A place to whinge about chronic pain

[PliezReleaseMe]

...so that I do less of it in real life.

For me it's hypermobile joints and particularly knee pain, have had it for 20 years & recently had surgery to correct it. Still too early to tell what impact it will have.

Right now though I just want to have a good old sob and a whinge and say that I am fed up of having to think about pain, manage pain, medicate for pain, find ways to overcome or push through pain. I am tired of having constipation/runs, hives, itchy skin and brain fog from pain meds. I am tired of having anxiety attacks because of frustration about my restricted mobility.

I know everyone gets aching joints, but there are times when the pain is so bad that I feel faint and nauseous.

Does anyone else manage chronic pain, the kind that no-one can promise will heal or get better? What strategies do you use?

I am seeing a Rheumatology consultant for the first time next week.

I am on anti-inflammatorys

I imagine they will take a brief history, take some blood & then see me again when the bloods are back.

Do anti-inflammatorys reduce inflammation markers? So should I stop taking them so the consultant can see what my blood should be?

managed to tidy up and do something to eat for dc but i still feel ill.
when they came home they saw what i was like and told me to go and sit down(they can be sweet)
i think i am realy lucky they are now older and can do their own thing and they have all done catering at school so i know they wont starve but i still feel guilty because i should be doing it for them.
think i will have a hot bath take my pill's andgo to bed

frogmella, please don't feel guilty. You are doing a great job and the fact that your sc told you to sit down, you having raised caring dc there :)

I know thats easier said than done as I often feel guilty too. My ds is very good with my illness and if I'm having a bad day he either cuddles up or plays toys at my feet whilst I sleep. But I do feel bad. It was my MIL who said to me that he is more caring than any of his peers and he is doing everything he was supposed to when he was supposed to, so not to worry. So I begrudgingly listen

Katy phone the consultants secretary and ask her what their protocol is as all consultants vary.

Does anyone get annoyed when people ask if their back is better, not sure I mean annoyed but frustrated, I want to say it hurt last year, last month and yesterday and it damn well hurts now it ain't never getting better until someone invents a new spine for me like the Queen of the Borg in Star Treck!

Sorry, I'm having a grumpy evening, was okish until I took DS3 to pick up his brothers and he needed a bloody big push helping hand up the hill. Followed by standing by a chilly pitch watching the older boys play football and I'm unable to sit still or get in a vaguely comfortable position. It's not the pain so much that makes me want to cry but the fact that I'm mid 30's and helping my toddler and watching football has left me crippled, it's not fair

Really helibee?

Won't she laugh

lost, I know what you mean. So many stupid comments! I hate the "what've you done?" "what've you done this time?" (I've had these for 2.5 years!) or "what've you done to your leg?" type comments. FTR it's not my leg, it's my back/ pelvis and hips, the simple answer is "nothing" but would you really like me to answer that question?

Oh and not to forget "you're brave" when I'm out with my children!

Katy no she won't laugh, I promise. Its better to find out as you don't want to stop taking your meds if the consultant doesn't feel its necessary for the tests :)

lost I know how you feel. Sometimes I get people asking on a weekly basis, "how is your health keeping these days?" well since the last time you asked, NO different. I am in pain 24 hrs a day. Believe me the day I'm not I'll be shouting it from the rooftops, in fact I may even take out a news bulletin

confuddled yes the you're brave comments bug me too.

Hee hee we're a cheery lot tonight so to add to our woes, my back, knees and throat are killing me and my restless legs have started, which just makes my knees worse :(

Anyhow am going to try and sleep, night all

i seriously hurt this evening.been on a study day so had to sit mostly. even with staggering to my feet and keeping moving i now feel shocking. i hurt from the ribs down.

ouch.
i may have to take some drugs which i know will make me itch. fuck.

and now my right big toe is numb. that's not good is it?

How are you now?

Which drugs make you itch? (Katymac scratches surreptitiously)

it's not so bad - been at work so going all evnig but still a bit crap.

I can't take codeine or tramadol. they make me itch madly and puke and knock me out for days.

back to the doc next week.

I've had a good day today so no codeine; getting so tired of it all

Glad you got through it

Ow ow ow ow ow

My knees are agony. Ive been helping my dad unpack his storage unit into our garage and house and ow ow ow I'm paying for it. It was only an hr :(

Mucho tramadol and co-dydramol for me tonight then. Really hope it eases by tomorrow as want to go out for dinner.

Atyourcervix, when I first took tramadol intermittently rather than frequently it used to make me itch like crazy too. It is fine for me now. I hope you find some pain relief that helps.

Katy, glad you had a good day yesterday

Ds has made me a surprise at nursery and said to me yesterday "mummy, look what I made you, but you mustn't look as it's a surprise my teacher telled me it's because I Love you so much!" all I've asked for is a tidy house and to spend the day together, anything else I'm not fussed about. Hope you all have good and pain free mothers days tomorrow x

How are you today?

Hope we've all had nice days today, perhaps not pain-free, but maybe with a few more distractions than usual?

I slept like a baby last night - that is to say, I woke up whining every two hours so it was nice to cash in my Mothers' Day lie-in this morning.

I have a suggestion for the continuing use of this thread, bit of a manifesto if you like.

I propose that we do not apologise for whinging. This thread is the safe place to whinge that you go to when you don't want to burden others with your story. We come here because we are NOT whingers "in real life." I am not banning apologies, but... pointing out that they are not necessary here.

So please everyone, whinge at will. Repetition is also encouraged and expected.

If someone feels better by whinging about the same thing over and over, PLUS contributes to the peace of mind of their children & families by not bending their ear & bending ours instead - then that's a pretty good use of a thread I reckon.

I'll start.

Did I mention that my joints hurt so badly that I stoop most of the time and the one (recently operated on) knee is eye-wateringly painful? Oh I did? Well tough, I'm going to whinge about it again because it is still here today and I am still pissed off about it

I may have mentioned my back once or twice but you know what? I'm going to again!

I too slept like a baby last night. Every time I want to roll over I wake up. It hurts. Sometimes I make little whiny noises too.

Waiting for Dr to open. I will be making an apoointment today.

Not having a good day & it's my own fault

I found online that my anti inflammatory will affect my blood tests so I have stopped taking it.

Any questions about the appointment are to be directed to my GP (who isn't ideal tbh)

My back is farking killing today and I can do little of any use but as I spent 14 hours of the weekend in the car and the bits in the middle wearing 5 inch wedges I can only blame myself. I went to a family wedding, it was a fantastic day and the huge shoes made me feel gorgeous so I don't care! Every twinge is making me smile because it reminds me of how lovely it was spending the day gossiping with my cousins and scaring away boys who wanted to talk to us by being a coven! My blinking knee is hurting too (osteochondritis dissecans as a child and teenager, I swear if I was a horse they would have shot me by now!) but still I don't care!

Apologies for not whinging normal service will be resumed tomorrow!

Hello, I'm joining in so I can whinge about my blardy arm - I have complex regional pain syndrome, plus just a generally b*ggered arm (in the exact words of my consultant) from the elbow down. It has been a right git over the weekend, and I just can't get comfy. And I haven't done this mornings physio yet..

got appointment for wednesday evening. now, will he listen to me and what can he do?

I can function, walk around, work etc but i've reached a sort of plateau and not getting any better.

I can't sit for more than half an hour without it hurting and me having to move - which means study sessions at work are agony and days out more than half an hour away are impossible.

I've cut bakc on painkillers but still need them either end of the day and sleeping is hard.

I've been seeing an osteopath for weeks (£££££££) which helped at the beginning but not any more.

So what do you think the next step is at the docs?

you are very kind pliez - I find it hard to whinge even here - I have built up some really high ''I'm fine walls'. Ridiculous today. Been in tears through utter utter exhaustion. Muddling my words, getting lost doing basic tasks and both times that I was asked how I was it was all smiles 'I'm fine, how are you?' and getting honest responses back about why they were not fine.

Just to say hi, I'm off to spleep, am exhausted. Night all x