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Anyone else having home based care from crisis team?

50 replies

imnotmenow · 16/06/2017 16:34

I was given the option of going into hospital or having them come to me. Has anyone else ever received this type of care? I didn't even realise they did this. The doctor was speaking on the phone while he was here and said "yes she's red, no no she's on red" then gave my name. What does 'red' mean??

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wfrances · 16/06/2017 16:55

i have , they came for an hour each day and phoned once a day.
2 women just asking a load of questions and random chit chat ,trying to gage my mood from my responses i guess.
i found it intrusive but bearable ,more bearable than going into hospital.
i was at the tail end of my crisis so they only came 2 days and phone calls for 3 days.
no idea what red means though, i was sent out of the room whilst psychiatrist was talking to the crisis team so don't know what was said.

imnotmenow · 16/06/2017 17:05

I just feel they keep telling me it's going to get better but I can't see how it will.

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NolongerAnxiousCarer · 16/06/2017 19:42

DH had them visit at home once or twice a day for about a month. He found it preferable to being in hospital as he found some of the other patients difficult to be arround.

Theresnonamesleft · 16/06/2017 20:06

Because I don't like my personal space invaded, I requested that I went to them. I completely flipped out at the thought of anyone coming here. I know it's irrational. But this is my sanctuary where I can just be.
I go every day, they also call me.
I had to cancel today's visit and to ensure that I am ok they contacted my nok plus had 2 calls from them today.

I'm not sure what red is.

imnotmenow · 16/06/2017 20:37

I've not got my kids at the moment they are staying with family. I feel so alone even though everyone says they are here for me. I've been and stood next to a bridge for 10 minutes and I wasn't sure why. I just want to feel better. I was given zopiclone but it didn't help so they increased it for tonight I hope it works and I get some sleep

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MrsJayy · 16/06/2017 20:42

Can you phone somebody to sit at home with you do you have a partner around? A relative of mine had home care she preferred it maybe it isn't for you can you call your psyc team?

imnotmenow · 16/06/2017 21:00

No one really. The nurse is coming tommorrow to take bloods and do ecg I'm not sure why though

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Theresnonamesleft · 16/06/2017 22:16

You can phone crisis at any time. They should have given you the number for this.

An alternative is in some parts of the country there are houses/centres that are set up more like a home than a hospital and you can take children in with you.

Obviously this depends on the area and your own mh but it might be something to look into.

When the mh team mentioned admission to me, they mentioned this set up instead of
hospital.

dangermouseisace · 17/06/2017 10:06

I've been in hospital and I've had crisis team.

Hospital is useful for keeping you contained within their 4 walls, fed, and on drugs. It can be a bit scary though and the staff are usually very busy. Sometimes it's helpful to meet other people in the same circs as you though, although there will be others with very different issues, and many people there against their will.

Crisis are more helpful if you are willing to engage with them- they actually have people you can speak to. Last time I avoided hospital by actually using the crisis team properly i.e. phoning them when things were really hard. You can do that any time of the day or night. Sometimes it's just helpful to chat to someone….about anything that takes your mind off negative stuff.

I don't know what 'red' is. It depends on the way they do things. Could be a particular team, area, referral stage etc.

They do bloods and ECG as standard. Can't remember why- someone explained it to me once and I know that my funny heart rate that they found was mentioned in my notes. I suppose some physical problems can have similar symptoms to mental and they have to rule out physical reasons? And maybe some drugs are contra indicated by physical stuff. E.g. don't give beta blockers to someone with a really slow pulse Grin

Might be an idea to perhaps try a home visit. It's not like they invade your house. They don't have uniforms, no one would know that it's not a friend popping around. They won't go roaming all over the place. Usually they come in, sit on the sofa and have a chat, go away again. Or help with some tidying up etc.

erinaceus · 17/06/2017 20:07

I don't know what "red" means. You could ask the psychiatrist or someone from the crisis team to explain it to you? I do not find the crisis team helpful, but some people do. The ward is pretty dire but if you are at the "going and standing next to a bridge" stage it might be worth considering going in for a bit.

Did you tell the crisis team that you went and stood next to a bridge for a bit? This is the sort of thing that you can tell them if you feel able to.

I remember being in crisis and people telling me that it would get better and my not being able to see how. It did, though. I am not sure if knowing that helps you.

imnotmenow · 17/06/2017 20:21

Erin it does help when people say it gets better but still doesn't make me believe it. I have this selfish theory that no one has ever felt the way I do.....

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shinynewusername · 17/06/2017 20:28

The ECG is a routine thing as some MH drugs can slightly alter the way the heart beats. NB: it's not a problem or unsafe at all, as long as you don't have other heart problems. The ECG is to check out your heart.

Hope you feel much better soon Flowers

erinaceus · 17/06/2017 20:30

It's a theory. I don't see it as selfish. No-one has ever felt exactly the way you do but that does not really matter. Enough people have felt similar enough and gone on to feel less bad, which is I suppose one of the reasons that people say that it gets better - perhaps it got better for them, or they have seen it get better for other people. It can happen but it's rough whilst you're in crisis. I do not enjoy being in crisis. Things are better now but it was touch and go for a while.

I find the Samaritans helpful - I never really managed to make much use of the crisis team. You do have the choice though, whether they come to you or you go to them. I have done both and I think on balance I preferred to go to them, but if I can avoid another crisis then that would be preferable. I did not like the ward - it made some things worse - but I did survive the whole thing.

UnbornMortificado · 17/06/2017 20:33

Would you be better in hospital?

I've done both and I preferred hospital, I found having people around me with similar problems made me feel less alone.

On the downside like a PP said there can be very ill people in hospital and that can be upsetting to see.

imnotmenow · 17/06/2017 23:10

I'm undecided as to wether to go in or not. The kids aren't with me at the moment and have been told I'm just getting some support and not feeling too well at the moment. I'm just scared of going in and not coming back out.

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emesis · 17/06/2017 23:17

From what you describe, I don't think that's a concern OP. I think they'll help rebalance what's gotten unbalanced and work with you to get back on track so you can go home asap.

You poor thing. It is awful to feel detached and hopeless, and not see any end in sight to the despair. Nobody can ever know exactly what you're going through because it's your own unique pain. There is light if you feel able to accept the help though.

imnotmenow · 17/06/2017 23:51

I think because I don't know what to expect if I do go in it all I want is for them to sedate me for weeks on end and hopefully wake up feeling better. I feel trapped in life because I feel I'm only existing for my kids and I know that should be enough but why doesn't it feel like it it's not normal

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imnotmenow · 18/06/2017 00:23

I've been given 4 x 7.5 mg zopiclone but tempted to take them all at the same time just to sleep deeper and longer

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Lanaa · 18/06/2017 00:27

Op love please don't do that. If you're finding sleep difficult, please keep talking on here.

emesis · 18/06/2017 00:48

Don't do that OP. You are loved and needed, and things will get better.

Please if you feel drawn to harm yourself call someone now.

PurpleDaisies · 18/06/2017 00:51

I agree, if you think you'll take all your tablets, please get in touch with someone. The Samaritans, gp ooh, a and e or even a friend.

Ceebs85 · 18/06/2017 01:09

Senior crisis team worker here.

Most home based treatment teams have a traffic light system. Most people will start on red and progress to amber then green sort of means ready or close to being ready for transfer/discharge. It normally translates also to the amount of contact they'd have with you. Red would be daily visits and as you feel stronger they might switch to skipping a day (but would probably support you to make a plan for coping with that day) then you'd probably be amber.

The system is more for their benefit than yours so they can look at their workload and make sure they're staffed accordingly and are able to fulfil all the visits they need to so please don't fret about it.

Ceebs85 · 18/06/2017 01:10

Also...don't take all that zopiclone. Please. Ring one of the crisis numbers they've given rather than try to knock yourself out x

erinaceus · 18/06/2017 06:02

Taking all four of your zopiclone tablets at once is unlikely to have the effect that you desire. Pharmacologically, medication does not quite work like that. Take the medication as prescribed and see if that helps you to sleep. If it does not, talk to your treatment team. One of the things about hospitals is that they are not restful environments - they are typically noisy and somewhat chaotic. If you will feel safer there it is worth trying, but if you can find a way to stay safe at home that might be more therapeutic.

Flowers
imnotmenow · 18/06/2017 07:42

I took the 1 and got some sleep I'm just feeling desperate and now I've woken up to face another day in this hell.

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