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Rectocele & Repairs continued....

1000 replies

CAZ1958 · 30/12/2011 12:54

Rectocele & Repairs...continuation

Hiya Ladies...
Don't know if this will work, above is the Subject Title
Don't want to lose my friends.
Will come back with a link if poss !!!
Fingers crossed
ZZZ

OP posts:
11Kitty · 06/01/2012 23:47

Hi footle thanks for that. Our surgeons here just seem to put in real plain langage and say front and back wall.

I knew I would make yous envious of our sunny summer. I was over in Scotland a few years back visiting my brother one xmas time. I found it very depressing the sky was grey, out sky even in winter is blue with lovely white clouds. If we don't have the sun it is normally raining. We can have days with no sun, just not very often. Also we noticed in Scotland at the xmas time it didn't get light in the morning till about 9am then started getting dark at 3pm. I suppose it is just what you are used too.

Once again thanks for your help.

CAZ1958 · 07/01/2012 09:04

Morning All....
Dear 14k..hope that your appt went well....don't think that I would like anyone going near me yet down below but I am just over 3 weeks post-op
now.
Dear Bruffyj...so pleased that all has calmed down, hope that things are still going well.
Wishing all you other ladies a comfortable day & we have finally got some sunshine after all that bad weather.
XXXXXXXXXXXXX

OP posts:
jackie62 · 07/01/2012 16:26

Welcome Kitty. I had the posterior repair, perineal body repair and Tvt done at the same time vaginally in September. Personally, having had to have the Tvt removed in December i would advise against the Tvt procedure, the pain was bad and in my case consisted of five different sorts of pain so it was difficult to push it to the back of your mind. If the procedure goes wrong the consequences are difficult to deal with. The removal has been a difficult procedure to recover from. I am two weeks post op and still in bed for a lot of the day, having said that at least I am now recovering.
I found a very helpful site re: pelvic floor exercises, Michelle Kenway. She has written a really useful book with exercises that are suitable for post gyny operations. I didn't know that some exercises that we do as standard at the gym actually push the pelvic floor down weakening it. there is a list of things that strengthen the pelvic floor and another of those to avoid. Very helpful.

cardamomginger · 07/01/2012 20:16

Hi kitty - will be pleased to answer all your questions! I posted on here when I was debating going for Burch's and didn;t come across anyone who'd had the operation (TVT seems to be more common these days) so I am delighted to be able to help Smile.

The incision was like a slightly shorter and slightly lower c-section incision (although maybe he did mine lower in case I want to have another baby, which I guess won't apply in your case). He did two procedures on me and before I went in he anticipated that the total surgery time would be around 1 hour - so shorter if you're only having Burch's done. Part of the cause of my injuries is that when I gave birth I tore through my urethra. My surgeon did an ultrasound of the urethral sphincter to assess the state of the muscle and the results of this in part determined where the stitches needed to go. If you haven't had this ultrasound it might be worth asking if it is needed, particularly if you might have had any kind of trauma to the urethra.

As you probably know, you will have a suprapubic catheter inserted during surgery. This is a catheter that is inserted surgically through a tiny tiny incision in your abdomen directly into the bladder. They do this so your urethra can just settle down and heal for a few days before having to worry about the mechanics of going for a wee. I was utterly freaked by the idea of this, but the reality was much less grim and I actually really liked having it in. And it was a hell of a lot less uncomfortable than a 'normal' catheter that goes in through the urethra. It was an utter relief to be able to just lie in bed and relax and let them pump me full of loads of saline drip to wash out the anaesthetic without having to worry about getting up for a wee!

After a couple of days they started 'training' my bladder again. This involved disconnecting the urine collection bag, clamping off the tube and getting me to wee into a container every time I went. They would measure the volume I passed and then drain down what remained in my bladder to see how much I was retaining. I think other doctors might use an ultrasound to measure the volume left in the bladder. It was fine. Did this for a couple of days and then when they were happy that things were working OK, I went for 24 hours of weeing as normal and they did a final drain down to see how much I retained in a 24 hour period. They were happy and I had it removed. Again, I was freaked out as all hell, but other than one troublesome stitch that stung a bit, I really didn't feel it. Having a 'normal' catherter out hurts me more. The hole in the bladder and the hole in the skin close on their own very quickly. I did have a small amount of urine leaking inside me which showed up as swelling (sounds really grim I know, but it didn't hurt, urine is sterile and they weren't at all worried once they knew what it was) because the skin hole closed before the bladder hole did, but that went down within a few days. It was literally about 5 mls.

My surgeon said that in about 5% of cases, the catheter needs to be left in for longer and the woman is sent home with it in for a couple of weeks, just to let her bladder heal further. He said that if this happens it is no indication of how successful for the surgery has been and is nothing to worry about.

I was up and about the next day - gentle pottering around the ward. It is a big operation and it does take time to recover from. You will need help at home. It is a bigger deal than TVT and recovery is longer. But if there are good reasons to go for Burch's, I really wouldn't let longer recovery put you off. I have to say that I am much less enthusiastic about my next lot of surgery (rectocele and perineum repair) than I was about this one - personally I'd rather have an incision and stitches (no matter how big) in my abdomen than in my vagina.

I was surprised by how much I could do after the surgery. I though I would be immobile, but I had a full range of movement, just as long as I took things easily and was careful. I felt far more incapacitated after I had my gall bladder out laparascopically when I couldn't even lift my arm without it hurting like all hell.

Monday will be 6 weeks since my surgery. I'm still tired and need a nap every day. It still does hurt, but it's getting less all the time and I don't really need to take painkillers. I'm still swollen, but that is going down too. It'll be another couple of weeks before I'm allowed to lift, push, pull, etc. But then this is true for TVT as well.

I've had 2 check-ups so far and am due another next week. He's been really pleased with the result and says this was definitely the right thing to do in my case. I was so scared and anxious before the operation, but I don't regret it at all.

If you have any other questions, please ask!
XX

surewoman · 08/01/2012 12:43

Hello all - been following this thread for a long while now but not posted anything as yet. Brief history - went to female gynae as kept leaking whilst playing with kids. She suggested I saw consultant. Went to him, was told would need 3 ops; rectocele, cystocele and TVT and he would put me on waiting list, but no proper consultation, explanation at that point. Got letter in October saying op scheduled for Nov and given time for pre-op assessment 2 weeks beforehand. Stupidly thought I would get to see consultant at the pre-op, but only saw nurse who answered some of my questions and said I would be able to see surgeon before op to discuss things. Never had op in my life so no idea how system works. Very nervous and concerned as not sure what was involved at all and no chance to talk to surgeon. On day of op somebody else came to see me with consent form to sign - I had to tell him what procedures I was having done. Questioned whether I'd need Hyst as well and he said that not time today would have to come back if that needed doing too. Talk about panic and fear not to mention fury as nurse said if they discovered uterus prolapse at time of surgery would probably correct that too. Also told would be done under local at which point I nearly walked out as nurse had assured me it would be general or spinal. Insisted on general just in case. After op, turned out hadn't done either cyst or rect and only fixed enterocele(?). Told stitches would all be gone in 7-10 days. 6 weeks later stitches still all there, insisted on seeing surgeon/consultant who said could understand why I was upset and apologised that I hadn't been seen properly prior to op, got missed off a list!! Also told that nurse knew nothing and info given was outdated - the stitches wouldn't dissolve for 6-8 weeks. I also complained about need for time off work 2 weeks isn't the same as 6 or 8 weeks and I had upset work as couldn't give them a def. answer. Just been back to him again, 9+ weeks as in so much pain from stitches feels like barbed wire up fanjo, especially when had period (doubled up in pain). He took one look and said "Oh I see what you mean" and sent nurse off too find "very sharp scissors" to try and trim edges, but said might need to go back into surgery so he could trim them under anaesthetic. Asked how long I'd have to put up with this and he said another 3/4 months!!!! Also now isn't sure he can fix cystocele which is what took me to gynae in first place. Turns out rectocele was tiny - I could have told him that had I had chance to see him, as blockage in BM coming from a lot higher up. Felt really depressed since then and wondered if this has happened to anyone else? Not happy with whole experience at all. Phew... got that off my chest at last! XX Hope all you other ladies are having better recoveries? Thank goodness for this thread as have learnt so much from it (even recommended consultant have a look to re-write his pre-op info!!)

Footle · 08/01/2012 13:12

This reply has been deleted

Message withdrawn at poster's request.

jackie62 · 08/01/2012 14:24

Welcome sure woman, really sorry you have had so many ,problems and the pre op situation sounds dire.
Did you have a Tvt in the end? If so it may not be stitches causing the problem but could be the end of the tape coming through the vagina, don't panic if that is the case there is help out there I promise.
Whereabouts do you live?
I really hope this site makes you feel just a little bit more supported. Keep talking to us to keep your spirits up and then it is just a matter of finding the right person. Xx

surewoman · 08/01/2012 16:09

Thanks Jackie and Footle - I have made complaints to the department and they thanked me and assured me that that was how they kept ahead of their game and would be re-writing their pre-op literature (I did sugggest that I would do that for them with some more realistic info. from MumsNet).

My stupid fault was trusting them in the first place and expecting them to inform me better; didn't realise that one is expected to do a lot of homework first - as I told the consultant when asked how I felt "Well, how would you feel if someone had sliced up your p.....s, bandaged it up and said you weren't allowed to know what they had done to it, let alone see it, for two months" He replied that there was no need for me to be so graphic!! I then said that I felt like a trussed chicken that had just come off the conveyer belt at which he said that was exactly how 'they' saw us (with a smile). Unfortunatelly I then totally lost the plot and burst into tears which was not good! Stilll, am now at least being listened to and taken seriously - bit of advice for anyone on subsequent visits, if you wear exactly the same clothes they remember who you are the minute you walk into the room!!

On another note, has anyone had a cystocele repair months after a rectocele repair or are they always done at the same time?? And has anyone else got super strength nylon stitches that act like barbed wire? Apparently they are the stitches that are under the vaginal layer, not the top ones, but mine have poked through to the surface of the vagina and are very sore.
X

surewoman · 08/01/2012 16:12

Jackie - sorry, haven't had the TVT yet as he didn't repair the cystocele and now thinks there isn't enough tissue left to pull tight without absolutely destroying any future sex life (as if that isn't now gone anyway)

BeyondTheLimitsOfAcceptability · 08/01/2012 17:39

Hiya ladies.
I have been on an old thread before, but I'm not a regular.
I'm pregnant with DS2 and have a rectocele from my previous rather fast labour. My doctor has told me I can have it fixed after this pregnancy btw...

My question is though, as I'm now in the third trimester, I'm starting to find it difficult to reach to manually evacute (nice TMI for you there!). Does anyone have any advice about this?

Footle · 08/01/2012 18:21

This reply has been deleted

Message withdrawn at poster's request.

Footle · 08/01/2012 18:22

This reply has been deleted

Message withdrawn at poster's request.

cocolepew · 08/01/2012 19:14

surewoman I hope you can get sorted soon, how horrible for you.

surewoman · 08/01/2012 22:27

Beyondthelimits - I had the same problem re evacuating BM as I had only a small rectocele but the blockage came from the enterocele (which is a hernia at the top that all your small bowel falls through between the vagina and rectum). I had massive problems with BMs and in the end was taking large amounts of senokot to no avail. What did work was the glycerine suppositories after loads of water and almonds/hazlenuts with the skin on, but even then a BM would take about 30 mins with lots of rocking back and forth (TMI sorry). Also helps to have your feet higher, ie on a small stool and breath out/cough whilst trying! Just read on the packet and you can't take them (suppositories) whilst pregnant unless directed by Doc, so I'd check first.

Footle, thanks for that info. Have a lot of reading to catch up on and its taken me since Nov to get to 2011!!! Seems there are a lot of girls out there with similar problems.

jackie62 · 08/01/2012 23:29

Sure woman, I would advise against the Tvt personally.there are alternatives that are less invasive and worth trying first. The stitch situation will hopefully be temporary which is really good news!
At least when you burst into tears You didn't do what I did after my horrid experience 15 years ago after my third child: I had 24 hour onset septicaemia, the old puerperal/childbirth fever that would kill new mums before antibiotics. The antibiotic resistant infection picked up in the hospital went deep into my womb as i had just given birth and stayed there... I struggled on For long two years. I eventually saw the consultant at 5 months ( lucky me, I was that important), and he walked in, didn't acknowledge me or my husband, leafed through my notes for about 5 seconds and said 'so what's going on then?' in a bored fashion. I went mental and stood up and shouted 'how the ....are you going to treat me if you don't even read my .......notes?', and stamped my foot. At this point my husband suddenly realised that I was literally one step away from the local mental hospital! I was normally quite meek! I will NEVER be treated like that ever again. These physicians are highly trained and paid a fortune, supposedly for a job that they adore and we are the recipients. They should never forget why they are there.
sorry, rant over...
Beyond..would it help if you made a fibre rich mix to put on cereal in the morning. That is what I did, It produces bulk that literally pushes along down and eventually has to come out. You have to drink a lot of water with it at the time, so it becomes soft bulk rather than hard and difficult to evacuate bulk. I had a large rectocele And understand the problem, although I wasn't pregnant! I have a mix of ground flax seed powder, linseeds, psyllium husk (only a little bit), sunflower seeds, pumpkin seeds, sesame seeds, flaked almonds, and pecan nuts. I sprinkle it on 'oats and more' or porridge. It is very nutritious and means that you can relax a bit about thinking about fibre for the rest of the day. But you do have to drink a lot of water with it. I also have 'fibre plus' bars, ditto. Good luck with it, one day you will be repaired and feel almost like a new woman!

surewoman · 09/01/2012 08:29

Beyond - just read on my trusty bottle of lactulose that this is ok to take whilst pregnant. Ask your doctor (in case you have daibetes or similar) but I find that this helps a lot to keep your stools soft so are therefore easier to pass. x

EMMDEE73 · 09/01/2012 13:21

Beyond - try using a small step for your feet when you have a BM. I had the same problem as you when I was pregnant, and did find that having my knees higher than my hips did help me. This also helps post-op when having BM's.

Bruffyj · 09/01/2012 16:45

Hi beyond, I would try to improvise a tool to help reach to splint your bm, like a padded spatula. The joys of being a woman! It don't sound like fun for you ATM. Also If you can't stand the thought of nuts and bran see if you can get some benacol powder, it's a fibre supplement and as a bonus it's tasteless yay. You can use it in food or drink hot or cold, pretty sure it's safe for you as was advised to give it to my 4 year old. Good luck x

Ladies my 6 week check is playing heavily on my mind, was completely drugged up when consultant explained! What should I expect, i am having nightmares about speculums and vaginal ultrasounds. Please tell me no!

mumtoreece1 · 09/01/2012 20:40

hi girls i'm 3 weeks post op from a pelvic floor repair and TVT surgery. My stress incontinence wasn't a major issue before i just learned to put up with it. My concern is i feel like i'm still leaking. Does this mean it hasn't worked? On my sanitary towel it's like light brown/yellow discharge. The bleeding has almost stopped. Has anyone had problems with leaking after a tvt?
Am refusing any further surgery unless keyhole. Hope it wasn't a waste of time as it's really getting me down. I've got a 3 yr old and a 10 month old baby and desperatly want to live a normal life again.
xx

cantbelieveimnotbetter · 09/01/2012 21:57

mumtoreece1 Fear not -this sounds normal. If light brown def not urine. It took 6 weeks before slight discharge stopped for me. We shouldn't have to put up with stress incontinence and I do hope the op has done the trick.

happy2beme · 09/01/2012 22:25

Hi All....... well here goes first post on here so hang on too your laptops lol.I have been stalking this site since may 2011 whilst trying to make decision to go ahead with surgery. I can sympathise with all the issues the splinting and dribbling ect ( sorry TMI) Blush. After 3 DC ( 8lb 5, 9lb 5 ,9lb 13) All induced births with vaginal delivery and 1 epesiotomy and 2 tears I finally picked up the courage to discuss problems with GP( female) who was unhelpful and dismissive. I was referred to a lovely gyn consultant and then surgeon ( both male) who were very sympathetic, who offered surgery. After reading through all the posts Thanks I eventually made the decision to go ahead. I am now 8wks post anterior/posterior repair with TVT and merina coil whew! :) I am now minus the coil (will explain later) but to all you ladies out there who are worrying I hope I can answer some questions but mostly I would like to thank all my predecessors as without you I may not have come this far without losing my sanity xx Had my 2nd post op check today and due another in 3 months, first 6wks were not the best but all better x a million now even the icky sex bit Grin.
Mumtoreece1 I leaked at the begining too but now only a tiny bit if I wait way too long which would have resulted in a flood before lol x

Again my thanks to all and hope I can be of some help to others x

jackie62 · 09/01/2012 22:57

Welcome mumtoreece and happytobeme,
I agree with Cantbelieve, the fluid is almost certainly discharge which would be completely normal 3 weeks post op. I Am 2 weeks post and have the same thing.Re the urine leakage I would highly recommend michelle Kenways book on pelvic floor exercises ( see previous posts). One of the things she says is that if you pull up your pelvicfloor muscles, then the muscles to the bladder relax reducing the possibility of leaking. Perhaps it's worth giving it a go...I find it works which is a relief.
I'm now two weeks post op for complete Tvt removal. Still in Bed for half the day which surprises me but I suppose I keep forgetting I've had major surgery on top of previous major surgery for posterior repair and perineal body repair in September. It's been a long haul, but I am getting there.
Good luck everybody! X

l4k · 10/01/2012 12:11

Hello everyone

first to buffy- 6 week check for me,no to speculum,yes to internal scan but only to check on cyst on ovary(gone now) and haematoma (reduced).
I was examined by doc first and this was painless.

So I am 7 weeks post op today and am feeling its all been worth it.Feeling stronger all the time and have had sex, which I was dreading, and it was fine.So much better than before.

Hope you are all well.x

cocolepew · 10/01/2012 12:43

Hello ladies, still waiting for my hospital appointment, and am getting very cheesed off!

couldn't sleep at all last night it felt like I was being speared with a knitting needle and couldn't get comfy at all.

Hope you all have a good day Smile

surewoman · 10/01/2012 13:12

Hi all - just a quick update re my situation, in case anyone else has this happen to them. I am now nearly 10 weeks post rectocele/enterocele repair and have been having a lot of pain with the stitches. Last night was absolutely hell and this morning I set off to work only to arrive and spend half an hour sitting in the car in agony. Went to docs at 9.00 and the earliest anyone could see me was midday, so rang the hospital to see if the consultant that did my original op. was there. Lucky days Smile - he was and his secretary rang me back saying he would see me straight away Hmm so I crawled over to the hospital in the car, puffing and panting as if I was in labour and was allowed to go straight in to see him. Am now on antibiotics and swabs taken and have a pre-op assessment in an hour for admission to another hospital early on Saturday so he can "sort me out" under general anaesthetic. Just as well as I said I would probably punch him if he went near me whilst I was awake! He was quite concerned this time and is rushing me through as urgent.

Must go, pre-op to get to x

Coco, I hope you are feeling a little better

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