TAMOXIFEN 9 *********

[MaryAnnSingleton]

Starts here !

Right I am all caught up now.

Are there any muffins or brioche left? You are a very talented bunch.

I am glad to hear your blood counts are back up figgy. I hope you are feeling a bit stronger today, it is a horrid thing to share what is happening with friends in the way it brings it all down on you in that moment.

LGF - I can only wish you good luck for thursday's blood tests. Have the anti nausea drugs kept the nausea down to a manageable level, even if they are making you shattered? Yeah on the lump shrinking a lot, this is really good news.

How are you doing today LJ and Pink?

Smee I missed sending you off with a bon voyage.....I hope you are having a wonderful time.

SR your weight loss is awe inspiring. I really must try harder, but I am coming to the conclusion I have other issues to work on too, which are not helping at the moment.

Can't remember who asked, but a little update on ds. I liked the school very much, Officially they are full, but at the discretion of the Head, they could take ds. I have arranged a visit for him and me, and I hope a TA at his current school after easter. If the Head likes him, yes that is what it comes down to, then we will have to have another meeting with physical diabilities support service and the new school to discuss any changes and arrangements, and the post of his one to one support will have to be advertised an filled. I think May half term is realisitic. They have no spaces for his sister, but the schools are at least on the same side of Stafford!

I also had a phone call from my GP, my complaint to the pct has created some activity, and they are pushing again for ds' referral to an othopaedic surgeon. However it would appear that the hospital have lost his notes and xrays detailing his initial admission with dislocated vertebrae....... The gp has suggested I write to indirectly ask what has happened to the orginial dx and paperwork! NHS, got to love it sometimes.

On top of this other bad news, a friend's husband committed suicide at the weekend, and my best friend has just texted me to say she is no her way to airport as her mum has had a major stroke whilst travelling on holiday to France, and is in a serious condition. Life just hits you in the face sometimes doesn't it.

Oh sparkles

I know it is just horrid isn't it! Things like this make me just want to cuddle my dc and never let them go.

It is awful.

But the school thing sounds a bit hopeful. at the lost notes at the hospital, though!

I am feeling quietly hopeful about the school business. I just roll my eyes at the NHS though. Thankfully, although I do not have copies of the xrays, I have kept everything I have ever been given about ds, so I have enough "evidence" to explain what I had been told previosuly in terms of dx.
I should really get on with writing the letter, but I just feel a bit flat about it today, will have a cup of tea and then get on with it, writer's block I think.

I should think you have a few shocks that need processing first. Can it wait for a day?

One day, when ds understands how hard you have fought for him, he will be so proud.

Yes it can wait, it will be a while before any referral is actually processed, just thinking abut writing it for my own peace of mind really.

and for now then, with possibly later.

thank you

The hypnotherapy does sound amazing Cakes -wow. I think I'll get that magazine too, sounds interesting.

Sparkle, the school does sound hopeful - fingers crossed it all goes well. I am also at the hospital losing DS's notes.

I agree with Cakes about writing the letter, - I'm so sorry about your friends mother and your other friends dH - suicide is a terribly shocking thing to deal with. I think you need to give your self a bit of TLC at the moment (I have scones and buns left )

MAS - thank you so much for the lovely e-mail, - beautiful

I hope everyone is feeling a little better today. LGF - very positive news about the tumour shrinking Figgy, I hope today has been a better one, and you don't feel so down.

I've been to yoga this morning, the teacher did lots of arm and shoulder exercises, and my bad shoulder feels really loose, relaxed and pain free. She gave me a hand out with the exercises on them so I can do them at home.

love to all x

sparkle- what awful things to have happened, I am sorry
Good luck with letter writing,am sure you will do a great job -and the school visit sounds encouraging - Spongecake is right about just how proud your ds will be of you Definitely a later :-)
We are attempting chollah later as brioche seems way too complicated and very messy...chollah is my absolute favourite bread(ds's too) and we never get it here- last one came from West Ealing brought by a friend !

The FBS are calling.....see will never lose weight this way.

Good news about your shoulder after today's yoga. I hope that the pain stays away.

Oh there will be later and falling asleep on the new settee, which has two reclining seats........fatal!

Ooh- I like the sound of that settee Sparkle

figgy...sorry that you had a bad day yesterday,i had the burning acid and constipation it really makes you feel rotten,i hope your feeling much better now.

lgf...thats brilliant news that your lump is shrinking.

sparkles..sorry to hear about both your friends,things like this happen and it reminds you how fragile life can be.

had to get the wig out today for the first time i look like the bride of chuckie with hardly any hair left im amazed at how fast its fell out,im having the wig cut tomorrow as i can hardly see and it feels like i have got the end of a mop as a wig.my scalp is so sore im hope shaving it off tomorrow helps.

Have you got anything soothing to put on your scalp pink?

at you wearing a mop as a wig, I am sure it looks much better than that really, and will look even better when it is shaped for you.

Hello all. You are indeed a talented bunch of cooks. I have promised my boys a tray of flapjacks tomorrow.

Pinks, I had a sore scalp for a week or two after my hair decided to fall out. Even the wind made it sore. It's much better now, no soreness at all now.

Kurri, I'm so glad that the yoga has made your shoulder seem better. Keep practicing at home and I'm sure it will improve.

Sparkle, so sorry to hear your bad news. It really does make you realise how fragile life is. The new school sound very encouraging and good luck with your letter writing. You really do have your hands full.

Well, the indigestion hasn't been so bad today but I'm still a bit 'down'. Any little thing is setting me off, especially when the training centre my DS is at called this morning and said he'd fallen over. . He's home now with torn trousers and a very scabby knee but being a brave boy. Even reading the paper sets me off. If it doesn't wear off in a day or so I will visit my GP. She said this might happen - a delayed reaction to losing mum and my diagnosis. But I don't think I want to go down the path of anti-depressents if I can help it. I think there are far too many drugs being pumped into me at the moment without some more.

sparkle..lol well my 15 year old came home and told me it looks ok,she doesnt do compliments so i guess it cant be that bad.but it still feels like a mop on my head and everytime i move i go blind and cant see a thing.

my 19 year old said "are you sure you dont have on it the wrong way round as it did have a fringe"i dont know what im doing wrong but it doesnt have a fringe any more so hoping the hair dresser will sort me out tomorrow.

Figgy - poor you with the indigestion and constipation, it's horrid. Hope it eases over the next couple of days. As to the crying - well, with all you've been through and are going through, I think you'd be a bit odd really if it didn't all get to you, at least now and again! Also the steroids deffo make me 'wired and emotional' - at least the first time, when the dose I was taking seems to have been too high for me. But moan away anyhow, we don't mind xx

LGF - brilliant news about the shrinking lump! Hope that knowledge helps to make the SEs more bearable. Pain to have to have the bloods re-done, hope they are up enough on Thursday. If it does become a regular problem, would they give you the white cell boosting injections too? But it could of course be a one-off, hope so xx

I have been feeling pretty 'normal' for the last couple of days, just get very tired by the evening, but that's ok.

Sparkle that sofa sounds wonderful!

lilruthie - if you are lurking, thinking of you - is your op this Friday? x

at pink's vanishing fringe......fingers crossed for a talented hairdresser.

oops cross-posted again - took a break in the middle to serve tea to DS2 and friend!

Pink if your 15 yr old says it's ok it probably is, but at wrong way round!

Figgy I too have been trying to resist going back on my ADs as I don't fancy yet more drugs and their side effects. Cutting the steroid dose has helped me, but it's interesting what LGF's consultant said about taking them for more days to combat the tiredeness..

Sparkle so sorry about both of your friends and so sorry I missed this off my last post x

Don't worry about it. When do you start to flag in the evening? Have you managed to get the dc into bed before you keel over?

aww figgy- sorry things are making you feel down - am sending you a virtual piece of chollah...

Figgy - so sorry you had an upsetting day. I also recall having a few tearful times which really took me by surprise. But on the whole, I think we need to have these moments to remind us we're going through a really tough time and need to take care of ourselves.

LGF - great that the lump is shrinking. I have a friend who had chemo pre-op and it didn't waork, so I'm glad your's is responding by going away. (Said friend is doing very well BTW, but had her op brought forward as the chemo wasn't helping her.)

I still have at least another stone to lose BTW folks. So thank-you for all your awe and I'll try to keepo going to win more rounds of applause from you all

Hopw is RWU - any news from you or are you stuck in a hedge on a horse as per usual?

KK I think chem. eng sounds a good career move too. It semms to lead to a lot of potential different optons - can't be bad.