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997 replies

KurriKurri · 04/08/2011 18:54

Tada! A shiney new thread - get me with my fancy asterisks Grin

OP posts:
MaryAnnSingleton · 12/08/2011 09:14

earth- horrid to have to wait again - but it's look that sore breast alerted them to pain free breast-we will be here to see you through this -meanwhile much love and gentle hugs. Are you up for a cocktail later ?
Nittygritty -did I miss earlier post ? sorry-I get confused with things at the best of times- we're here for you anyway ! Smile
Amber- how are you this morning ?

amberlight · 12/08/2011 09:22

Marginally better than yesterday thanks.
Morning all.

EarthMotherImNot · 12/08/2011 09:37

Dh got in from night shift earlier and he's in a state bless him. He was so sure it would be nothing, as though his loved ones are untouchable.

I asked the doc about immediate re-construction and it may, just may, be an option. That would make me feel easier as the norks are sizeable and I have the weird feeling I'd overbalance with only one.

I'm daft aren't IHmm

topsyturner · 12/08/2011 09:39

Morning amber
Hopefully every day finds you feeling better and better .

cakesandale · 12/08/2011 09:41

Nittygritty - What topsy said. I only had an echo before starting chemo, to establish the fitness of my heart and give them a baseline to check it wasn't being affected. From what i could gather it was something my onc liked to do with everyone. It does vary from patient to patient and also from doctor to doctor. Just keep talking to us, the nonsense we talk really can help.

Earth. Oh bugger. How odd that it is the innocent-seeming breast. You had a pretty shitty day yesterday, didn't you? Sad Your dd sounds fab, by the way. This waiting time is the worst, I always say it but, really, once you start getting treated the momentum kind of bumps you along and you can cope better. In terms of how long you can leave it - IMHO I wouldn't do that really. There may be a wait of a week or more before your treatment can start, and that kind of wait should do no harm, otherwise they would arrange it differently, obviously. But don't leave it longer than you need to. The thing is, that it all goes on for quite a few months and there are often times along the way when you have to stop for some reason - maybe a wound infection, or you are a bit run down and need a rest for a few days, so best to get started really. Obviously you are the best judge of your own circumstances, but that would be my advice.

Lots of hoorays for framey's Mum, who sounds like a right battler. Good for her.

MaryAnnSingleton · 12/08/2011 09:41

not daft earth...

picture of ds in front of his favourite building posted...

cakesandale · 12/08/2011 09:45

Smee, I am most Envy of the visit to the fort!!

Amber - mine's a tea, thanks. Better make it strong. Glad you are at least slightly better.

MAS - the lime, mandarin and basil sounds deliciously fresh and zingy. Yum! The story is coming on apace - it's a super hero story about all her favourite toys she takes to bed, and all I cans ay is, if this is how they carry on it's a miracle she ever gets any sleep. It has pictures and everything and it could be an epic...

topsyturner · 12/08/2011 09:46

earth - I am extremely large of norkage , and immediate reconstruction wasn't an option for me .
If you don't get the immediate reconstruction you will be fitted for a temporary prosthethis before you leave the hospital after your surgery .
This is called a softee , its a breast shape thing full of kapok like stuffing .
Its quite realistic , my friends couldn't tell which one it was !

About 6 weeks post surgery you will get your proper prosthesis .
I just got mine this week .

But all this may not happen , you may get your rebuild straight away .

cakesandale · 12/08/2011 09:47

Lovely shot of ds....

EarthMotherImNot · 12/08/2011 09:51

How long will I be in hospital for the mastectomy?

cakesandale · 12/08/2011 09:54

Depends on the drains, I think. Prob 2 or 3 days? Someone who had one will be along in a mo....

topsyturner · 12/08/2011 09:55

smee - can you sneak me into your suitcase ? You wouldn't notice me amongst the jumpers and wellies ........

framey - sounds like a good appointment for your mum , hope she keeps the good recovery going .

I am a terrible woman .
Got a chinese takeaway delivered last night , but when it arrived I had lost my appetite and didn't eat it .
Woke up this morning and had it for breakfast instead Grin

Think I shall blame it on the cancer .......

Spending today packing for our hollibobs .
Kids clothes packed .
My clothes are in various crumpled heaps , scattered around my bedroom !
DH will pack for himself when he gets home from work tonight (for some reason he doesn't trust my packing skills)

Then this evening its a quick trip to Granny and Granda to say "see ya" . And then we have to take the pig/dog to kennels .

We set off about 9am tomorrow , its a long drive . About 7 hours . But we take a picnic and have plenty of stops .
Getting excited now Grin

KurriKurri · 12/08/2011 09:55

Earth - that sounds like a tough appointment and you will be feeling physically and emotionally bruised. Give yourself time to take it all in, - its always a shock to the system. So a nice gentle few days if you can manage it, and be kind to yourself Smile
Several of us have had mastectomies, so any questions just ask away, anything goes on this thread as topsy says, so let us support you Smile

hello and welcome Nitty, I sorry to hear of your diagnosis, I saw your other thread, it must be very hard to be in limbo and not know exactly what treatment you will be having. Similar to topsy, before my chemo I had a ct scan, a bone scan, blood tests, echocardiogram and ECG, and a liver ultrasound (although that was to check something which showed on the ct). So its possible you will have all or some of those. have you had a chance for a discussion with your oncologist yet, or are you still waiting for appointments? hope you find out soon what your treatment plan is, waiting is hard. As I said to Earth, - anything we can help with just ask Smile

Framey, I'm glad your mum is feeling positive, and now has an idea of her treatment, when will she start radiotherapy, does she know yet?

Hello to everyone else, amber I hope those pesky SE's have settled down a bit today, and you are able to get plenty of rest.

Figgy, I hope you are feeing better too, it sounds as if things are starting to heal nicely which is good. And it sounds as if your boys are having great fun at the holiday camp (smile)

Had to get up early this morning, had to have a fasting blood test at the hospital and it had to be done by 9 am. I went for tea and toast in the hospital cafe immediately afterwards!

OP posts:
topsyturner · 12/08/2011 09:57

I was in for 5 days earth . I stayed in till my drains were removed , but others have come out in 2/3 days and had drains removed by district nurses at home .

topsyturner · 12/08/2011 10:00

Morning to figgy too .
Hope you are not feeling too tender today .

cakesandale · 12/08/2011 10:01

There's nothing nicer than tea and toast after a fast! Hoping for good results!

Topsy AND Smee on holiday at the same time??? I think this should have been arranged a bit better, we'll be shorter on laughs for a bit, that's for sure. I hope you both have a lovely time although I am seriously Envy of you both.

KurriKurri · 12/08/2011 10:05

oops x posted with just about everyone Grin

lovely picture of your handsome young man MAS Smile

Earth - I was only in hospital overnight for my mastectomy, but could have stayed longer if I'd wanted to (I had a reason for wanting to get home early) I think it will all depend on how well you are healing and what you want. I think generally its about 3-4 days. I was offered immediate reconstruction, but turned it down, I'm thinking about recon. now 3 years on. They will talk you through all the options so you can make your choice.

topsy and Smee happy hols. we will miss you and will expect pics when you get back Grin

Cakes your girl keeps herself busy doesn't she? Smile

OP posts:
cakesandale · 12/08/2011 10:09

Oh yes. Sigh. Grin

MaryAnnSingleton · 12/08/2011 11:14

topsy and smee - have fab holidays !! xxx

EarthMotherImNot · 12/08/2011 11:39

May I asked why you turned it down Kurri? Please feel free to say don't be nosy though Smile

sandripples · 12/08/2011 11:50

Yes Topsy and Smee - have a lovely time! Envy

Earth - I agree with what others have said and particularly on not delayting your treatment. You don't want to give the disease any longer to spread than is involved anyway, as it takes time to organise the treatment, get started and indeed there are often delays along the way as Cakes (I think) said. The waiting to get onto treatment is one of the worst bits - I certainly found that anyway. Once you've started - even though you're dealing with side effects - you feel you're doing all you can to get rid of every last BC cell there is.

Nitty - sorry you've had to join us but welcome. I hope you'll find good support here as we've been through a lot between us and it can really help to be in contact (about any aspect of this) with women who've been there and emerged at the other end.

I am feeling a bit emotional due to my dear friend leaving for new Zealand today so sorry if I've mixed people up at all. She's going back to having to have their house demolished (due to quake damage) and then completely rebuilt. She's very strong and will be fine, but its a challenge! We are unlikely to see each other again for 5 years or so. We've been out there once and plan to go again after we retire. For longer this time. Would like to do the trip round the whole country in a camper-van-thing! (Dreams emoticon)

MAS - glad your London trip went so well. I felt a bit weird that we'd just had a fab trip there and everything was looking so happy and jolly in the sunshine and then came the riots a week later. One friend of DS was near the Manchester riots the other day and had to walk a long way to get onto the metro as the stations kept being closed. Very sad state of affairs.

Does anyone know how RWU is? I think her job, horse collection and family must be combining to keep her busy.

Love to all - I am back at work next week but will keep popping in when I can.

KurriKurri · 12/08/2011 12:29

Earth (not nosy at all, ask whatever you want) I turned it down because at the time I was just thinking 'get rid of this nasty breast' As it happened I went on to have chem and radiotherapy, so it might not have been a good idea to have it anyway. But everyone is different, I was better at handling the physical things like surgery, chemo, hairloss etc. it was the emotional stuff I struggled with, so at the time I wasn't too bothered about losing a breast.

Now I'm getting a bit fed up with not having one so am contemplating a recon.

But it's something you need to talk over with the surgeon, the breast care nurse, and the plastic surgeon. many people opt for immediate recon, others don't there's no rights or wrongs Smile - but whatever you choose, you are always entitled to have a recon. whenever you want one, even if its 10 years after the event!

there's a link here to the Breast cancer care site, where you can download an info leaflet on the procedure.

SR - you're bound to feel a bit emotional, its always hard saying goodbye to friends you don't see very often. I meant to ask you how your DD is doing atm, is she doing more training, or job hunting?

My DD was supposed to be going on holiday with one of her friends, but said friend crashed her car on the m'way. Thank goodness unhurt, but car is a write off, so they can't go now.

I was also thinking about RWU today (great minds and all that Grin) hope everything is going well with her.

OP posts:
MaryAnnSingleton · 12/08/2011 12:31

SR - hope all goes well for NZ friends -how awful for them though-and you must feel churned up -take it easy and don't be sad. London seemed pretty much as normal yesterday,which was very cheering. Saw a duck bus and thought of you Grin
I am going to be a media ambassador (get me !) for OCD Action Grin talking to the press,possibly radio -I said no to telly as I think I'd die of embarrassment. I've reeled off my OCD history and sound like a complete nutjob. I also hate hearing my voice -I sound like a 12 year old girl.

KurriKurri · 12/08/2011 12:46

Oh well done MAS, you brave old thing Smile - I'm sure you don't sound like a 12 year old or a nutjob. (do we have to call you Ma'am now? Grin)

OP posts:
MaryAnnSingleton · 12/08/2011 13:06

arf !!

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