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Disability and the covid response - it feels unfair...

91 replies

OpheliasCrayon · 21/07/2020 08:32

I maybe come across as fairly crappy on other posts because I'm not bothered by Corona and carry on with life as normal as much as is possible without risking others.

I'm just wondering if there's any disabled people out there who feel the same as me, or if anyone who isn't disabled has considered this?

The covid response has pissed me off. Not because I don't want to keep people safe, of course I do. I don't want people gravely ill or dying if they don't have to be!!!

But there have been people at risk of illnesses and unable to work since the start of time, but we have been largely ignored and any accomodations we want , need and are entitled to are a fight.

There are many illnesses which would put me at risk, but I go to work and always have done with no PPE and no allowances are made or provisions put in place to stop me getting ill. It's just tough luck if I do , but the results of some illnesses would be much more devastating to me than covid.

I've been too unwell to go into work more times than I could possibly count, but I've been able to work from home. But this has been a gigantic fight and battle, where I've had my pay taken off me unfairly, I've had to fight to be allowed to so things, to have accommodations made, and have had to get the unions involved because employers have refused to give me what I'm entitled to.

People suddenly think it's a good idea to wash their hands, take precautions to not make other people unwell, are allowed to work at home and are provided with means to do so etc etc the list goes on.

Suddenly when something affects EVEYONE potentially, the world goes into meltdown and allowances are made for everyone. But what about us? Who are always at risk? Who always struggle to go into work physically? Where has the help been before now?

I don't think the covid response shouldn't happen , but I do feel even more aggrieved that until now, my needs and the needs of countless other disabled people I know, have been pushed aside.

OP posts:
OpheliasCrayon · 21/07/2020 15:02

@Nat6999

Disabled people are treated as second class citizens in this country, having to go through the horrific assessment process when applying for benefits, having to answer questions on personal & distressing matters, the mental distress of actually going through it. Employers will do anything they can get away with not by employing or making special arrangements for a disabled person. Disabled children are not given the best support in schools, parents have to fight for every bit of support they need, EHCP's are almost impossible to get, parents have to go through tribunals that cost thousands to get their child the specialist school place they need.
Yes this is correct When I was younger I used to not say I was disabled and just try to manage at work without anyone knowing. I can't do that anymore and I wouldn't be able to take a job without stating it, but I always feel sad that I, and many other people do this
OP posts:
iloveeverykindofcat · 21/07/2020 15:33

"Yet when EVERYONE needs accomodations..and everyone is at risk...it's all suddenly different"

Yeah but that's not because the government or society in general cares about every individual person. Its because if everyone gets sick the economy collapses, the health service collapses, education collapses, etc.

OpheliasCrayon · 21/07/2020 15:51

@iloveeverykindofcat

"Yet when EVERYONE needs accomodations..and everyone is at risk...it's all suddenly different"

Yeah but that's not because the government or society in general cares about every individual person. Its because if everyone gets sick the economy collapses, the health service collapses, education collapses, etc.

That doesn't mean it's ok though that before all this the individual didn't matter
OP posts:
EricLove123 · 21/07/2020 15:55

@iloveeverykindofcat

Exactly! It's not that suddenly employers (or society) have become understanding, helpful or caring.

It's not that they didn't care about people with disabilities or vulnerabilities before but suddenly care if they or their loved ones may be effected.

That's not why they've made adjustments.

They've been forced into a situation and if they don't or can't adapt - they go under. Even if they put adaptations in place, it's not been easy and has had a massive adverse effect.

PoopyPanda · 21/07/2020 17:02

@SilenceOfThePrams

I get it.

Person with a disability needs to work from home. Can’t be done, confidentiality, expense of providing laptop, video conferencing not secure, need to be present.

Covid comes.

Entire office suddenly able to work from home.

Disabled person needs to work slightly different hours to accommodate complex necessary morning routine. Can’t be done.

Covid comes.

Entire office now able to work around childcare related tasks.

Not work related - all the threads about closed loos and lack of access to toilets. Any disabled person needing a hoist has been living like this for years.

Sorry, this was the post I meant to quote in my post, and say “Precisely this.”
Haretodaygonetomorrow · 21/07/2020 17:11

Haven’t read the full thread but agree with your opening post. I was astounded that people needed to be told how to wash their hands, and when.

I also think the response to coronavirus has discriminated against people with disabilities. Most places local to me have taken over the disabled parking places and converted that area into a queuing area. So if you are disabled and need to fully open your door to get out the car, the best you can hope for is a parking spot that is empty next to you, both when you need to get out the car, and when you come back to it.

I have postural orthostatic tachycardia, which means that when I stand still in one place my heart rate rockets and I feel on the verge of fainting. During lockdown I’ve regularly driven to the shops and had to turn straight around when I find the queue is so long that I physically cannot stand and wait in it.

OpheliasCrayon · 21/07/2020 17:42

@Haretodaygonetomorrow

Haven’t read the full thread but agree with your opening post. I was astounded that people needed to be told how to wash their hands, and when.

I also think the response to coronavirus has discriminated against people with disabilities. Most places local to me have taken over the disabled parking places and converted that area into a queuing area. So if you are disabled and need to fully open your door to get out the car, the best you can hope for is a parking spot that is empty next to you, both when you need to get out the car, and when you come back to it.

I have postural orthostatic tachycardia, which means that when I stand still in one place my heart rate rockets and I feel on the verge of fainting. During lockdown I’ve regularly driven to the shops and had to turn straight around when I find the queue is so long that I physically cannot stand and wait in it.

Yes, ive not been able to access a lot of places. Sometimes it's because there's no toilets (although there are now and I have a radar key), but I can't stand and queue, so like you I've had to not go shopping for essentials etc,

I could get deliveries I am aware, I was on the shielding list. But I decided not to shield as I didn't want to keep my kids away from stuff (there are other medical reasons but that's not needed ), so I also turned down delivery slots etc as me or my husband could go, & I didn't want to take slots from people who genuinely had no options but... Then on many occasion I've not been able to go and wait etc. It's put a lot of extra work on my husband

OP posts:
TheGoldenApplesOfTheSun · 21/07/2020 18:13

You've absolutely nailed it, OP. My last workplace made such a fuss about my working from home sometimes for medical appointments, but now everyone at that office is WFH... It's soooo hard and then suddenly everyone's doing it just fine. When I think back to the beginning of the year, I was trying to apply for remote-friendly jobs in my industry and struggling. Now literally all the jobs that are left are remote-friendly.

It sucks balls that people act like something's impossible when you know very well it's not, then change their attitude around because it suddenly affects them. I'm just waiting for things to go back to "normal" inflexible work. There's such a strong strain of presenteeism in this country. Even if you have proven you can do just as well from home, they'd still rather have some useless bloke who can prop up a desk in the office and "network". Ugh.

HeIenaDove · 21/07/2020 18:20

www.dailyrecord.co.uk/news/scottish-news/disabled-scots-lawyer-disgusted-after-22380425?fbclid=IwAR0kTWJTrE-LAf-DL2YN0JXuvl-0tJ8sKWy5z4MsjiXwfRxyrA1gV_VnhUA

Disabled Scots lawyer 'disgusted' after being harassed and refused entry to shops without face mask
Daniel Donaldson has hidden disabilities and says he has been taken aback by the treatment he has received on the street from strangers

A disabled Scots lawyer claims he has been regularly harassed and abused by strangers for not wearing a face mask in shops.

Daniel Donaldson has hidden respiratory disabilities and is exempt from wearing a mask.

The 40-year-old, who is a disability rights lawyer, says he has been left ‘disgusted’ by the discriminatory treatment directed towards him and others who are permitted to not wear a face covering in public.

He claims he has been confronted by strangers, subjected to vile verbal attacks and refused entry into stores since face masks were made mandatory in shops in Scotland on July 10.

Daniel told the Daily Record: “I have hidden disabilities and underlying medical conditions and therefore I am exempt from wearing a mask.

“However I have been utterly taken aback at the treatment I, and others in similar situations, have experienced since they were made compulsory two weeks ago.

We are being discriminated against and refused access to shops on some occasions, and that is just not acceptable.

“I’m disgusted.

“Just last week I was stopped in John Lewis by a customer who demanded to know where my mask was.

“I said I am exempt and then a further explanation was demanded, to which I told the person to ‘p* off’ because it’s a breach of my privacy.

"Face masks affect my breathing. This raises my respiration. This increases my heart rate. This causes distress. To wear this, I need to take diazepam. In addition to the regular medications, and liquid steroids to help keep my airways open

Daniel also slammed the Scottish Government for “rushing through” confusing legislation to enforce the new rule.

He added: “The problem is, the Scottish Government published this law three hours before it was introduced.

“There was no consultation with disability groups, no taking into account how it would affect them.

"The guidance is confusing, and doesn't make it clear that we don't need medical evidence to prove we are exempt."

Daniel, from Glasgow, says he was desperate to get out and about after being cooped up at home since the end of February.

He has been relishing the easing of restrictions but was not prepared for the amount of people who would challenge him in the street or in shops over his lack of PPE.

Daniel said: “I’m not jumping on the anti-face mask bandwagon here, I just believe people with disabilities who are exempt have the right not to be harassed going about their lives.

“Disabled people are not lepers, we are not going out there to spread the virus, and if staff and other customers are wearing their face masks, they have nothing to worry about, they are protected.

“So I’m just trying to raise a bit of awareness as we all try to get back to a bit of normality because it has been a lonely time for all of us and it’s not fair that some are feeling worry about finally getting to go into shops.”

Daniel, who runs the Disability Law Centre in Glasgow, has been using his organisation’s Facebook page to raise awareness and call shops out for discriminatory treatment.

He has also stepped in when he has witnessed harassment of others.

He added: “I have intervened in a number of incidents and I try to help as much as I can.

“Last week a security guard at a shop in Glasgow was trying to stop a young girl from entering because she didn’t have a mask, even though she was explaining why she couldn't wear one.

“He was intimidating her and I was not happy with his tone to this young girl, another woman said it was disgusting, so I took it up with management and they apologised profusely.

“But we can’t be there to see all these incidents unfold.”

Proof of exemption is also not a suitable solution to the issue, according to Daniel.

He said: “Things like exemption lanyards or so called medical evidence will not work.

“If you put a lanyard on, it’s like putting a big disability sticker on you forehead.

“All we can do for now is raise awareness because the system right now is not working.

“It makes me wary to go out but I will continue to live my life and try to help others do the same.”

A Scottish Government spokesperson said: “As the First Minister has said, no one should be abused or treated in an unacceptable way and those exempt under the regulations should not be made to wear a face covering or denied access to shops.

"Retailers can ask people to wear a face covering, but should be understanding when people tell them they are exempt and we do not expect staff to enforce the wearing of face coverings.

“The guidance on the use of face coverings by the public is contained in the Phase 3 Staying Safe and Protecting others guidance on the Scottish Government website.

This makes clear that it may not be appropriate for those who have a health condition or for disabled people to wear a face covering.

“For those who are not exempt, it is now mandatory to wear a face covering on public transport and in shops or other retail outlets, and we expect face coverings to be worn when in an enclosed public space where it is difficult to maintain two metres physical distance and where there is a risk of close contact with multiple people you do not usually meet.”

Find out more about Daniel's campaign to promote awareness of hidden disabilities here

OpheliasCrayon · 21/07/2020 19:40

@TheGoldenApplesOfTheSun

You've absolutely nailed it, OP. My last workplace made such a fuss about my working from home sometimes for medical appointments, but now everyone at that office is WFH... It's soooo hard and then suddenly everyone's doing it just fine. When I think back to the beginning of the year, I was trying to apply for remote-friendly jobs in my industry and struggling. Now literally all the jobs that are left are remote-friendly.

It sucks balls that people act like something's impossible when you know very well it's not, then change their attitude around because it suddenly affects them. I'm just waiting for things to go back to "normal" inflexible work. There's such a strong strain of presenteeism in this country. Even if you have proven you can do just as well from home, they'd still rather have some useless bloke who can prop up a desk in the office and "network". Ugh.

Exactly my point.

I've gone out of my way to "make up" for the fact that I've needed accomodations, as I've been made to feel like I'm such a burden ....

Only now they're just the norm

OP posts:
SheepandCow · 23/07/2020 15:19

There may be some disabilities that make people struggle to wear masks, but from the other side there are many many disabled people who desperately need people to wear masks. From tomorrow vulnerable higher risk groups will be safer if and when they go out.

Disabled people have died in disproportionately high numbers from Corona.
It's wrong to suggest masks are a problem for the majority of disabled people. It's the opposite.

Spikeyball · 23/07/2020 15:31

There may be some disabilities that make people struggle to wear masks."

I think you mean there are some disabilities that make people struggle to wear masks. There obviously are. Many of them are also clinically vulnerable. They aren’t two distinct groups.

HeIenaDove · 25/07/2020 17:12

www.disabilitynewsservice.com/coronavirus-fears-over-face-covering-hate-crime-as-new-laws-go-live/

Coronavirus: Fears over ‘face covering hate crime’ as new laws go live
By John Pring on 23rd July 2020
Category: Crime

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Disabled people have raised serious concerns about the rising tide of coronavirus-related disability hate crime, amid fears that this could increase even further when new laws on the wearing of face coverings go live tomorrow.

From tomorrow (Friday), it will be compulsory to wear a face covering in shops and supermarkets in England.

Many disabled people are exempt, the government has made clear.

But despite those exemptions, many disabled people who cannot wear face coverings have already been subjected to disability-related hostility online and while travelling on public transport, where it is already compulsory – except for those with exemptions – to wear a face covering.

Stephen Brookes, a former coordinator of the Disability Hate Crime Network and now an ambassador for Disability Rights UK, has written to key figures in government, the police, the Crown Prosecution Service (CPS) and disability organisations about his concerns on “mask hostility”.

He says in his letter: “In my 12 years of dealing with disability hate crime up to June 2018, it was clear that abuse of disabled people has always been problematic at times of tension, but we are now in uncharted territory, which is supported by examples we are seeing at all levels.”

Brookes (pictured, left), who is also the minister for disabled people’s rail sector champion, although he was not speaking in that capacity, added: “We must both re-assure and support disabled people in terms of real hostility and remind perpetrators that verbal abuse can still be recognised as a potential hate crime and as such will not be tolerated.

“Can we all take stock and ensure that disabled people are not bullied out of any normal life we should be able to expect, and remind the public and those who affect our lives that the added pressure of fear should not be added to an already difficult situation.”

He has also now raised concerns about comments made during a radio interview yesterday (Wednesday) by the Metropolitan police’s commissioner, Cressida Dick.

Asked about customers who were refusing to wear masks in shops, she told LBC: “My hope is that the vast majority of people will comply, and that people who are not complying will be shamed into complying or shamed to leave the store by the store keepers or by other members of the public.”

Brookes said: “This statement by Met chief Cressida Dick is most seriously unhelpful, and potentially could lead to hostility and hate crime against those who can’t wear face masks.

“She needs to change and clarify that view most urgently.”

Last week, Fazilet Hadi (pictured, centre), head of policy for Disability Rights UK, called on the government to recognise the need for “balanced messaging” on face coverings, including “that some disabled people cannot wear face coverings and that this should be respected”.

She told the minister for disabled people, Justin Tomlinson, in a letter: “If the messaging doesn’t change, millions of disabled people will not be able to safely leave their homes.

“For those of us that do, we will experience fear, anxiety, possible conflict with public and police and demands to prove our impairment/illness.”

Inclusion London is the lead organisation for the London DDPO Hate Crime Partnership, working with 20 Deaf and disabled people’s organisations (DDPOs) across the capital.

During the coronavirus crisis, it has been running a weekly survey of DDPOs that run hate crime advocacy services on the incidence and types of hate crime disabled people have experienced during lockdown, and now it is being eased.

Its latest weekly survey found 62 per cent of DDPOs reported an increase in disability hate crime referrals on the previous week.

Among the trends, Inclusion London has seen a rise in disability hate crime by neighbours of disabled people, and an increase in cases of disabled people being spat at while out in public because of the mistaken idea that disabled people are “virus spreaders”.

There has also been an increase in online hate crime, with disabled people “told that their lives are inferior and [that they] are taking up resources from non-disabled people”.

Disabled people have also reported being targeted while shopping if they have personal assistants or carers with them or if they need priority in shopping queues.

Inclusion London said: “Disability hate crime during the coronavirus pandemic has not come from nowhere – the image of disabled people as virus spreaders and taking resources from non-disabled people must be tackled.”

It added: “The core belief that disabled people’s lives are of less value than non-disabled people must be continually challenged through working closely with DDPOs.”

Another to have become concerned about online disability hate crime is disabled campaigner Victoria Langley.

She said she had been told on social media that disabled people like her should be locked inside until there was a vaccine because they “are more likely to catch it and pass it on”.

One nurse told her on Instagram that all those not wearing masks should be forced to sign away their rights to health equipment and treatment by health professionals who are “risking their lives because of you”.

Another woman told her on Instagram: “Trees are awesome and worth sobbing over.

“Bus drivers getting killed because they’re doing their job are worth sobbing over, people who don’t wear a mask because they are disabled, not worth sobbing for.

“I looked at your profile, you seemed fine???”

Langley said she found the widespread hostile comments on social media “scary” as a disabled person.

She said: “It’s made me petrified to go out.

“I’m scared to go out because people are not just being hostile, they do not care that being disabled makes it hard.

“I feel totally scared and boxed in with zero support.

“The government are ending all support and saying go out, but the general public want us locked in. I feel helpless and scared.”

Disabled researcher, author and campaigner David Wilkin (pictured, right) has been collecting examples of disabled people who have been subjected to disability-related hostility linked to the government’s COVID-19 regulations.

Wilkin, the lead coordinator of the Disability Hate Crime Network, has already collected more than 50 such cases.

One disabled passenger on public transport, who cannot wear a face covering, was targeted by another passenger, who shouted: “This person hasn’t got a mask. This person is trying to infect us. They are trying to kill us.”

A disabled train passenger who did not have a face mask because of breathing difficulties was confronted by another passenger, who refused to listen to their explanation, took a spare mask out of their pocket and forced them to put it on.

Wilkin said: “They were under so much pressure that they put the face mask on and left the train.

“They felt that was the only way to placate the offender.”

Wilkin said he was concerned there would be further cases when the ban in shops and supermarkets comes into force tomorrow.

He said: “It’s definitely a concern. It’s bad enough to be grounded because you don’t want to use public transport, but you have to eat.

“The general concern is that the government, while they have delivered clear messages about face coverings… are not making the same number of messages about the exemptions.

“That is causing real problems.”

But he said he believed the government and public bodies were listening, as he has online meetings next week with both the Cabinet Office and CPS.

A CPS spokesperson told Disability News Service (DNS): “The law exempts those who cannot put on or wear a face covering because of physical or mental illness or impairment, or disability while using public transport.

“The same exemption will apply when face coverings become mandatory in shops.

“Our updated guidance to prosecutors will make this clear.

“If disabled people are victims of hate crime as a result then the CPS won’t hesitate to prosecute perpetrators if our legal test is met.”

Deputy chief constable Mark Hamilton, hate crime lead for the National Police Chiefs’ Council, told DNS in a statement: “We understand that many disabled people, and particularly those with ‘hidden’ disabilities, could be worried about being challenged by others if they are not wearing face coverings in a setting that requires it.

“Government guidelines set out a number of exemptions to the wearing of masks, including on grounds of disability.

“Some external organisations have developed ways to indicate that an individual is exempt, such as wearing badges.

“The government and the police have developed extensive guidance on these requirements, and police officers across the country have received training on how to recognise where an individual may have an exemption due to disability.”

He added: “Any disabled person who is victim of hate crime should report it to the police by either calling 999 (in an emergency) or 101.

“Additionally, you can report crime online at True Vision (report-it.org.uk). True Vision also contains helpful information and guidance materials on disability hate crime and COVID-19

DemelzaRobins · 26/07/2020 10:47

I understand what you mean OP. My employer is good at making adjustments, but they take ages - I have had waits of around 10-12 months for equipment.

I also had a huge battle to get one item (think ergonomic keyboard). At one point someone in HR tried to refuse it on the grounds that 'well if we give you one everyone else will want one too'.

I got it in the end, but it took a year to get it. Not one of my colleagues has demanded that they also be given the same item, as they don't need it and can therefore use the standard version with no issues!

elliejjtiny · 26/07/2020 13:05

We got a letter from the headteacher of my sons secondary school explaining the new health and safety measures for September. They have removed all my autistic 14 year old's support without even telling me personally. I had to find out in a generic letter. I will of course be emailing the head and saying that it's not acceptable but it shouldn't have happened in the first place.

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