs to take us out to lunch at Hix's fish restaurant. What news with dd?

What advice for chemo please, oh ladies of wisdom? Have first appointment for 1pm on Monday. What should I take/ eat/ drink/ do/ not do before, during of after to make it easier on myself? I'm having FEC initially, if that makes a difference. . . Am v v v v v scared, but can't identify what I am scared of Blush I don't really know what to expect and I think that's why I am so wobbly about it. . .

OneInEight · 14/02/2012 16:45

hI Ned, feeling terrified is pretty normal or at least I was. d.h. had to come in with to make sure I didn't run away for support before my first session. Try and eat something before you go in and drink plenty. My top tip is to take the anti-nausea pills as soon as you start to feel sick rather than leave it till bedtime which is what was suggested to me. I am finding I feel sick for 4 or 5 days and then very tired days 6-7. After that life is on the up again. If you can get someone to keep you company during the session that would make it go more quickly. I am not having the 'F' bit of the FEC but am doing the cold cap so the session takes about 5 hours for me. I have luckily missed so far lots of the other lovely side-effects they scare you with - they give me a medicated mouthwash at the session which seems to do the trick with the sore mouth they warn you about. When is your first dose?

OneInEight · 14/02/2012 16:52

Should read messages fully before asking questions Ned. My next dose is Monday too - will be thinking of you. Hugs Amber, I thought chemo was the worst thing but the herceptin sounds to be worse for you. I really hope your GP can sort out more effective blood pressure pills for you. Lit a candle for the twins eyes too. Mine have been trying (luckily not succeeding) to make stinkbombs all day.

NedSchneebly · 14/02/2012 16:57

First dose Monday at 1pm. Guess an early lunch good idea then? I've been told DH can't sit with me while I'm having treatment because there isn't space Sad
Not doing cold cap because I hate being cold Blush so told each session should only take 2 hours or so.

I hate the idea of feeling sick or being sick, but hopefully can be controlled if I take all the pills. . .

NedSchneebly · 14/02/2012 16:59

X-Post, eight ! Will think of you on Monday too x x

MaryAnnSingleton · 14/02/2012 16:59

ned and oneineight will be thinking of you both on Monday...
ned am very very Envy that you're going to Mark Hix's restaurant- would love to go there. We did have dinner at the Riverside in Bridport about 4 or 5 years ago- think he had something to do with that.

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Gigondas · 14/02/2012 17:35

Ned - hugs for you as I share your fear of chemo (it just has emotive overtones for me). I hope that getting first session over with may make it more bearable.
Oneineight - is cold cap Something that I'd part of treatment or before/after? Sorry ignorant question.

Thank you for good wishes for twins.

No news on getting out here yet so just trying to enjoy the rest

amberlight · 14/02/2012 17:38

Ned, responded to this in earlier posts too. Good research re taking ginger supplements for three days before chemotherapy.
You'll be amazed by the different great big tubes of potion if it's FEC, including a red one that makes your wee red for 24 hrs or so. Drink loads before and during and after to flush it through. I sipped ginger beer when feeling nauseous too. I was never actually sick, but that's a variable. If you are, there's stronger pills they can give you to stop it, so ask them immediately. Grr that your partner can't sit with you.

Eeek re the twins' eyes - much thought and prayer.

bumbleymummy · 14/02/2012 17:39

So sorry to hear about your friend MaryAnn. :(

bumbleymummy · 14/02/2012 17:49

Sending thoughts and prayers(if you don't mind them!) to all of you who are having treatment at the moment and to your friend's twins Gigondas.

MaryAnnSingleton · 14/02/2012 17:49

thanks for kind words about dear Patience-am very glad she is at peace though.

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KurriKurri · 14/02/2012 18:30

amber - blood pressure is a bugger Sad - its one thing after another isn't it?, you poor thing. Hope they get it sorted for you soon.

Good thoughts to the twins Gig, and candle lit here for them. What a worrying time for your friend, and such a big thing for little ones to go through.

Ned - I certainly felt very apprehensive before my first chemo too, - it's a big step into the unknown. But as words of comfort, chemo units are usually very friendly, pretty informal places, with kind staff, and also by the time you've done it a few times it'll become a routine and you'll feel like an old hand at it Smile

Also - I was told, space very limited, DH couldn't come in etc. but when it came to it, unless the place was packed out, there was always space for family members to perch, - so don't despair, it might be possible Smile

Tips - I'll try to think about it over the next few days, but off the top of my head: something to eat (they'll probably offer you something, -it's likely to be yuk) if you like special tea something, take the bag in - they'll usually make it for you. Snacks to nibble - I used to take a little lunch box with dried fruit, nuts, cherry toms, fruit, oatcakes etc. - not rich stuff, but nibbles.

They will explain everything as they dose you with it, and will constantly check on you. Time spent is them putting the drugs into you with big syringes through your cannula, then a long time is spent flushing it through.
So books, magazines, puzzle books whatever you enjoy (bear in mind you'll only have one free hand though! - so not knitting!)

An i-pod/mp3 with songs you like or audio books on it helps pass the time, and also blocks out the sound of other people - you may not feel like making conversation, or hearing others discuss their side effects etc. with the nurses.

Comfortable clothes - something warm to put round your shoulders without sleeves, so a shawl/poncho or just a small fleece blanket - so you can take it on or off - it can be cold or hot in there.

I used to wear warm gloves and wrist warmers in the car on the way and in the waiting room - makes it easier to find a vein if your hands are warm.

I'll keep thinking, - but you will quickly discover what works for you and keeps you comfortable, and will be able to put your own chemo kit bag together Smile

Good luck to you for Monday too OneinEight - I'm glad you and Ned are running almost parallel as it were - its a great support to be able to chat to someone who's actually going through it at the same time, and compare notes Smile

OneInEight · 14/02/2012 19:49

Gigondas - the cold cap is worth a try if you don't want to lose your hair during the chemo. You put it on about 30 minutes before they give you the chemo drugs and keep it on for 2 hours afterwards. Some people find it horrible but I have not found it unpleasant - maybe I am just weird. It has worked partially for me although I do have a bald patch now. I feel comfortable around the house with no head covering but in public wear a hat or wig. Hope they are continuing to take good care of you.

Gigondas · 14/02/2012 19:57

Thanks Oneineight- will keep that in mind if chemo is needed.

Am ok but bit down as really missing the girls and generally having down day re stuff (not helped by my dsis joking that my mum would be "jealous"that my cancer was bigger than hers ... Not the best jokeHmm).

Havent seen or heard from dr either so no idea if tomorrow still feasible for release.

Will raid fbs and hope big fat gypsy weddings cheers me up. Am also going to try that meditation cd Mas as I think that will help me as my mind skittering into the unknown isn't beneficial.

NedSchneebly · 14/02/2012 19:57

Thanks kurri logs of good advice there. Latest Graze box arrives on Friday, so will save until Monday!

Glad we're both "on" together on Monday eight Smile is this one your second or third? Out of how many?

Thanks for hugs gig sending some right back to you too! X x

OneInEight · 14/02/2012 20:03

Ned, third out of eight. Seems a bit mean they won't let someone in with you - perhaps as Kurri said they will relent at the time.

topsyturner · 14/02/2012 23:21

So sorry to hear about Patience passing mas

Amber you are having such a hard time with herceptin at the minute , gentle hugs to you .

ned another thing to watch out for is when they give you the steroid , it gives you a tingly burny feeling in your undercarriage !!!
I found that the longest part of my chemo (also fec) was getting the cannula in a suitable vein . Once that was in it all went pretty smoothly . I used to get mine done in under an hour by the time number 6 rolled round .
Our tretament rooms were always busy , but the nurses never once said my DH couldn't come in with me . Think that's a bit mean !

DD away on a sleepover tonight . She will be having a ball . But I can't help missing her ...

MaryAnnSingleton · 15/02/2012 07:30

good morning all - just having coffee -anyone want some ?

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MaryAnnSingleton · 15/02/2012 07:33

thank you topsy - nice message from youngest of Patience's children to say that P loved us very much and treasured our friendship -aww, I am trying to write a little note on my cards to each of them but can't think what to say.

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topsyturner · 15/02/2012 08:21

Forgot to say that my candle has been lit for the twins .

It's so hard to find the right words sometimes isn't it mas ?

< slides in and mooches big mug of coffee >

DS headed off to school , his last day before half term starts for him .
Wonder what time DD will be brought back from her sleepover ? Hope she behaved herself !

I have a problem with my knee . It has been building up over about 10days . It has got to the point now where I can't bear any of my considerable weight on it .
Have phoned my GP to get an appointment , and first available slot is next week on Thursday !
How likely is it to be Cancer related ?

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