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Elderly parents

Don’t know what to do - worried I am being mean

55 replies

CaptainWentworth · 20/08/2021 12:28

Apologies if this turns out long, but I prob need to give all the background to make sense! Also should mention I’m an only child for context, we have an almost three year old and I am currently 36 weeks pregnant.

My parents live about 1.5 ish hours away from us; they used to live in another part of the country (where I grew up) but dad ended up in same area as me for work, however they bought a house that far away from us (and work and nearest large city) because they wanted a massive garden as a retirement project. That was about 13 years ago, when they were both in good health. We’ve always visited fairly regularly although they came to us as often, and we did alternate Christmases pretty much.

However mum’s health has declined rapidly over the last few years, and she was diagnosed with progressive supranuclear palsy (PSP) almost 2 years ago. Dad is now basically a full time carer as mum isn’t very mobile and has falls often, and they can’t come to stay with us any more because mum can’t manage stairs. We do try to go up regularly but we can’t all stay over with them either as there aren’t enough beds now since they got rid of some in anticipation of moving, and replaced one with a hospital bed which mum refuses to sleep in.

They (well dad mostly, really, as mum struggles cognitively as well now) decided to move somewhere closer to us with a smaller garden. They accepted an offer on their house in Feb/March but they’ve struggled to find somewhere suitable that’s disabled accessible as there’s just not much coming on the market. A couple of properties fell through due to survey issues or dad getting cold feet at last minute - he’s really worried he’s doing the wrong thing moving mum especially as she’s deteriorated since they started this process. I want them to move as it’ll be easier for us to visit each other frequently (and mum see plenty of grandchildren) without wanting to stay over, they’ll be less remote from local facilities, dad won’t feel he has to spend all his time keeping on top of the garden, and we can sit with mum to give him a break more easily.

They have finally found a property which seems a good fit about 25 min from us. However dad is worried about the moving process especially how mum will cope as the house is packed up, and wants her to stay with us for a couple of nights until he can take her to the new house. Their buyers understandably want to complete by end of September and this seems possible at the other end of the chain too. However from my POV it’s terrible timing as I’ll have a maximum 2 week old baby and I’m worried about looking after my toddler and the new baby and mum. DH will still be on leave which will help, but I’m still basically worried about the responsibility. Of course she can’t get up our stairs so would need to come up with some solution for her to sleep downstairs and I can’t think what would work. She won’t use the hospital bed if we got it brought to our house, and she struggles a lot with beds that are the wrong height otherwise. Also she’s liable to fall in the night and will need help getting to the toilet.

There has now been mention of her going into respite care very temporarily instead, but I know she doesn’t want this and I feel awful for potentially not looking after her in her hour of need.

Am I being awful? Both in encouraging them to move and in worrying about having mum overnight? Really don’t know how best to support them in general to be honest- feel I am not being a good daughter. And I feel bad that we moved a year ago and didn’t prioritise looking for a house with a downstairs bedroom for mum to stay in.

OP posts:
longhours · 24/08/2021 22:24

@Devon1987

You need to tell your dad it’s a flat no. You will be knackered and trying to bond with your baby, you will never get this time back. He needs to come up with a suitable plan that does not involve you.
I agree with this. And as new baby will be up crying through the night and day and you will be sleeping on and off any moment you can, exhausted, making precious memories of a time that passes so quickly.. trying to help toddler bike too with new baby sibling , give them attention, and your special precious time bonding with your new baby ...

You will not get that time back. No matter how much you want to do what Dad tells you to do "to help out", you are the last person who should have DMum to stay at yours at that time. You can love your DDad and DMum as much as the world but it still is not the right timing to have your poorly mum stay with you.

Sorry to post so many in a flurry but please don't get emotionally bullied into doing the wrong thing for DMum, for you, for your toddler and for your newborn baby.

Unless someone is staying to help you as a new mum!! you really can, ought to (and would be crazy not to!) say no to anyone wanting to stay over on any overnight visits to you.
Can you not remember how hard this time was with your PFB? Please stick to your guns. As you now also And have another child as well... I wouldn't expect any help nor favours from a mum with a newborn for at least the first 6-12 weeks.

longhours · 24/08/2021 22:25

*Bond not bike - small screen hard to see when autoincorrect strikes!

GoWalkabout · 24/08/2021 22:28

Tell dad it would be easier to book movers and cleaners and cheaper than a longer period of respite care. My dad wanted a two week moving period but in the end moving on the day was fine. Plan B - aunt stays in an accessible guesthouse with mum?

SMabbutt · 24/08/2021 22:29

Do you think she would be amenable if it was a holiday. If they would be ok with peofessionals packing up the house they could try booking a respite holiday. This NHS link gives some information part way down the page and it might give them both a break and take the stress out of the move. It also wouldn't be going in to a home which she is resistant to so perhaps be easier to get them to agree to. www.nhs.uk/conditions/social-care-and-support-guide/support-and-benefits-for-carers/carer-breaks-and-respite-care/

CaptainWentworth · 25/08/2021 14:22

Thanks for all the links - will take a look at them all!

Re. CHC, I know it’s a high bar (I used to be incidentally involved with looking at the finances from the local govt side- when they were desperately trying to get the NHS to pay for people’s care so they didn’t have to!). I think as mum has a diagnosis of a degenerative neurological condition that may help, and she does fall a lot in general - she’s not safe to be left on her own at all. She also has physical problems with speech, and focusing her eyes, and is slow at processing information so has trouble following conversation and speaking, aside from the physical aspect. They already have quite a bit of occupational health input. DH is a GP and he thinks she could be eligible (I should have mentioned his job earlier I suppose, but he’s also caught between his professional view, and wanting to help out family- he’s not really acting as a doctor in this context)

I will put my foot down as suggested I think - I really don’t want two extra people here when I’m home from hospital (we’ll already have in-laws here as well as they are looking after DD while I give birth - they will disappear as soon as we ask them to, but could be an issue if I go overdue!)

Sorry to everyone if I’ve inadvertently drip fed at all. I feel awful sharing mum’s health problems in public - she was a published research scientist and then had a second career as an SEN teacher- she was so capable and it’s so sad to see how much she has deteriorated over the past few years.

I’m really grateful for all the supportive comments.

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