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Dementia and Alzheimer's

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Not understanding why she needs residential care

33 replies

TheRemainsOfTheDayCream · 16/08/2026 12:25

My aunt (82, dementia, physically frail) has been in respite care for four or five weeks and is feeling much better thanks to the care. She's eating properly, taking her meds, etc. The next step is to get her into a permanent residential home nearer family. However, she is adamant that she doesn't need care and can go home. When she was at home, she was living in squalor, not eating, drinking too much, etc. She had carers, briefly, but shouted at them and sent them away. Since moving into the care home, she's eating properly, taking her meds, etc.

She's getting really cross with me about the move to permanent care and I don't know what to do or say. She says she is better now so she should go home. I have never been blunt enough to say 'You have dementia and it's going to get worse', but I'm tempted. However, she will just forget I've said it, so it's pointless, really. And she has no insight into her condition, which I believe is quite common with dementia.

Can the social worker override it if my aunt refuses to go?

Next week, the manager of the prospective care home is visiting to assess her and I know my aunt will tell her she doesn't want to go. What happens then?!

This must be a common problem. How do you deal with it?

OP posts:
TheRemainsOfTheDayCream · 16/08/2026 16:15

@TonTonMacoute - my aunt wasn't managing her personal care or keeping the house clean and social care know this. I have shocking photos if they need reminding.

I agree with you that the elderly are not always grateful recipients of care. And families are not always in a position to offer care themselves. I did briefly consider bringing my aunt home to our little house, which is already at capacity. DH quickly put me straight on that.

OP posts:
TheRemainsOfTheDayCream · 16/08/2026 16:17

@WhyIsItAlwaysDownToMe - that's clever and I will bear that tactic in mind. Thank you.

OP posts:
TheRemainsOfTheDayCream · 16/08/2026 16:18

@ForPinkDuck - thanks for this information. I'll mention this to the social worker.

Yes, at least she's safe, even if she's not happy.

OP posts:
TheRemainsOfTheDayCream · 16/08/2026 16:19

@Cheese55 - noted, thanks. I will ask the social worker.

OP posts:
Cheese55 · 16/08/2026 16:26

TonTonMacoute · 16/08/2026 15:41

We found it impossible to get a diagnosis of loss of mental capacity for MIL, and in our experience adult social care prioritised her wish to return home over our opinion that she couldn’t manage - she had dementia and Alzheimer’s which made her very confused and paranoid, but she was still looking after herself in terms of cleanliness.

Although things vary regionally, I agree with PPs there is almost nothing you can do at this point. When people assert that ‘the families must do more to look after their elderly’ they assume that the elderly are all grateful and cooperative recipients, and that’s not always the case.

The Adults opinion will always override the families if the person has capacity. Adults can still have capacity with dementia.

m030978 · 16/08/2026 16:44

We spun it as 'you've made sure we've been looked after for all these years, now its our time to make sure you're happy and safe. You no longer need to struggle with cleaning or cooking or washing up or getting washing on the line, its all done for you. You just have to eat good food and be pampered for now.'

Fgfgfg · 16/08/2026 16:46

Have a look at the Dementia UK site. They have useful information on what the local authority powers are - mental capacity and best interests assessments plus reaching the threshold for them to authorise a deprivation of liberty (dols) which allows her to be placed in a home for her own safety and wellbeing.
https://www.dementiauk.org/information-and-support/financial-and-legal-support/mental-capacity-and-decision-making/&_gl=1gdmlta_upMQ.._gs*Nw..&gclid=9ea2b516c57a1eb61c99df9712b49a59&gclsrc=3p.ds#assessment
Sorry about the long link.
The Age UK site has lots of useful information about the financial side of care needs. https://www.ageuk.org.uk/information-advice/care/paying-for-care/paying-for-a-care-home/
If she is assessed as not having capacity then you can apply to be appointed a deputy to help manage her affairs. https://www.gov.uk/become-deputy

TonTonMacoute · 16/08/2026 16:51

Cheese55 · 16/08/2026 16:26

The Adults opinion will always override the families if the person has capacity. Adults can still have capacity with dementia.

I know. That is exactly what I have said in my post, to warn OP it's surprisingly hard to get. I'm not sure why you thought it needed clarification from you.

@TheRemainsOfTheDayCream your DH is right. She will have to go into care eventually and it's far better to do it sooner rather than later and if she wants to be in her own home she's not going to want to be in anyone else's either I'm guessing.

If you have no control over situation, as we didn't, the decisions are simply made by adult social care. In our case MIL was discharged from hospital with no care package in place, no one had visited her house to make sure it was suitable. It took two of us now hour and a half to sort out her medication for the next seven days (and we still made one mistake) and within an hour she had fallen and we had a six hour wait for an ambulance.

One thing t hat might be worthwhile if seeing if there is an online forum for carers in the area your aunt lives, as they will have information specific to how things operate in that local authority area.

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