Interstitial cystitis / Internal cystitis?

[Matildathebrave]

Does anyone have/had this? I'm sure I have it and going through hell.

My little boy is upstairs and I am downstairs crying and just can't live my life like this anymore.

Doctors keep telling me I don't have a UTI but CONSTANTLY need a wee and have a swollen bladder.

I can't rest or sleep or go out the house.

Doc has now given me 1000mg daily of anti-biotics but I know there is no infections so it won't help.

Just feel I can't go on anymore.

I get this and antibiotics do help me. I've had it since Nov. I get leucocytes in my wee but Dr says I have no infection as nothing grows when they send the sample off to the lab.

But the abx help and then 2 weeks after finishing the course all my symptoms come back. Hope the drugs help you, how long have you had it for?

Have had it for three years but recently got a lot worse.

Will search for other posts.

Thanks

maybe your dr would let you try amitryptiline- it's an AD but in small doses of 10-20mgs it is used for painful bladder/IC.

Is AD anti-depressant?

I'm going back in two weeks so will mention this to the doc.

Thanks

yes- if you google you should see some Austrian reseach from a while back which said it could be given even if no formal diagnosis.
have you seen this site

www.confoundation.org

message boards tere too.

sorry- www.cobfoundation.org