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Parents of kids with ARFID - community support and getting your voice heard

1 reply

CreativeARFIDmum · 19/03/2026 20:19

I'm trying to connect with other parents with children with ARFID. It's isolating and so scary at times.

If you're caring for a child with ARFID, this one's for you.
As a parent carer myself, I know how hard it can be to find community, to find people who get it. Because of this I'm also an MA student exploring whether creative projects could bring ARFID families together, reduce isolation, and create real support.

But I want to hear from others to understand more experiences: what community looks like for you right now, what gets in the way, and what we actually need.

The survey is 8 questions, takes about 5 minutes, and is completely anonymous.

👉 form.typeform.com/to/HNoqT9Qj

Every response genuinely shapes what this becomes. Thank you 🙏

Also, please do leave comments and we can share ideas, resource, vent, encourage etc

OP posts:
CreativeARFIDmum · 19/03/2026 20:19

Has anyone had trouble getting school to understand?

OP posts:
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