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Scary Meeting ahead

26 replies

Keziahhopes · 06/01/2011 21:49

Hi,
I face a mental health meeting soon, with 5 mental health staff present. Am anxious. Have no treatment, no one to support me in this meeting - and I don't understand why they all have to be there. I asked, via partner, but was told they had to be. No agenda for meeting.... not sure how to keep in control, know it is not going to be supportive and have no support.

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BookcaseFullofBooks · 06/01/2011 23:23

Hi Keziah. These sort of things can be very intimidating. Is there an advocacy group in your area?

madmouse · 07/01/2011 06:34

Keziah have you no idea at all what this meeting is about? That can't be right surely! Can you send a formal letter requesting an agenda or outline for the meeting?

How are you at the moment? x

GooseFatRoasties · 07/01/2011 11:14

I second asking for an for an advocate to go with you. This is your right and they should be happy to let you have them with you.They should expain to you what the meeting is about/who these peoplw are/why they are there.It is not unreasonable to ask.Hope it goes well xx

Keziahhopes · 07/01/2011 16:53

Madmouse - got dp to phone for an agenda, they said they didn't have them in nhs mental health meetings!!

All I know is it is an hour. That is a long time.... and I don't know all the people to be in this meeting.

Looked up advocates - Mind provide them here, but cannot get one for this as they are task based and I have no task to give them, apparently, and the time is too short as they are busy. Good idea though. Only person I can use is Dp, but he doesn't know what he can do.

Goose - thanks.

madmouse - how am I? Have no mental health support since they decided I was too ill for in (!), keeping busy in part-time work. Not coping, guess retreated inside so don't annoy anyone. Thanks for asking.

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bettiboo · 07/01/2011 21:13

Hi Kezia, I didn't want to to pass you by without giving a few words of support. Im sorry you don't have anyone to support you at your meeting. I understand your anxiety. If it helps, I work in mental health and I can almost guarantee you that all of the professionals in the meeting will have your very best interests at heart and want to support you and make you feel as comfortable as possible. Don't forgot they're all just people the same as you. Can I suggest you ring PALS (google it for your local area), they may be able to point you in the direction of a service user lead who can provide you with a supportive other to go with you to your appointment. Good luck.

Keziahhopes · 08/01/2011 22:33

Thanks bettiboo, nice to hear from someone who is worker in that area. I think it is the number of people that is making my anxiety worse ... hope the people really are as you say.

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BookcaseFullofBooks · 09/01/2011 00:48

Do you think it would help if you noted down the things that you want from this meeting? Perhaps that would help you feel that you have some control over the outcome.

bettiboo · 09/01/2011 01:47

Hi Kezia. Please believe me when I say that those people sitting round the table just want you to be comfortable. I hate to think of you anxious. Please ring PALS, they will help you find someone to support you at the meeting. If you have go alone. Be honest. Tell them you're anxious and they will explain what to expect and will respect your honesty. You sound like a lovely person Kezia, who is simply unnerved by an experience that involves strangers making decisions about your life - my God, who wouldn't be? They needn't make any decisions. You have your say. They want to you to be content and capable of running your own life. Kezia, good luck and be confident of who you are. Best wishes and lots of luck.

Keziahhopes · 09/01/2011 19:09

Bookcase - have jotted a few things down, yes but if they talk about other things I will be lost.

Bettiboo - so wish you were in this meeting, as the person who decided having 5 people for me to face at once is not the most supportive (from past meeting). However the only treatment I was told there was was psychodynamic psychotherapy, which I don't want (was assessed for it in the past, told there was an 18mth wait and that the whole point of it was talking for 50mins, with the other person showing no emotion, not involved - then it would be like wiping off a white board) - I don't talk easily and I would like some skills for coping with how I am. But if I turn down what they offer, and I fear it will be psychodynamic psychotherapy with nurse, then that will be it. My labels are PTSD, BPD and Recurrent Depression. Not had treatment, apart from medication and am struggling, but if I tell them that they might try and stop me from working Sad

I would just like some treatment, relevant to the diagnosis/es ... I have never had treatment on nhs apart from 4 group therapy sessions and then I was stopped from having anymore. I have kept out of hospital, so am afraid that will count against me.

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BookcaseFullofBooks · 09/01/2011 19:14

May I ask if they have suggested a therapeutic community Keziah?

Keziahhopes · 09/01/2011 19:28

No, nothing has ever been suggested or offered, apart from this one thing last year. It was stopped as the cpn I had chose to stop working with me and I have had nothing since then (more than 6mths now). So I don't have a cpn, my enhanced CPA has not been followed for 9mths and all I have been offered is more medication on top of whta I have.

But I don't want to be seen as complaining, as that gets me nowhere. I just would like some help, that would help me improve my life. The person organising hte meeting has stopped me having fertility treatment, yet for a year has given me no treatment to get better ... if my dp or I did not have physical reasons causing infertility we could get pregnant but because we need ICSI this person has stopped it (privately and on nhs) - so I am so scared, if she can do that to me what else she can do. And seh arranged 5 of them to be there - so I am struggling to believe they would be helpful.

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Keziahhopes · 10/01/2011 23:11

It was horrible Sad

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madmouse · 10/01/2011 23:15

Keziah do you want to talk about it?

Keziahhopes · 10/01/2011 23:20

They had met before they saw me and just made me feel awful, worthless.

They said the team that were involved with me for a month said that I was not suitable for treatment, and that stands. Despite having to try and explain how badly I was treated in that time, they didn't change their mind.

I am difficult to work with they said, so that is it.

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Keziahhopes · 10/01/2011 23:21

I asked for help and got told I had a psychiatrist for medication. Sad

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madmouse · 10/01/2011 23:27

So it took 5 off them to be brave enough to tell you that all they can offer you is meds

Now is the time to contact that Mind advocate and set them a task - to help you find out what is happening and why you cannot get proper treatment

was dp with you? what did he say?

Droppedinit · 10/01/2011 23:29

i'm sorry to hear this - contrary to what people say here these meetings are NOT about making you comfortable - I attended one with my sister and it was more intimidating and the 'panel' were weirder to deal with than any group interview or business meeting I have been to - there were no pleasantries, every comment was watched to see if there was evidence of mental ill health (my own included) and four out of five of the people in the room were silent and didn't make eye contact once. When we were ushered in, all staff were on large comfortable armschairs and they had moved the room so that their chairs backed against the windows so their faces were more in shadow than ours. we were given two hard kithchen shairs to sit on backed right up against the wall. When I said 'oh (chuckle) we have the hard chairs MY COMMENT WAS MET WITH UTTER stony silence. It was awful and I came out and said to the other patients (it was in hospital) that it had been one of the most stressful atmospheres I had been in, even more stressful than a court, and I had a whole ward of patients around me pleased that someone 'sane' felt as they did that the meetings were set up to make paranoia and pressure part of the tactics.

I feel for you - you sound like you had a similarly awful experience (I have no MH problems by the way and I STILL felt like this.. )

Sorry that the people who run these things forget their humanity in meetings....

dittany · 10/01/2011 23:34

This reply has been deleted

Message withdrawn at poster's request.

Keziahhopes · 10/01/2011 23:37

Thanks Droppedinit - we didn't get the chair situation, but you are right it was intidmidating and set up to be!

Madmouse - yes dp was with me and he was appalled by how I was treated and by their lack of logic. He said if businesses were run like that they would be closed down!
They said the people in the team have refused to work with me who could help me and that is that.

It hurts, having to beg for help. I have found that saying anything critical just makes things worse - so am scared now of going to complaint level.

I feel not worth helping, that I can't change or pass any test they set me.
I think what upset me the most was what they said about me, as a person, blaming me for losing my cpn (when she chose to stop working with me) and for not having a replacement.

One of the people there was apparently head of psychologists (not sure why there) and he did not offer me any help from his team at all. One other didn't speak at all. Sad

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JohnPearceLadle · 19/01/2011 21:11

Hi Keziah, sorry to come to your thread so late but I am appalled by similarities in the way you have been treated after, like me ( some years ago now ) absolutely begging for help after traumatic events triggered me. My DH and I were genuinely terrified by what the CMHT did and tried to do...I am reminded of those surreal events when I see Mn threads about HVs & social workers who have treated a parent illogically & vindictively, setting off a vicious cycle.
I haven't met a person who can begin to believe my experiences without having been in the system OR worked in it! There is some shocking practice out there and plenty of all- powerful psychiatrists who seem to make quite arbitrary judgements, sometimes with a team of fawning SWs hanging on their every word & advocates who work "opposite" them regularly and regard themselves as part of the local services & are thus reluctant to voice differences, so the client feels totallyganged-up on.

As for coming to the end of it and being told you can't have any treatment, this is not so unusual- I was always either "too complex" ,not ill enough / too ill, "too insightful" (!) to need help within a given tax year! In between these reasons, I would be given a label, notably anorexic, which would disqualify me from the 2 yr waiting list for treatment...despite having no trace of it.
Sorry to be so self-absorbed. On the topic of your most distressing thread, I wonder if you've been able to get any further advice from MH organisations or a solicitor re: your IVF welfare check? I see that MIND couldn't send an advocate with you to this meeting. I do see why you might be worried about admitting to struggling in case they advise against working, but I really don't see how they can take any iniatative to try & do so.

I hope you find proper advocacy & support so you don't feel so threatened within the MH system...you need to feel better than you have been so as to be able to judge whether the MH team would be counterproductive for you (& your DH supporting you), even in desperate circumstances. It's the most surreal feeling, but you are sadly not alone. Very best of luck & sorry for the shamefully long post

snowmash · 19/01/2011 22:18

I am so sorry, keziah :( Surely they could have given you reasons as to why they felt no talking treatment :(

I hope that MIND can help you get some answers, and some help.

Keziahhopes · 19/01/2011 23:49

Sadly Mind say it is out of their area and they have already helped me and that is that.I have looked on-line and can't find anything at all of use. Scared of legal for lots of reasons.

JohnPearceLabel - thank you for your post. So so sorry you had such an experience. Services and treatments are such a postcode lottery - some get lots and it is good, some get some and it is good, some less desirable and some what we have!! Yes, the word "complex needs!" was on my letter to the hospital for IVF. Strange then they never thought to meet some of those needs!! Sorry, irony not work here. I am beyond upset. Yes being insightful (or too intelligent I got) works against you, as does trying to work!! I wonder, did you ever beat the nhs - ie get the treatment you needed?

For now I will settle for being allowed to have ivf - ie treatment to allow me to have what many can have naturally. But, no Sad.... I am going numb, which I know (insight here) is a bad feeling, but can't tell anyone cos they'd say "you aren't good enough to be a mum!" which I will have to accept at some point Sad

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JohnPearceLadle · 20/01/2011 15:14

Thanks Keziah. I feel so sick for you that the system you're asking to work with has made you doubt yourself & left you totally unsupported in any Mner's nightmare situation .

The personal & unprofessional criticism you experienced in the meeting IS NOT UNUSUAL ,& you will find others who have been sent away like this, but is deeply shaming for us because those without such eperiences think the professionals are explaining our self sabotage etc to us and pushing us towards clarity & progress. If only...
Your situation, both for your emotional health & unfortunately your IVF chances, is distressingly urgent after your long periods of trying to get help . You so need the support of others who know very well that totally unfair & mistaken decisions based on VERY basic factual innacuracies, & often prejudices, are regularly made about such serious issues - many MH and primary care professionals feel strongly that that's so, and, like my then GP practice, will openly admit that they'd tried to keep your treatment within the practice as in their experience the CMHT seem "always" to misunderstand their clients and cause harm (and they didn't mean painful but therapeutic work!)

Even after my experiences I feel strongly that there is decent advice and advocacy available for you - workers in the field who will be keen to see you have the correct process - and I'm still racking my brains over the best ones you could try, bearing in mind your very sensible wariness of legal avenues and the fact that you feel very fragile after this long process, and it would be unwise to emphasise this. Those who've already given good advise on this thread may be able to think of other organisations.
As you kindly ask, Keziah, I only "beat" the NHS in that I was " allowed " as the team put it to walk away from the assessment I had begged for so long ...I was not psychotic and would have accepted inpatient treatment if they had had the basic facts about me right and allowed me some control over medication, just some.. The whole story is far "worse" & more unprofessional than that and I have been harmed, but that is not unusual . I know it sounds utterly far- fetched, but this issue is shrouded in shame and fear. No, I haven't received any NHS treatment in the years since & we couldn't afford private...BUT as I wasn't able to work at the time, I had breathing space, & with my DH's total support I was able to "step back" from family & the outside world to take stock of my abuse / MH issues and recognise what was healthy for me,which unfortunately is sometimes the only thing that works. Ironically I then had a severe MS relapse which caused a huge easing of my anxiety and depression - different areas of the brain are affected, & as I also experience masking of physical pain with this condition,the mental relief seems logical to me. (btw, the MS symptoms I had been hospitalized with previously were openly mocked by the MH team as anxiety -professional eh - but not so unusual). I only came through it because of my very open minded DH.

Incredibly sorry to rant but I didn't want to stress you by asking to PM you . I will step back now but may creep back if I come up with organisations who might advise you, if that's OK? I know I'm only now able to start approaching GP / basic benefits advice after the loss of confidence the MH services caused us, and my DH is the same, so I can imagine how demoralised you must be atm. There will be setbacks to your mental health if you reach out for advice, so it's not a clear cut situation...in my own less painful situation ,only hindsight has given me the woolly sounding sense that all worked out for the best, but it has, very much so, and I wish the same for you.
(Apologies for my rudeness about some SWs in my previous post. Have come across very committed old school, independent - thinking types too).

Keziahhopes · 22/01/2011 17:32

Gosh the person who is nasty to me is causing all sorts of problems, but no one will stand up for me, believe me. They just see piece of paper and lables.

The only advocacy service around here have said they will not support me - the one who was great got told by his supervisor to stop working with me, mid task.

No - the only sw i had contact with told me she was not to do with feelings but a facilitator, who facilitated nothing and left me in tears... and I rarely cry so not know what to do with myself. So agree with you!!

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Keziahhopes · 23/01/2011 17:08

I am now awaiting written letter to follow up last week's meeting - this is something I am dreading, written words about me that say in black and white about me, that are on my record, that make me feel worse than I already do.

Had a week of hanging on, literally - not sure how to cope with worse. Partner is at breaking point, due to other things that have happened that have nothing to do with this but means he is having to do so much work and little sleep.

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