Sostenueto
I am wondering whether to write to my MP for the first time ever.
I have two children with Autism and SEN. I am also disabled myself.
I was married for 16 years, to an aggressive man, and I eventually left.
During lockdown my ExH has dropped food off for us once a week. There is only 1 small shop in my village and I can't carry milk (too heavy and my kids will drop it!). My nearest supermarket is 19 miles away, so I can't leave kids at home, can't take them (my ancient £500 car's battery died). Shopping delivery slots were impossible at least to start with, so exH has been dropping off shopping for us once a week. Because I moved, because I cannot work, because my nearest relatives are 250m away, because I've not been able to 'go out and make new friends' I'm rather isolated, so it was, sadly, (& quite stressfully for me), necessary. It's the only 'support' I've had in 8 weeks and I've got on with it, like many right now, because there's literally no alternative.
As well as crutches, I use a CPap machine as I have obstructive sleep apnea. The children's father has asthma, some heart issues, and is obese. He is currently furloughed for which i am glad as he is a bus driver, a profession with as high a mortality rate as HCP's I believe? I left him for very good reasons, but he is their Father, so for their sake... He is worried sick he won't have a job at the end of this, as am I as there is a marital home we cannot sell and I cant pay the joint mortgage if he stops (it is interest only as I cannot work any more and there is no equity).
My son was referred by GP for Epilepsy assessment just before lockdown (school sent him home a week before they shut to most pupils saying they could not keep him safe due to his sudden spasms and 'not to bring him back until it was sorted'. No initial appt letter has arrived so I called the hospital last week to enquire (as GP down to 1 day per week) and discovered that they are not dealing with 'non urgent' referrals at present. Fair enough, I am in the NE and we are behind the London curve by a couple of weeks, I think? but I'm back to square 1. Is it Epilepsy? Is it the awful strain of being at a failing Academy and being bullied for ASD with no EHCp? Is it both? When / how will School open? He is Y10. We've had no details from them yet.
I've been very careful to follow the Govt rules for me, my kids, (their Father re drop off) but also for the sake of others I will never know.
It has been hard (my parents and both my closest friends are all aged over 70 and hundreds of miles away and I try not to wonder when / if I will see them again!) but there are very few of us who have not been affected, many of us deeply and long term. Perhaps because my world's so small - I don't yet know anyone in RL who has died, but each time it's Somebodys loved one.
My neighbour brought me some eggs from her hens (in a SD way). She's manages a care home group. She says it has been simply appalling and that there has been a huge cover up. She cried.
I've only cried twice. Once was for the 13 year old boy who died alone in hospital. I sobbed at that. There, but for the Grace of God...
Once was last night, when I was so angry after Johnson's statement.
I dont think I will send all this to my MP - it's a ramble, sorry!
I over share.
But I want to write something. It's SO wrong that DC can do what he did, and the PM glibly defends it.