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Sarcoidosis? anyone else

3 replies

LargeGlassofRed · 27/09/2011 20:45

I was diagnosed in July, so far in lungs and eyes, just wondered if anyone else on here has it?

OP posts:
ecurrin · 28/09/2011 06:20

I was diagnosed in 2007 I have dry eyes and "a productive" cough can get tired easily and have swollen glands.These symptoms have not worsened or improved since then but dont despair as often it disappears as suddenly as it comes

LargeGlassofRed · 28/09/2011 18:39

Hi ecurrin, nice to know I'm not alone, the dry eyes really irriitating at the moment using drops every couple of hours but still very sore.
How often do you have check ups?

OP posts:
ecurrin · 29/09/2011 07:05

hi LGOR no you are not alone but its not common either dry eyes are the pits I have check ups, lung function tests. and x rays twice a year. Expect sleep apnoea tests and I was put on steroids which helped enormously but I stopped taking them due to the side effects. But all in all its not too bad and you learn to live with it and remember you can get better or recover very quickly. Hope this helps.

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