A place to whinge about chronic pain

[PliezReleaseMe]

...so that I do less of it in real life.

For me it's hypermobile joints and particularly knee pain, have had it for 20 years & recently had surgery to correct it. Still too early to tell what impact it will have.

Right now though I just want to have a good old sob and a whinge and say that I am fed up of having to think about pain, manage pain, medicate for pain, find ways to overcome or push through pain. I am tired of having constipation/runs, hives, itchy skin and brain fog from pain meds. I am tired of having anxiety attacks because of frustration about my restricted mobility.

I know everyone gets aching joints, but there are times when the pain is so bad that I feel faint and nauseous.

Does anyone else manage chronic pain, the kind that no-one can promise will heal or get better? What strategies do you use?

Herbs where are you? do you at least have people who can pop in and make you tea/pass the laptop/painkillers?

Hello all, can I ask you to budge up very gently so that I can sit down and join you?

I've got Ehlers Danlos Syndrome, hypermobile type. I've got a history of dislocations, subluxations and lots of bruising. I'm trying very hard to sort out the problems as they come up, but they are relentless in their appearance.

I've been working on my weak ankles and do strengthening exercises every day. They seem to be working and as a side effect I have noticed far, far less pain in my feet. It's made me realise that physio exercises sometimes work, but it takes a lot longer than any normal person would expect.

My biggest issue is finding a physio who has heard of EDS, or doesnt pull me around because they've never seen anyone so bendy. It's a problem for anyone with hypermobility issues. I need a physio who is both close to where I live (lots of travel just isn't possible when in pain) and who understands extreme bendiness - there must be a gap in the market for physios.

Sorry, went on a bit, but the part about strengthening might be useful.

Bad day today, can't stand or sit or lie

I'm going to take pain killers & go to bed I think

Sorry

Thank you Englebert . There are some excellent physios out there, but they're still too few and far between. Good luck with the move, hope you get lots of help. True about the time they can take, they're not going to cure us, so there are no outcomes for them to be measured on.

Hi LD. I was diagnosed by a Consultant Rheumatologist at UCL. It was a long path to get there. I was fairly lucky in that my GP didn't give up. He got it wrong a few times, but we just kept going. What makes you think you have EDS?

Sorry that you're feeling so rough Katy, I hope you get some relief.

Don't apologise Katy. You'll make everyone else feel bad for doing the same

My back is bloody niggly today. Saw osteopath yesterday (again) and it seems to have stirred things up a bit.

Might have to go and lie down a bit.

am back

Now I get to run DD to a party/sleepover and write 2500 words for OU

& my hands hurt

Here! Why do we just add to our workload?

Try staring with tiny blocks of writing. It will take a bit of effort at the end to make it flow, but you need to chip away at the word count.

It doesn't sound easypeasy, it sounds like hard work, you're doing something that's actually quite difficult. What subject are you studying?

Herbietea, I hope your kids are helpful while you're non-weight bearing (and once you start to get about a bit) I imagine that you are setting a great example to them about all sorts of life skills; patience, co-operation, handling adversity... I could go on...

Hello to newcomers to the thread

I went upstairs to do my physio on the bed earlier as I couldn't find a leg-size gap anywhere downstairs this morning. Next thing I knew it was teatime. Lovely to have a sleep.

Pain is that annoying 7 out of 10 today, not bad enough to stop doing things but really energy-sapping. Boo hiss

'energy sapping' I like that; I might use it

Tens on. I love my Tens.

Good luck Englebert, writing about yourself can be tricky in academic writing, you just have to grit your teeth, pretend you're writing about someone else and get it done.

Thank you for the thread Pliez.

What's Voltarol can I have some ?

Diclofenac. an anti-inflammatory. it's good stuff (but not if you are asthmatic or have stomach/blleding problems)

Have any of you read
Teach me to sit still?

A very very interesting read by a guy dealing with chronic pain and conquering the grip it had over him.

marking place

Oh no - I had that; it didn't agree with me

I felt a bit lightheaded & dizzy on it; I wonder if it affects blood pressure

I'm on Naproxen which gave me nosebleeds; but they have stopped now