Psoriasis in priority group for vaccine..

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www.gov.uk/government/publications/covid-19-vaccination-care-home-and-healthcare-settings-posters/covid-19-vaccination-first-phase-priority-groups

So on the conditions list for group 6, psoriasis is listed.
I have psoriasis and have never been told I’m
in the at risk group?!
Does anyone else know anything about this!

@JamieLeesCurtains

Immune suppressants with a combination of other drugs / co-morbidities = cohort 4

Psoriasis with 'lesser' or no treatment = cohort 6

Cohort 6 for me then. I'll take that all day long

@AxMan76

Me too! I’ll gladly take Group 6.

*Agree - this is my understanding also and my fear, as a psoriasis sufferer, of cytokine storms.

I have only once seen an overseas GP about the condition who simply prescribed sleeping pills for the itching, so not on my records and unlikely to be on any priority list. Just manage it myself and try to keep safe by staying home and avoiding contact with others*

In a similar situation and a bit worried now. Would like to understand whether people with psoriasis are more at risk.

@JamieLeesCurtains

Immune suppressants with a combination of other drugs / co-morbidities = cohort 4

Psoriasis with 'lesser' or no treatment = cohort 6

I'm on Methotrexate and have never been advised to shield or been classed as ECV.

Wonder where I'll fall in the pecking order for the vaccine?

@Crunchymum I imagine you'll be in Group 6; that's what I'm anticipating as I'm only on Humira at the moment (and my consultant was very clear that I didn't need to shield or do anything special)

@Hairobsessed123

I have psoriasis and psoriatic arthritis and I think it’s the psoriatic arthritis that the list is referring to I think the wording has been misspelt and should say psoriatic x

I think it's both; I don't think you can distinguish between them either in terms of the cause or the treatments (mainly)

@mynameiscalypso
Ahhh ok I’ve just been recently diagnosed and had my first shot of steroid today I don’t know where I’ll be on the list I have no idea 🤷‍♀️ xx

Yeah I assumed group 6 too.

Was just responding to the poster who said of you are on immunosuppression medication that you are bumped up to group 4. I think that is only certain medications and with comorbidities.

Sorry to hear about your diagnosis @Hairobsessed123 - I hope the steroid shot works and gives you some relief.

@Crunchymum

Yeah I assumed group 6 too.

Was just responding to the poster who said of you are on immunosuppression medication that you are bumped up to group 4. I think that is only certain medications and with comorbidities.

Yeah; I think steroid use is the main thing that drives the risk up isn't it? Other than BMI/diabetes etc. Either way, bring it on!!

That’s interesting my husband has psoriasis but as his GP has refused to update his records to show he is a carer, refused to update his weight which will put him at risk category I doubt they’ll act on this either.

Thankyou @mynameiscalypso fingers crossed 🤞 it works !

@Hairobsessed123

I have psoriasis and psoriatic arthritis and I think it’s the psoriatic arthritis that the list is referring to I think the wording has been misspelt and should say psoriatic x

No, I don't think so; and I really hope not. Psoriasis and psoriatic arthritis are both autoimmune diseases involving, as pp have said, 'cytokine storms' (in very basic terms, the immune system over-reacting and causing damage to the host body.)

Psoriasis is frequently seen alongside other autoimmune conditions.

It's not just a skin rash, although for many patients they are 'lucky' enough to only have surface presentation.

But the fact is, no-one really knows yet how autoimmune conditions and Covid-19 react together in the long-term, across population demographics.

It's interesting that inflammatory arthritis drugs - the interleukin blockers - are now being trialled as treatments. Adalimumab (Humira / Imraldi) which is a TNF-a blocker could be next, who knows? It could be our meds have a protective rather than detrimental effect, in the end.

We are in uncharted waters.

But do get a message to your GP surgery about where you think you should be in the government hierarchy of cohorts. You've nothing to lose.

Gawd you just hope GP records are all up to date and easy to access...! I'd love to know about the admin behind all this.

By the way: for those with psoriasis my DH had the uv light therapy for his many patches last year and the difference was amazing. If you can access it I would recommend it.

@JamieLeesCurtains
Thankyou for that info !!
I’m newly diagnosed with psoriatic arthritis but I’ve had psoriasis for quiet a long time but i was told I had eczema and Acne !!!
So I don’t really know that much about the condition but I’m have been doing research to help so I do appreciate your comment x

You wouldn't have been told by anyone if you are clinically vulnerable. There are no extra precautions recommended, just to follow the guidelines which you should be doing anyway. I've been on the CV list from the start and had nothing from my GP. Only CEV get anything and have to shield.

I have psoriasis and psoriatic arthritis. I'm on multiple medications including Methotrexate. When the shielding letters went out last year I wondered if I would receive one but didn't. I asked my GP if I was CV and was told that I wasn't.

I have my first vaccination tomorrow but that is because I'm a Care Worker, not because of my psoriasis.

@bestbefore

Gawd you just hope GP records are all up to date and easy to access...! I'd love to know about the admin behind all this.

By the way: for those with psoriasis my DH had the uv light therapy for his many patches last year and the difference was amazing. If you can access it I would recommend it.

I had that for a while. It didn't help me.

[quote Hairobsessed123]@JamieLeesCurtains
Thankyou for that info !!
I’m newly diagnosed with psoriatic arthritis but I’ve had psoriasis for quiet a long time but i was told I had eczema and Acne !!!
So I don’t really know that much about the condition but I’m have been doing research to help so I do appreciate your comment x[/quote]
You can ask me anything. I've had psoriasis and psoriatic arthritis for decades. Happy to help in any way.

They key is management of the condition and there are dozens of ways to try to do that.

I accept it now.

But I also have learned that I need to be my own advocate for decent treatment.

I have questions to ask re. Psoriasis and psoriatic arthritis but don't want to derail the thread. It would be helpful to have a psoriasis section or thread somewhere!

I take Humira for psoriasis and had a letter saying I'm CEV in June (saying I should have been isolating since the start of lockdown in March!) . Phoned dermatologist to query this and they said they they had discussed every patient at a group meeting, and I was not considered to be CEV as I have no other health conditions and am on no other meds. I therefore have not shielded, just been sensible and careful.

I have had another letter by email a couple of weeks ago which again said I was CEV. Spoke again & they said same as previously, that they didn't consider shielding to be necessary. However they did say I should get the vaccine in the next month ( all the 80 and overs have been injected in our area, they are now doing the 70s age groups. )

@DrumsPleaseandTriangleToo

I have questions to ask re. Psoriasis and psoriatic arthritis but don't want to derail the thread. It would be helpful to have a psoriasis section or thread somewhere!

There is an 'Autoimmune' topic on the health board, but it's fairly quiet tbh.

You may as well ask on here!

I just checked in the Green Book I saw posted on another thread and it has Psoriasis, Lupus and RA under Immunosuppresants and does seem to be suggesting it's just for those who take those I think.
assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/948757/Greenbook_chapter_14a_v4.pdf

I can't understand why people with Auto-immune diseases generally wouldn't be a bit more vulnerable given our bodies are already carrying out the sort of attacks and inflammation that occur with Covid?

Thanks JamieLeesCurtains. I have relatively mild psoriasis - scalp, ears, bum and nails. I've read that psoriatic arthritis is more likely if you have it in nails, plus my mum has it that form too. I dread getting arthritis and have had problems with my right knee for a while but not sure whether it's arthritis or something else.

My question is - do you have to have psoriasis on the outside of the joint to have psoriatic arthritis inside it? I don't have psoriasis on that knee. I have in the past but only tiny patches. Also what does a psoriatic knee feel like? I will get it investigated eventually but want to keep away from the docs atm.

@DrumsPleaseandTriangleToo

Thanks JamieLeesCurtains. I have relatively mild psoriasis - scalp, ears, bum and nails. I've read that psoriatic arthritis is more likely if you have it in nails, plus my mum has it that form too. I dread getting arthritis and have had problems with my right knee for a while but not sure whether it's arthritis or something else.

My question is - do you have to have psoriasis on the outside of the joint to have psoriatic arthritis inside it? I don't have psoriasis on that knee. I have in the past but only tiny patches. Also what does a psoriatic knee feel like? I will get it investigated eventually but want to keep away from the docs atm.

There's no correlation for me between the joints that are bad and where the skin is bad - I've also had times when the skin is bad but the joints are fine and vice versa. My arthritis started in my knee too - one of them was basically always swollen, hot to the touch and sore/stiff if you tried to bend it. I would say that if you're worried, get it looked at sooner rather than later and started on treatment because otherwise you can end up with permanent damage to the joint.