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Elderly parents

reached end of tether

131 replies

Mightybanhammer · 21/01/2018 18:43

Hello

I posted a while ago about Mother being confused and getting up in night thinking morning and that I had to call doc for chest infection.

It has been an unbelievably awful few weeks since then and I just need to vent. I am an only child and live alone, no children, she has literally no other family but me , and I feel like I am sinking. I live about an hour away from her and work an hour and a half in the other direction.

The chest infection was pneumonia and she was also treated for a heart condition. Eventually declared fit to discharge after ten days but I refused without appropriate care as she had deteriorated so much mentally. After a huge amount of faffing and poor communication got carers in three times daily but quickly clear this was insufficient. She needs prompting to do every little task. How much genuine, how much psychological no idea. Started looking at residential rehab to get her back on feet, learning to do simple tasks etc, and arranged an assessment.

In meantime, I have been trying to keep my full time job going in between visits. I share an elderly dog with my former d h. He rings me on day five of all this to say he is being taken into hospital himself with joint infection, can I take the dog. So I have the dog and organise my friend to walk him. She returns from walk shaking and crying. Dog has bumbled to the edge of a massive drop and she only just grabbed his collar in time.

Dog starts to deteriorate physically and mentally - missing my ex dh and shock from the incident. Off to vet. More painkillers prescribed. Dog suddenly become frail over night and barely eating. Knocking furniture over at night etc.

Meanwhile the men arrive to dig up a gas main, need access to the house and my yard. Cue two days of drilling and hammering ( have been working at home) I now have an inelegant array of pipework across the back of my house.

Nurses came to do the assessment for the residential rehab after she had been out hospital. four days,but when tried to get out of her chair she literally screamed in pain. Doc called and suspected fracture. Ambulance men had to give her gas and air. Back to hospital.

At this point I was absolutely spent and didn't go with her. X Ray and ct scan - no fracture after all, but still in severe pain, so has been sent for an mri. I have been googling and have my suspicions but I am not a medic, so will see what this week brings.

I have decided I must go back to the office this week, despite the long commute , for my own sanity if nothing else.

Put wheels in motion to register the EPA. Investigating continuing care and attendance allowance. I thought she received it but I dont think she does. Also getting a form to put her name on the care home list ( where my Dad went)

There is a massive pile of unopened post at her place which I just can't bring myself to tackle.

Feel am losing my mind myself. Have been having to drive around with the poor dog in the car as he isn't fit to be left alone. At one point I glanced in the mirror and was convinced he had died - he was so completely motionless.

At wits' end. Any advice or suggestions very welcome. It's all very very shit.

OP posts:
Fortysix · 25/01/2018 15:51

For what it's worth just try to go with the flow with what the medics and social workers are saying /doing. Giving them a hard time will not make mum better or make your life easier. Don't put up a fight.

It's good that your mum did fine on the cognitive tests. This is beneficial when you still don't have POA. Above everything else you must get Power of Attorney sorted in the next few days
Absolutely make it your priority. The 'window' of being able to achieve it is rapidly diminishing. Without it you will have a very protracted journey of trying to regulate her financial affairs should she go into residential care. Honestly get as soon as humanly possible. I speak from experience. As she passed the cognitive tests at the beginning of the week you can relay that she has still got capacity to your lawyer. [Don't elaborate and give him/her your opinion.]

If you can try and adopt a new mantra ... Path of least resistance . When you are feeling as fragile and as exhausted just achieve what you need to each day and don't go beyond. It's the best way to get through a tough time. Flowers

Mightybanhammer · 25/01/2018 16:10

I need to get original sent from solicitor. Have got a letter she signed yesterday to get them to release it to me. Then reg process can take up to ten weeks.

I only triggered my father's when he went into residential care and there were no problems then.

There will be issues as it is an old style one where you have to notify two other family members.i am her only family but sols advised putting a family friend down and explaining situation in covering letter.

I do understand what you mean about not fighting. It is just that. i did that last time- persuaded to agree discharge when I knew it wouldn't work and I was right. This time I want to understand why they are making the decisions they are making.

I am always very polite and calm. I vent on here.

OP posts:
Fortysix · 25/01/2018 16:46

Phew. POA is under way that's a huge hurdle but genuinely keep at it. I have Guardianship of my mum jointly with my DSis. It has been a nightmare and continues to cost several thousand pounds every year & we have to record every penny we spend and file accounts. Don't get me started on the system or on my annoyance with my parents for refusing to acknowledge this might one day happen...

I'm not surprised you are venting if she failed you at your time of crisis. [Sorry if my post sounded a bit patronising.] It's an incredibly emotive period and so when there's an undercurrent of feeling let down doing all this with a smile on your face is incredibly difficult

thesandwich · 25/01/2018 17:28

Mighty I am so sorry that you are fighting on so many fronts and your poor dog...... hoping the vet visit is as good as it can be.
And please please take some timeout- conserve your energy, what little you have for what must be done. Poa as forty is wisely says. Ensuring dm is not discharged. Caring for your dog and for you. The rest can wait. Andrant away here.

Mightybanhammer · 25/01/2018 18:04

It's ok forty you weren't at all patronising. PoA has been in place for years thankfully. That wasn't entirely clear from my post. Just a matter of registering it now. Family solicitors are very helpful and not at all obstructive, which helps. And thank you sarnie :)

She is anaemic so they are giving extra iron. Although O T thinks she is ok to discharge to rehab, the medics won't discharge her till satisfied with bloods. They think the groin thing is a blood clot and I think on meds for that but I might have misheard. ( was at a very busy station when they rang back, law of sod in full swing of course.)

Left work at 3.30. Working at home tomorrow round vet visit. Then one visit only at weekend. The other day will be spent under duvet with my ( thankfully healthy) cats.

OP posts:
thesandwich · 25/01/2018 19:52

Mighty that sounds a very good plan. Hope the vets goes as well as possible and the duvet with cats sounds perfect.

Mightybanhammer · 26/01/2018 12:29

My poor old boy was put down today. Died in my arms. Why is thus nightmare happening when wil it stop

OP posts:
thesandwich · 26/01/2018 12:50

Oh mighty I am so very sorry. You must be heartbroken. Losing your dog who adored you while having to fight for a mother who never did- it is heartbreaking. I have no words. But an enormous hug and a fistful of tissues.

Fortysix · 26/01/2018 12:55

Oh gosh, that is really sad and I send you huge amounts of sympathy. Can't tell you when it will end but you will come through it all.
It's not fair when all this happens at once. Really not fair at all.

Mightybanhammer · 26/01/2018 15:46

sarnie That is it. Nail hit on head there. Why? He never hurt a soul. Such a sweet and gentle and loyal dog. I keep seeing his things and crying. And all his food. Food bank I suppose or a shelter. Friend coming round later to cook my tea or get us a takeaway and bring shopping. She is great but is grieving too. She walked him and loved him too.

OP posts:
thesandwich · 26/01/2018 16:23

🌺🌺🌺🌺🌺🌺🌺🌺🌺

EssentialHummus · 26/01/2018 16:34

I’m so sorry mighty Flowers

Fortysix · 26/01/2018 22:18

Lovely friend. Hope you and you and your friend have had a good cry together. Flowers

Mightybanhammer · 27/01/2018 07:31

The sheer ferocity of my grief is exhausting. I was literally howling last night. Neighbours must have heard. Do I say anything. Passed out last night in the end and have woken hungry so made bowl pasta with mushrooms and the rest of his chicken I got him to try and get him to eat. Now can't eat it. Wish I could sleep. My friend is in spare room. I think I am worrying herwhy is this happpeninng

OP posts:
MyPuppyIsADick · 27/01/2018 10:47

So sorry OP Flowers

Fortysix · 27/01/2018 10:58

Say nothing to neighbours
Be good to yourself. Eat when you feel like it.
You will get through it but for now just don't put any pressure on yourself to do anything other than rest

Mightybanhammer · 27/01/2018 21:53

My friend told neighbours who were very kind. Can't eat everything tastes blank.

OP posts:
notaflyingmonkey · 28/01/2018 08:37

Hi Mighty this all sounds exhausing for you. Flowers. Bursting into tears at work is not good, as it really indicates that your stress levels are dangerously high - please consider some sick leave.

I went through something similar with my mother last summer and my GP got me onto online therapy - it was an hour a week in the evening, and really helped me deal with the issues that her illness had thrown up.

Unfortunately the various professionals involved in care hospitals tend not to operate in a joined up manner (in my experience), so it is worth trying to deal with one senior person, and get them to deal with the others. I managed that with the senior OT re mum's discharge, otherwise my phone kept ringing with conflicting bits of info.

And keep a diary - who said what and when. It means that you can keep things straight when you are struggling to remember your own name!

Good luck, we are here to help.

Mightybanhammer · 29/01/2018 18:16

Hello again,

I have had a dreadful few days as only dog people will understand.

Today I feel a bit better. News on the Mother front has improved. She is out of hospital and in the rehab place.

I have told her visitors to say I have a tummy bug and can't visit. Her friend has seen her settled in and will take in stuff from the house she has asked for. Is quite perky apparently.

Asked the friend if Mother had any messages for me and there was a very long pause. Awkward..

The thing with these dysfunctional relationships is that you always hope sometime they will transform . Never going to happen.

Meanwhile my dog who adored me as I did him is dead.

OP posts:
user764329056 · 29/01/2018 18:25

No great words of wisdom OP but just wanted to say can completely relate to all you’re going through, I was live-in carer to my dad and it nearly broke me physically and mentally, like you I just wanted some help, who cares for the carer? It’s an unbelievably stressful, lonely, soul destroying situation that only those who go through it can truly understand, please try to take care of yourself xxxxx

Mightybanhammer · 29/01/2018 18:42

Thank you user . I have such admiration for family carers. There is no way I could do it, and nor do I want to try.

OP posts:
thesandwich · 29/01/2018 19:56

So glad you are feeling a bit better mighty. Sounds like your dm is where she needs to be and you can check in via her visitors. Stay away until you feel stronger. I really understand what you say about messages etc- however much our rational self knows our dp is unlikely to change we still crave that validation/ appreciation/whatever from them and it still hurts when none appears. Be kind to yourself.

Mightybanhammer · 29/01/2018 20:39

Thank ypu sarnie. You understand the whole situation don't you. Thank you.

Had a shower and hair wash today. First tiime for days,

OP posts:
thesandwich · 29/01/2018 21:17

Sadly I do understand- i like many on this board have been there/ are living it and have got the t- shirt.....
So glad you had a shower etc..... it makes a difference. Baby steps..... and put you first.

Fortysix · 30/01/2018 11:33

How are you doing today? Hope you had a better night.

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