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Elderly parents

MIL constantly falling - we are at our wits end

189 replies

FeralNun · 22/11/2024 15:13

This is mainly a rant, I’ll admit that freely!

MIL widowed this year, has multiple health issues, and is extremely frail. She cannot move safely without a walker, although she thinks she can. Her frequent falls have escalated recently - 4 falls in 5 weeks (that we know of). Hospitalised twice for these falls, and then on Sunday, the paramedics glued her head back together and left her at home. I don’t blame them tbh.

Yesterday she fell again, and this time she’s broken her wrist. So now there is no way she can manage until it’s out of plaster and healed. The lovely nurse is talking about a rehabilitation place in the meantime.

Home is simply no longer viable. She’s got everything / every aid you can imagine l, the alarms, lifeline, the lot. But at the end of the day there are stairs and no downstairs loo.

She won’t be told. She would rather watch DH worry himself to a shadow and drive a 500 mile round trip each time she falls over. He’s had a year of this now, including caring for his dying father 24/7 for 2 months because he was too stubborn for a hospice or carers.

I honestly think my poor DH will die first at this rate.

Ideas/experiences/general advice welcome!

Thank you.

OP posts:
WinterFrog · 22/11/2024 17:01

BlueLegume · 22/11/2024 15:45

@FeralNun welcome to the world of WitsEnders. Some great people on here and a safe space to vent. It keeps me sane knowing there are others in similar situations but that does not make it any easier. Flowers

Raises a tired hand - am also a wits ender though thankfully mine is a bit less stubborn, and nearer than @FeralNun's

If she's going to rehab you may well find the problem solved. My mother is currently in one and they assess the home before they are allowed to be discharged there. We've had family liason meetings to discuss what care we are able to offer. Mum's house could be made safe enough for her to go home but she'll need 24/7 care for the foreseeable, and we can't manage that, so she's hopefully ( see what i did there...it's not yet settled where she's going) going into residential care.

MounjaroUser · 22/11/2024 17:09

Is your mum near you? Would your MIL consider moving into the same place that your mum's in, so there's someone she knows there?

BlueLegume · 22/11/2024 17:13

@WinterFrog the daft thing is there genuinely is loads of support out there. As you said and happened in our case - because we made no decisions for Dad, because mother and brother wouldn’t everything got taken out of our hands.

CatsBeCrazy · 22/11/2024 17:23

I'm so sorry OP , but much solidarity. I cared for my MIL when I really shouldn't have tbh , I had already had a postpartum Pyschosis relapse months before but I felt extremely pressured , I then had another one which was so bad my relationship broke down because of it . I should have put my foot down more and said no , which I did by telling my partner I'm getting ill but I should have been more persistent . People don't realise how hard it is and how much it sucks the life out of you. I had All the guilt of my partner of I'll just put her in a home then . I wished I'd have said go on then do that and I absolutely loved my MIL btw .

Mirabai · 22/11/2024 17:26

CatsBeCrazy · 22/11/2024 17:23

I'm so sorry OP , but much solidarity. I cared for my MIL when I really shouldn't have tbh , I had already had a postpartum Pyschosis relapse months before but I felt extremely pressured , I then had another one which was so bad my relationship broke down because of it . I should have put my foot down more and said no , which I did by telling my partner I'm getting ill but I should have been more persistent . People don't realise how hard it is and how much it sucks the life out of you. I had All the guilt of my partner of I'll just put her in a home then . I wished I'd have said go on then do that and I absolutely loved my MIL btw .

I’m sorry to hear that. I can’t believe the cheek of your ex guilting you to look after his mum. He could always have cared for her himself if he didn’t want her to go into a home.

Flossflower · 22/11/2024 17:27

Unfortunately until you step away and not rush up to see her when she falls, nothing will happen. For various reasons, my sister and I are fairly low contact with our elderly mother. She has a carer once a day but she knows that if things get any worse she will have to go into a home. She has had one fall and broke her hip. She was in hospital for months. She now always uses her frame and sleeps downstairs.

CatsBeCrazy · 22/11/2024 17:28

I'm still with him . Pathetic I know . I went out in a pyschosis state and thought I was in love with someone hence the relationship breakdown 😳 I've never cheated on him in my life but I told and told him , it's making me ill , I can't do it anymore and then he told me I'll just put her in a home then 😭

Mirabai · 22/11/2024 17:32

Sorry when you said the relationship broke down I thought you meant it ended. At least he saw sense eventually.

GranPepper · 22/11/2024 17:36

BlueLegume · 22/11/2024 15:48

@FeralNun I contacted Age Uk some time ago at a ‘wits end’ moment and they sent me a prompt response. I will post it as it might be useful to you…..

Thank you for your email about arranging suitable care for your mother and the issues you are experiencing with this. It sounds like a difficult situation for you and I hope you will find some of the information below of interest in addressing it.

It is important to note that providing care for anyone, even a parent, must be a choice. There is no obligation on you to provide support for your mother. Any support she needs can come from other sources.

It is also important to say that as long as your mother has the mental capacity to make her own decisions about what care she wishes to receive she can, in almost all circumstances, decide to reject care.

You can read more about mental capacity and how it is assessed in section 3 of Factsheet 22: Arranging for someone to make decisions on your behalf.

If your mother would be willing to look into support that may be appropriate for her a starting point may be to request a care needs assessment from her local authority Adult Social Care Team. This assessment would look at her care needs and how they can best be met moving forward.

You can read more about how to request a care needs assessment in section 3 of Factsheet 41: How to get care and support. Section 4 of this factsheet discusses what the assessment will look at.

If your mother would be willing to have this assessment to see if she would like to accept any of the support the Adult Social Care Team may propose she, or you, can contact her local authority and request an assessment. You can search for contact details for her local authority using the link below.

Find your local authority

If you feel that your mother’s refusal of support may be putting her wellbeing at risk you can report this as a safeguarding concern to her Adult Social Care Team. They could then make enquiries to see if they felt that your mother’s refusal of support could be seen as self-neglect.

Self-neglect is a difficult area due to a person’s fundamental human right to private life. If someone chooses to live in a particular way, however worrying or upsetting that is, there are limited circumstances when the law can intervene. This consideration must be balanced with the right to safeguarding, which is also based on human rights protections.

You can read more about self-neglect in section 2 of Factsheet 78: Safeguarding older people from abuse and neglect. If you would like to discuss whether your mother might be self-neglecting you can read about how to raise this with her local authority in section 4 of this factsheet.

If you feel that approaching her local authority would not be appropriate at this time for your mother you may wish to see if there is other local support available. A local Age UK can sometimes provide some support services or be able to direct people to local sources of support. If you would like to see if there is a local team in your mother’s area and investigate what support may be available, you can search for a local Age UK using the link below.

Find a local Age UK

It sounds from your email that your mother’s situation is having a significant impact on you. If you would like support for you in your role of trying to support your mother you may wish to contact the charity Carers UK for support.

Carers UK provide information and advice about caring alongside practical and emotional support for carers. You can contact them using the details below.

Edited

I agree with this and it is helpful. I would just add .. your DH driving 500 miles when she falls. He is, I will emphasise, HE IS A CARER. He is entitled legally to a Carers Assessment. Not for his parent. For him. You might have to force the issue of Carers Assessment because Social Work seem to hope people don't know about it, but it's a legal right and they cannot deny it. Don't let them deny your legal rights.

Knotaknitter · 22/11/2024 17:38

My MIL was a frequent faller, she had no downstairs toilet, would not use the commode provided, couldn't leave the house by either the front or back door. It was clear to the family that the house was totally unsuitable for her needs but she would not look at other options. The falls escalated until the week she fell again within two hours of a discharge after a fall and then fell again after the next discharge. At that point the professionals decided that she was not acting in her own best interests (the family would have said this about nine months earlier) and when she said that she wanted to go home she didn't have an appreciation that this might mean seven hours on the floor overnight. She was discharged to a residential care home where she put some weight on and several medical conditions resolved (presumably because she was taking the medication as prescribed). She wasn't happy there but she hadn't been happy at home either. The family were a great deal happier as they knew she was eating and being looked after.

The last year that she was at home was not an easy one, it was a massive relief when we knew that there was someone within call all of the time.

CatsBeCrazy · 22/11/2024 17:38

Thanks , he likes to bring it up sometimes and I bring up how horrible he was when I was doing most of his mums care and personal care . Honestly if it's taught me anything is to always say no , there's so much help out there , but when family is seen doing anything , you won't get help atall

DemelzaandRoss · 22/11/2024 17:51

So sorry for this difficult situation. I truly empathise with you

My father was similar to your MIL & as an only child, it was a difficult time. In all probability she will fall again & SS may intervene & refuse to let her go home even with a care plan in place. I would begin looking around for suitable Care homes. Maybe bring her near to you. I think in the end my father gave up rather than risk being moved out of his home.

GranPepper · 22/11/2024 18:09

MrsJoanDanvers · 22/11/2024 16:15

She’s not being fair to you. It must be scary being alone and frail so she’s clinging onto her son and shutting her eyes to necessary things which have to be faced. Some elderly people are expert at guilt tripping. My sharp as a tack but frail (fell twice with fractures) mil has to have carers even though she doesn’t like it and complains about them-trivial stuff not poor care or anything. Her own daughter has had to keep the fact she’s recently retired from her to avoid the pressure to move 150 miles back to her childhood home to look after her-mil keeps mentioning it how nice it would be to have her back at home. My mil’s family love her but you need firm boundaries about what you an and can’t do.

Yes. People in middle age get stressed into caring for their elderly parents on top of their other responsibilities - helping with grandchildren, having a job, and unfortunately elderly parents (not them all but a lot of them) prioritise themselves and don't take their childrens' other responsibilities into account. Many (I realise not all) of today's elderly population maybe didn't have a paid job (mainly women), got their pensions at 65/60 and don't seem to realise or care the next generation down have many other responsibilities to juggle. This is why Carers Assessment is necessary to help the people in middle age

LostittoBostik · 22/11/2024 18:25

I don't know exactly how the system works but given these are frequent and all requiring attention I would speak to the doctor and ward supervisor and tell them you're not happy for her to be released back home. She needs full time care by the sounds of it.

Runskiyoga · 22/11/2024 18:36

Moan away, it sounds really difficult. DH can't be driving up every time.

Georgyporky · 22/11/2024 18:39

Is it possible to install a downstairs bathroom, & put a bed somewhere?

GinForBreakfast · 22/11/2024 18:41

How old is she? The stubbornness could be a sign of cognitive decline. Has she been assessed for that?

GranPepper · 22/11/2024 18:42

LostittoBostik · 22/11/2024 18:25

I don't know exactly how the system works but given these are frequent and all requiring attention I would speak to the doctor and ward supervisor and tell them you're not happy for her to be released back home. She needs full time care by the sounds of it.

You have encapsulated the problem, and thank you. You don't know how the system works. Most, or at least very many, don't know how the system works when their elderly relative is in need of help. This means Social Workers can manipulate the middle aged people and they end up driving 500 miles to help their parent when Social Work dept are actually legally responsible. I was manipulated into providing care to my elderly relative I was not actually able to provide. I have never properly recovered and I don't think I will now. I worked in a responsible job for almost 40 years but the care system just about broke me . I hope you get advice and enforce your rights. You are as important as your elderly relative

Words · 22/11/2024 18:46

Grab a coffee in the cockroach cafe ☕️

user1471453601 · 22/11/2024 18:51

There really is no need for your mother in law to keep falling.

I'm old and frail, the third time I fell I decided enough was enough. I have a chair lift three rollators (like a Zimmer frame on wheels), one downstairs, one upstairs and one for outside. A walk in shower with a shower chair and other aids.

I never ever try to walk without a rollator because the chances are I will fall. The NHS is stretched enough without looking after people who don't help themselves.

I'm sorry that, reading this post back, I seem pretty critical. I don't mean this post as a direct criticism of your mother in law, but I admit to getting frustrated when people won't help themselves. I guess I just don't understand that type of mentally.

GranPepper · 22/11/2024 18:59

user1471453601 · 22/11/2024 18:51

There really is no need for your mother in law to keep falling.

I'm old and frail, the third time I fell I decided enough was enough. I have a chair lift three rollators (like a Zimmer frame on wheels), one downstairs, one upstairs and one for outside. A walk in shower with a shower chair and other aids.

I never ever try to walk without a rollator because the chances are I will fall. The NHS is stretched enough without looking after people who don't help themselves.

I'm sorry that, reading this post back, I seem pretty critical. I don't mean this post as a direct criticism of your mother in law, but I admit to getting frustrated when people won't help themselves. I guess I just don't understand that type of mentally.

You don't seem critical to me, more like realistic. I wish you very well

Purplecatshopaholic · 22/11/2024 19:00

I’ve said this before, and it sounds harsh but it’s true (been there). Your DH needs to stop doing what he’s doing. She has capacity (totally different if she didn’t), and she is making her choices which she is entitled to make. He needs to step back and let what will be, be. Or he continues, which is his choice - but in which case nothing will change (apart from his own health declining further), because his mother, and the agencies involved will not change.

Iloveeverycat · 22/11/2024 19:02

see if you can arrange a bed for the sitting room.
I am sorry but this won't work. She will still fall. I did this with my mother the bed was down for a week had another fall ended up in hospital again. The hospital decided she was no longer safe to go home and had to go to a residential home. Is this an option.

GranPepper · 22/11/2024 19:10

Purplecatshopaholic · 22/11/2024 19:00

I’ve said this before, and it sounds harsh but it’s true (been there). Your DH needs to stop doing what he’s doing. She has capacity (totally different if she didn’t), and she is making her choices which she is entitled to make. He needs to step back and let what will be, be. Or he continues, which is his choice - but in which case nothing will change (apart from his own health declining further), because his mother, and the agencies involved will not change.

It doesn't seem harsh to me. It might have done before I was in the position navigating my relative's behaviour and Social Work quite happy to let my health deteriorate in the meantime because I was clueless about the system. But having been in the position, I try and gently tell people to not end up in the position I did. Agencies will not change but will manipulate you into doing things that will make your or your DH's health deteriorate. To repeat an earlier post, your health (and your DH's) are as important an your elderly relative's. I wish someone had told me this when my health was deteriorating because I was being forced to do caring I was not able to do

cunningartificer · 22/11/2024 19:16

If money isn't an issue, can you install a downstairs bathroom for her so that she can live downstairs? That might be a halfway house before she has to move out of home.