Rectocele & Repairs continued....

[CAZ1958]

Rectocele & Repairs...continuation

Hiya Ladies...
Don't know if this will work, above is the Subject Title
Don't want to lose my friends.
Will come back with a link if poss !!!
Fingers crossed
ZZZ

Hi Fengirl - sorry to hear you're feeling low. Watch out with codeine as I think it can become addictive??? Could be wrong though. At least you are doing something about getting sorted.
I've just got a letter with a date for urodynamics testing in March - lol! Just what I need on top of my new painful stitches, a test that should have been done in October last year!!! Still, better late than never.
My kids have had a rubbish half term too - me in bed and grumpy, nothing planned except me banning them from too much Xbox! Still, they are outside cleaning the car for me now trying to make amends, so maybe a trip to War Horse at the cinema tonight !
What kind of pain have you been having? Just to compare - mine is a constant burning/stinging and a dull ache which makes me feel sick after a while and the only way to relieve it is lying on my back with my pelvis in the air!! x
Nannasylv - how are you? Long time no post?

Nannasylv - I can't offer you any advice on the financial side, but I really do hope you get some answers to your medical problems... There has to be something going on for you to be experiencing the trouble you have. I have been thinking of you even if I haven't said so! Fingers crossed for you.

Sure - you're right about codeine, but I will be careful and have had it before (years ago) for painful periods due to endometriosis. Still feeling rather emotional after suddenly realising and saying to doctor that I've put up with things for so long that I've forgotten what normal is anymore and tolerate far more than I should. I'm sure everyone on here would agree. I'd like to think that I'm quite a strong person but today has put a lot of things in focus for me, like sleeping whenever I can because I've been putting up with low level pain for so long it's left me drained. As for now, it's like a constant period-type pain which is worst just above my right groin. I'm also incredibly tender throughout my pelvis, which I already knew, but had confirmed today when the doctor examined me. It also waxes and wanes with constipation, which makes it far worse on my right side but I know that's my colon hurting (had awful trouble with the Mirena coil which no-one tells you makes IBS symptoms far worse if you're prone to them). Just when I thought I'd got BM's relatively sorted and was all pleased with myself!

Will stop moaning on now - but it's good to be able to tell someone.
Healing hugs to all. X

Hi sure- you are right codiene in any form can be addictive but mainly if taken over very prolonged periods. I know a lot of the ladies on here have had to consume it by the bucket load :( due to necessity but I had a consultant tell me that morphine/codiene or any of the opiate derivatives if needed will be absorbed and utilised by the body maybe this was more anecdotal than fact. I was injecting massive doses into a heart attack victim at the time so maybe it was for reassurance ...they did survive though :). It is when they are abused by people who are not in pain they become a problem. Main issues are the constipation and need to combat that by diet/fluids and aperients (laxitives) but again each of these carry problems as the bowel can get dependent on them to function properly. I for one know I be will dependent on them probably forever.
Nannysylv - When I originaly posted I did feel that in Scotland my experience had been a little more smoother lol not the post op physical journey but the pre-op. actually felt a little embaraced about that as all you other ladies had/are suffering so much more ...possibly just coincidence :) . so sorry to hear of all your other problems .............it is a very unfair and unjust world and rightly so that you are angry. Hope you can get a solution soon x
Now feeling a little nervous posting with all you teachers out there!.... My spelling and grammar were never the best. thank god for spellcheck x
As mothers we are so hard on ourselves.... children are resiliant they will understand :)
On a lighter note have been feeling a little better myself so decided to have a pyjamma party for the first time in my life (have become quite fond of my jammies over last few months lol) and a group of us girlies (women of a certian age lol) are getting together along with our dear children so they are not left out . Kids on pop and Girlies on vino , Gonna show them how its done haha more like embarrass the hell out of them but thought I'd let you know life does get better xxxxx Hope all are well and sending lots of love x

PS did mean to add that should never exceed the daily dose of any medicaction lol dont want any new comers thinking ok to eat a bucket load of meds xx

Hi folks, still waiting for results of MR Defecography (I checked today, with Urogynaecologist's secretary, and they are not there yet). The Fentanyl patches are definitely easing the level of pain (although I gather they are addictive - Morphine, so I'll have to deal with that after repair, if I ever get one!). I sent in my appeal against being put in the Work Related Activity Group for ESA, and then got told, this morning, that I need to send a supplemental letter requesting being placed in the Support Group (as I am unable to attend interviews at their behest until I get fixed). I panicked, at the thought of them bankrupting me, on top of everything else, but, apparently, they won't be doing that YET.

I don't know what I will do, if they haven't identified the cause of the problem this time. I feel abandoned by a system which has the technology to identify these problems, but won't use it early enough to prevent us getting this ill! We are all worth better care than this!

I am so thankful that I don't have children to care for, whilst in this situation, and my heart goes out to all of you who do!

happy2beme - I hope the PJ party goes/went well!
fengirl1 - when you find the tunnel, could you please send me directions!
footle - how's it going?

XX to all!

Hi Maisied - thanks for that - I will be at the S Gen - assuming no work going on. Who was your consultant? I am under Dr Guerrero, who I've never actually met! Shame the new S Gen isn't ready yet, it looks like it will be fab when it is. I had DS there, and it wasn't so great then. Anyway, I'm glad your op has been successful.

Nannasylv, I wouldn't be too hasty to move to Glasgow! DS will be almost 4 by the time I have the op, assuming that I can get it scheduled sometime during the last 3 weeks of June. My records got lost, the first gynae consultant I saw didn't seem interested/to believe me, and I've been going backwards and forwards to the hospital since Dec 2010 trying to get a diagnosis.

I don't know if this is of any help to anyone, but a nurse friend recommends seeing a consultant privately for a first appointment, and then they can refer you back to the NHS. Obviously the appointment still costs, but a few hundred rather than thousands for surgery, and it might speed things up a bit. If I'd known it was going to take so long to get to this stage, I would have done that.

Littlefish, well done on losing the weight, I could certainly do with losing some!

Enjoy the pj party happy2beme, especially the vino.

Happy - good for you for having a jammy party! Do let us all know how it goes..... I will keep an eye on the codeine, but have to say it was lovely to have about an hour painfree today. I won't be popping them like smarties unless I really have to.

Nannasylv, just hold on if you can, an answer must be coming soon. I promise I will let you know when I find the tunnel. I know how hard it can be to keep going sometimes. (One of my kids has a life-threatening illness and the other one's disabled but that's another story.) I was just putting my life together after the very messy end of a 20 yr marriage when this all happened to me, so while my problems aren't the same as yours I can sympathise. Perhaps the change in the weather will help us all!

Love to all. X

Hiya,

I've viewed the previous thread before as I had a rectocele but was on the waiting list to see the gynae so didn't post. Just seen her today and she is going to do a repair in about 3 months.

So I shall now jump in your boat and sail along with you(just gotta read the whole thread now, lol)

Welcome aboard littleweeble and happy reading!!! (I think this thread goes back to 2009!) x
Fengirl - hope you're feeling a bit more positive? Hang in there girl, you're doing fine
x

Welcome to all the new folk!! I am having trouble keeping up!
Regarding rectoceles though i have noticed that Five hours, fen and little fish all had posterior presentations . I did too! I am wondering if this is significant. It doesn't help when the baby comes face up as it is presenting the largest part of the head in the smaller part of the pelvis creating a difficult delivery.
Have any of you been watching Maternity Ward, the American version of our 'One Born Every Minute' ? Very interesting, but with both everyone just seems so relieved once the baby is born that there does not seem to be much interest in the mothers nether regions! Maybe if we were given some practical help at that point having pushed for our lives upsetting our lower gut and pelvic floor for ever, the future would not involve everything collapsing!
I don't know about everyone else but I am constantly amazed that we go to these doctors with broken and damaged stuff and Nobody ever asks WHY?!
Having said that I can't complain for a moment about my fantastic consultant and her staff. They have been brilliant! And I know how lucky I have been!
Nannasyl, I am desperate to hear the outcome of your tests. I really hope they come up with some answers, and soon...
Good luck everybody, xx

jackie - I'll try and remember to ask my consultant on Wednesday. He h published papers on the subject of damage to women's pelvis etc. following childbirth.

A slightly icky question, but should I cancel my consultant appointment on Wednesday if my period arrives in the next couple of days? I'm on day 25 and my cycles are usually between 23 and 33 days. What should I do?

Although dd was in a posterior presentation, she was little - only 6lbs 10.

Footle - it's a private appt. so I should be able to get another appt relatively easily. Good idea to ring his secretary though. Why didn't I think of that!

Littlefish - I've had consultants appointments during my period and it's never been an issue.

Cardamom - were you examined at these appts? It's my first appointment so I'm pretty sure it will involve an examination.

Oh yes! Definitely examined!

Hi Little, think there's a theme going on here with posterior presentations! Don't cancel your appt - sods law says you won't start anyway and even if you do and your consultants squeamish (which he/she shouldn't be) you can still discuss it anyway... Better than slipping back down the list.
Sure - still v sore but doing a bit better now - had a bit of retail therapy yesterday.
Footle - it's good to see you still helping other ladies, I read all the threads before I 'appeared'.
May be a bit quiet for a few days as back to work on Monday . Will be interesting to see how it goes as I've been feeling a bit 'spaced out' for the last few weeks....!

jackie62 - Thanks for your wishes, I hope they are not in vain! I have everything crossed here, as I'd like to be fixed before I get too used to the patches. I'd also like to be fixed, and then get a job, under my own steam, to prove to the DWP/ government, that some of us are genuine cases, and justified in claiming the benefits we paid to be entitled to in our hour of need. I want to get my independence back! I want my body back!

I agree, that no-one, in the medical profession, seems to be questioning the cause of all this damage. I even gave a list of all the possible/probable causes I had experienced (which should have pointed them in the right direction) but was ignored, as if we are too stupid to have rational arguments to look for precisely this. It seems that, unless it's acknowledged as a fairly frequent thing, they are not going to be concerned enough about it. How do you get enough public coverage, of a subject which is a bit personal, and gruesome (for some) to discuss?

Isn't it strange, that (after suffering with this, and attending so many appointments) I have only come to understand what was going on inside since I found all of you? I should have got further, quicker, and been fixed before getting to 16 years of progressively worsening health.

Hope you are all as well as possible.

XX

Nannasylv - will be thinking of you this week. (hug)

Hi to all, and fengirl1 - thanks. I'll let you know, when/if I get to know anything.
Hugs to all!

XX

Hi Prancing my consultant is a Dr Stein Bjornsson and he is a urogynaecologist I was initailly referred to a Dr Christina Taggart at the Western Infirmary who was very good & took time to explain things but as I had mulltiple problems she though I would get the best outcome imesh was used and she referred me to Dr B who specialises in mesh repair. I have my follow up appointment on Thursday. Still not 100% but doing well & glad I went ahead with the op.
Nannasylv I couldnt agree more about the need to highlight the issues that people on here are facing in particular around being diagnosed and seeking treatment I have been watching alot of daytime tv & I think that a programme such as this morning would be ideal for this but as you say its a rather embarrasing topic to discuss publicy did you not hear anything further from the 2nd person at the guardian (sorry cant remember the name)? with regards to your financial situation you should contact a welfare rights officer.
Happy hope the PJ party went well.
Fengirl so sorry to read all the other things you have going on in your life hope your feelin better soon Xx

Hi girls reporting in after very lazy Sunday lol .....Had a blast on Sat night Pj party was just the tonic I needed...... All the Girlies enjoyed themselves lol Road tested the new DV and held up to most of the usual shennanigans.....Left out the burlesque dancing on the kitchen stool (my party peice lol .... Didn't fancy the TVTO going ping xx so far so good xxx
Hope all are as well as can bexx
Jacki posterior with all my kids and the are as stubborn/awkward now as they were then lol
Littlefish - had 2 apt's with period and thorough exam so now have not one embaraced bone left in my body x

maisied1959 - thanks, I hadn't thought of that (brain not so good these days, I think the constant pain has taken it's toll!)

happy2beme - I hope you had one for each of us that can't drink! Glad it was a good night though.

I rang the consultant's secretary again, today, and she said the report is still not on the system (19 days since scan) so I rang the Radiography dept. who asked why I expected the results within 3 weeks, I replied "because you told me they would be! Why was I asking? I replied "because I'm the one in pain, and, without these results, the consultant doesn't know what direction to go in!" "Have you got your consultant appointment then?" Reply "no, so I will still have to wait for that to be arranged AFTER he knows the results", "Oh, right, I'll try to get them on the system within the next 2 days then" "Thanks" I replied. She told me the report had been written, but was sitting there waiting to be typed up, and that she didn't realise it was now nearly the 3 weeks quoted. I don't know when they would have been dealt with, if I hadn't chased them up.