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Does anyone work with long covid? How?

13 replies

Greedybilly · 27/04/2026 09:54

I started at 3 day job last week. Had long covid for a year- thought I'd improved. The week was a disaster- just wanted to lie down/sleep all day was trying to look enthusiastic. Was awful no memory or concentration. Do I just quit?

OP posts:
Greedybilly · 27/04/2026 11:36

Anyone?

OP posts:
DisforDarkChocolate · 27/04/2026 11:39

Not officially. I think I had COVID last year, I felt too ill to even organise a test. Since the the brain fog is the main issue I have and I'm really struggling to stay in work, even self-employed. It's bloody awful not feeling like you are the person you once were.

Greedybilly · 27/04/2026 11:44

@DisforDarkChocolateI hear you! It's just the most horrible thing 😪

OP posts:
DisforDarkChocolate · 27/04/2026 13:10

Greedybilly · 27/04/2026 11:44

@DisforDarkChocolateI hear you! It's just the most horrible thing 😪

It's definitely messing with my mental health, I feel like I'm letting everyone down by being the new half-arsed me who keeps forgetting stuff.

It is a first week though, is some of it that normal stress and perhaps some unrealistic expectations on your behalf? I have a few good weeks and always think I'm better, what it is though is just a few good weeks. Bloody annoying.

MissDixieVoom · 27/04/2026 13:58

I have it, but it’s my chest that causes problems. Still got to earn the money, though.

RuddyLongCovid · 16/05/2026 23:19

I am self-employed and choose my own hours.

Tealeef · 26/08/2026 19:08

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Pistachiocake · 26/08/2026 19:15

Can you speak to your union about whether Occy health would support? Is it classed as a disability, and would you be entitled to any help?

catonthebeds · 07/10/2026 20:32

We have a team member with long COVID - she works fully remote and very flexibly. A certain amount of hours per week to be worked over four days. This lets her take rests as she needs them and also she might swap her days sometimes if she is feeling a crash coming and wants to take (for example) a longer weekend.

She has also had two periods of extended leave and after the first one our manager built in some extra resource which we can pull on if we need to when this colleague needs time off. So we are fortunate that we can be accommodating to her needs, because she's an excellent and experienced member of the team.

BravebutBroken · 07/10/2026 20:33

I have long COVID. Amongst a whole host of conditions that were exacerbated by COVID and unlikely to be treatable. I wasn't able to work for 5/6 years but relatively recently started some very flexible work. I'm about 8 months in. Started with 2 x 5hr shifts a week and I'm now managing between 15-20 hours a week. It does require a very flexible employer though. I need different mobility aids on different days. Or the ability to work from home when needed. Or decide I'll try again tomorrow. It's a very fine balancing act! Apparently access to work can be very useful, although I've not needed to try that yet. Hope you have an understanding employer and on your better days they can see your potential and that you're worth the flexibility for 😊

Greedybilly · 08/10/2026 15:30

Thanks for recent comments. I went back for 5 months part time but left last month. No amount of adjustments could help as I was just so ill- am going to spend a few months getting better ( hopefully) then apply for something next Spring. Was nice being 'normal ' for a bit and sad to leave but no choice.

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aliasfrog · 08/10/2026 16:02

Don't push yourself op, you need to pace and rest more. If you have the option not to work then absolutely take it.
I can work part time but it's hard. I've taken lots of extended leave. Thankfully my workplace are supportive but it's so so hard.

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