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Mental health

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Suspected/Diagnosed/Struggles similar to ADHD support thread.

63 replies

BertieBotts · 28/01/2015 21:46

Inspired tonight by this quote I read on an ADD support group on Facebook:

Take the metaphor of an elephant in the room; in this case, the elephant stumbles into the living room and dies. Someone tells me to get it out of there. This, that and the other thing get in the way and I don't deal with it immediately. A few days go by and climbing over it becomes routine. Two weeks go by and it's really starting to stink up the place and other people in my life are complaining, why haven't we dealt with it? I said I would, why is it still here? I am realizing that I've forgotten it. Truly forgotten it. There's no saying that, no one is going to believe my air head has vaporized this task.

Yep. And eww. But yep.

Some links. Feel free to add more, these are just some I found useful/thought may be relevant.

Women, Girls and Mothers with ADHD

When your kids have ADHD too

UK ADHD Partnership

AADD - Adults with ADHD

ADHD Quiz

Why Procrastinators Procrastinate (The "How To Beat It" in part 2 is less helpful for repeated everyday tasks)

This tells you a bit about the different types

I, er... got distracted while writing this and can't remember what I was going to finish with, so I suppose I will leave this open ended. Discuss! Experiences, questions, support, interesting or helpful links, whatever you think is relevant.

OP posts:
Dimplesandall · 01/02/2015 09:37

Grateful, not knocking it either, glad it worked for your son.
Bertie, yes, that's what i meant. Having been there with dc1, seeing sceptical faces, even from close family, not going to rush to get anything official for myself. Especially as i don't feel medication would work for me either. Would that it could. Someone further down mentioned fish oil and magnesium, which i have taken before, poss helped. Then forgot about...

unlucky83 · 01/02/2015 09:42

I'd love to try the medication and see how I got on with it....if nothing else it would be interesting.
I'd also like to try and see how I got on without caffeine and nicotine -when I have given up smoking in the past (cold turkey) I have ended up panic stricken and crying (coffee withdrawal gives me a thumping headache at first have never got past that) for both I think I need to be on a desert island for a few weeks, on my own nothing to do...not going to happen.
DD1 is almost 14 - I have put this off for years (apparently in girls it presents differently - she has never really caused trouble in the class room) but failing to concentrate and underachievement has been an overriding factor throughout her school life - she is actually very clever). She can be very loud and lively - has been described as 'wild' by a friend's mum and 'the mad brownie' by the guide leaders...I got the opinion of another of her friend's mum - a teacher - before I finally went ahead seeking assessment on just how 'hyper' she can be and whether she (having seen lots of children) thought that was 'normal'.
DD was reluctant to get assessed - I tell her it isn't anything 'wrong' with her - we live a really artificial life. Human's weren't designed to sit and concentrate for hours on end or work 9 till 5 or any number of things we are expected to do...especially school life - maybe she just isn't as well adapted to it as others. For her (if she has ADHD) doing somethings (eg a school project) might be like trying to walk up a hill with her legs tied together whilst others are free to take great strides. It is a lot harder for her - but maybe with a diagnosis - using strategies (not keen on the idea of medication for her) we might be able to make it easier - at least loosen her legs a little - if not completely free them.

Ouchbloodyouch · 07/02/2015 07:37

Hello all just checking in. I was diagnosed last year by the Mental Health Team. I have (I think ) concerta xl in my medicine cabinet
I was prescribed a treatment but tbh I got quite put off by the psychiatrist saying I would need heart and liver tests after a month. After years of knowing something was wrong I finally have meds I am too scared to take. Confused
Things that have helped me are getting a housekeepery type cleaner once a fortnight who doesn't question why I have left a bucket of cleaning equipment in the middle of my lounge for a week. He motivates me and gets the house to an acceptable level Blush alongside me.
Scary mail. If I know I have overdue bills or I am likely to find something unpleasant in the mail (i had a hand delivered note from a debt collection agency) I get a good friend to open them for me.

BertieBotts · 09/02/2015 08:45

I'd like to ask a question for anybody who has tried medication in the past.

I see it often, and have seen in past threads like these that a lot of people identify with this, that people refer to habits as becoming "as natural as brushing your teeth every day!" The issue being that I struggle to keep up even those basic kinds of habits. I have to actively think about when to shower before I start to smell, often skip eating until I am starving, etc. Regularly forget to brush teeth/hair and wear deodorant, to the point I carry spare deo, hair brush and chewing gum in my bag.

I was wondering if medication helps habits like this become more natural or easier to keep up?

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unlucky83 · 13/02/2015 15:36

DD was assessed today - she has ADHD...
She seems fine with it, I don't know how I feel - strangely sad I guess...
My mother has thrown a tantrum...I've ruined DD's life, labelled as a mental case for ever, how stupid am I, why did I have to meddle ....she put the phone down on me just as I was about to hang up SadSadSad
I am worried that with a label she will have problems - but then at least she knows she isn't just crap...it is harder for her...
I just don't know how I feel...

BertieBotts · 13/02/2015 16:17

Oh no unlucky don't feel bad :(

I have been reading a lot over the past few days - I can definitely recommend "So I'm not Crazy, Stupid or Lazy" which you can buy at the usual places or download as a PDF here: inyer.org/downloads/You_Mean_Im_Not_Crazy.pdf

(Some pages are upside down. Annoying to read on a phone!)

Also my friend, who I saw today, has lent me the ADHD for Adults Workbook. Anyway, a lot of these texts talk about grief when finding out about ADHD, and that we have to process it very similarly almost to grief over death or loss of anything. It's not a loss as such but just a change. But those same seven stages of grief happen - Shock (fairly self explanatory), Denial (it's not that big a deal, it won't affect me, it doesn't matter at all, maybe I don't really have it and am a big fraud), Anger (at all of the past things which you have lost out on due to ADHD, at people not understanding or not believing, why me, why did I have to have this, why didn't I know about it earlier, etc), Bargaining (If I can just find the right medication I will be fixed, if I can just do the therapy I will be fixed) Depression (Realising this is something which is going to be around forever and can only be worked with but not fully "cured", hopelessness, fear of the future) and finally Acceptance (and beginning to manage it effectively, hopefully!)

Not necessarily in that order. TBH, I feel as though I have been through all of those stages at various times, even before giving it a "name" and am now at the last one, but it's possible I'm still actually in the Bargaining stage or it might start all over again given a real diagnosis. Gah. I hope I don't get depressed again. I suppose it's possible, though. I suspect that the grief model isn't relevant only for people who have ADHD themselves but also parents of a child with ADHD or any other additional need.

Another thing we talked about was about telling people. She spoke of a need to go out and shout it to the world, as though to say "Hey! It wasn't my fault all long! Look!" and even met up with old teachers, etc, but found that a lot of people either don't care, don't believe it exists or think it's a bit of an excuse or want to downplay it and see it as a negative. For your mother, there might be a generation issue as well, where a "label" might have carried stigma. Today it's not so much the case, and is just a useful shorthand to allow access to support. Remember, she won't have to tell anybody she doesn't want to, and it might not be necessary to mention it to most people at all. (My friend's mum immediately launched into "Oh don't be silly, of course you don't have that" as though it was something like an imaginary kind of cancer and she wanted to make it go away just by saying so. She did later come to terms with it and accept it, so give her time.)

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unlucky83 · 13/02/2015 23:17

Thanks - feeling slightly better now - my mum has actually apologised and listened to my reasons -
I know my sister was speechless when I told her - had been convinced they were going to say she didn't have it...so guess it was a big shock for my mum too...I think they thought I was exaggerating or something...(they live a long way away so don't see her all the time)
I'll read the link tomorrow -still processing it all ...but actually it makes me feel less like a crap parent...I've always thought she was hard work - and now I feel like it is not just because I'm a useless parent...

BertieBotts · 14/02/2015 10:14

The link is a whole PDF of a book, so I doubt you'll be able to read it all at once anyway. Just if you're too stingy like me to buy the book. It's good though (if dated, lots of reference to fax machines) and I'm considering buying a copy so I can write notes in it. Electronic copies aren't quite the same for that.

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unlucky83 · 14/02/2015 10:45

Ahhh just looked.. It does look interesting though ...
They gave me some leaflets and I was reading them and relating so much. ....
Also interesting what your friend said ...about telling everyone - found out from another parent that my DD has messaged her main friends (10) to tell them ..(they are asking their parents questions) . kind of hoping she doesn't tell the mean kids (she has been bullied) ...but then she is a tough character so should be fine - they are horrible anyway don't think this will make much difference.....

BertieBotts · 14/02/2015 11:14

In some ways it's probably a good age - she'll gauge what people's reactions are. If they aren't what she expected, she'll get a whole other chance to choose whether she "comes out" or not when she starts secondary next year. My feeling is I'm going to mention it to people if/when I need to explain something, but other than that, I'm not going to shout it around.

I remember my friend telling me about a time in primary school where they had a sort of "show and tell" and had to talk about something to the class. She spoke about living with autism because her sister is severely autistic. But she said she didn't really know what it was Grin and so her talk was a bit "Autism is..... the thing my sister has...?"

ADHD is a fairly "hidden" thing as SEN go, I reckon, so it ought to be easy enough to "pass" if she chooses. But equally, times are changing and it probably won't bother most kids of her generation.

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unlucky83 · 14/02/2015 11:41

She's 14 - third year at secondary - ahhh I get it - she's told 10 friends all in one go ...not she is 10 ...
But they are good friends (they are all the odd balls to an extent - not the geeks or cool kids)... they should be fine....
Telling others is up to her - but she might have to go to support for learning - which I know she doesn't want to - so others might find out ...
The school know about the bullies - they are on the school bus and at the moment it is just the odd stupid name calling etc - the physical stuff has been stopped. DD has a few friends on the bus - but struggles to just ignore them, speaks up for herself and defends others and so gets more grief - and also doesn't want her friends to get involved ...to spare them more abuse Sad
(I guess that might be a symptom too - she just can't ignore them - never has been able to - she got in trouble a few years ago at primary for physically fighting a boy her age (just the once) apparently he was being mean to a younger girl...)
Anyway if the worst came to the worst I know most of their parents ...and one or two I know would be devastated if they knew what their DCs did and said (two are actually HCP and they both work with children Hmm)

BertieBotts · 17/02/2015 23:57

Ah sorry I think I misread your post! Yes it's difficult in schools because it's so obvious when they visit the support unit. Please reassure her it's much better in colleges and universities, if that's something she wants to do. Because everything is much more free and open plan it's not so obvious that you're going to a specific area and the support tends to be a lot more tailored but open ended too.

School buses are horrible. You have my sympathy!

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BertieBotts · 13/10/2015 22:05

Just wanted to bump this (slightly) old thread because... well, because we trailed off, but also because I posted a long thread in the new MNers with SN section for ADHD Awareness month (that I just realised I should have formatted better, but never mind...) and I thought people here might be interested in a more "permanent" home for the thread.

I realise that nobody who originally posted on it will see it because of the 21 day limit in TIO but perhaps it will catch some of you in Active Grin

Anyway, it's here:
www.mumsnet.com/Talk/mumsnetters_with_sn/2486814-October-is-ADHD-Awareness-Month

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