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Lump in Breast - anyone got any advice please?

114 replies

Mojomummy · 13/09/2005 14:19

on Saturday night I was in the bath reading an article about breast cancer. I decided to examin my & much to my horror, found a lump on my left breast, just above the nipple.

Monday teatime I went to my docs who examined me & identified the lump. She seems to think it's a cyst & has told me to take evening primrose oil for 2 weeks. 800mg a day. If it's not gone, then to go back & I'll be referred to the breast clinic.

Does this seem reasonable ? apparently cysts tend to be hormone related & I recently had a miscarriage. I'm 36.5 & thought I was in good health. There is no breast cancer in my maternal family & I breast feed my dd for 2 years.

OP posts:
Tiportreatex · 18/10/2005 20:55

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lalaa · 19/10/2005 08:59

hello again all
I'm afraid that the news wasn't good. My consultant has put my in the poor prognosis category although he was reluctant to say what that means in statistics. Anyway, lots of lymph nodes had cancer cells in them, and the cancer had invaded the vascular system from the lymph nodes, which means it's in my blood. So they are throwing the book at me and I'm facing 6 - 8 cycles of chemo starting in about a month. Absolutely devastated. Dh and I are spending today re-evaluating our lives and planning for the future, whether that's short or long term. It is sinking in slowly.

Redtartanlass · 19/10/2005 09:07

lalaa lots and lots of love to you and your dh. I wish so much I could say something uplifting or helpful. But I'm sure many of the other mners who are more articulate than me, will be able to pass on the words of wisdom and hope I wish I could express.

Just remember loads of people who do not even 'know' you are thinking of you.

pindy · 19/10/2005 09:08

Oh Lalaa so sorry to hear this, . Try to keep strong and positive, I'm sure that will be hard sometimes, but we will all be thinking of you and praying for the best possible outcome. Good luck.

Springchicken · 19/10/2005 09:13

Oh Lalaa - I hadn't seen this until this morning. I am so so sorry to hear your news
I know it't not the same but my mum had brain cancer and blood cancer about 20 years ago and is still here strong now. She went through Chemo and Radium (sp?) treatment, which wasn't nice but she is still here now.
Try and stay as positive as possible - glad your DH is being so supportive x

jambuttie · 19/10/2005 09:24

thinking of you laalaa

emmatom · 19/10/2005 12:15

Thinking of you and your family.

tamum · 19/10/2005 12:42

I'm so sorry laalaa, what devastating news. have they tested you for HER2, do you know? If you are positive for that marker you should kick and scream for herceptin. It could help a lot.
xxx

Marina · 19/10/2005 12:48

Lalaa, I'm so very sorry to hear your news. I hope you feel able to take tamum's excellent advice for insisting on herceptin if it could help.

amynnixmum · 19/10/2005 13:09

Oh Laalaa, so sorry

My mum has only recently finished her chemo and radiotherapy. She was due to have between 6 and 8 cycles as well. In the end she had 7 cycles of chemo and 6 weeks of radiotherapy. It wasn't much fun but she's doing really well now and is going back to work after 1/2 term

Good luck with the treatment. Mum found Queasy Pops quite helpful when she felt sick- you can buy them online.

suedonim · 19/10/2005 14:14

I'm so sorry, Lalaa. What an evil disease this is. My son's MIL has just been diagnosed, too and will be having chemo and radiotherapy. I'll be thinking of you both and will pop some extra money into one of the breast cancer research campaign boxes when I next see one.

JAG123 · 19/10/2005 14:44

Lalaa I'm so sorry that you didn't get a better outcome. I had 5 months of chemo (should have been 6 but was taken ill with something else)
Anyway although not pleasant i was able to work throughout. Make sure that you let the doctors know when you have any side effects as they can usually prescribe things that help. Don't suffer in silence.
I will be thinking of you & praying for you & your family.
Take Care J

PollyLogos · 19/10/2005 19:29

Very sorry to read this Lalaa.

hoxtonchick · 19/10/2005 19:35

so sorry lalaa

macwoozy · 20/10/2005 09:28

So very sorry to hear your news lalaa.

waily · 20/10/2005 19:17

I was diagnosed with bc in january of this year, i ve just finished chemo and am now having herceptin privately.If you want to email me please do, otherwise you could probably find my thread on an archive search.The breast cancer care web site is an excellent source of advice and support, they got me through some of my darkest hours, alongside the support i received from members of this site, thanks again !

dolally · 20/10/2005 22:48

LaLaa, it's all been said by others but still want to send you my good wishes. Keep strong. Might Herceptin (sp?) be appropriate?

Waily good to hear you've got the Herceptin, though privately... costs a fortune doesn't it but worth it I'm sure?

lalaa · 21/10/2005 09:19

Just to say that I'm still waiting to find out whether I'm suitable for Herceptin (it's 1 in 4 or 5, I think) and I won't know that until I see the oncologist in a couple of weeks.
Waily, if it's not too personal, could you let me know how much you are paying for Herceptin? Although we have absolutely no money, my family are being massively supportive and we may be able to raise the money we need through them. I'm just wondering how big a job it's going to be. You can CAT me if you'd prefer not to post that up here.
Thanks for all the support everyone. Do appreciate it. I have looked at the breast cancer care website but am finding it all a bit depressing, which is the last thing I need at the mo.
xx

PollyLogos · 21/10/2005 16:35

Hi Lalaa,its good to see you posting. I hope that if you are suitable for herceptin your health authority will prescribe it for you. There was an item on the greek news at lunch time today about the good results they are getting from this drug. It sounded most hopeful.

I am so glad that you are getting great support from all your family. I know its easy for me to say and much harder for you to do, but don't drive yourself mad or to the depths of depression by trawling the net.

Someone very rightly said on here recently, (to droile I think) that the positive stories are frequently not posted on these sites because all the people with positive outcomes to serious health problems, then go out and get on with living,rather than posting on websites. Therefore its usually the more depressing stories we read about.I think this is very true.

Wishing you dh and dd a happy weekend together GRMUM x

lalaa · 26/10/2005 08:16

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dolally · 26/10/2005 08:23

great news lalaa, you sound amazingly positive and proactive. Do hope that your health authority will fund the Herceptin for you... much love and good wishes...

PollyLogos · 26/10/2005 08:55

Thats great news lalaa and I agree with dolally in that you sound amazingly positive and ready for action.

I was checking the same subject out for a friend and found this Hopefully it may be useful to you.

GRMUM

JAG123 · 26/10/2005 19:52

Thats Great News. Keep Fighting J

tamum · 26/10/2005 20:10

lalaa, that's such good news. I go to quite a few cancer conferences, read a lot of scientific/medical literature and never have I seen a reaction like the one to herceptin. Medics are really thinking of it as the closest thing there is to a cure and with good reason. I am the last person to dish out false hope but this is excellent news, truly

lalaa · 26/10/2005 21:23

back again
oncologist meeting all very positive. have agreed 4 cycles of FEC chemotherapy followed by taxane chemo plus herceptin (presuming funding comes through) so 8 cycles altogether (bleuhh). I would ideally have liked to have the herceptin plus taxane chemo from the outset, but that will take a month for the primary care trust to consider and I'm not hanging around to start treatment. herceptin will, if funded, then follow for a year in total, possibly two depending on whether the current trials show that it is better to have it for two years than for one. i'll then have to have some kind of hormone therapy for who knows how long - at least a couple of years, I expect.
Chemo starts within the next fortnight - have the antisickness drugs already so just waiting for chemo team to ring me with an appointment. should be able to get two cycles in before Xmas, which is excellent.
Delighted that everything is moving along so quickly now. Last hurdle is actually getting the appointment at the chemo suite, which I will be on the phone about if I haven't heard by Monday...it worked last time.....
Thanks for all your messages.