How do I get my CEV child a covid vaccine. She is 12

[worktrip]

Just that. I called my GP and got nowhere. Is there a number to call. She has a paediatrician and a neurologist.

@meow1989 Thanks. I will phone her paediatrician first as neurologist is a busy person. DD has cerebral palsy so is more seen by neuro. We see the paediatrician annually just to check the cerebral palsy hasn't cured itself lol! She does however get regular updates and knows all the meds.

@3WildOnes Yes, I know someone whole 12 year old has had the first vaccine. If I can't get anywhere with our doctors I'll call her as she is great at twisting arms.

We hope you don't mind, @worktrip but we're moving this over to the Coronavirus topic now.

@greenmacaron

Are you in the UK? If so, you won’t be able to get her a vaccine. They’re only available for over-18s and aren’t licensed in the UK for children, whatever their medical issues. You can’t buy them or get them privately.

It may not be much comfort, but for what it’s worth, there have been very few cases of serious Covid in children, even those with medical issues.

If you are going to reply on threads it would be better if you were actually giving correct information.

Talk to your child’s consultant/paediatrician.

They have the means to get the vaccine to them if they think there’s a clinical need.

So I will email paediatrician and ask for a patient specific directive.

When I have that I will badger the CQC and quote the green book, quote section 4.1, and insist it is given under the 174 regulations. I messaged my friend and asked how she achieved it for her 12 yo.

It's especially important because DD saw the spinal surgeon and will be having scoliosis surgery and my dread is it will be cancelled because she contracts it or she contracts it in hospital post a 7 hour operation. Kicking myself for not sorting this sooner.

@worktrip, this might not work (just to warn you) it depends on your CCG. The Pfizer vaccine has been approved for 12-15 in UK since 5th June but can’t be used until JCVI update advice. It’s currently only allowed if child has severe neuro + recurring chest infection + in residential setting (has to be all 3). JCVI seem to be sitting on this decision. Contact charity are good for up to date info on this topic. Please write to JCVI if you can on this topic as Contact suggest (I have). They need to get a move on and make a decision on this for medically vulnerable children and the more we make noise the better.
(My DD is CEV and Consultants support jab but CCG won’t give due to JCVI guidelines)

contact.org.uk/help-for-families/information-advice-services/covid-19/children-with-health-needs/covid-19-vaccination-your-questions-answered/

[quote Chocl8]@worktrip, this might not work (just to warn you) it depends on your CCG. The Pfizer vaccine has been approved for 12-15 in UK since 5th June but can’t be used until JCVI update advice. It’s currently only allowed if child has severe neuro + recurring chest infection + in residential setting (has to be all 3). JCVI seem to be sitting on this decision. Contact charity are good for up to date info on this topic. Please write to JCVI if you can on this topic as Contact suggest (I have). They need to get a move on and make a decision on this for medically vulnerable children and the more we make noise the better.
(My DD is CEV and Consultants support jab but CCG won’t give due to JCVI guidelines)

contact.org.uk/help-for-families/information-advice-services/covid-19/children-with-health-needs/covid-19-vaccination-your-questions-answered/[/quote]
Oh that doesn't look good as DD has never had a chest infection. I'll still keep trying though

I think best bet is through consultant, but I do think it's difficult one too. I can see no one wants to take risk without approval or guidelines, in case something happens. So, the risk have to be significantly higher against virus compared to the risk of vaccine, and it's up to your dc's consultant willing to take the risk or not.

it's not approved for children here and anyone found injecting under 18s in the UK would be in a shitload of trouble.

This is incorrect my physically healthy but learning disabled 17 year old dd has had both Pfizer jabs as it's fully licensed for over 16s as have many of her 16+ friends.
Consultants also have license to assess individual cases depending on the circumstances of the child's health, I know of a couple of under 12s who have received the Pfizer vaccine.

• sorry that should have read under 16s not 12s

My friends daughter is 14 and Clinical vulnerable. They had to go through a few hoops to get her the jab but she has had the first now ans due the second.
They spoke to her doctor and Gp - I may not be 100% but she had it I think in the hospital type setting not in a walk in type place.
My other friends 17 year old CEV daughter has had both again through her consultant she had in the normal setting though.
Whether it’s just our area that supports it I’m bot sure?

Same issue here, DD is 15 and has cerebral palsy and autism. Got absolutely nowhere with GP

@greenmacaron

Are you in the UK? If so, you won’t be able to get her a vaccine. They’re only available for over-18s and aren’t licensed in the UK for children, whatever their medical issues. You can’t buy them or get them privately.

It may not be much comfort, but for what it’s worth, there have been very few cases of serious Covid in children, even those with medical issues.

This isn't true. Some under 18s have already been vaccinated in England as their consultants have recommended it. Pfizer is approved for use for 16-18y and also 12+ iirr. It's just not being given to all here in England right now.

OP you would be best speaking with your child's medical team p her consultants etc rather than the Gp.

The Pfizer vaccine is most certainly licensed for over 12s.

A specialist can contact GP and urge GP to organise the vaccination.

The JCVI are being ridiculous. They seem to have appointed themselves as a regulatory authority, when the vaccine has already been approved for over 12s by the actual regulatory authority in the UK, the MHRA.

Btw, all safety data goes to the MHRA not the JCVI, which is just a government-appointed advisory committee for policy etc. The fact that they are not even allowing CEV and CV over 12s access to the Pfizer vaccine already licensed for them is unethical at this stage of reopening.

Speak to the surgeon doing the surgery!!

He will have a view on this and, importantly, the timing ie she could have bad side effects that would impact the superhero date more than whether she has the vaccine!

Op - off mumsnet and on to the large medical community that is involved in your child’s care

Superhero!!

Surgery

Such a lot of false information on this thread. The Pfizer vaccine is licensed for over 12s without restrictions without needing any special authorisation or conditions.
It is the JCVI that are stopping the vaccine being given, not the regulatory authority.
The regulatory authority assessed the benefits and risks when they approved it for over 12s and will be receiving all the safety data from use following licensing. If they had any concerns they would suspend the license (marketing authorisation), which they have not done. So the benefits still outweigh the risks, according to this expert authority.

The regulatory bodies do not assess their like that
The regulatory bodies look at whether the vaccine is safe forX group

The JCVI look at the issue more holistically. Taking in to account risks versus benefits

There is only one regulatory body in the UK, the MHRA. It looks at safety, efficacy and tolerability in the groups for which the vaccine is approved and for the indications approved.

The JCVI are not 'holistic'. They are policy advisers.

@aldkj

There is only one regulatory body in the UK, the MHRA. It looks at safety, efficacy and tolerability in the groups for which the vaccine is approved and for the indications approved.

The JCVI are not 'holistic'. They are policy advisers.

Correct

And in their capacity as policy advisers of course they look at it holistically rather than purely whether or not it has been passed by the regulatory body as safe

And safety data go to the MHRA directly, whether from the public, GP or pharmaceutical companies. That is how post-marketing pharmacovigilance (safety monitoring) works.

The JCVI will not get the data directly. They have no regulatory role and are a committee of various government-appointed people with differing expertise, not all of it medical.

I expect they will looking at factors like whether the UK has purchased enough vaccine and whether the UK has the capacity to run an over-12s vaccination programme. Plus who would be CEV or CV etc.

But none of this requires them to decide whether the vaccine is safe.

In Scotland it needs to be prescribed by their consultant. It won't be given in a vacc centre. So call consultant secretary.