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Frugaleers March On!

999 replies

CremeEggThief · 24/02/2016 21:25

Hi All,
New thread time. I hope you all see this and join in. Newbies are always very welcome tooSmile.

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fuzzpig · 02/03/2016 14:45

I agree with Creme as well, the higher functioning end is harder to diagnose, and 'symptoms' often don't show until later, as things like socialising at school become more complex and demanding (people with ASD often have to intellectualise social behaviour - it doesn't come naturally, we have to observe and copy, for me it's like having algorithms). 'Normal' autism (IYSWIM) can be diagnosed in a toddler.

Also like Creme I am of the opinion that both of my DCs are on the spectrum. I'm not chasing a referral just yet. DS I think would be diagnosable - he's 6 and a half and things are starting to get a little more obvious. DD is very very mild, most of her issues come out as anxiety and we are working on that anyway. As my own specialist said, she has me as a mum, so because I 'get' them anyway it's not really a problem.

Anyway I can see why it is scary - it's a big thing. At the same time it's not really a big thing at all IYSWIM? It's just a difference. It's not bad.

Either way, your DS sounds like an awesome little lad and he's got a mum who's looking out for him - can't ask for more than that. I love reading your posts about him :)

Ipsos · 02/03/2016 14:55

Thanks Fuzz Lilac and Creme. These are very useful perspectives. :-)

I suppose also if a child is asd then it's not like it's going to get worse is it? In our case, the worst that's going to happen is that he'll grow up like the rest of the family and that was what we were expecting anyway. Why would I worry about that except that the school wants to give it a name?

Thanks for not minding my wittering here. It's so very helpful. I am trying to think of something frugal to say, but I've spent nothing. (ironic)

fuzzpig · 02/03/2016 14:55

What I also meant to say re: the intellectualising social stuff, is that it is exhausting, because you have to think so hard about it. This is one of the reasons people with ASD may be more 'wrung out', exhausted or close to meltdown after being in a social situation.

Thanks re: the work idea. I am proud :)

I think I'll be able to put some of this - dare I say talent?! Blush - to good use with home ed though despite not being at work. I'm planning an event for next year that has been jumped on enthusiastically by the HE community :) and have ideas for a regular class, which I hope to run for a little extra income when I'm well enough.

Ipsos · 02/03/2016 14:56

Fuzz yes I do that in social situations so I know what you mean. Sometimes it takes me days to work out what I should have said in a conversation. [Smile]

lilacclery · 02/03/2016 15:01

I think this is normal ipsos I often think of an appropriate response to a conversation or comment days later Smile

needastrongone · 02/03/2016 15:20

I agree, that's totally normal. And, in a way and to a greater or lesser degree, we all have to intellectualise how to behave in a social situation. Right from early childhood. And starting with small things like learning bashing another baby over the head with a plastic toy is not appropriate behaviour Smile. It just gets more subtle to learn and to teach as we mature.

Creme Really interesting stuff about your DS. My DN has an actual diagnosis of high functioning aspergers. It very clearly comes from my brother (who is 'too old' to have been diagnosed in childhood) DSiL has also worked incredibly hard doing all the stuff you list to ensure he functions as 'normally' as possible. Honestly, the difference in him from early childhood is incredible. Well done for working so hard with your DS. I am incredibly fond of my own DN, but he was bloody hard work before they did all this.

My own mother just closeted DB, wrapped him in cotton wool, and made the problem so much worse. Strangely, my other brother and myself were just left to get on with it, so we kind of brought ourselves up, found our own friends and were out and about playing with our mates. Nature and nurture, a fine line.

Ipsos, from your posts, I see no reason to change my view that your DS is a lovely, energetic, outward going little soul Smile. I think he maybe just needs practise at doing all the social stuff. I was also thinking that, as he's an only child, from a small extended family, that this might be doubly important.

WreckTangled · 02/03/2016 15:42

So I went to get dd from the bus and took the bin out on the way, stepped out the door and the fucker split. The whole lot went everywhere it's pissing it down with rain and so windy. It made me glad we don't waste much food but there's a lot of squashed peas outside my door Hmm I got most of it though.

CremeEggThief · 02/03/2016 15:45

Thanks Need. I agree as my DS is also an only, I really wanted him to learn to be more sociable, and I am glad I started early with that, as it took him a bit longer with some things than most children, but by 7, he saw the value of fitting in and conforming. At the end of Year 6, an educational psychologist diagnosed that there is a huge problem with his processing skills. He is very bright, but there's a big mismatch between his intellectual ability and how quickly he comes to terms with processing information, basically. I don't know if there's a special name for it. I let the teachers know when he transferred to Year 7, but he doesn't get any extra help. If I give him instructions, it's like telling a young child, only 1 or 2 things at a time, as he just can't take any more in. I do.my best to stay patient, but I don't always manage. I only told him about it about a year after he was diagnosed, and he has sometimes used it as an excuse.

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CremeEggThief · 02/03/2016 15:46

Yuk! I'd hate that, Wreck. Yuk!

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WreckTangled · 02/03/2016 15:48

I had to pick it all up with my bare hands! Last time I ever buy lidl bin liners Angry

Colliefeatures · 02/03/2016 15:59

Just did my Tesco shop. And delivery has gone up by 150%!

Sad
fuzzpig · 02/03/2016 16:13

Yes to some extent it is normal, like the 'I wish I'd said...' and of course children have to learn/be taught in the beginning :) it's just that when it never becomes 'second nature' that it becomes a problem.

I know I'm sounding a bit defensive now sorry :( Blush - I have lately heard lots of people come out with the gem "oh everyone's a little autistic" which I HATE because it totally minimises the struggle that people with ASD face just to keep up with a conversation etc - it is difficult and exhausting and very demoralising when you get it wrong. Everyone might have some similar traits but that doesn't mean they are autistic!

[end rant]

Creme I can't remember the name but I know what you mean! I think I'll try and buy myself a copy of the Aspergers book sometime as it will be very useful to refer to. Have a google of 'weak central coherence' as I have a feeling that may be relevant.

needastrongone · 02/03/2016 16:18

fuzz Sorry, I didn't mean my post to sound like that, I am sorry if it came over that way. I just meant that nothing in the posts that ipsos makes would make me consider her DS to be autistic, just my point of view, given my DB is and my DN both are. He just might need (and I am sure that he will get) lots of practise at 'social skills' for want of a better word.

needastrongone · 02/03/2016 16:20

creme My DB is exactly the same, it drives DSiL mad at times too, even with the best will in the world. She sometimes finds herself just doing stuff herself, which isn't ideal.

needastrongone · 02/03/2016 16:21

I meant the 'taking instruction' observation, sorry.

AdoraBell · 02/03/2016 16:21

NSD

fuzzpig · 02/03/2016 16:22

Also just wanted to clarify I'm not armchair diagnosing miniIpsos :o as need was saying everyone needs to learn all this social stuff - it may just be that he's taking a little longer, nowt wrong or unusual in that. They start so young at school (my DS turned 4 less than a week before he started reception FFS) I do think expectations are unfair.

Now can somebody kick me off the internet and make me tidy the living room? Please? Blush

Pointlessfan · 02/03/2016 16:25

Yuck, wreck! I couldn't face taking the bin out at all today, hideous weather. Just spent £4 today in Hobbycraft. I found a mini cross stitch set for £1.59 so thought I'd have a go, haven't done cross stitch since school!

fuzzpig · 02/03/2016 16:27

Nooo need don't worry you haven't upset me :) 'twas me reading my own issues into your post! Blush It's all a bit raw still since my diagnosis (my parents haven't quite accepted it which has been difficult for me to deal with).

I think really we are singing from the same hymn sheet - miniIpsos is a sweet little dude and needs a bit of extra help with navigating the often confusing maze of social interactions.

(Sorry Ipsos I'm talking about your DS like you aren't here! Not intentional!)

DD just made scrambled eggs all by herself :)

fuzzpig · 02/03/2016 16:30

Ooh Pointless I tried cross stitch when I was younger, don't think I've ever finished one. I tried a game on Facebook called Cross Stitch World - basically like colour by numbers, so not my kind of game, BUT you can upload a photo and it'll convert it into a cross stitch template. I'd really love to try cross stitching Starry Night as it's DD's favourite. Would need about a gazillion types of blue thread though!

CremeEggThief · 02/03/2016 16:31

Yes, Need. I often end up doing things I should be making DS do, as I lack the energy or patience involved in explaining what or how to do something.
Thanks Fuzz. I'll google that. It wasn't really followed up, so I only have a basic understanding. I was relieved the diagnosis confirmed that it was beyond the selective deafness all DC show at times, if that makes sense.

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Ipsos · 02/03/2016 17:14

Thanks for all this. It's really useful to know that having to think about what to say is neurotypical and that having trouble following conversations is asd. I had no idea about that. I'm definitely able to follow conversations.

I just had parent's evening with ds's teacher and she was incredibly helpful and said if he was her child she wouldn't get him assessed unless she felt he wasn't coping. We don't feel that he isn't coping and I don't feel that he has asd so I think we will just keep stooging on with the playdates.

She said possibly I should just leave him unsupervised with other children for a few minutes sometimes and gradually work up, which seemed extemely sensible advice. She said it's okay for him to gradually find his own way, a little bit without having to do it a lot immediately. Lovely teacher. Smile

Thanks so much for all this discussion. It's been so immensely helpful. I'll try to think of something frugal to say really soon. Sorry for the diversion.

fuzzpig · 02/03/2016 17:26

I am quite sure that with this sort of thing, it's only a problem if it's a problem. If that makes sense.

I'm so glad parents' evening was helpful, sounds like great advice :)

And no apology allowed for diverting :) this thread is always supportive to everyone which is why I love it so much. It's not just about money. Brew

Pointlessfan · 02/03/2016 17:33

That sounds positive ipsos. Starry Night is one of my favourites too fuzz, it would take a long time to embroider! A friend of mine does amazing cross stitch, she's done them as gifts for all our weddings, babies etc. I don't think I have the patience for it but we'll see!
Just remembered we had our piano insured separately but it's visiting a relative for the foreseeable future so I can take it off, I wonder if our premium might go down a tiny bit??

Ipsos · 02/03/2016 17:43

Thanks Fuzz, yes I see what you mean. :-) Glad it's been okay to divert a bit. Smile