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OCD Support Thread

92 replies

Helplessandheartbroke · 22/03/2026 17:31

A friendly thread for support for fellow ocd sufferers. No judgement here.

OP posts:
Theawkwardblonde · 05/05/2026 23:03

Only just discovered this thread this evening. May I please join? Diagnosed about 10 years ago. Habitual cleaning to reduce stress paired with generalised anxiety disorder led to diagnosis of OCD (alongside GAD and bipolar). Interested to hear from people struggling with similar.

Lostpotential · 06/05/2026 19:26

Slowdives · 05/05/2026 15:57

Hi everyone,
Hope you’re all doing Ok.

I just want to say to @LostpotentialI’m so sorry you suffer like this but it actually made me feel a bit better in a weird way when I read your post. It was the part about walking through the same doorway for hours until you have the right thoughts. I know this feeling so well and the way you’ve described it…this blows my mind that somebody else understands this. I have never spoken to anyone who experiences this. It is truly hell on earth. But one of the worst things about it for me has been feeling so alone in it. It’s something that for years I didn’t think anyone could relate to. I still feel so ashamed of myself for getting caught up in these compulsions. I’ve felt like I’m some sort of freak and that I should be able to just stop.
I’ve had decades of meds, therapies etc Some of has helped but none of that has had such an effect as actually knowing I’m not the only one out there whose brain does this.
So thank you so much for sharing to LostPotential and everyone else x

Aww, thank you so much @Slowdives .
I feel very touched by your post. I also haven't encountered anyone who's expressed having the same OCD symptoms as me. I know there are many types and varying symptoms, so I've often wondered if other people have similar symptoms, or if mine is a unique case.
I've often felt my OCD has stolen so much from me, and given nothing back; so the thought my expressing some of my struggles on here could help someone else is very emotional for me.
I'm so sorry you've also experienced such exhausting, time-consuming symptoms. It is indeed hell on earth. I agree it's very isolating, and both OCD itself, and OCD sufferers are widely misunderstood.
I started an OCD thread lamenting my lost potential, in March. I keep meaning to update it, then get distracted. Lots of very helpful posts on there from so many kind people. I think it might help you to read some of them. I'll try and find it...
I was struggling particularly badly then, it really was horrific. Though still not at my worst. At my worst, I wouldn't be able to post online. I find it varies in severity.
I'm so grateful for this thread...
You take care x

Lostpotential · 06/05/2026 19:44

Helplessandheartbroke · 04/05/2026 22:19

Hi all, sorry I've been quiet again. I was having a really bad time and stayed offline so a while. Im actually feeling a little more normal now although I've still been circling the block to check I've not ran over a cat or something several times.... sorry you had a bad experience with your friend. Im assuming 2 things, 1 she doesnt ger it and 2 shes torn up over her own recent diagnosis. Either way, I hope the rest of your stay went well @Lostpotential how are you @Lizzbear and everyone else? X

I very much relate to your need to be offline. I go through phases where I can't cope at all with being online.
I hope you're OK and reassured about the cat?
I'm very up and down. It's always there, but sometimes far worse than others. It's so good this thread exists for those down days, and generally. Thank you x

Budsonthetrees · 06/05/2026 20:10

Please can I join? My OCD is the fear of harming people. It's awful and stops me doing so many things.

I can no longer drive as I fear I have caused an accident. The intrusive thoughts and visualisations in my head are awful. I know they are not real and I haven't done anything but once that thought creeps in....

I want to be able.to get on the bus by myself and to shopping alone but it's too hard, the anxiety it would cause is too much.

I must look a very odd sight when I am out as my head is constantly on a swivel making sure I haven't knocked into anyone or tripped them up by accident and left them.

It's exhausting and people who don't suffer don't understand how debilitating it can be.

Over the years, I have tried hypnotherapy with 4 different people, meds, CBT, nothing has worked so I guess this is me

Helplessandheartbroke · 11/05/2026 20:17

Hi all, and welcome our newcomers im glad you found us. I hope everyone's well. Im having a really bad time atm. Beer fear along with my ocd is making me feel like the worst mum in the world and convinced something bad might of happened to ds because I was drunk and not watching him properly. Torturing myself and not sure how to switch it off.

OP posts:
PurpleLovecats · 11/05/2026 21:28

Sorry you’re struggling. Does anything like mindfulness help to calm you?

Lizzbear · 13/05/2026 13:10

Helplessandheartbroke · 11/05/2026 20:17

Hi all, and welcome our newcomers im glad you found us. I hope everyone's well. Im having a really bad time atm. Beer fear along with my ocd is making me feel like the worst mum in the world and convinced something bad might of happened to ds because I was drunk and not watching him properly. Torturing myself and not sure how to switch it off.

Hope you’re feeling better now x

Lostpotential · 13/05/2026 19:56

Sending love @Helplessandheartbroke you poor soul. It's just awful when OCD flares especially badly.
It'll ease again, hang on to that knowledge. If I'm going through an exceptionally hellish flare up, I say to myself 'this too shall pass'.
You're a wonderful mother, as evidenced by how consciousness you're being.
You take lots and lots of care x

hazelnutvanillalatte · 14/05/2026 11:31

If I'm going through an exceptionally hellish flare up, I say to myself 'this too shall pass'.

I do the same. Minute by minute - it's the only way sometimes when it's really bad. And think of it like a flare up of any other chronic condition - we should admire our strength in continually surviving this battle.

Lostpotential · 15/05/2026 07:01

hazelnutvanillalatte · 14/05/2026 11:31

If I'm going through an exceptionally hellish flare up, I say to myself 'this too shall pass'.

I do the same. Minute by minute - it's the only way sometimes when it's really bad. And think of it like a flare up of any other chronic condition - we should admire our strength in continually surviving this battle.

Thank you @hazelnutvanillalatte yes, most people we interact with probably have no idea how hard we're working all the time, just to be functional.
You're right that we should admire our strength. I used to think I was weak because I couldn't override my OCD, but now I know that expecting myself to just snap out of OCD would be like expecting someone with a chronic physical condition to snap out of their symptoms, which obviously I'd never do.
I have to remind myself (when pondering my lack of material achievement in life) that so much of my time & energy has been spent managing a very debilitating illness that I struggled with undiagnosed and not knowing what it was, for years. I've been working hard to try to overcome my OCD, and that's been much of my life's work so far. It's been such a handicap. We need to be so kind to ourselves.
Re flare-ups, I still haven't identified an exact cause for the weeks-long ones. For the shorter ones, it's usually something I'm being very perfectionist about, and it inevitably 'goes wrong' in the sense of something unplanned occuring.
I actually ended up having a really difficult OCD day yesterday. I lost my dad about 6 months ago, and yesterday was his birthday. He actually wasn't fussed about his birthday, so I was being daft placing so much emphasis on it, as every day is for honouring the memories of those we've lost. But I felt I wanted to do something tangible and have a reflective day and go to a restaurant he used to love for lunch. From the moment I woke, I felt everything had to be perfect. Of course, because I sought perfection, I was on high alert for perceived imperfection, and honestly ended up having a really hard day. Intrusive thoughts & words constantly. Constantly battling against them - saying nice words out loud to counter the ego dystonic intrusive words. Finding walking through doors and negotiating public transport extremely difficult. Having to re-trace my steps with the right thoughts. Then a couple of people said things to me (just jokes) that threw me into a spin. I strongly suspect I'm otherwise neurodivergent in addition to having OCD, as I can't cope with certain jokes. Even if I know they're jokes, the sequence of words can really distress me. Sarcasm and accusing people of the opposite thing to the reality, as a joke, really troubles me. Words have the most enormous power over me.
Eventually I had to go back and have a big shower and wash my hair, to wash all the words, thoughts and general stresses away. I'll wash the clothes I wore today.
My dad definitely would not have wanted me to be anxious in any way; and I think for all his future birthdays, and the anniversary of his passing, I need to do something quiet in solitude, so there'll be fewer external triggers.
Obviously yesterday was a different kind of flare-up. I have some that emerge from nowhere, last for weeks, and can leave me unable to do anything much at all. Hellish condition we live with 😔
But, this too shall pass 🙏

CactusFlr · 16/05/2026 16:28

I have contamination OCD, obsessive cleaner etc. I live with my parents (70s) who are retired, I don't work. Unexpectedly they received an inheritance and want to buy a house (we are in social housing). Every time a house comes up I find fault with it and I can't help it. I want it to be perfect for them and me but I think I'm selfishy thinking about my own needs over theirs. At the back of my mind I think I don't want to move even though we don't own this one and it's a pile of xxxx. This house is all I have ever known, I am scared about having 'someone else's house' their dust and dirt etc (even though the ones we have looked at are perfectly fine apart from dogs). The latest one that came up had a substation at the other side of the garden wall. The house was perfect and they didn't view it because of me stressing about radiation. It subsequently sold on its first viewing. I now feel terrible, we have been searching for two years and I keep finding fault with everything. I'm waiting for the perfect one and I don't know if that exists. I think about stupid things like how will I bring the shopping in, because the door and driveway etc will be different layout. Cleaning a different bathroom, using a different shower and bath. Having to rip up carpets because I don't want someone else's carpets. Even stuff like the view out of the window, I panic about not being able to see the same view. A new house will make such a difference to all of our lives and will make it easier (this garden is far too big and too much work etc). I just have this stumbling block. Sorry for rant.

Lostpotential · 08/06/2026 18:56

How is everyone? I've had an especially bad OCD day today. I don't know why. It felt like my brain was inflamed or something.
I had a lot to do, and it was one of those days when even walking from a to b was challenging, because of intrusive words and my having to go back and re-trace steps saying the right words aloud to counter the ego dystonic intrusive ones - hideous words & thoughts which are literally the opposite of the actual truth and what I think and believe in.
It's such a hideous & cruel illness. I felt like I was being tortured today. Awful.
I hope the rest of you have had a better day. It's days like today that reminds me why I've not had a successful career. During the better phases, when I'm working and functioning generally better, I can forget how horrific it can be. I have to do self-employed & temp work, as when my OCD is horrendous I can't function at all, and would have to keep taking time off if I had a permanent job.
I'm exhausted this evening. Maybe a film or something to distract from my broken brain...

Lizzbear · 08/06/2026 22:24

Lostpotential · 08/06/2026 18:56

How is everyone? I've had an especially bad OCD day today. I don't know why. It felt like my brain was inflamed or something.
I had a lot to do, and it was one of those days when even walking from a to b was challenging, because of intrusive words and my having to go back and re-trace steps saying the right words aloud to counter the ego dystonic intrusive ones - hideous words & thoughts which are literally the opposite of the actual truth and what I think and believe in.
It's such a hideous & cruel illness. I felt like I was being tortured today. Awful.
I hope the rest of you have had a better day. It's days like today that reminds me why I've not had a successful career. During the better phases, when I'm working and functioning generally better, I can forget how horrific it can be. I have to do self-employed & temp work, as when my OCD is horrendous I can't function at all, and would have to keep taking time off if I had a permanent job.
I'm exhausted this evening. Maybe a film or something to distract from my broken brain...

Sorry you had an awful day. Nothing much to advise, but sending solidarity to you.

Lostpotential · 09/06/2026 07:10

Thank you @Lizzbear ❤️

Lostpotential · 09/06/2026 20:48

Slightly less bad today.
I was thinking today though how much the OCD life is a kind of half life. So many of us went undiagnosed for years, even decades, due to not knowing where to turn, as well as due to shame (I had OCD from age 11, but didn't get formally diagnosed till I was 27, and have had various not hugely effective treatments since)
I'd imagine many thousands of people are secret sufferers who've never sought help, particularly older people whose generation didn't feel able to talk about mental illness.
The intrusive thoughts in many cases are so distressing that it's often hard to confide in anyone.
I would love to have experienced a life without OCD. It's stolen so much from me, and I know I'm not alone 😔

Lizzbear · 09/06/2026 21:52

Lostpotential · 09/06/2026 20:48

Slightly less bad today.
I was thinking today though how much the OCD life is a kind of half life. So many of us went undiagnosed for years, even decades, due to not knowing where to turn, as well as due to shame (I had OCD from age 11, but didn't get formally diagnosed till I was 27, and have had various not hugely effective treatments since)
I'd imagine many thousands of people are secret sufferers who've never sought help, particularly older people whose generation didn't feel able to talk about mental illness.
The intrusive thoughts in many cases are so distressing that it's often hard to confide in anyone.
I would love to have experienced a life without OCD. It's stolen so much from me, and I know I'm not alone 😔

This made me feel seen. It does help to chat with people who understand. I like this thread.
Im glad you’re doing a bit better today.

Lostpotential · 10/06/2026 06:32

Lizzbear · 09/06/2026 21:52

This made me feel seen. It does help to chat with people who understand. I like this thread.
Im glad you’re doing a bit better today.

Yes, it definitely helps to feel less alone. I'm so grateful for this thread. The kind of thread we can dip in and out of, even after a long gap. It's always here 🙏

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