Itch, rash, autoimmune HELP!

[Covidia]

Has anyone had this??

I had Covid 2x in 2020. Had dodgy bloods after, persistent bladder infections, dreadful fatigue… all the usual long covid symptoms. On antibiotics 6 months.

Infected another 2x this year; Spring and Autumn. 3 months down first time, only a few weeks second time. But then I broke out in a full body rash, unbearable itching, it’s even on my face!! Gone on a month now, with nausea and fatigue.

Been told Covid is either triggering autoimmune issues that are temporary (long covid), or an autoimmune disease I’m predisposed to.

I feel wretched and miserable. What do I do?? Anyone gone through this? It’s awful.

Have you had any blood tests? Itching can relate to an autoimmune but likely to show up in lft.

Does the rash subside with anti histamine?

Yes had blood tests, and they’re dodgy, creatinine level slightly heightened too. They are repeating them every few wks. Have been referred to rheumatology since it all started…

The only thing that calms it completely and makes me feel semi human is prednisolone. Had two courses and wanting to phone tomorrow for another it’s horrendous.

The only thing I can say is that it does eventually go away. I had covid badly in 2020 and immediately broke out into an uncontrollably itchy rash around my mouth. It lasted a year, sorry.
Despite advice not to, I used the thinnest layer of mometosone ointment about once a week, nothing else would take away the itch.

I too had bladder issues, resolved with HRT and taking homemade bone broth every morning with two spoons of high quality collagen powder. In fact, this may have helped the rash too.

What collagen powder did you use @stirling

I buy one that comes in a dark brown glass bottle, from Ocado. It's called Ancient something or the other. Brilliant stuff and I've tried a few! One jar lasts me around a couple of months.

Thanks

www.ocado.com/products/ancient-brave-true-collagen-449098011

I’m going to try it too. I’m so exhausted, can’t sleep comfortably. I have itched my pjs thin!! It’s everywhere on me, the big patches have gone but quite bumpy and some red areas still especially at night.

I think it may be pityriasis rosea as it’s identical and known to be associated with covid… I hope it ends soon. ☹️

covidskinsigns.com/tag/pityriasis-rosea/

Have rheum looked at vasculitis? That can cause a very similar rash. Is your crp level raised?

I had pityriasis rosea that was triggered by a covid booster (have preexisting health issues and was struggling with long covid at the time) Was covered from head to toe, It lasted about 2 months but was manageable with strong antihistamines and steroid gel. The itching was awful to start with but calmed down after a couple of weeks.

I’ve been on a waitlist with rheumatology for two years since the bladder issues. The rash is since November. Wait is another 4 years so I’m going private in jan, can’t cope with it any longer.

I need to get a cope of my bloods, they are due to redo them shortly too.

@Woolandwonder yes I wondered was it vaccine related but the last one I’d had was December 2021… I had a booster 2wks post rash and it didn’t make it any worse.

From what I can see of lit they’re saying pityriasis roses is considered to be a cutaneous market of covid, but equally can be a side effect of booster. For me I would suspect the former as it preceded the booster.