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OCD Support Thread

88 replies

Helplessandheartbroke · 22/03/2026 17:31

A friendly thread for support for fellow ocd sufferers. No judgement here.

OP posts:
Lizzbear · 22/04/2026 09:37

Lostpotential · 22/04/2026 09:36

Thank you @Lizzbear . I'm so sorry you also suffer from this. It's so debilitating isn't it.
I started writing a long response to your post, then my tablet glitched and it disappeared! 🤦‍♀️
Busy morning, so I'll reply properly again later (trying to remember what I wrote before...) but just wanted to acknowledge your post in the interim. Take care.
PS, I love what you said about labelling your thoughts as 'it's OCD' and not your real thoughts. I sometimes say something similar out loud when the intrusive thoughts are really pervasive 'This is just OCD, they're not my real thoughts!' or similar. Though only in private, obviously not in public!
Anyway, I'll respond properly later...

Thanks lost potential

Slowdives · 22/04/2026 09:39

Lizzbear · 22/04/2026 07:43

Lostpotential
Sorry you have been affected by this horrible affliction. I wonder what causes it?
Do you take any medication and have you had therapy? I want to have Exposure response therapy but it’s hard to find a therapist who dies this. Just waiting for some NHS therapy.
Im finding it helpful to label my thoughts as “it’s OCD” not my real thoughts.

Hi @Lizzbear
If you are interested in ERP, there are some really good work books you can use yourself such as
“The ERP Workbook for OCD” by Gerard Bishop. It’s available on Amazon.
I did ERP in my late twenties but when I had a major depressive episode around when I had my dd, everything I’d learned pretty much went out the window. I used a self help workbook to get back on track and honestly, it had exactly everything I went through with the therapist.
It is obviously preferable to do ERP with a therapist but the thing is, it’s really hard to access that kind of therapy in the first place, but even harder to find one where you are actually able to link back in when you have a wobble or something else comes up. It’s not ideal but self help guides can really be nearly as effective as any therapy you’re likely to get.
The truth about ERP is, it ideally requires a LOT more support from the therapist than most therapists are able to provide, and some therapists that offer it are better than others.
In reality, you will probably get as much from going through a workbook yourself as you will from whatever therapy is available (unless you just so happen to get very lucky).

hazelnutvanillalatte · 22/04/2026 13:13

Hope all on this thread are doing ok.

A relative is currently extremely unwell, unable to go to work or get out of bed due to an OCD flare. I think there is not a lot of understanding of how severe this disorder can be sometimes.

Helplessandheartbroke · 23/04/2026 19:03

Hi all, sorry I've been offline for a couple of weeks. How is everyone? @Lostpotential happy to support whenever I can, I understand how bad things can get. Im sorry you've been through so much. How's things looking for you now? @hazelnutvanillalatte also sorry to read about your family member. I've only been this bad twice where I couldn't get out of bed. I had to snap myself out of it for ds and work but it helped. Hope they can find the strength soon. Sending solidarity ladies x

OP posts:
Lostpotential · 23/04/2026 21:32

Thank you so much @Helplessandheartbroke .
In terms of my OCD, it's definitely not as bad as it was when I started my thread last month. But, it's not at its best or most manageable either.
I got very upset about something this evening though, and was planning to vent on this thread anyway. I'm reminded again how isolated, secret and misunderstood OCD can be...
I'm currently visiting a friend in a different part of the country. The fact I managed to travel over here is proof in itself that my OCD is nowhere near its worst atm. I find all journeys difficult, because intrusive thoughts make me feel the journey has been 'polluted' and I get very stressed if I can't easily re-trace my steps or carry out necessary rituals. I've developed some strategies, and managed to get here.
Anyway, you probably remember from my thread that I lost my dad quite recently (a few months ago) and have been heavily grieving. Said friend (who is lovely) lost her dad a bit over 2 years ago, and has been struggling with her physical health, so, as she knew her DH was to be away a few days, she invited me to stay, so we could comfort eachother. Anyway, she's been diagnosed with probable Fibromyalgia. I don't fully understand what it is, and I've been researching online; but regardless, I'm very sympathetic, and told her I could help look after her. Well, I had a bad OCD trigger this evening, and I was seeking reassurance from her. She said lovely things at first. I felt guilty for asking for reassurance, so I tried to make a joke about 'my madness' and to explain it's due to a constant quest to be a goodie, and I get disproportionately upset if I think I've said the wrong thing. I think she might have misunderstood my meaning (not sure) but whatever the case, she momentarily got a bit irritated, and said 'I'm afraid I've got Fibromyalgia, so I'm far worse off than you with your madness' or something similar. I smiled and said nothing in response, but honestly was absolutely crushed. I would never try to compare suffering levels anyway. But, also, I realised she has no idea at all how utterly crippling OCD can be; or how crippling it's been for me over the years. That's not at all her fault, and obviously she's not alone.
But, I felt very ashamed at being a bit told off by her, and so misunderstood. Also hurt, as I've been really trying to understand her current struggles.
A few minutes later the subject of our dads and grief came up. I couldn't contain my emotions and started crying. She commented she'd never seen me cry before. Like many OCD sufferers, I've got so used to hiding thoughts & emotions that I rarely cry in front of others. I cry loads in private. She thought my tears were purely due to grief about my dad, which it certainly mostly was. But, it was also because she'd (totally unintentionally) really upset me, and exhaustion too. Soon after, I made an excuse to go upstairs to have an early night.
So, it reminded me again why I've not sought as much help as I should have, or not confided as much to friends.
I think most people probably just think I'm a bit unconventional and/or unfocused. But, don't know at all that it's been paralysing OCD (and trauma that triggered it) that's stopped me having the kind of life I wanted. I wish I could find someone to explain it all too, so I feel less alone with it. Thank goodness for this thread. Thank you for starting it ❤️
How are you doing?

Lostpotential · 23/04/2026 21:39

To add, I think the other reason I got so upset tonight was that I was tentatively trying to vaguely explain something of my daily struggle to said friend. It takes a lot to do that, as I'm so secretive about it. But, I got knocked down at the first hurdle. Obviously this particular friend, lovely as she is generally, isn't the right person for me to open up to. I think she's probably like many people in thinking that physical illness is much worse than mental illness. Many, maybe most, people don't understand how overwhelming mental illness can be. Especially OCD, which is often seen as just being neat & tidy. Which, as we know, it's nothing of the kind!
I think it's possibly one of the most misunderstood of all conditions.

Lizzbear · 23/04/2026 22:04

Slowdives · 22/04/2026 09:39

Hi @Lizzbear
If you are interested in ERP, there are some really good work books you can use yourself such as
“The ERP Workbook for OCD” by Gerard Bishop. It’s available on Amazon.
I did ERP in my late twenties but when I had a major depressive episode around when I had my dd, everything I’d learned pretty much went out the window. I used a self help workbook to get back on track and honestly, it had exactly everything I went through with the therapist.
It is obviously preferable to do ERP with a therapist but the thing is, it’s really hard to access that kind of therapy in the first place, but even harder to find one where you are actually able to link back in when you have a wobble or something else comes up. It’s not ideal but self help guides can really be nearly as effective as any therapy you’re likely to get.
The truth about ERP is, it ideally requires a LOT more support from the therapist than most therapists are able to provide, and some therapists that offer it are better than others.
In reality, you will probably get as much from going through a workbook yourself as you will from whatever therapy is available (unless you just so happen to get very lucky).

Thanks so much for posting all this helpful information. I think I will take a look at some of the online resources you have mentioned on ERP.

Lizzbear · 23/04/2026 22:08

Lostpotential · 23/04/2026 21:39

To add, I think the other reason I got so upset tonight was that I was tentatively trying to vaguely explain something of my daily struggle to said friend. It takes a lot to do that, as I'm so secretive about it. But, I got knocked down at the first hurdle. Obviously this particular friend, lovely as she is generally, isn't the right person for me to open up to. I think she's probably like many people in thinking that physical illness is much worse than mental illness. Many, maybe most, people don't understand how overwhelming mental illness can be. Especially OCD, which is often seen as just being neat & tidy. Which, as we know, it's nothing of the kind!
I think it's possibly one of the most misunderstood of all conditions.

I’m so sorry you felt lik this after trying to open-up to your good friend. I often feel really awful after confiding in someone who simply doesn’t understand how bad I feel mentally.
I see you xx

Lostpotential · 24/04/2026 06:15

Thank you @Lizzbear . Yes, I felt awful, silenced, ashamed etc. The thing is, the friend I'm staying with only sees me a couple of times a year at most, as we live in different parts of the country. So, she's never seen me at my worst. She's not seen the days I spend hours walking in and out of doors until I have the right thoughts. Not seen the multiple bars of soap I can get through on a bad patch. Above all can't bear witness to the inner turmoil, and hidden compulsions. I'm also good at hiding it. So, she really has no idea. But, I was very hurt, as I'd always just accept it if people told me they have a struggle, and I wouldn't dream of suggesting it's not as hard as my stuff, and so they shouldn't talk about it or whatever. Because, we never really know what other people are going through, and I hope I'd always be compassionate re other people's health. I'm especially hurt, as I'm grieving, and was so available to her when she was at this stage of grief. I couldn't sleep well last night for the upset of it all.
But, maybe if her Fibromyalgia symptoms are really bad she doesn't have the bandwidth to hear about my rubbish mental health? I won't mention it again the rest of my stay. I'll revert back to hiding it away and masking...
I'm so sorry I've still not responded properly to your message the other day. If it's OK, I might wait till my visit to my friend is over. I noticed some spelling & punctuation typos in my long message yesterday (said too instead of to - mortifying!) which is a sign I'm frazzled. I can give my reply to your post the attention it deserves once I'm back.

Thank you for acknowledging my difficult evening yesterday xx

Lizzbear · 24/04/2026 22:01

Lostpotential · 24/04/2026 06:15

Thank you @Lizzbear . Yes, I felt awful, silenced, ashamed etc. The thing is, the friend I'm staying with only sees me a couple of times a year at most, as we live in different parts of the country. So, she's never seen me at my worst. She's not seen the days I spend hours walking in and out of doors until I have the right thoughts. Not seen the multiple bars of soap I can get through on a bad patch. Above all can't bear witness to the inner turmoil, and hidden compulsions. I'm also good at hiding it. So, she really has no idea. But, I was very hurt, as I'd always just accept it if people told me they have a struggle, and I wouldn't dream of suggesting it's not as hard as my stuff, and so they shouldn't talk about it or whatever. Because, we never really know what other people are going through, and I hope I'd always be compassionate re other people's health. I'm especially hurt, as I'm grieving, and was so available to her when she was at this stage of grief. I couldn't sleep well last night for the upset of it all.
But, maybe if her Fibromyalgia symptoms are really bad she doesn't have the bandwidth to hear about my rubbish mental health? I won't mention it again the rest of my stay. I'll revert back to hiding it away and masking...
I'm so sorry I've still not responded properly to your message the other day. If it's OK, I might wait till my visit to my friend is over. I noticed some spelling & punctuation typos in my long message yesterday (said too instead of to - mortifying!) which is a sign I'm frazzled. I can give my reply to your post the attention it deserves once I'm back.

Thank you for acknowledging my difficult evening yesterday xx

thank you. Do try to enjoy the rest of your stay. I’ve had quite a few friends who I’ve confided in and most of them don’t understand. I’m going to stop confiding in them for a while and only talk about it with others who have empathy.
One friend was awful with me, over my feelings of hopelessness, said I made her feel bad. It’s almost as if people say you shouldn’t keep mental
hea problems to yourself, but when you tell people, hounding get the reassurance you crave. Which is part of my Ovid.
Try to have s good weekend with your friend x

Helplessandheartbroke · 04/05/2026 22:19

Hi all, sorry I've been quiet again. I was having a really bad time and stayed offline so a while. Im actually feeling a little more normal now although I've still been circling the block to check I've not ran over a cat or something several times.... sorry you had a bad experience with your friend. Im assuming 2 things, 1 she doesnt ger it and 2 shes torn up over her own recent diagnosis. Either way, I hope the rest of your stay went well @Lostpotential how are you @Lizzbear and everyone else? X

OP posts:
PurpleLovecats · 04/05/2026 22:24

had anyone overcome needing to go things in certain orders/numbers?
I am diagnosed OCD but not got a MH team anymore.
Im really struggling with the need to only do things in twos.,so a spoonful of coffee has to be done as two half spoons full. Two lots of washing powder. Two puffs of my inhaler etc. All fairly inocuous.

But then things that are a one need constant attention. Breaking tablets into two as that’s the only way the meet the criteria. Can only hang washing on the line in twos. If there is only one top, it cannot go on as there is not a second. It’s constant and frustrating. I cut my thumb on a tin so had to cut the other one to make it a pair. Any thoughts?

Lizzbear · 04/05/2026 22:26

Helplessandheartbroke · 04/05/2026 22:19

Hi all, sorry I've been quiet again. I was having a really bad time and stayed offline so a while. Im actually feeling a little more normal now although I've still been circling the block to check I've not ran over a cat or something several times.... sorry you had a bad experience with your friend. Im assuming 2 things, 1 she doesnt ger it and 2 shes torn up over her own recent diagnosis. Either way, I hope the rest of your stay went well @Lostpotential how are you @Lizzbear and everyone else? X

hello
Glad to hear you’re doing a bit better now. I’ve been very up and down but working on not immediately doing my reassurance-seeking. It’s a work in progress!
My mood has been low again so starting back on progesterone with oestrogen patches.
there is some evidence that micronised progesterone can help with ocd symptoms, but I’ll let you know!!!

Helplessandheartbroke · 04/05/2026 22:47

@PurpleLovecats no advice but offering a handhold as that sounds deliberating. Can you think like well if you broke your leg its only 1 broken leg and it would be worse if it was 2 broken legs? What coping mechanism have the MH team given you to try?

@Lizzbear I've done loads of reassurance seeking lately now think everyone must think im mad so then I feel worse! Yes please keep us posted on that how interesting x

OP posts:
PurpleLovecats · 04/05/2026 22:59

Helplessandheartbroke · 04/05/2026 22:47

@PurpleLovecats no advice but offering a handhold as that sounds deliberating. Can you think like well if you broke your leg its only 1 broken leg and it would be worse if it was 2 broken legs? What coping mechanism have the MH team given you to try?

@Lizzbear I've done loads of reassurance seeking lately now think everyone must think im mad so then I feel worse! Yes please keep us posted on that how interesting x

Ive had no support with OCD from the MH team.

Slowdives · 05/05/2026 15:57

Hi everyone,
Hope you’re all doing Ok.

I just want to say to @LostpotentialI’m so sorry you suffer like this but it actually made me feel a bit better in a weird way when I read your post. It was the part about walking through the same doorway for hours until you have the right thoughts. I know this feeling so well and the way you’ve described it…this blows my mind that somebody else understands this. I have never spoken to anyone who experiences this. It is truly hell on earth. But one of the worst things about it for me has been feeling so alone in it. It’s something that for years I didn’t think anyone could relate to. I still feel so ashamed of myself for getting caught up in these compulsions. I’ve felt like I’m some sort of freak and that I should be able to just stop.
I’ve had decades of meds, therapies etc Some of has helped but none of that has had such an effect as actually knowing I’m not the only one out there whose brain does this.
So thank you so much for sharing to LostPotential and everyone else x

Totallyalonenow · 05/05/2026 21:24

PurpleLovecats · 04/05/2026 22:24

had anyone overcome needing to go things in certain orders/numbers?
I am diagnosed OCD but not got a MH team anymore.
Im really struggling with the need to only do things in twos.,so a spoonful of coffee has to be done as two half spoons full. Two lots of washing powder. Two puffs of my inhaler etc. All fairly inocuous.

But then things that are a one need constant attention. Breaking tablets into two as that’s the only way the meet the criteria. Can only hang washing on the line in twos. If there is only one top, it cannot go on as there is not a second. It’s constant and frustrating. I cut my thumb on a tin so had to cut the other one to make it a pair. Any thoughts?

“I cut my thumb on a tin so had to cut the other one to make it a pair”

Seriously? That is incredible.

Slowdives · 05/05/2026 21:29

Totallyalonenow · 05/05/2026 21:24

“I cut my thumb on a tin so had to cut the other one to make it a pair”

Seriously? That is incredible.

Why is it incredible @Totallyalonenow?

Totallyalonenow · 05/05/2026 21:31

Slowdives · 05/05/2026 21:29

Why is it incredible @Totallyalonenow?

Because it shows how powerful the OCD must be to get her to deliberately injure herself.

Slowdives · 05/05/2026 21:34

Totallyalonenow · 05/05/2026 21:31

Because it shows how powerful the OCD must be to get her to deliberately injure herself.

Have you got OCD?

Totallyalonenow · 05/05/2026 21:40

Slowdives · 05/05/2026 21:34

Have you got OCD?

I pick my scalp for hours every day which I understand is a form of OCD. That’s the least of my worries though, MH-wise.

Slowdives · 05/05/2026 21:48

Totallyalonenow · 05/05/2026 21:40

I pick my scalp for hours every day which I understand is a form of OCD. That’s the least of my worries though, MH-wise.

That’s called dermatillomania.

What PurpleLoveCats described is not unusual for OCD, never mind an extreme example of OCD behaviour.

Totallyalonenow · 05/05/2026 21:52

Slowdives · 05/05/2026 21:48

That’s called dermatillomania.

What PurpleLoveCats described is not unusual for OCD, never mind an extreme example of OCD behaviour.

Yes, dermatillomania is a form of OCD, according to my psychiatrist anyway.

PurpleLovecats · 05/05/2026 21:52

Totallyalonenow · 05/05/2026 21:24

“I cut my thumb on a tin so had to cut the other one to make it a pair”

Seriously? That is incredible.

Yes. I can’t explain it, it felt unsafe that it had happened only once, I needed to make it add up to 2.

Honestly my brain is very strange.

Lizzbear · 05/05/2026 22:30

PurpleLovecats · 05/05/2026 21:52

Yes. I can’t explain it, it felt unsafe that it had happened only once, I needed to make it add up to 2.

Honestly my brain is very strange.

There’s no logic in OCD. We do whatever it is we need to do to calm our fears. It’s exhausting x