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*TAMOXIFEN* the 5th

961 replies

MaryAnnSingleton · 17/07/2010 11:51

in case we forget and find ourselves at 1000 - here's a fresh new thread !

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MaryAnnSingleton · 13/08/2010 11:05

absolutely agree with kk - breast care nurses,in my experience are total stars

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sandripples · 13/08/2010 11:57

MAS - congratulations on your £50! That's great and really well deserved as you look after our thread in terms of starting new ones etc!

Cakes - have a good few days away - hope its a holiday - think this might be your long drive up to Scotland but might have mixed this up!

Purplefish - welcome from me too. I don't have much to add. It is the waiting for results that's difficult as others have said. Once your mum has a plan she'll probably find things easier. But I also wanted to keep things as normal as [possible and not over-emote if you see what I mean. You will need to take your cues from her in terms of whether she wants to cry, or talk, or feel angry, or just try to continue as normal with nice distractions - all these have their place, I found. Distcractions can be simple things she enjoys anyway - eg I enjoy cooking and gardening and these are therapeutic for me. Good luck with the next few weeks and come back if you want to/have questions.

Have had my CMF round 3, part 2 today so only one more cycle - need to go and buy some liver to boost red blood tho.

Guys have nearly finished putting in our new staircarpet and it looks very nice. We've gone for terracotta again as this picks up a colour in our tiled hall floor. So no change of colour but the carpet goes up 2 stair flights now and 2 landings - hooray! Guys couldn't quite finish yesterday as one of them had to take his daughter to hospital so they'll be back this afternoon. I'm staying well clear as the main chap has a straming cold! I just talk to him from the top of the stairs!

MaryAnnSingleton · 13/08/2010 12:57

one more cycle SR - fantastic !!
Safe journey Cakes

Am very excited about the £50 vouchers - am plotting to buy wine and chocolate mainly and some champagne for our wedding anniv which is the week after next...

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Cakesandale · 13/08/2010 13:07

Great that you are so near the end SR - and carpets sound fab.

Wine and chocolate, plus champagne. Heaven. Enjoy! And congrats on the wedding anniversary.

This is indeed our long trek to Arran I can't wait.

I hope you all have a good week: I'll miss chatting to you all and look forward to catching up.

xx

purplefish · 13/08/2010 13:29

Thankyou everyone Smile

The stomach problems have been going on since before she found the lump, so we have kind of ruled out the nerves/stress thing. I mentioned it to her as I suffer from IBS when stressed and wondered if it could be something like that, but she says it has been going on since before.

I'm finding it a nightmare waiting for her results, I can't imagine how she must feel!

She is also feeling quite unwell at the moment and lying on the sofa a lot (so brother says) which isn't like her. But that could be because she is emotionally exhausted by all of this and probably a bit down about it...understandable!

Anyway, must go now as I have my sister, BIL and nephews arriving soon.

Thanks again for your support and really helpful words x

reallywoundup · 13/08/2010 13:45

'ello all!

after a self-imposed mn exile due to only having my ipod for internet access and being unable to boot dh off pc i am back! just picked up my sparkly new laptop (i killed the last one in a terrible baileys incident Grin) i'm just in the middle of setting everything up and installing all the 'stuff' i need but be sure ladies, you will no longer have radio silence from the rwu camp!

i shall return and read through- we seem to have new members, welcome!!

MaryAnnSingleton · 13/08/2010 14:37

hooray for RWU Grin
purplefish - hang on in there and come back to talk to us- we're happy to help if we can.

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smee · 13/08/2010 15:05

Hi Purplefish. So hard for you to know what to do to help your poor mum, but I echo what others have said. The time before you know exactly what you're facing is the worst by far and yes absolutely, BC Nurses are fantastic. MAS mentioning champagne made me remember the day of my diagnosis, as that's what we did: drink champagne. Might sound daft, but it gave us a chance to be shocked and affirm both life and hope at the same time. Also a bottle takes a while to drink, so gives time for words to flow. It's easy to say 'I'm fine' and shut down, or equally to wail loudly, but if you can give the time to just let a range of emotions flow it really helps and a bottle of champagne's quite a good way to hold her captive while allowing that to happen.

Only other advice I can really think of is, that if your mother's having a tendency to curl up on the sofa, there's nothing wrong with that, but try and maybe help her to see it's something to be got through rather than to let walk all over her. I'm a fair way through the treatment now and there's no denying it's a long slog to get through, so attitude is pretty key in terms of making it all go quicker. I'd bet we've all had days of despair and sofa hugging. Bound to really, but if that's all you do it'll feel like a far worse nightmare. Places like here have really helped me, as the normal talk of day to day and humour about it all show you can live a life during treatment. So maybe tell your mum where we are.

Here am celebrating, as had first Tax cycle yesterday and am leaping around as I don't feel sick!! Amazing after the dirge of FEC. Also now only have two more cycles to go. I do however have to inject myself with something to boost WBC. Am waiting for DS to go out in a bit to see if I can do it. Am more worried by getting the syringe put together and filled properly, than the actual sticking it in bit.

SR, that's fab you've only one cycle to go. Hope you're feeling okay today. Something about the end in sight makes side effects easier to bear I think.

RWU hooray you're back! What's happening with the house move then? Laptop death by Baileys made me laugh. Have nearly done that to mine far too many times, though not with Baileys, more other stuff. The cat nearly did for mine the other day. Sat on it until it overheated. Hmm

If you haven't already gone, happy Arran Cakes. Am jealous. Ward off all midges, and here's hoping DD is on top form. Oh and big congrats on the MRI not showing cancer. What can they do for you though?? Hopefully they can help your get your back sorted now.

KK, just skipped back through some of what I missed and saw your pics. You look amazing. That dress most definitely worked. Your other half looks lovely too. And how fantastic that your son has a girlfriend you like too. Hip-hip-hooray and long may she last.

Sorry I haven't caught up on all posts, but a bit busy trying to work on insane deadline. Cupcaked, what's this Browzings then? Do tell more. Mine are thinning beyond extinction, so I'll have to get onto a solution soon.

And finally seeing as you asked MAS, DS's darkest moment of madness, of course involved poo. When I had my back op before Christmas he went into a control mania phase of needing to hold onto everything. We indulged it for a while and it started off being cute, but then one snowy day he wiggled into the kitchen trousers round ankles, to show me copious amounts of poo on loo paper. It was dripping off the paper, but was apparently 'too beautiful' to flush. Cue hours of wailing after I flushed it, as he was genuinely devastated. To de-traumatise for a while I even agreed to let him photograph all poo. Can't believe I did that, but it was shear desperation! Obviously I am raising a rather strange fish, though fortunately he's moved on from the poo phase.. Grin

Off to inject myself now. Wish me luck!

sandripples · 13/08/2010 17:35

Smee! Grin at poo story but trust that's um, water under the bridge now!

I hope the injections work for you. Great that you're better on the Tax. After somewhat upset innards today I'm feeling pretty Ok and have suggested pub supper to DH. I'm getting used to being able to make spontaneous suggestions while no DCS around!

Purplefish - one other point. If you mum has reservations about the age of MNers please do tell her I'm 55, and 56 later this year, so no need to think you have to be a trendy youngster - though trendy youngsters are of course equally welcome - we're a nice mixed group on this thread! I personally us ethis and BCC although prefer this.

Welcome back RWU - longing to hear your news as you tend to have an exciting life with your nice big family! Mm quite fancy a Baileys and haven't opened the Chroistmas bottle due to oversight -massive overstocking of food and drink last December-

MaryAnnSingleton · 13/08/2010 18:47

eeee smeee - poo story Grin !!
Lots of luck with injecting and am very glad you aren't feeling sick Smile
Your advice for purplefish's mum is good smee -we drank some whisky after my dx -went over to my parents to tell them-I went up to where my dad was fixing a lovely new loo roll holder up (I'd bought it for them that day at an antiquey place where i'd spent the morning with friends- wrought iron and very pretty) Whenever i look at it though,it reminds me. We went downstairs and had some whisky anyway.
And as for age, I am 51,so no whippersnapper.
Off to press our clothes for niece's wedding next week !

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smee · 13/08/2010 20:10

Well I did warn you....! Be glad to know, tonight it was just an orange pip, that we have to plant to grow a tree. That I can deal with.

Injection was fine. Strangely satisfying to feel I could do it, though am aching a bit now. Still good not to feel sick though. Smile

Pub meal, great idea SR. Have fun then and hoping the tastebuds are working well enough.

MAS, funny what links you back memory wise isn't it. I have to walk through a church yard to get to the hospital. It's a beautiful place, but it will always be a trigger now.

haggisdoodle · 13/08/2010 20:43

Hello everybody. Had a great laugh at Smee's poo story. Dare I ask if this is the photo that will come out to make hiim blush when he is 18 (sort of like the baby photos in the bath)? Glad you are having an easier time with Tax btw.

MAS - great photo! This wedding you are off to is it the one you were making the place cards for?

SR - that's great that you have only one more treatment. the end is in sight Grin.

So good to see you back RWU - missed your posts. Hope you are feeling better - and keep the Bailey's away from your new laptop!

Re anniversary - just to clear up the confusion it was both wedding and surgery anniversary. Hope you manage to get some nice treats with your voucher for your anniversary MAS!

Purplefish - welcome and I hope things went well for your mum today. I can't really add anything else to the advice already given. It must be very stressful for you at the moment trying to support your mum when you are probably reeling yourself. Please do use this thread to sound off, air worries or anything else which helps. It has been a lifeline to me - just want to say thank you again to all who post here.

Please can I have a mini moan?? have been suffering with pains in legs and arms for 3 months now. the pain comes and goes but is deep i.e. in the bone I think. Have been fobbed of at GP and onc appts several times now but after being up all night with bad pain in right leg went to GP today. He evidently thinks I am paranoid about it being cancer in the bone but as i pointed out I have had pain for 3 months, it is getting worse and until they can tell me what it is I will always have a worry that it is cancer. Anyway, I am going for blood tests next week (for anaemia!!!!) but what I wanted to ask you all is - has anyone heard of arthritis brought on by trauma? Someone at work mentioned this and it sounds remarkably like what I am going through at the moment. Reluctant to google it but getting nowhere with doctors so may have to do a bit of research.

Anyway enough of that - I am off to comfort the farting kitten - he lost his bobbles today after a trip to the vet!

smee · 13/08/2010 21:24

Haggis, now there's an idea - I will ferret a pic away somewhere. Grin

Sorry you're worried, but if Onc's fobbing you off, I'd say that's a good sign. Not sure if this helps, but a friend of mine finished treatment for Bowel cancer a good six months ago and she suffers still with all manner of aches. And on arthritis, my Dad suffers from it and if he's stressed or run down it's always far worse, so I'd say it could well be flared up by trauma. Let's face it your body's been through a lot. I'd push for peace of mind too though. Would seem mighty sensible to me.

Hugs to farty kitten. Poor thing.

MaryAnnSingleton · 13/08/2010 21:29

well done for successful injecting smee
If it's any help haggis -I read Ruth Picardie's book and bone mets usually start in breast bone . My mum has very bad arthritis and I can see the possibilities of it being exaccerbated or caused by trauma as it's an auto-immune reaction,isn';t it (or am i talking rubbish ?) She has broken her wrist twice,Collis fracture -and her hands are terribly affected by arthritis.
Poor farting kitten - maybe his operation will curb his wind ?

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MaryAnnSingleton · 13/08/2010 21:31

and yes - wedding is the one I've done place cards for ! it's my niece's.

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KurriKurri · 13/08/2010 21:44

Hi all, - have had a lovely day out - went over to my DS's flat to watch the Lowestoft air show (you get a brilliant view from his 3rd floor window). saw the Red Arrows; wing walking; A Vulcan, and loads more it lasted all afternoon. Several of DS friends also there and one of them brought the cutest little Jack RussellX puppy - he spent most of the afternoon curled up on my lap - I wanted to snaffle him and bring him home. Grin(Took some photos so when they are loaded I can show you how sweet he was.)

Am still reading through all your posts since this morning (Grin at the poo story Smee) but really just wanted to show you this Haggis - it lists aching joints as a common side effect of Tamox. - I get very achy legs at times. Just wanted to reassure you that there are a lot of aches and pains associated with all the treatments you have been through (and you will still be feeling effects from your chemo).

I would still push your GP because you have every right to be checked whenever you have a worry - he should not be dismissing your concerns as paranoid because they are completely natural in a cancer patient. And they are supposed to appreciate that fact and allow you to be reassured.

Love to all - great to see you RWUSmile
Thank you for kind comments on my photos SmeeSmile Good luck with the injections - they should give you a boost and help you feel better more quickly. Really pleased the sickness has 'left the building'!

haggisdoodle · 13/08/2010 23:39

Thanks for comments re sore legs. MAS and Smee - so sorry to hear that your parents have arthritis - it is a rotten disease. KK thanks so much for setting up the link. Anyway, further research was fruitful. Apparently there is something called post chemotherapy rheumatism. It appears 1-3 months after the end of chemotherapy (hence isn't often picked up), affects legs, arms, ankles and fingers particularly and is most common after chemo regimes for breast or ovarian cancer. It is the "F" bit of FEC that causes it. Good news is that it generally clears up in about 6 months time. I am not a great fan of self diagnosis but I have to say that the symptoms are identical to what I am having - especially the transient nature of the pain.

KK - glad to hear that you had such a nice day out. Puppies are just adorable - don't think I have ever seen one I didn't want to take home.

Thought we may get a quiet night after op on farty kitten but he is as lively as ever. His new trick is to switch on kitchen taps (levers) and in the bathroom we have a plug on a chain which has become detached from the wash basin. He has taken to dragging this around the house. Loss of bobbles doen't appear to have affected him one iota - well apart from increasing his appetite which is already huge. He ate a plate of chilli beans a few days ago - was not a good evening after that!

MaryAnnSingleton · 14/08/2010 09:17

interestingly mum takes methotrexate (the M in CMF I believe) for her arthritis.
Post-chemo arthritis does sound a likely thing from your research - not nice.
I love the kitten stories -would make an excellent story book,in fact (imagining illustrations Grin )
Hope purplefish is ok

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purplefish · 14/08/2010 10:52

Ok, so just been told by my brother that there is an anomaly on mum liver. BC has been confirmed. Anomaly sounds scary, is it?

purplefish · 14/08/2010 10:53

In the liver, sorry, not on.

MaryAnnSingleton · 14/08/2010 11:46

I don't know purplefish,to be honest but am sure she will have tests top check. Am very sorry about her diagnosis -do you have any more details ?

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KurriKurri · 14/08/2010 11:49

Purplefish, so sorry to hear your Mum's BC has been confirmed. Everything seems to happen so fast, and you are all still in dealing with the shock.

It does sound scary I know, but they check everything that looks remotely suspicious. Is she having an ultrasound scan on her liver?

I know its very hard waiting for results of all the various tests, but FWIW, I had anomalies on my liver and lung and it turned out to be nothing to worry about, but they did all the tests and I was scared at the time.

Thinking of your family,and sending much love - it's very early days, and a difficult time for you all. xx

purplefish · 14/08/2010 13:59

Thankyou, it is reassurring to hear about your test results on your liver and lung. I would imagine she will have an ultrasound on her liver...sounds like standard practice.

My brother pointed out that if we all had thorough tests done, we'd probably all have something going on ie anomalies etc. He didn't know she'd found the lump so long ago though!

Tis a waiting game isn't it!

purplefish · 14/08/2010 14:01

MAS, I don't really know that much atm. I am going to call mum later when the boys are in bed...less interuption!

MaryAnnSingleton · 14/08/2010 14:28

that sounds like a good plan purplefish.

Have just been asked to do a card for a terminally ill girl for her birthday -they weren't sure she'd make it but she's doing really well. Bittersweet.

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