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Anyone else with Borderline Personality Disorder?

87 replies

ThatHippyDippyShit · 07/10/2017 18:47

I got diagnosed two years ago now. I also have depression & general anxiety. I've learnt to be more in control of my illnesses but it is still a struggle to stay on top of things some days.

How is everyone else coping?

OP posts:
tehmina23 · 09/10/2017 21:05

I was diagnosed with 'traits of BPD'.

I take venlafaxine for Recurrent Depressive Disorder & an anti psychotic Aripiprazole for Psychosis.

I would like to dispute the BPD diagnosis, seeing my Psychiatrist on Friday so I will ask him about it.
I suppose I do have emotional issues but I don't think I fit many of the other symptoms? Will see what he says.

RandomMess · 09/10/2017 21:35

Perhaps because you're not a full fit that is why you have a diagnosis of "traits of BPD"? I think it may be useful as professionals will be more sensitive to your sensitivities IYSWIM

bellaboo82 · 09/10/2017 23:12

Hey,
So I'm a year into my diagnosis - suffered a complete nervous breakdown last year and spent 2 months at a mental health hospital doing DBT. It was such a good course but it's condensed down to 18 weeks where I was, when psychologist Marsha Lineham, the DBT & BPD queen, really prefers 24 weeks.
I think I raced to get myself "better", returning to work after 8 weeks and trying to salvage my relationship only for me to have another breakdown 3 weeks ago.
I'm now being re-assessed to see what treatment the psychs feel best next. I've been put on fluoxetine too now which I had previously declined medication in the hope to "reset" my brain myself, but I noticed I was really struggling in the lead up to my second breakdown and so they lead psych now in charge of me agreed to trying me on meds.
Please everyone, be kind to yourself, there is a massive stigma attached to this but we are all really loving and caring people who just feel our emotions like third degree burn victims.
For anyone struggling to "understand" your condition, get them to read "Loving someone with BPD".
There is a great website called "The Mighty" and lots of great blogs out there which help me.

Please feel free to contact me too - it can suck sometimes battling with these feelings!

ThatHippyDippyShit · 12/10/2017 20:53

Thank you all for sharing your experiences. FlowersFlowers It's not been a good couple of days for me, but your responses remind me that I am not alone.

OP posts:
fantasmasgoria1 · 16/10/2017 17:39

I have it. Just restarted meds. Diagnosed a couple of years ago but been suffering with it for 20 years untreated. It never leaves me.

6catsandcounting · 16/10/2017 19:23

Me too 2.5 yrs after diagnosis plus dysthemia and MDD.
Cannot believe the postcode lottery for mental health services or the way some supposed 'caring profession' doctors behave to us. I am labelled with the attention seeking tag so just get booted out whenever I ask for help in some places. Others are kinder but still struggle to offer much - because I am 'high functioning' (i.e. I manage to hold down a job most of the time) I don't fit the DBT groups but CMHT have nothing to offer and psychological therapies won't touch me due to the risk. I've been with the crisis team for 3.5 months since my last attempt which is pretty good for a short term (2 weeks average) service but they cannot get anyone else to take me on Sad
I am on fluoxetine for the depression and it definitely does something to keep my mood up a bit just not enough for me to feel any hope or happiness. Hate the dark evenings too, so gloomy atm
Teenage ds is staying with me or I think I would have been worse this last few weeks.

fantasmasgoria1 · 16/10/2017 19:46

Took many ods self harm, ed etc to get the help from specialist services. It’s really difficult to get anywhere. The gp told me for years I had depression which is part of it but something happened and I was given the diagnosis. The name alone makes people think that your personality is defective etc I was in hospital following an od. The hca on the ward offered everyone tea and biscuits in the evening and just gave me a dirty look. I was really upset and the following day I told a nurse who was horrified, she promised to ensure that he was spoken to about his attitude!

fantasmasgoria1 · 16/10/2017 19:53

I reread my post, I didn’t mean I took od in order to get help ! Just many years of this and self harm before I was noticed I guess! Someone said to me it’s ridiculous people self harm etc and I said that do you think people do it for fun?! Consider the amount of pain a person must be in for them to do it!

Comps83 · 20/10/2017 18:15

Really shit day today . Not sure ADs might be making me worse

RandomMess · 21/10/2017 08:24

How long have you been on ads @Comps83 ?

They often can make you feel worse for several weeks at the beginning. Or it can be they are making you worse or it could be that you are worsening despite the ads.

Confused sorry not sure if that is of any help at all. I never took one that actually helped; not surprising seeing as though I have PTSD and BPD. The psychiatrist gave me mood stabilisers which did that but I was such a zombie my DH asked me to stop taking them.

JustAnotherPoster00 · 21/10/2017 08:38

The psychiatrist gave me mood stabilisers which did that but I was such a zombie my DH asked me to stop taking them.

Would he have asked you to stop taking insulin if you were a diabetic?

RandomMess · 21/10/2017 11:45

Actually he said he'd rather cope with my mood swings than see me like that. They didn't make me less depressed or suicidal just made me numb and completely lifeless.

I didn't want to take them anymore, we were pretty much estranged at the time but even he had noticed something was very "wrong" that was how bad they were for me. I no longer interacted with the DC etc.

So it was far too simplistic of me to have written that. Yes they stabilised my mood but at such a down/depressed state they were not good for me. Probably the closest I got to going through with my suicide plan because I no longer cared enough my DC to keep myself alive.

Comps83 · 21/10/2017 13:17

It's been 6 weeks now. It's hard to tell if they're making me worse, or nothing changed and I'd have had these rages/low suicidal moods anyway.

RandomMess · 21/10/2017 13:26

6 weeks is a good go. Time to go back to GP?

Personally if they're not helping you feel better than perhaps you need either a much higher dose or they just don't work for you.

I do wonder if ADs actually help treat those with BPD because it's probably not a chemical imbalance of seratonin (?) causing the problem?

RedWineLush · 21/10/2017 13:54

It is quite reassuring to read this. I had a traumatic childhood, attachment issues, eating problems, then started self-harming in my early teens. Lots of psychiatric involvement for many years, hospital stays, suicide attempts etc. Stabilised in my twenties but self-medicated with cannabis.

I was diagnosed with BPD in my late teens.

I was then well for many years and settled, married, kids etc. Clean living. Really then struggled with kids - PND and horrendous mood swings, feel like a shit parent, lots of guilt. Put lots of pressure on myself to be a good mum. I am quite an attachment parent and had two non sleepers so was also v sleep deprived. Went on anti-ds for anxiety/depression, still on them now. However, it seems the only way I can manage and not be horrid, shouty mum, is by taking stuff - kalms, nytol, cocoodamol, diazepam if I can get it - stuff like that, etc. I am constantly trying to rebalance myself and I don't know any other way. If I do that, I am calm, cuddly, laid back attachment mummy. I also can work very hard and productively and be a good and supportive friend and partner.

But I am secretly taking loads of things.

If I don't take them, I am having loads of mood swings, shouty, stressy, tearful and just a nightmare to be around. I don't sleep, don't relax and I'm a crap parent and partner. And I think that my partner would understandably leave me.

I've tried loads of other things - therapy (also obtained a traumatic PSDS diagnosis), yoga, keep fit, acupuncture, walking, clean eating, yadda yadda. Sometimes it will help and I can be calm and stable for a couple of weeks but it never lasts.

I feel guilty and like a bad person but I don't know how to manage differently.

Strangely, I compare to lots of people that I know that have various physical health things - ME, migraines, regular flus and so on. And they take meds, stay in bed and rest. I never get physically ill. Like never! I get a bit jealous of my partner who probably has about 20 'ill' days a year where she'll get to rest and recuperate. Silly really. But is it different or is it just stress/tiredness and so on manifesting itself differently (and in a more socially acceptable way).

Am I a really bad person to take these various meds to try and manage and control my mental health? To give some more context, I'm a loving and committed parent and partner, work full time in a challenging job that I am good at which includes lots of evening working, I manage all of the usual household stuff, budgeting etc. I catch up with friends, support people, go to the gym, take the kids out regularly and have a really nice life. But I cannot manage or sustain a life like that without the medication. I don't take it all the time. So I can spend the day without it but knowing that it a reward at the end of the day.

Gosh, this has been a big rant and I may regret posting. Sorry to take over thread with my self-indulgent ramblings!

Cmblue · 23/10/2017 11:14

Hi I need to butt im sorry, iv just been diagnosed with PTSD BPD this morning had depression and GAD for 7 years iv always known something wasn't right. I just need some advice, literally any... I'm having EMDR therapy, cut out the drink and other illegal substances and had a breakdown last October which resulted in me losing my job!

RandomMess · 23/10/2017 12:14

@Cmblue your welcome, Flowers that you have the condition too. Sounds positive that you are receiving the recommended treatment!

Cmblue · 23/10/2017 12:31

What treatment? Books? Techniques do you use random ? Or things you've found helped, he told him its something I have to live with but apparently it mellows with age and makes me less boring then others, that made me laugh 😁

appella · 23/10/2017 12:49

I was diagnosed early last year. DBT and meds later I'm much better - currently coming off meds. Still get very emotional about change and transition though

Cmblue · 23/10/2017 12:56

Did you get DBT on the NHS?? What medication are you taking if you don't mind me asking??

RandomMess · 23/10/2017 13:08

I was referring to your EMDR therapy!

What treatment do I get - none currently!! I have psychotherapy in the past however I was told I had depression despite being diagnosed with BPD... There is only short term CBT available where I live, 6 weeks that may be pushed to a utter max of 20 weeks.

Currently waiting to start the push to referred back to the MH team for assessment to see if I can even get that. Got discharged as my then therapist had to take sudden medical retirement so I automatically got discharged despite my treatment being "not finished & incomplete" and had been promised a minimum of 2 years individual therapy

Drugs have never helped me tbh.

Cmblue · 23/10/2017 13:31

Aw sorry random I was talking to appella with regard to DBT and meds.
Random do you find BPD interferes with your life daily?? Do you have any dos and don'ts with BPD??
I'm really sorry to bombard with all these intrusive questions it's just this time last year my panic attacks started again and from there iv been referred to a mental health unit with pyscosis, lost my job, can't go into a supermarket on my own because of anxiety, dropped into deep depression and have had this diagnose, if I'm being frank I'm feeling a bit scared and vulnerable, I'm a single parent, I have responsibilities, whilst I embrace my weirdness it also comes with some awful traits doesn't it!

SarahH12 · 23/10/2017 13:35

I was diagnosed last year, I think it in around November time. I already thought I had it but I was a bit surprised when the psychiatrist started asking me all these questions and then diagnosed me without me even bringing it up.

I've also got a diagnosis of depression, anxiety and other physical health issues too.

Since being diagnosed I've only told a handful of people; DP, one of my childhood friends (Well ex friend, she no longer speaks to me) and one other person who's a friend from church. It's not really something you tell people is it. I always feel like people will be quick to judge if I mention it. Truth is though I really struggle to hold it together most days.

RandomMess · 23/10/2017 14:00

Not sure I can help at all Sad

It's best when I am controlling my environment or more I fall completely apart into paranoia etc. when things around me aren't good. So working it pants because I have to interact with people who aren't "kind" or at bullying. The DC are a challenge because how happy they are heavily influences me.

I find it's like dominos what is a small wobble or bad day for most people can quickly explode into full on meltdown, not sleeping, barely holding it together.

At the moment I'm coping by disassociating myself from everyone, if I can't feel then I can't collapse...

Sorry I can't offer constructive advice!

Cmblue · 23/10/2017 15:58

No actually you have helped... What you described is EXACTLY me, at the moment iv even taken the sim out of my phone so I don't have to talk to anyone!! And fuck me I can explode, Ye the sleeping thing is annoying I tend to be most productive at 5am but by 11am I'm done, I'm ready to lie in a dark room in bed for the rest of the day if I could

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