A place to whinge about chronic pain

[PliezReleaseMe]

...so that I do less of it in real life.

For me it's hypermobile joints and particularly knee pain, have had it for 20 years & recently had surgery to correct it. Still too early to tell what impact it will have.

Right now though I just want to have a good old sob and a whinge and say that I am fed up of having to think about pain, manage pain, medicate for pain, find ways to overcome or push through pain. I am tired of having constipation/runs, hives, itchy skin and brain fog from pain meds. I am tired of having anxiety attacks because of frustration about my restricted mobility.

I know everyone gets aching joints, but there are times when the pain is so bad that I feel faint and nauseous.

Does anyone else manage chronic pain, the kind that no-one can promise will heal or get better? What strategies do you use?

hi everyone only just seen this thread.
would it be alright if i had a little whinge with you because at least you will understand what i'm talking about.
i have hms/sle nephritis/cfs and i have blackouts. i also have 3dc (1ds 2dd) ds is adhd/asd.
my dr keeps using me as a pin cushion and as for medication i could open a chemist (my neighbours nick named me boots).
it doesn't matter how many painkillers i take everything aches,my joints keep dislocating and all i can do is pop them back in add to that it is taking ages to write this post because i have sausage fingers.

ok whinge over

Can I join in:

i have Lupus, Fibromyalgia, and CFS.

Its a nightmare, meds are pretty good, unless in a bad flare, then nothing touches it.

herbietea thank for advice, my gp did mention steroid injection and have booked an appointment to discuss. Pain really bad this weekend, probably because I had to drive the dcs around, driving always seems to aggravate the pain but as we live in a rural area with crap public transport, can't be avoided!

Highlight of my day was when I was doing my exercises (found on t'net, but so desperate will try anything) bum stuck in the air while I rocked my pelvis back and forth only to look up and see my very fit neighbour staring at me

I hope everyone is enjoying a relatively pain free evening, I'm self medicating on wine...

It looks intersting moondog. Thanks for the pointer.

I bought a folding table with different heights & angles so I could 'sit' properly & type; it doesn't help

I can't get comfy

Can I join please, chronic [[http://en.wikipedia.org/wiki/Greater_trochanteric_pain_syndrome trochanteric (hip) bursitis). Two years this time (also 8 years ago), nothing is shifting it, I'm now in serious stretching/glute excersises.

Can I join please, chronic trochanteric (hip) bursitis. Two years this time (also 8 years ago), nothing is shifting it, I'm now in serious stretching/glute excersises.

....and learning to spell and do links.......

Leonie - it does sound like you have a lot of the symptoms. It might be worth asking your GP if you could see a rheumatologist. If you get a diagnosis you might be able to tap into more specialist physio and pain help.

I have just had my tablets and am now rattling... Would you mind if my tiptoed in to say hello? I wouldn't want to wake anyone who has just finally found a comfy position to sleep though

I have chronic daily headaches..some of them migraines, bulging neck discs, damaged coccyix and back following SPD with DDs pregnancy. Am convinced I have fibromyalgia..have pain in lots of different spots and always tired..I hate it when you fall asleep only to be woken with burning pain in hip, ear, shoulder etc..
Have gall bladder motility dysfunction which leaves me with chronic pain and nausea...removing my gall baldder in Jan didn't help...it has made me worse as I developed complications and needed more surgery....cannot enjoy comforting chocolate anymore as it makes symptoms worse...but I still try.

Anyone else feel like you need to make numerous weekly dr appointments to get all your problems sorted?...drs only have time now to deal with one thing at a time. I don't however go to the dr as often as I probably should..

Working on OU homework today; really struggling to find somewhere to sit comfortably. Typing hurts + drugs make me lethargic= Little coursework

How are we all today?

Hello everyone, I have constant but as yet undiagnosed pain. I've got flat feet which have caused me pain since I was a teenager. The pain has in the last couple of years gotten much worse with very stiff feet and pain when walking far. At the moment it's very very bad and walking hurts a lot. After a little while the pain does get a bit better, but then when I sit down it gets worse again =( My left hip is now also very painful, extremely stiff when I've been still and I find myself limping. Also got knee pain to go with it.

I'm not really taking any medication but just managing, got a doctors appointment this week and feel worried that it will just be laughed off or blamed on me being a bit overweight =(

Hi all.

I'm 42, have fibro and arthritis. And a 22 month old son!

I am currently flairing and my arms are killing me. Not very fun when 22 month old wants to be picked up.

Wow, quite a few of you have hypermobility, EDS and similar. Dd and dh have Marfan Syndrome, so they share a lot of issues with you.

After dd was diagnosed, on the way back from picking up her first ever pair of glasses from the optician at hospital, my car was driven into by a large van. 6 years on, I have arthritis in my neck and lower spine and whilst having tests for that I have been told that I also have a neurological condition, possibly multiple sclerosis. I have pain, frequent falls and other strange things going on as well as the arthritic pain.

As I was the one that did everything as dh is in no fit state after being at work (as well as him needing fairly regular operations), to put it bluntly this is a bit of a fuck up. We also have ds who is almost 9, and he has to put up with a lot. I get no help at all from anywhere, so if I cannot do something it doesn't get done. I feel so bloody guilty all the time over something that isn't my fault.

I have said (time & time again; I can be quite boring sometimes) that there is some connection between:
ME/CFS
Lupus
Fybromyalgia
other auto-immune conditions

The symptoms are so similar for some of them, there must be some sort of connection, whether genetic, predisposition, viral - whatever

I mean I have always had mouth ulcers, always I have had antibiotics/steroids for them often.......& they come on so many lists

I have some hypermobility (I think) my fingers and toes are double jointed, I was always very supple & good at Ballet/gym, until my hip started falling out

Moondog, thank you, I will check that out. I say to DH "I am going to sit for a bit" now and then.

Today I am rather excited as I went to turn the car engine over (preventing flat battery, have had that before after a long period of not being able to drive, SO frustrating!) anyway for weeks now I have been unable to move my foot between accelerator & brake. Anyway cut it short (sore knuckles) I have just driven around the block. Woo hoo! So we are having an exciting outing later to the riverside about half a mile away. What with the clocks changing it will be 3pm by the time we leave but still, yay.

Restful Sundays everyone x

My back/shoulder/arm/hand hurts

I may take a pain killer

Bloody homework

Exercise really deos make a differnece I find.
I have a long standing shoulder problem that causes me permanent pain but running and aerobics and going to the gym keep me loose and flexible and the psain under control. For that reason I make it a priority.