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TAMOXIFEN thread number 8 ********

979 replies

MaryAnnSingleton · 12/02/2011 15:39

just in case we run out of space !

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LittleGreenFr0g · 24/02/2011 19:50

Cinema was great and the kids loved it. We saw Gnomeo and Juliet :)

I let properties for a housing association - lots of going out to meet people! My consultent told me that I shouldn't be worried about viral infections too much and people with colds etc. He said it was bacterial - so making sure any wounds/cuts are clean etc. I am going to speak with work tomorrow and see what I can sort out.

I plan to go out over the weekend and get all the stuff I need for after chemo...mouth wash, thermometer, ginger drinks etc

smee · 24/02/2011 21:15

Will you lot please stop - I've only been away for a few days and can't keep up.

I will read properly and post more tomorrow, but just wanted to say hello to LGF from me too. So sad to see this sodding disease has hit someone else, this place really does help though.

I was diagnosed last March, Grade 3, and it was in my nodes too. Had mastectomy, then chemo and rads. Might cheer you a bit to hear but I'm pretty much back to normal now, so that's less than a year.

Quick couple of thoughts on things you mentioned. First on work (so this to Figgy too, hello Figgy!) - I think there's a lot to be said for carrying on, so keeping your options open. You can always back out if it's too much. Nobody'll will think less of you if you suddenly can't carry on, but it might just be a good distraction from all the treatment. I worked until mid rads, when a job finished and I just decided I'd take a break - easier for me probably, as I'm freelance and work from home. Was a bit mad at times, but it did help my sanity.

On telling the kids, I only have one, a boy who was 5 when I was diagnosed, but thought I'd quickly say how we found it as your children are such similar ages. I fretted about it a lot, but throughout, he's honestly seemed pretty oblivious to it all. He only really noticed when I was tired and then he'd get frustrated as I couldn't run around with him. Having said that, I still did manage to race around a fair amount through chemo. Once you start, you'll see a pattern and then can predict which days you'll feel worst on. My DH or friends, just used to just take him out on those days, so all I had to do was be vaguely sane and jolly for breakfast and tea/ bedtime and he barely noticed anything was wrong - far harder for you I know, as you have three to sort. Once you're onto rads, the end's very much in sight. In the end I didn't tell DS anything about them, as he was at school for every appointment and I was well enough for him not to notice.

In terms of what we told him, this might or might not help, but I told him I had some nasty cells inside my breast. That lots of women get them - to normalise it, I told him it was 1 in 9 women, but I think they're saying 1 in 8 now - that if we leave the bad cells there they'd make me ill, but that it's brilliant we found them, as now the doctors can take them out. That the annoying thing is that as the bad cells are inside, I'd need an operation to get them out (I had mastectomy before chemo), and then I'd have to take some medicine just to make sure they'd gone. Also, that the medicine could make me a bit ill at times and maybe make me lose my hair. He totally accepted it as boring but necessary, which was a relief and thought my bald patch (I kept some hair as used the Cold cap), was very funny.

Blimey, what a ramble.. Hope it makes some sense LGF, am typing fast. Will read and post hellos to all tomorrow, but should really sort out the backlog of work e-mails now. Might do a quick detour to fridge before I start. Grin

MaryAnnSingleton · 24/02/2011 22:52

smee- am noting your telling of children !! I think a lot could be done very visually (I see snippets of illustrations in my mind as I read)
LGF - I was diagnosed in 2009,so coming up to 2 years ago (crikey !) IDC grade 2 24mm - WLE , no node involvement so just radiotherapy and tamoxifen after surgery. I didn't actually tell my son (who was 11)- don't ask me why-I just assumed he'd pick up on it-which he did- he wasn't scared or upset as we pretty much carried on as normal (am not saying this is the right way to do it because I think it was wrong) I think I was just trying not to make a big deal out of it. Obviously if I'd had chemo I would have had to have prepared him for my losing my hair/being poorly.
Have a good day tomorrow everyone- am hoping that fresh air will be calming and rejuvenating.
RWU -your country life sounds so idyllic ! the dcs must absolutely love it.

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reallywoundup · 24/02/2011 22:53

is there any way of banning google searches on my laptop- the vinyl floor hunt is not going well- traipsed all blardy morning and found NOTHING i liked! have subsequently found www.harveymaria.co.uk i fear this may end in divorce... i am torn between meadow, grass and feathers Grin

MaryAnnSingleton · 24/02/2011 22:57

oh RWU - I had the water tiles in my old house- in the bathroom and lav- they were cork,laminated with the vinyl- fab ! grass would be fun

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reallywoundup · 24/02/2011 23:00

good job dh was sitting down when i informed him of the price... £500 for our (fairly small) kitchen- arghhhhh!! problem is, now that i've seen it i'll not be happy with anything else- gah! i'll get myself a good lawyer now i think! i like the grass too!

pranma · 24/02/2011 23:04

Just to say I am still around and reading but rarely posting these days.I have my oncology appt in April which will be about 4 years from end of chemo.October will be 5 years from dx/op.I will never forget the dark days [am triple negative] and wouldnt have believed i would be seeing 5 years so close.take care and hang in there everyone.

MaryAnnSingleton · 24/02/2011 23:08

hello pranma - how nice to see you !
Another flooring choice could be real linoleum which you can have made into patterns, I always fancied the industrial type rubber flooring,with raised bits-crappy description,but hope you know what I mean.

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MaryAnnSingleton · 24/02/2011 23:13

RWU - look here

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LimeJellyforBrains · 25/02/2011 00:13

RWU I am a long time admirer of Harvey Maria tiles, but have never been able to afford/justify them either! In our last house we had that Dalsouple rubber flooring MAS linked to, in a sea-green colour (possibly Lagon), in our ensuite when we had a loft conversion done. My favourite kitchen floor ever was cork tiles - don't laugh! - warm, relatively soft, hardwearing and environmentally friendly! Now available in more than just the bog-standard cork colour see here for one example.

LimeJellyforBrains · 25/02/2011 01:02

RWU I also meant to say we were in Habitat recently and they had some snazzy linos. Annoyingly they're not viewable on their website.

Have a lovely day tomorrow MAS!

MaryAnnSingleton · 25/02/2011 07:27

thank you LJ Smile

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KurriKurri · 25/02/2011 11:04

Have a lovely day MAS - you've probably left already!

Good luck today Figgy - I'm sure all will be fine Smile

RWU - those floor coverings look lovely, I am hopeless at choosing things to do with decor - cannot make up my mind.

Hello Pranma - lovely to see you, and great to hear you are doing so well Smile

DH has just won a couple of software packs from his competitions. One is a music one which DD might want, the other is something dull to do with cleaning up windows. Anyway he's very excited that his winning streak has returned Grin

We never seem to to win the exotic holidays or the cars Confused Grin

MaryAnnSingleton · 25/02/2011 11:16

just going KK ! Congratulations to dh and his wins Grin Is he all set to give away his Seamus Heaneys ? I will save a Toast for you (and anyone else who'd like one !)

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KurriKurri · 25/02/2011 11:22

Yes he's all ready - although he can't do it on the actual weekend because the Big C Centre, where he's doing it is closed. So it will be the Monday Smile I have earmarked a Seamus Heaney for you Grin

Cakesandale · 25/02/2011 12:23

I'd like a Toast if one is spare: happy to donate or summat!

I'd like to second smee's approach to telling kids - my dd was 6 at the time and I pretty much did as smee said. And dd pretty much responded in the same way as smee's ds.

Nine horses, RWU. Crikey! Quads sound fun as well. Envy

I have just been to the garage with my car. They are chisellers and I have told them so. It hasn't helped (they knocked a bit off the bill, but not much) but it made me feel better. Grin They also tried to sell me a new car. I was actually thinking of getting a new Honda at some point this year, but have now decided it will be Citroen instead. You shouldn't encourage these people. Angry

Positive vibes to all those starting or awaiting treatment: and love to all.

Figgyroll · 25/02/2011 16:47

Phew, what a day!! Had the ECG and Echo - all okay and results available immediately. Then saw the Trials Nurse who talked me through the Avastin together with chemo treatment which I have agreed to. She arranged bloods and urine tests then went off to check whether or not I was one of the 50/50 on the trial and I was, so that's good news. Starting treatment on Monday so, although really not looking forward to it, am pleased things are moving quickly.

KurriKurri · 25/02/2011 17:08

I'm glad you've got the ECG and echo out of the way Figgy and all was fine Smile

Is the Avastin given at the same time as the chemo - does that mean your chemo is starting on Monday?

If so very good luck - we'll all be thinking of you. And I hope you have a nice relaxing weekend, now everything is in place.

If you are having IV chemo which I think you are IIRC, I always took a little lunchbox of tasty snacks to keep me going - mine was stuff like dried fruit, cherry toms., a nice roll etc. - because you are there for a while, and hospital food can be quite basic and gets a bit repetitive after a whileSmile

It is good you are on the trial - I was on one as well and I'm glad I did it - the trials teams take good care of you, and I became very friendly with my trials nurse, she was lovely.

Anyway take things as easily as you can. It's normal to be a little apprehensive - it's a bit of a step into the unknown, but once you've got the first one under your belt, you have an idea what it's going to be like and you can plan round how you're going to feel. Smile

LittleGreenFr0g · 25/02/2011 18:35

Hi Figgy,

Things are moving for you now arn't they? I'm glad all your tests went well and the results good. If you are anything like me, the chemo can't come quick enough BUT you don't want it. Did they say how long it would take for you? I was told a session would only last about an hour which shocked me, as I thought it would be hours and hours!

Have a lovely relaxing weekend and I will be thinking of you on Monday.

MaryAnnSingleton · 25/02/2011 23:05

oh well done figgy- and lots of luck for Monday -will be thinking of you.
Cakes -will put aside a Toast for you - they are absolutely free !!
A Seamus Heaney would be most kind KK Grin
So- today didn't go as planned - we went to the Vyne but it was closed -we'd forgotten to check in the NT handbook - grrrrrrrr.
Went to have a sandwich for lunch- nothing we wanted to see at cinema (I'd've liked The Kings Speech but obviously not really for ds) so we though- hey-let's visit mum ! so we did,and that was nice. Then went to mooch about in Festival Place and had early supper as planned at Wagamama -which was lovely. M,issed the fresh air and bracing walk we'd planned,so tomorrow will go to Hinton Ampner which is quite near us and lovely :-)

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Figgyroll · 25/02/2011 23:13

KK, That's a good idea about taking some snacks. I will have a think about what to take and make up a little box for DH and me. Yes, the chemo is starting Monday. The Avastin goes in separately I think so will add another hour. It goes in slowly for the first session (in case of adverse effects I think).

LGF, One of the nurses rang this afternoon to tell me they will spend the first hour with DH and me explaining the procedures and the drugs together with possible side-effects. I think I will be there for at least 3 hours on the first session but maybe it will be less for the remaining sessions. I've bought the new Marian Keyes book and am saving it for the first session. I feel exactly like you - want to get it started but definitely don't want it. I think I will feel like running away at some point. When I had an op a couple of years ago I had an overwhelming urge to run away, even when I was on the trolley being wheeled into the operating theatre. I'm such a cowardy custard. :)

reallywoundup · 25/02/2011 23:26

flooring suggestions were alas too late, dh decreed that the floor was NOT going to cost that much... boring wood style lino installed Sad

sent one of the 5yo's off to the farm today... he returned as what appeared to be a fully grown welsh mountain farmer complete with "ay ay" instead of yes Shock he stripped to his undies (as was covered in all manner of urm stuff!) and flopped on the sofa to tell us about his particularly interesting tale of viewing the birth of a stillborn lamb Sad and the subsequent trek round the local holdings to find a cade lamb for the ewe (he did go further into the bonding process, but i shall leave that to your imagination) for a 5yo, he took it all in his stride! life and death farmer stylee- no need for the birds and the bees... he's been educated by the livestock- love it!

MaryAnnSingleton · 26/02/2011 08:50

wonderful description RWU Grin

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LittleGreenFr0g · 26/02/2011 11:19

Good morning! Has anyone had an MRI scan? I have just had an appointment through for one on Weds afternoon and its freaked me out! The Oncologist said I wouldn't need one for the moment but the consultent I originally saw wants me to have one and so I have this appointment. I am a little bit claustrophobic and the thought of it is making me feel sick :(

I guess there is a lot worse to come but am now dreading next week.

KurriKurri · 26/02/2011 12:48

Have a lovely time today MAS - sorry yesterday's plans were slightly thwarted, but lovely to see your mum - how is she doing?

RWU - my sister and BIL have a farm, their girls grew up so blase about the birds and the bees, it's brilliant. Your little DS sounds fab - that really made me smile Smile

LGF - I haven't had an MRI scan, so can't really help. The only suggestion I have is to tell them in advance you are claustrophobic, and it may be possible to give you something to calm you down. (I don't know if that's the case - but I think it's worth asking about) They are usually very sympathetic to such things - I know I would feel exactly the same as you.

Do you have any details about the scan? - how long it will take for example (I sometimes find things that make you feel a bit panicky are easier to deal with if you know exactly how long you will have to cope with them.)

Also find out if you are allowed to close your eyes. I'm claustrophobic too, and felt a bit panicky having the bone scanner go over my face,but I found shutting my eyes helped, and I asked the scan operator to tell me when I could open them safely.

Again breast care nurse a good person to talk through your fears with, they can explain it all.
I'll be thinking of you and hopefully it will turn out to be one of these things that are not as scary as you think they will be Smile