Hi all, I am so so sorry about what you are going through, PainForLife, sorry about anyone in similar situations.
I'm posting this to try and maybe explain how 'family members' feel and why they sometimes react badly.
I am the family of a person in a very similar situation to you. I guess you could say I'm the 'Primary Carer' and please believe me, families do care!
Sometimes we don't understand, sometimes we do understand but can't help or reach our loved one, sometimes we help, sometimes we make it worse. Mostly we don't often stop trying or caring.
Also sometimes ... (and please don't anyone be hurt or worried by this, I am just trying to explain why families behave this way, I wouldn't hurt any of you for the world) ... sometimes we get incredibly sad, weary, and think we - too - cannot do one more day of this.
We know, deep down, that we can and we will, we want 'you' to feel better and we won't leave you, but sometimes we get narky, frustrated; sometimes -even - really mean ... we're sorry.
Sometimes we're just plain selfish and want to yell "But what about me?".
Sometimes it's like depression is infectious. A reflective situation! (This time) I've been 'the family' of someone in this situation for an unrelenting four years now, and most days I cry, but the person I'm supporting doesn't know I do.
I'm sure your family love you, PainForLife, and desperately want to help you feel better. They just don't know how. I'm sure they don't mean to hurt you.