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How do I get my CEV child a covid vaccine. She is 12

72 replies

worktrip · 14/07/2021 20:14

Just that. I called my GP and got nowhere. Is there a number to call. She has a paediatrician and a neurologist.

OP posts:
Comefromaway · 17/07/2021 13:17

A young girl we know who is CEV had to wait until her 16th birthday.

Orf1abc · 17/07/2021 13:17

@BuggerOffAndGoodDayToYou Autistic people are in group six because, statistically, they have a much higher likelihood of severe illness or death, something like eight times higher than others. It's nothing to do with mask exemption.

(Not everyone with autism is more likely to die if they get covid.)

nhy21 · 17/07/2021 13:29

it's not approved for children here and anyone found injecting under 18s in the UK would be in a shitload of trouble.

I know of two 16 year olds (in England) that have had their vaccinations; neither has any medical issues that would qualify them on these grounds. One was volunteering at a local vaccination centre and they gave it to him there. The other through a walk in clinic I think.
Personally, I have reservations about my kids having it but it must be approved for under 18s or they wouldn't have been offered it.

nether · 17/07/2021 14:08

It's approved for 16/17 yos who are group 6 (CV or household of CEV), young carers or employed as HCPs - it's stretching the point a bit, but I dare say you could count vaccine centre workers/volunteers in that category, especially for end-of-the-day jabs

It's approved as for use for 12-16 yos who are themselves CEV on an individual off-licence basis, at lead consultant's discretion and within pretty tight prescribing guidelines.

(I think they should make it all 12+ CEV, and their 12+ siblings asap, even if they want to take longer to decide about other 12+)

MyDcAreMarvel · 17/07/2021 14:30

@nether group six 16/17 are households of immune compromised not just any CEV.

nether · 17/07/2021 14:31

[quote MyDcAreMarvel]@nether group six 16/17 are households of immune compromised not just any CEV.[/quote]
You're right!

Sorry for missing that out

BuggerOffAndGoodDayToYou · 17/07/2021 14:39

[quote Orf1abc]@BuggerOffAndGoodDayToYou Autistic people are in group six because, statistically, they have a much higher likelihood of severe illness or death, something like eight times higher than others. It's nothing to do with mask exemption.

(Not everyone with autism is more likely to die if they get covid.)[/quote]
That’s interesting. I suppose the person who told me it was because autistic people didn’t have to wear masks (at the vaccine centre) didn’t really know then.

I’m surprised he counts as clinically vulnerable TBH as he is very healthy, he just doesn’t process things quite the same way as other people. We certainly never got any communications about him being vulnerable. The first we knew of it was when he was invited for a vaccine.

Comefromaway · 17/07/2021 14:47

My 17 year old autistic son can’t get vaccinated.

aldkj · 17/07/2021 17:06

@nether

It's approved for 16/17 yos who are group 6 (CV or household of CEV), young carers or employed as HCPs - it's stretching the point a bit, but I dare say you could count vaccine centre workers/volunteers in that category, especially for end-of-the-day jabs

It's approved as for use for 12-16 yos who are themselves CEV on an individual off-licence basis, at lead consultant's discretion and within pretty tight prescribing guidelines.

(I think they should make it all 12+ CEV, and their 12+ siblings asap, even if they want to take longer to decide about other 12+)

It's approved as for use for 12-16 yos who are themselves CEV on an individual off-licence basis, at lead consultant's discretion and within pretty tight prescribing guidelines

This bit is incorrect. It is not off-licence for 12-16 since it has been fully licensed for over 12s!
It simply a case that the supply is not being made available to this age groups.

aldkj · 17/07/2021 17:09

It is actually fully licensed for ALL over 12s, no need for special off-license prescribing.
It is just that the supply is ruled by the Green Book (which is not the licence/approval/marketing authorisation) but to do with prioritisation.
The Guardian article I linked to above is quite a good explanation. Vaccine licensed for the age group, but they are not being given it.
They may start with CEV and CV, but not because the license says that, but because the JCVI decides who gets access to the licensed vaccine.

Oblomov21 · 17/07/2021 17:12

I would attack this two pronged.
I would email consultant.
But I would also contact GP or Practice Manager and make her nhs records clearly show CEV. I believe this distinction to be important.

worktrip · 17/07/2021 20:53

I'll update this when I've gone through everything and has a result/refusal, just keep our fingers x

OP posts:
WiseUpJanetWeiss · 17/07/2021 20:58

@greenmacaron

Are you in the UK? If so, you won’t be able to get her a vaccine. They’re only available for over-18s and aren’t licensed in the UK for children, whatever their medical issues. You can’t buy them or get them privately.

It may not be much comfort, but for what it’s worth, there have been very few cases of serious Covid in children, even those with medical issues.

Please don’t post inaccurate information. Pfizer is licensed for over 12s.
WiseUpJanetWeiss · 17/07/2021 21:13

Is P19 of this any help OP? assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/998309/Greenbook_chapter_14a_1July2021.pdf

The Reg 174 thing may be a red herring - that’s the emergency authorisation for the vaccines. Pfizer now has a conditional marketing authorisation (licence) and although all the stock in the U.K. is the R174 product at the moment the licensed Comirnaty branded stock will be here soon.

herecomesthsun · 17/07/2021 22:23

from the Telegraph

www.telegraph.co.uk/politics/2021/07/17/children-will-get-covid-vaccines-vulnerable/

"under guidance due to be issued on Monday, jabs will be offered to children between 12 and 15 who are deemed vulnerable to Covid or who live with adults who are immunosuppressed or otherwise vulnerable to the virus. They will also now be offered to all 17-year-olds within three months of their 18th birthday."

nether · 17/07/2021 22:50

I've just seen that on BBC News channel A looks as if different newspapers have slightly different version, and I'm not sure how they define vulnerable in children.

Not is it yet clear 12+ who have a CEV/immune suppressed parent or sibling will be included. I hope they are.

It looks reasonably clear there wont be mass vaccination of 12+

Chocl8 · 18/07/2021 08:31

@worktrip this Telegraph article above (under a paywall but herecomesthe has kindly typed the words) looks like long awaited good news for CEV/CV 12-15 year olds. Putting 2+2 together it looks like the government was waiting to meet their deadline (tomorrow) for all adults to be offered the jab before announcing (or could be coincidence). Anyway, we’re very happy with this news and will be on to GP the minute this is official. Hopefully tmw! Hope that you get it sorted for your DD asap too.

worktrip · 18/07/2021 09:14

@Chocl8. That looks brilliant news, just hope it pans out for us. I’ll be chasing this up immediately! We are all double vaccinated as carers so it would be great if we can get DD done and reduce any delay with her operation. Little DS is still in school and they are having outbreaks for the first time ever

OP posts:
SoOvethis · 18/07/2021 09:17

I thought the reason autism is considered clinically vulnerable is more to do with if they get sick from Covid how compliant are they about being treated in hospital. I have a son with autism btw - who is totally unaware that COVID is happening.

ExpulsoCorona · 18/07/2021 09:19

OP just to pick up on one of your earlier points. Your Neurologist is not more busy than your Paediatrician. Email both of them and see who comes through first. They are not more busy than your GP but are the more appropriate people to arrange this.

Comefromaway · 18/07/2021 23:17

@SoOvethis

I thought the reason autism is considered clinically vulnerable is more to do with if they get sick from Covid how compliant are they about being treated in hospital. I have a son with autism btw - who is totally unaware that COVID is happening.
Our area are vaccinating some autistic young people under the learning disabilities criteria. Ds is judged not to have any learning disabilities apparently.
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