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Original poster

TAMOXIFEN thread number 8 ********

979 replies

MaryAnnSingleton · 12/02/2011 15:39

just in case we run out of space !

OP posts:
SparkleRainbow · 15/03/2011 11:59

Thank you all, I have bought a bottle and it is chilling now.

Have realised today that excepting my lovely friend who took me to my first breast clinic appointment, I have become marmite, and they have all decided they don't like marmite. Sad Don't think this is to do with me bc or not to bc, but think it is related to ds and that fact that people don't like to know about or be faced with the reality of medical conditions.

KurriKurri · 15/03/2011 12:42

That's Sad Sparkle - I think some people just don't handle medical stuff well. They think they will say the wrong thing, or not know what to say.

Will you have someone with you this evening at your appointment?

I see you've asked DA a question - well done Smile I hope she answers you. (You may have noticed my slight rant about the welfare reform bill - one of my pet hates at the moment,- I actually cut out some of the more ranty stuff, but it's still rather long Blush)

Do you have some cake to go with that bottle? Grin

Smee - I love the cats with thumbs Grin

Cakesandale · 15/03/2011 13:08

sparkles, that is very Sad Unfortunately I think KK's right, people don't know what to say, so they say nothing, which is the worst of all solutions.

Take someone with you later, I am sure it will be fine but they will remember more of what's said and also buoy you up during the interminable wait.

SparkleRainbow · 15/03/2011 13:10

No I am on my own this evening. Dh wanted to come, but I told him that ds will get all anxious if we both go, better for it to be normal for him.

I read your well worded question. I hope you get an answer, I am very interested. I think mine is a bit of a rant, but it felt better getting it out there. Don't think for a minute that she will actually answer.

Have no cake to go with the bottle, but I do have another bottle to go with the bottle Grin Blush

SparkleRainbow · 15/03/2011 13:16

Got no-one I can take later. Actually realised that I have very few rl friends left. I have my lovely friend who is currently teaching my dd1, as a supply teacher, but is also not well herself, and a single mum, and my best friend is in London, who is, well in London and too far away. A part from them, I have you guys, and few mums on the Hypermobility EDS thread, and that is it, everyone else has just gone, despite my efforts to meet up, ring for chats, organise things etc. See marmite. I am not feeling as sorry for myself as this sounds, I am quite a sociable person, who likes spending time with others, and helping out when I can, so I just have to re-adjust a bit. Life has just turned out to be a bit more lonely than I really wanted, reality of a child with sn.

Original poster
MaryAnnSingleton · 15/03/2011 13:33

Sad sparkle

OP posts:
SparkleRainbow · 15/03/2011 13:35

Sad I know, sorry.

SparkleRainbow · 15/03/2011 14:03

Diane abbot hasn't yet answered either of our questions Kurri. I have just prompted her to asnwer mine, but I suspect she will not bother.

Cakesandale · 15/03/2011 14:06

Ooh dear. You do sound down.

Focus just on today's appointment for now, then. Worry about the other stuff later (much later, when the bottle(s) have done their work) It is very hard when you have so little time and perhaps less in common than before.

On the plus side, we BC ladies are always about (although not always being ladylike Wink )

I went to Pilates last night and a dear friend of mine had her recurring nightmare come true - she let rip the most enormous noisy pump. She is mortified, and I am hugely entertained. Grin

KurriKurri · 15/03/2011 14:08

Sparkle - I tend to think they come along with an agenda of stuff they want to talk about, and will only answer those questions that fit the agendaSad - call me cynical ...

Cakesandale · 15/03/2011 14:14

Crikey KK, d'ya think? Grin Bloody shame, though....

SparkleRainbow · 15/03/2011 14:20

She replied to me......Shock She told me to write to mp. Poor chap, guess he will be hearing from me again. Still in shock though. She didn't actually ignore me.

KurriKurri · 15/03/2011 14:30

I'm glad she answered Sparkle - even if it wasn't anything revolutionary she suggested.

I have asked 3 politicians questions about cancer care on these webchats, and have never had an answer yet Grin either I am asking very boring questions (impossible! Grin) or they don't want to answer for some reason. Hmm

Cakesandale · 15/03/2011 15:12

Well done for getting a reply sparkles, even if it was something you've already tried.

I have everything crossed for a positive appointment this afternoon.

smee · 15/03/2011 16:38

Oh Sparkles, am sending you a huge hug. You most definitely need that wine. Well done on getting DA to answer you. Her constituency's next to ours and I've seen her talk a fair bit. Quite convincing, mostly sound, but sadly rather ineffectual imo.

Really sorry you're feeling so down though. Friendships are weird aren't they. I know every big-ish life change I've ever had has altered a few and can easily imagine your DS's needs has an impact. G'ah to the lot of them. I still have things crossed for you later. Maybe life will look brighter once you're through all of that. Smile

Cakes Grin at your friend. That happened to a woman in my pregnancy yoga class - awesomely loud. Still makes me giggle.

I got my smear test results through the post. All clear, so phew. Onwards to the mammogram.. Smile

Original poster
MaryAnnSingleton · 15/03/2011 17:50

phew smee- excellent news- feel free to nag me to go to mine
thinking of you now sparkle xxx

OP posts:
smee · 15/03/2011 18:12

I was just about to start on a nag, MAS. Grin How's your mother doing, been meaning to ask. Is she more stable now?

I'm thinking of you too Sparkle x

Original poster
MaryAnnSingleton · 15/03/2011 19:48

thanks smee ! Mum is doing pretty well -moving about with a frame, but ankle /foot swollen-think because of all the exercise.

OP posts:
LittleGreenFr0g · 15/03/2011 21:14

I think I have missed too much to try and catch up over the past few days!

Hello to Meandmyfour :) I cannot help you as I have only just started my treatment but these ladies on here are great with their advice, and have helped me so much.

Smee - hurrah!! Great news on your clear smear test results. That is good news.

Sparkle :( Friendships are weird and I have had such hang-ups about friendships since I was in my teens. You sound like you do have one lovely friend though? Is she someone you see a lot? You don't live in the South West do you?

Well, I had yet another bad nights sleep dispite taking a sleeping tablet, so I have headache most of today but it does seem to have gone over the past hour. Fingers crossed? I also have a mouth ulcer which is also making me feel a bit yuck but there are worse things, and I will keep gargling the mouthwash :)

sandripples · 15/03/2011 21:37

Hi - sorry haven't been able to keep up so after v. quick skim, I'm saying hi to Meandmyfour. When I was in bits at the end of my chemo - just emotional relief that it was over, the nurse said to try to trust the treatment. I know that's an odd thing to say in a way, but I sometimes remind myslef about that advice. After all, we want to make the most of our time, whatever it is, so the best approach for me is to assume the treatment has worked, try to keep fit and healthy and enjoy life to the full. I do also work which means I don't have much time to think about BC now as my head's full of work and/or family stuff. I think I've learned to deal with what I know rather than worst case scenarios, but I also know I could easily tip back into worse case thinking if I had a new development /bad news.

Having a number of colleagues and friends who've been through this and come out the other side really helps a lot.

If you find your thoughts always tend to negative, you might find out about NLP or counselling??

Sparkle - am so sorry you are feeling low. Just wondering if there are any more local groups where you could find support and possibly a new friend or two. Or can you afford to book yourselves a treat to look forward to?

KK - hope you're not feeling faint any more.

Thinking of you all - whether on treatment or not. We are having great fun with Orlando and pics will be posted soon, I promise.

meandmyfour · 15/03/2011 23:18

thank you to all of you for your words of advice/comfort. Sandripples, I like that thought of the nurse saying 'trust the treatment'... I will remember that! I have a lot of time to think and worry about stuff. Physically consumed by my triplets and seven year old, no partner etc but mentally a lot of time to obsess about every little ache and pain and dwell on 'what ifs'... The break down of my relationship was so horrendous and continues to be very difficult (he moved out a week before my diagnosis last May) and I have huge anxieties about my babies and not being here for them. DEEP BREATH!!
This seems like a very positive thread...you're all amazing!!

meandmyfour · 15/03/2011 23:21

And Smee..hello..yep, guess we're on the same timetable with treatment! My oncologist is always telling me how loopy his patients go in the first year after treatment.. waiting for everything to fall apart, apparently it gets a lot easier after the first 12 months..

Original poster
MaryAnnSingleton · 16/03/2011 07:42

meandmyfour- you probably have your hands full with triplets and 7 yr old but I can recommend Mindfulness as a very good technique for relaxing and tuning in to the present moment -I can send you some information by email if you like -have bored everyone on this thread with it. Even taking 10 minutes to meditate each day is helpful.
Longing to see Orlando !
Hope sparkle is ok.
love to all xxx

OP posts:
meandmyfour · 16/03/2011 08:57

Thanks Mary Ann, that would be great xx how do I give you my email??

SallyScuttles · 16/03/2011 09:01

I hope you don't mind me crashing your thread but I've just posted about a lump I've found and what might happen next here but then realised that you guys here are probably the best people to ask. If any of you can help I'd really appreciate it, I'm really worried.