Psoriasis in priority group for vaccine..

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www.gov.uk/government/publications/covid-19-vaccination-care-home-and-healthcare-settings-posters/covid-19-vaccination-first-phase-priority-groups

So on the conditions list for group 6, psoriasis is listed.
I have psoriasis and have never been told I’m
in the at risk group?!
Does anyone else know anything about this!

@DrumsPleaseandTriangleToo
Thought I’d jump in !
I only have it around my ears when it flares I do have a dry round patch in my scalp which has been there about 18 months and a flare on my little toe
But the psoriatic arthritis is mainly affecting my dip joints on my fingers I also have nail changes on hands and feet xxx

Knees are pretty neglected in psoriatic patients, which is supremely annoying and counter-productive considering how important knees are for mobility and quality of life.

My rheumatologist insists that my knee inflammation, pain and inflexibility is 'osteo' (wear & tear). I eventually persuaded him to authorise an X-ray of the worse knee, because I knew the last 'flare up' I had came on far too quickly to be osteo - it felt inflammatory. The X-ray happened 10 weeks ago and he still hasn't looked at it.

I do physio, which helps a bit, but my NHS physio is also frustrated not knowing exactly what type of damage and disease she's working with. Sigh.

This is interesting and does seem to be different from a catch all for immune suppresion. e.g. Crohn's isn't on the list but it is a condition where immune suppression is commonly used

There must be evidence available somewhere in the gov documents about how these conditions were included in the categories.

I have noticed that the studies that have looked at genetic susceptibility to severe Covid include polymorphisms in the TYK2 gene and these are linked with psoriaisis I have read but not in every case. e.g. www.the-dermatologist.com/article/novel-tyk2-inhibitor-treatment-plaque-psoriasis

@time4anothername, yes I think you're spot on with that post.

My current treatment for psoriasis, Adalimumab (also known as Humira or Imraldi) is also a treatment for Crohn's.

Further, a study has shown that TYK2 is an indicator of susceptibility to Crohn's in the Japanese population.

pubmed.ncbi.nlm.nih.gov/19653082/

I'd like to see the government's rationale for the different conditions/cohorts, too.

Help please, seems to be consensus that we should be group 6 even if not on meds/treatment? I had no idea. Whilst in my notes I have psoriasis it is not medicated so should I remind gp I have it? Also more urgent need to know for adult ds as his much worse and he is classed as a key worker (meter engineer) so still has to access people's houses.

@Roystonv

Help please, seems to be consensus that we should be group 6 even if not on meds/treatment? I had no idea. Whilst in my notes I have psoriasis it is not medicated so should I remind gp I have it? Also more urgent need to know for adult ds as his much worse and he is classed as a key worker (meter engineer) so still has to access people's houses.

Yes, according to the current guidance which is all we have to go by, you are in group 6. It does not differentiate medicated and non-medicated. If the condition is on your medical record as a major condition you should be picked up in a GP database sweep of all their patients in those categories. If you think that your condition might not be recorded properly on your record I'd contact the GP to ensure it is (same for DS).

This is all useful to know - I have nail psoriasis and possible PsA and inverse psoriasis but am in group 6 anyway due to moderate asthma.

DH has plaque psoriasis so I will let him know when he is out of his current work call. His psoriasis is mild and usually in areas covered by his clothes and he is medication averse so doesn't take anything for it. It should be on his medical records but I'll get him to make sure the GP knows about it as it's been a good 7 years (and a previous GP surgery) since he last agreed to use any creams for it.

Also, there is a current thread started by someone newly diagnosed with PsA: www.mumsnet.com/Talk/autoimmune_disease/3965446-Psoriatic-arthritis?watched=1&msgid=103530549#103530549

It might be helpful for those who have PsA or may have it.

@IWishTheBishopWell, has he never tried Enstilar? It's a game-changer for many people who have an aversion to other topicals. But you have to wean off it gradually not just stop suddenly.

Thanks for that link.

The Psoriasis Association says that psoriasis does not seem to affect your likelihood of catching covid, but if you are on certain treatments, you might have the disease more severely

www.psoriasis-association.org.uk/psoriasis-and-treatments/covid-19-information#riskofcatchingcovid19

@JamieLeesCurtains - his aversion is a dislike of taking medicines generally rather than not finding meds which work for him. He has been offered various meds by the GP to reduce his migraines etc. but he chooses not to take them, he just doesn't like putting things in his body or on it.

Unfortunately for him I'm riddled with health conditions and happily take the meds I'm offered so he gets to be stressed by how many meds I take

@Madhairday

My DD has severe psoriasis and is on Humira but has never been told she's CV or advised to take any more care. Interested to see if she will be eligible even though just 20.

Im also on Humira for crohns. IBD nurse told me this morning that as a stand alone treatment it is classed as mild to moderate risk and group 6.

Anyone who has had Covid and not sure if your case was reported in to the research, do ask your doctor. The more outcomes that are recorded the better for understanding risks and treatment .
see rheum-covid.org/

I think that sounds right, @FascinatingCarrot. I've been moved up to Cat 4 because I'm on an immunosuppressive drug and I have metabolic disease conditions such as hypertension (high blood pressure) and Hashimoto's (thyroid). Otherwise I'd be in Cat 6.

Dermatology (the prescriber of the immune suppressant) wrote me a letter which I passed on to my GP surgery.

I am 80% covered with psoriasis and unable to get a face-to-face consultation and treatment.
I had to got to the private consultant to assess my condition and send the letter to my GP and my hospital.
My P got worse during the first lockdown when childcare was banned and I had to look after 9 months old DS (who still does not sleep through night) and do full time work. I think I had maximum 4 hours interrupted sleep every night from 24th March till 8th June. Ended up taking 3 weeks off with sleep derivation.
Protected NHS.
I have read some people in their 20s died from cancer because could not get cancer diagnosis on time.

Oh @Lily7050 that sounds so stressful. I had a similarly massive coverage of psoriasis in June. I was able to send photos via an e-consult to my GP, and was given an emergency referral to Dermatology where they started me immediately on Enstilar foam (which was amazingly effective in the short-term), and additionally started me on the biologic immune suppressant pathway in the longer term as I also have psoriatic arthritis.

One thing that slightly frustrated me was finding out that my GP could have been prescribing Enstilar all along - it hasn't been restricted solely to Dermatology departments for years.

Psoriatic Arthritis can be very debilitating and immunosuppressants are used to try to dampen the effects.

Like lupus and rheumatoid arthritis it is an autoimmune disease so as others have said the treatment is to suppress the immune system and another additional risk is a cytokine storm.

My partner has psoriasis and is on immunosupressent medication. He is on the CEV list.

Anyone with Pustular Psoriasis (Palmaplantar)? Ref Covid- don't think it's on my UK GP's records and no idea if he would include it without a consultation but it's condition that I've been fortunate to be able to manage, using Vicks to calm the inflammation. It's mostly gone into remission on my palms, although still active on the soles of my feet. Itching is absolutely unbearable, with pain when walking. DH is diabetic so we're both extra careful. I've been advised a low carb diet is beneficial as sugar from carbs creates inflammation in the body which should be avoided. Anyway, already gone off on a tangent here.. !

@FelineUK - you have a UK GP? I'd really let them know about the unbearable itching and pain when you walk.

I understood that psoriasis is basically symptoms of a cytokinins storm

I have it quite extensively but control through diet - but am never ever Ill so, no idea where I stand

@boon

My partner has psoriasis and is on immunosupressent medication. He is on the CEV list.

Can i ask what medication if you dont mind?

@Justme123123 hes on Enbrel