Anyone about?

[Lifeisshit25]

Àny advice please? Ive just summoned up the courage to phone the Samaritans, and got no answer several times. I have severe catastrophic tinnitus so debilitating I've been house bound for two years. No help from GP or any other so called health professional. Thought I'd try Samaritans as last resort and no answer to my calls. I'm going to do it Wednesday when my partner is at work, I can't cope any longer.

Hi I'm around. Do you want to talk to me?

@Lifeisshit25
I'm around.

I'm here as well 🙂

Thanks. I can't cope with the constant loud noise, had it for two years and can't even do basic things like get washed or wash my hair. its so loud I haven't been able to eat a meal for over two years. Just in bed most of the time, both me and my partner are at breaking point. Theres no help for this severe condition.

That sounds horrendous 😔.

Please make an appointment first thing and tell your Dr what you are planning. They must try harder for you.

Are you on antidepressants now?

I’m sure you’ve googled many times; I just have too and I saw that acupuncture has been helpful- is there any way you could access that to see?

Also B12 injections/supplements.

Keep talking on here. Please don’t give up.

GP is useless, my partner has been to see her literally dozens of times over the last few years and all she did was force me to take antidepressants. Im barely eating, just crisps and biscuits for two years yet Ive put weight on and now weigh eleven stone which is way more than I did when I was well. I used to be nice and slim but now have a horrid belly that makes me look pregnant. I can't think straight as the noise is so loud, it can be heard over everything including hairdryer which is very loud. I can't get out at all, only went in the garden the other day for the first time since last August.

I’m here, your not alone.

ive never experienced tinnitus so bad so can’t offer help with that, only support.

call your gp and insist on speaking to someone, tell them what you’ve told us xx

They already know this but can't do anything to help. I'd rather be in a wheelchair at least I'd have silence which is what I always needed (never could stand a lot of noise, how ironic)

I cannot imagine what you go through. It’s hardly surprising that you don’t feel like eating or going out.

But if you’re only eating crisps and biscuits, you won’t be getting the nutrients you need, and maybe that won’t help your blood pressure either. Can you add in a banana every day? There is some research which says the potassium can help.

Please go back to the Dr.

Are you taking the antidepressants?

I just want to die I can't cope with this constant extremely loud hissing and even louder revving engine, its absolute torture and I spend every day crying, all from having f*ing microsuction 😡never, ever have this done its lethal.

That's interesting re revving engine. This might sound crazy, but I've had this temporarily before and I tried putting a crystal under the back of my head lying down, and it changed the frequency of the noise to a lighter one

Have a Google of the drummer Rupert Brown. His story of tinnitus is inspiring. I have it too and went to a talk that Rupert did and it made me realise that mine was a walk in the park compared to his.

metro.co.uk/2020/02/21/tinnitus-debilitating-refuse-ruin-music-career-12235366/

https://youtube.com/shorts/IMcc6JvifAI?si=l8P53iWyHQMf8CdN

Please don't give up.

I have pulsatile tinnitus in my left ear. I don't think it's as bad as tinnitus, but annoying none the less.

Could you see someone privately?

Who would I see privately, no one can help, can't even get through to samaritans who were last resort, phone just kept ringing.

We're so sorry you're feeling this way.
We can see that you've already been given a lot of good advice and support from other Mumsnetters, but we just wanted to add some links to organisations which may be able to give you some help in real life too, at least with your feelings about your condition if not the condition itself.
First of all, here's a link to our Mental Health resources. There are many organisations listed which can provide you with some support.
You can also get help from a text service called Shout 85258. Its trained volunteers are available all hours of the day and night to listen and support you to get to a calmer and safe place. It's a free, confidential, anonymous service for anyone in the UK and it won’t appear on your phone bill.
And finally, here's a link to Mind's pages on Tips for everyday living and How to improve your mental wellbeing.
Sending good wishes, OP. We really hope you're okay.

I hope you have been able to get through to speak to someone today OP. I don't have any advice but I just wanted to tell you I'm thinking about you. My dad suffered with tinnitus, and I know it was very hard for him too. You have my sympathy. Please don't give up hope . Sending you the biggest hug x

Hi Op,

How are you feeling today?

It sounds awful and must be really frustrating for you. It says on the nhs website there’s a digital cbt course they suggest first- I would ask to be sent that if you haven’t tried it.

I think what the other poster meant is if you can afford it to go to private clinics.

I definitely think you need to have a balanced diet and not be living on biscuits and crisps. You will struggle to feel better mentally with a diet without any nutrients. If you find it hard to bother cooking could you look at doing batch cooking or a meal box like hello fresh so you can just follow recipe.

It's not my area of expertise but I know some of my colleagues have had success working with tinnitus. Happy to DM you details if you wish.

Have you heard of this?

https://www.thetinnitusclinic.co.uk/tinnitus-treatment/tinnitus-retraining-therapy?gad_source=1&gbraid=0AAAAAD8zgIhlizzwZj7lKdCHrIOU0Cj2T&gclid=Cj0KCQjw7ZO0BhDYARIsAFttkCiQoyrRAC--jAPIkNjJktmblLnXYGUfmyQkQD2Dh3xhbMH6KZDPmMAaAiS6EALw_wcB

gentle love, I know how hard it is being stuck inside your head x

I'm so sorry you experience this OP. It sounds awful. How are you today? Please don't give up. I hope having a chat with mumsnetters will help. I agree with the others, having a more balanced diet might help. Sending lots of hugs!

Hi. I had mild tinnitus however after catching covid and flying mine can be heard over everything. It's been 2 months now. Shopping mall, shower,car. And I have several sounds, different music melodies playing in each ear and it competes with external sounds so it distorts normal sounds like the hum of a fridge sounds like jet engines. So yes I have noise sensitivity as well. I can't go to restaurants as its to loud etc . GP has been awful. The only thing that helped me is learning that this is not harmful. It won't damage me. And slowly I am getting out in nature, taking my little one to the park. I have to carry on and look after myself and one day I hope to get use to this or even hope that it subsides. I have to live with hope. Tinnitues feeds on stress and the more you stay in bed the worse it will get.

You clearly are depressed and understandably but slowly slowly you need to pick yourself up and start living again. Get outside even if it's for 5 mins a day. If I can do it with my God awful symptoms then you can to. Yes I was broken when it started but I have to get on. I have responsibility for my child.

“If I can do it with my God awful symptoms then you can to”

Sorry but this is incredibly cruel and thoughtless. How can you possibly compare what two people are enduring.

OP, I hope you are still here, Please don’t give up. How are you feeling today?

In a really bad way, having daily meltdowns and trying to think of a way to end things. The noise is absolutely horrendous, I've begged my partner to put a pillow over my head numerous times, live near a river and railway line or do I just run out into the road in front of a lorry? The noise is so loud I can't cope and been hitting my head numerous times, can't stop crying, can't eat anything now, if I had a gun I'd have used it a long time ago. Feel so ill, can't carry on with this it's horrific.

I’m so sorry you are suffering so much@Lifeisshit25, I can feel your complete despair.
I don’t know what to suggest but don’t give up hope. Have you looked into the Tinnitus retraining therapy that a previous poster mentioned? You may not be able to stop the noise but it might help you change your reaction to it?

No I've tried to get help for two years and there's nothing. It's louder now and I can't cope with it. I just want to die it's totally unbearable. I'm being driven mad by it, I've always been someone who craved peace and quiet and I haven't had any for over two years now it's absolute torture.