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Elderly parents

Don’t know what to do - worried I am being mean

55 replies

CaptainWentworth · 20/08/2021 12:28

Apologies if this turns out long, but I prob need to give all the background to make sense! Also should mention I’m an only child for context, we have an almost three year old and I am currently 36 weeks pregnant.

My parents live about 1.5 ish hours away from us; they used to live in another part of the country (where I grew up) but dad ended up in same area as me for work, however they bought a house that far away from us (and work and nearest large city) because they wanted a massive garden as a retirement project. That was about 13 years ago, when they were both in good health. We’ve always visited fairly regularly although they came to us as often, and we did alternate Christmases pretty much.

However mum’s health has declined rapidly over the last few years, and she was diagnosed with progressive supranuclear palsy (PSP) almost 2 years ago. Dad is now basically a full time carer as mum isn’t very mobile and has falls often, and they can’t come to stay with us any more because mum can’t manage stairs. We do try to go up regularly but we can’t all stay over with them either as there aren’t enough beds now since they got rid of some in anticipation of moving, and replaced one with a hospital bed which mum refuses to sleep in.

They (well dad mostly, really, as mum struggles cognitively as well now) decided to move somewhere closer to us with a smaller garden. They accepted an offer on their house in Feb/March but they’ve struggled to find somewhere suitable that’s disabled accessible as there’s just not much coming on the market. A couple of properties fell through due to survey issues or dad getting cold feet at last minute - he’s really worried he’s doing the wrong thing moving mum especially as she’s deteriorated since they started this process. I want them to move as it’ll be easier for us to visit each other frequently (and mum see plenty of grandchildren) without wanting to stay over, they’ll be less remote from local facilities, dad won’t feel he has to spend all his time keeping on top of the garden, and we can sit with mum to give him a break more easily.

They have finally found a property which seems a good fit about 25 min from us. However dad is worried about the moving process especially how mum will cope as the house is packed up, and wants her to stay with us for a couple of nights until he can take her to the new house. Their buyers understandably want to complete by end of September and this seems possible at the other end of the chain too. However from my POV it’s terrible timing as I’ll have a maximum 2 week old baby and I’m worried about looking after my toddler and the new baby and mum. DH will still be on leave which will help, but I’m still basically worried about the responsibility. Of course she can’t get up our stairs so would need to come up with some solution for her to sleep downstairs and I can’t think what would work. She won’t use the hospital bed if we got it brought to our house, and she struggles a lot with beds that are the wrong height otherwise. Also she’s liable to fall in the night and will need help getting to the toilet.

There has now been mention of her going into respite care very temporarily instead, but I know she doesn’t want this and I feel awful for potentially not looking after her in her hour of need.

Am I being awful? Both in encouraging them to move and in worrying about having mum overnight? Really don’t know how best to support them in general to be honest- feel I am not being a good daughter. And I feel bad that we moved a year ago and didn’t prioritise looking for a house with a downstairs bedroom for mum to stay in.

OP posts:
CaptainWentworth · 21/08/2021 18:28

@welcome2021 we’re in the north east. How do you find out about good places to use? And is it something to arrange privately rather than going through social services?

Thanks all again for the advice - it’s very much appreciated!

And yes I don’t think my parents are trying to steal anything from me - it’s just that poor dad doesn’t quite know what to do for the best, and I’m not sure I do either!

OP posts:
Voicefancier · 21/08/2021 18:51

No one realises how difficult all this is until you're suddenly plonked in it! And there is nowhere to go to for advice, let alone help! I sympathise with you and your father 100%. That's why the more you can plan now, the easier you'll find it later on.
At the moment finding respite care can be difficult because of covid. Homes have spaces but they won't let you in to check everything out. Do you know anyone in the area who is in any form of health care - nurses, health visitors, advocates, gp surgery? They often hear things on the grapevine about places that are good or bad. Or people like delivery drivers, hairdressers, etc, who go into homes. You could make enquiries on FB. And you can check out with the council places that have orders to improve notices against them so you can strike them out straightaway. Sorry I can't be more helpful.

BasiliskStare · 21/08/2021 19:03

I am going to go against the grain here and if it really is only 2 mights and DF is 25 mins away from home and DH there there - I would try to accommodate - but I realise from this thread most would not. That said respite care seems a good thing to sort out for now or the future.

Beamur · 21/08/2021 19:05

Probably the best place to start would be a referral to social services via your GP? Find out if you're eligible for any funded care or if you would have to pay.
I'm guessing if funded there would be a financial cap, so you might have limited choice or be able to pay a top up fee. If privately funded it's probably a case of finding somewhere suitable. The CQC are like OFSTED for health care and residential homes.
www.cqc.org.uk/what-we-do/services-we-regulate/find-care-home

Foxmylife · 21/08/2021 19:06

Respite would be best. Your not being awful at all.

welcome2021 · 21/08/2021 19:17

We found one through word of mouth. Carehome.co.uk. Is also a good site to peruse.

CaptainWentworth · 21/08/2021 23:07

@BasiliskStare Dad would be approx 1.5 hours away at their old house for most of the time- both nights, at least.

It’s the sleeping arrangements I’m most worried about- since mum can’t get up the stairs we’d need to sort something out downstairs and I don’t know at all what would be suitable. There is this hospital bed they have that we might be able to get moved but that mum absolutely won’t use, otherwise it’d be the sofa or buy some kind of superior air bed, but neither would be very safe for her.

OP posts:
Voicefancier · 21/08/2021 23:20

Does she have a single bed at her own house that could come to yours before going to the new house? I think if she's becoming cognitively impaired, she's probably going to stay at yours a few days longer than the night before and night of the day of the move. Your dad will need to get things sorted a bit before she moves in. Such a worrying time for you with everything else on your plate.

longhours · 22/08/2021 07:29

Dad needs to arrange a respite for the moving dates - he can book a one or two week stay for her.

If your mum has over £23.250 in savings, she would be self funding. So much easier to arrange it privately. If less, he/she can ask adult social care to assess & consider arranging it.

There is no way you can look after your mum's considerable care needs, including help to walk as she falls regularly and has memory loss; whilst also being post birth with an under 2 week old newborn. And a toddler. And no suitable bedroom, nor bed for her. Dad will be elsewhere for all day those two days and probably several more days whilst he unpacks their house. You'd be talking a week at least ..

That's a ridiculous thing for your dad to expect a newmum - his daughter- to be able to cope with. It's simply not feasible for you to do at this point and wouldn't be safe for your mum nor your children/baby nor yourself. You really ought be resting yourself during that period to recover from birth.

Weenurse · 22/08/2021 07:39

Respite care is a good option.
It also introduces DM and DDad to the facility, so if DDad needs hospital treatment down the track, there is a facility that they are familiar with.

Gatekeeper · 22/08/2021 07:45

Not sure whereabouts in North East you are op but I can thoroughly recommend Sherburn House fir respite , its just outside Durham

mayblossominapril · 22/08/2021 07:46

I wouldn’t use respite car. Although that’s because it all went very wrong for a family member.
I would hire full time carers for the time she stayed and hopefully she would then keep a care package when they moved into the new house.

bunnybuggs · 22/08/2021 07:59

Use a packing service for the move - can be done and dusted in a day
that would help. Respite or carers for a couple of days should be manageable.
I feel for your parents - it will be hard for them to move from a house they love and I am sure your father is feeling guilty about asking you for help.

You still have time to sort out something - I wish you luck as you sound a very caring daughter.

CaptainWentworth · 24/08/2021 13:23

They are using a packing service, but dad is a bit obsessed with having some time in the house while it’s empty to clean etc (therefore wants a day between picking up and unpacking) - I think it stems from their last move which was quite traumatic, in that they forgot about the loft and had to hire a white van at the last minute and were reduced to chucking bin bags in it as the new owner stood on their drive and glared at them! He’s sort of gone a bit too far the other way now.

Dads now talking about getting his twin sister to come and stay with us to help with mum, as she’s offered to help- really not sure about this. It boils down to me not wanting to have to play host with a newborn, but that’s me being selfish really.

Dad did speak to the GP this week about Continuing Healthcare, among other things, so a nurse is coming out to do an initial assessment. If mum is eligible this would cover the care she needs without means testing, although there’s no way the full assessment will be finished before the move. However this seems like a good time to think about what the care she needs would look like. I’ve also suggested dad asks for a referral to social services as suggested above, to help with this.

Mainly this week I’m trying to get everything tied up at work so I can stop worrying about that, at least! I’ll probably feel more able to focus on family stuff once I’m on leave.

OP posts:
candycane222 · 24/08/2021 15:50

Its not entirely clear how disabled your mummis but if your sister is free, could they find a self catering apartment of some sort very nearby to you and stay there? That way your sister could bring mum to see the baby etc but also ensure no extra pressure is put on uou? I can't stress enough what a bad idea it is o commit to hosting someone infirm when you are recovering from birth yourself. You will need all your energy.

Do you fancy infected stitches? Nope, thought not!

CaptainWentworth · 24/08/2021 15:57

Sorry, not my sister (only child) - dad’s sister, my aunt. Oh I don’t know, every option just seems so complicated now!

Mum can walk albeit unsteadily with a walker; she can manage the loo herself but prefers to be escorted to the door and back, and she often falls (at night at least) somewhere between getting off the loo and getting securely balanced with her Walker again. We have a frame support seat thing for the downstairs loo which is helpful. She has a riser chair at home but otherwise needs help getting in and out of chairs; also needs help sitting up in bed, and getting dressed (getting feet into leg holes of pants, and putting socks on)

And no I certainly don’t fancy infected stitches!

OP posts:
candycane222 · 24/08/2021 16:01

Ah sorry, misread your post - its your aunt, not your sister.

Is your dad absolutely set against buying in professional cleaners (for both houses, if he wants), and allowing the movers to move everything in, while he stays somewhere with dm and d aunt (aunt holding the fort so he can pop back to check the old house), then move with your dm in to the bungalow. If things are in the wrong place in the bungalow, you him and dh have plenty of time to sort things round once they are there. But your df does seem to be making a bit of a meal of this...

WTFisNext · 24/08/2021 16:46

My dad has MND, not quite PSP but similar enough to warrant comparison I think.

I'd balk at having him stay over without a proper and safe sleeping space as things stand currently. I'm in reasonable health and my children are reasonably independent.

In your circumstances there's zero chance I'd be comfortable or happy taking on that responsibility, even for a few days.

Put the feelers out for respite care places in your area and AirBnBs that might fit the bill if that's a preferred option for your parents and aunty.

You cannot commit to any care that may involve lifting, even if your mum has lost a lot of weight - she's still heavier than a new mother should be trying to lift.

It sounds like your dad is struggling in general and the house move is making him respond in an unhelpful way. He's not doing this on purpose, but he still needs to be gently and firmly nudged to a more reasonable solution than the one he has in his head.

My dad fought back against the hospital bed in a big way too. What eventually made him relent was the district nurse having a private word. We don't know what was said but he moved to the bed that night - might be worth trying with your mum.

Sorry you're having to handle all this. It absolutely sucks! We need to keep living as much as we need to keep giving support though, please don't forget that you need to exist and be a person/mother/partner too for your own sake Flowers

TheCarrs · 24/08/2021 19:53

@CaptainWentworth

They are using a packing service, but dad is a bit obsessed with having some time in the house while it’s empty to clean etc (therefore wants a day between picking up and unpacking) - I think it stems from their last move which was quite traumatic, in that they forgot about the loft and had to hire a white van at the last minute and were reduced to chucking bin bags in it as the new owner stood on their drive and glared at them! He’s sort of gone a bit too far the other way now.

Dads now talking about getting his twin sister to come and stay with us to help with mum, as she’s offered to help- really not sure about this. It boils down to me not wanting to have to play host with a newborn, but that’s me being selfish really.

Dad did speak to the GP this week about Continuing Healthcare, among other things, so a nurse is coming out to do an initial assessment. If mum is eligible this would cover the care she needs without means testing, although there’s no way the full assessment will be finished before the move. However this seems like a good time to think about what the care she needs would look like. I’ve also suggested dad asks for a referral to social services as suggested above, to help with this.

Mainly this week I’m trying to get everything tied up at work so I can stop worrying about that, at least! I’ll probably feel more able to focus on family stuff once I’m on leave.

How on earth is that you being selfish?

It's you being sensible and thinking of your children and being realistic about your own capabilities.

If there's ever a time when you need to prioritise you it's when you've just had a baby.

It seems none of the older generation are quite thinking straight in this scenario so you need to be gentle but firm 😊

longhours · 24/08/2021 21:52

How on earth is that you being selfish?
if there's ever a time when you need to prioritise you it's when you've just had a baby.... It seems none of the older generation are quite thinking straight in this scenario so you need to be gentle but firm 😊

This with bells on ^

By the none of the older generation here, I think PP meant your dad and his twin sister

Really it's is ridiculous what he is suggesting as you do but have a suitable safe house for mums needs, no bedroom foe her, she can't manage your stairs and you will be too tired and frazzled to host your mum AND NOW AN AUNTIE!- your newborn will have you up in the night crying - it's not suitable place tor DMum to stay during all this upheaval with her mobility and care needs and memory loss.
Honestly!!?!! Please stop debating it with your dad. Someone else in the family can accommodate and care for Mum or a respite stay will be right for her.

longhours · 24/08/2021 21:53

As you don't have a suitable house to accommodate her right now I meant

longhours · 24/08/2021 22:03

Mum can walk albeit unsteadily with a walker; she can manage the loo herself but prefers to be escorted to the door and back, and she often falls (at night at least) somewhere between getting off the loo and getting securely balanced with her Walker again. We have a frame support seat thing for the downstairs loo which is helpful. She has a riser chair at home but otherwise needs help getting in and out of chairs; also needs help sitting up in bed, and getting dressed (getting feet into leg holes of pants, and putting socks on)

Unless there are a lot more complex health /nursing needs, than what you've shared above, it initially presents as unlikely she will get a positive CHC checklist which is the first stage (I.e. gateway) to CHC process - look at HMGov website- type in "continuing healthcare". All the documents are in there that will show you how incredibly high CHC criteria is set.

Maybe dad should be asking now for a care needs assessment from their local adult services (are they moving geographical Local authority areas too though?)

But the nurse will certainly be able to gather info, refer to social care if have consent to do so and to give Dad and mum some advice in the meantime &/ or refer to Occupational therapy.

longhours · 24/08/2021 22:08

Or unless DMum is eligible for Chc fast track due to being right at end stage palliative care rapidly deteriorating- usually a person is immobile and barely drinking or eating at that point though. (It's a very sad time to meet CHC fast track criteria )

Devon1987 · 24/08/2021 22:08

You need to tell your dad it’s a flat no. You will be knackered and trying to bond with your baby, you will never get this time back.
He needs to come up with a suitable plan that does not involve you.

longhours · 24/08/2021 22:12

Here's the ChC checklist (initial assessment report)

www.gov.uk/government/publications/nhs-continuing-healthcare-checklist

If you scroll down to related content the other documents including full CHC assessment DST document for those who have a positive CHC checklist (this is not the CHC fast track end of life process which is a decision by consultant or GP, nurses often complete the forms for GP to sign off on)