Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

baby girl born with an imperforate anus....complications after surgery....cant find any answers :(

5 replies

sugarbea · 12/07/2010 21:32

my baby girl was born in december with an imperforate anus with a vestibular fistula.. she avoided a colostomy and had a psrap (pull thru at 2 months old)......since then she has had around 6 IUA (investigation under anasthetic) and dialatations.....(i have not had to dialate at home) at the last IUA they discovered a rectovaginal fistula (which i think has been present for a while as i had noticed poo in that region before) she is due for more major surgery in august....she will be 9 months old....

i have tried for months to make sense of it all and it is no comfort that all the things that have happened to her have (in the doctors words) "just been one of those things"... it makes an otherwise positive mum question just how many more things can happen without cause or explanation.

wikipedia is my enemy....as the condition is so rare the information that i have found on it differs so greatly im still none the wiser...

im scared for her future, her continence, her happiness she on the other hand couldnt give a monkeys..... she is the happiest baby ive ever known...surpassing all her milestones (crawling at 5 months standing at 7) shes determined to make up for any abnormalities.

wondering if any other mums have a child with this condition or any mums that were born with it.....im sick of the statistics...

OP posts:
DoNotFeedMeBiscuits · 12/07/2010 23:44

no experience but bumping for you. Glad your little girl is unaffected by all that you have gone through.

ttalloo · 13/07/2010 13:14

No experience either, but just wanted to say how sad I am that you and your little girl have to go through this. She sounds remarkable, and I hope that her operation in August goes well.

And I hope that someone with something more useful to say than just good wishes responds to you soon.

ohsurelynot · 13/07/2010 15:37

I'm so sorry to hear what you and your little girl are going through.

I have no experience to offer but just wanted to wish you both well. Your little girl sounds delightful and I'm super impressed she is crawling at 5 months, wow! I really hope her operation goes well.

cleverlyconcealed · 13/07/2010 18:53

sugarbea - there's a thread on here about stomas and I know there's at least one mum on there whose dd has imperforate anus.

I'll post the link and bump up the thread for you.

cleverlyconcealed · 13/07/2010 18:56

here

New posts on this thread. Refresh page
Swipe left for the next trending thread